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1.
JAMA Neurol ; 81(2): 111-112, 2024 Feb 01.
Article in English | MEDLINE | ID: mdl-38079166

ABSTRACT

This essay describes the author's experience balancing the different necessities in medical practice, in particular writing perfect patient notes vs establishing a face-to-face connection.

2.
Child Neurol Open ; 9: 2329048X221077775, 2022.
Article in English | MEDLINE | ID: mdl-35155715

ABSTRACT

A graduating child neurology resident reflects upon how her first neurology "patient" single-handedly taught her an entire textbook worth of knowledge and became the guiding force that led her to leave general pediatrics.

4.
Curr Neurol Neurosci Rep ; 21(4): 14, 2021 02 28.
Article in English | MEDLINE | ID: mdl-33646409

ABSTRACT

PURPOSE OF REVIEW: The COVID-19 pandemic has provided us with a unique opportunity to experiment with telehealth and evaluate its benefits and limitations. This review discusses the impact of telehealth on multiple sclerosis (MS) care and research in adults and children. RECENT FINDINGS: Telehealth visits for MS patients have been shown to reduce missed workdays and costs for patients. Brief telephone-based counseling may be associated with better adherence to disease-modifying therapy, although results of multiple home-based tele-rehabilitation for people with MS have been equivocal. Overall, patients and providers have reported high levels of satisfactions with telehealth. Several remote disability measures and numerous other technological tools have emerged for use in remote MS research and care. Major challenges of telehealth include limitations to performing a complete neurologic exam and disparities in access to telehealth amongst vulnerable populations with limited access to virtual platforms. Following the rapid expansion of telehealth during the pandemic, it is highly likely that we will continue to embrace the benefits of this valuable tool. Future directions for improving telehealth should include more evidence-based research on the diagnostic accuracy in neuroimmunology and reducing disparities in the access to telehealth.


Subject(s)
COVID-19 , Multiple Sclerosis , Telemedicine , Adult , Child , Humans , Multiple Sclerosis/therapy , Pandemics , SARS-CoV-2
5.
Child Neurol Open ; 7: 2329048X20966172, 2020.
Article in English | MEDLINE | ID: mdl-33241072

ABSTRACT

Although pediatric myelin oligodendrocyte glycoprotein (MOG) antibody-associated disease is increasingly well-recognized, its full clinical spectrum is still being defined. Cortical encephalitis is emerging as a distinct clinico-radiologic syndrome of adult MOG antibody-associated disease. We describe a 12-year-old girl who presented with new onset seizures and left-sided hemiparesis. Brain MRI showed edema of the right temporal-parietal-occipital cortex with associated focal leptomeningeal enhancement. Patient received high-dose corticosteroids and 21 days of acyclovir despite negative infectious work-up due to the focal nature of encephalitis. Patient remained seizure-free for 20 months before presenting with new right hemiclonic seizures with right-sided hemiparesis and edema of the left temporal-parietal cortex with associated leptomeningeal enhancement. Patient's MOG antibody titer was 1:40. She completed high-dose corticosteroids and intravenous immunoglobulin. Our patient highlights the importance of MOG antibody testing in pediatric focal cortical encephalitis to avoid unnecessary anti-viral agents and provide more appropriate immunotherapy and a more informed prognosis.

6.
J Child Neurol ; 35(13): 908-911, 2020 11.
Article in English | MEDLINE | ID: mdl-32677499

ABSTRACT

Many parents of children do not recall anticipatory guidance on acute seizure management, which can lead to unnecessary emergency department visits. This quality improvement project evaluated if adding a video simulation of seizure first aid improved parental recall. Parents of children with seizures were randomized to standard verbal counseling or video group, which were shown a video simulation of seizure first aid. All families also received a standardized written action plan. Eighty-three patients were randomized from July to October 2018. Overall, 53% of families who received standard counseling accurately recalled seizure first aid compared with 31% in video group (χ2 = 3.24, P = .07). Among families without baseline knowledge of seizure first aid, 43% in the standard counseling group recalled accurately compared with 16% of video group (χ2 = 4.52, P = .03). These results underscore the importance of face-to-face patient education despite the popularity of video-based media. Future Plan-Do-Study-Act cycles will include piloting a hands-on seizure first aid simulation with mannequins.


Subject(s)
First Aid/methods , Health Knowledge, Attitudes, Practice , Mental Recall , Parents , Quality Improvement , Seizures/therapy , Simulation Training/methods , Adult , Child , Humans , Videotape Recording
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