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Ann Palliat Med ; 8(4): 401-410, 2019 Sep.
Article in English | MEDLINE | ID: mdl-30943744

ABSTRACT

BACKGROUND: The population of end-stage renal failure (ESRF) receiving dialysis treatment is increasing worldwide. For most patients with ESRF, dialysis can extend their life. However, treatment can be demanding and time-consuming. Despite dialysis treatment, many patients continue to experience various sufferings. METHODS: A qualitative study was conducted with semi-structured interviews to explore the experiences of suffering of ESRF patients on maintenance dialysis in Malaysia. The results were thematically analyzed. RESULTS: Nineteen ESRF patients were interviewed. The themes and subthemes were: (I) physical suffering-physical symptoms and functional limitations, (II) psychological suffering-the emotions and thoughts of suffering, (III) social suffering-healthcare-related suffering and burdening of others and (IV) spiritual suffering-the queries of suffering. CONCLUSIONS: These findings may help healthcare professionals to fill in the gaps in the delivery of best renal palliative care.


Subject(s)
Kidney Failure, Chronic/psychology , Pain/psychology , Palliative Care/psychology , Stress, Psychological/etiology , Adult , Aged , Female , Humans , Interpersonal Relations , Kidney Failure, Chronic/epidemiology , Kidney Failure, Chronic/therapy , Malaysia/epidemiology , Middle Aged , Palliative Care/standards , Renal Dialysis/psychology , Spirituality , Stress, Psychological/epidemiology , Young Adult
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