ABSTRACT
Objetivo:Describir el proceso de adaptación cultural del programa CASCAdE en línea para padres de supervivientes de cáncer infantil mexicanos. Método: Se utilizó el Modelo Ecológico de Validación (MEV), en dos fases: la primera consistió en la traducción (inglés-español) y adaptación cultural de los contenidos del programa; la segunda fue la evaluación del contenido e integridad del tratamiento. Resultados:Se realizaron cambios en la redacción del texto, se modificó el uso de la segunda persona del singular por la tercera persona del singular usted. Del MEV se eligieron para adaptación de materiales: Lenguaje, Personas, Metáforas o dichos, Narrativa y Conceptos. Entre los cambios más relevantes se encuentran el uso de la tercera persona del singular (aceptabilidad) y la adaptación de metáforas que fueran entendibles en este contexto (relevancia). Para la intervención se adaptaron: Métodos, contexto y objetivos, dando como resultado la aplicación individual, cambios en el diseño gráfico e inclusión de iconografías llamativas y amigables para los padres (aceptabilidad). En la evaluación del contenido por jueces expertos se obtuvieron porcentajes del 50% de acuerdo en redacción de las sesiones de introducción del manual para el facilitador y 75% en redacción de la sesión cuatro del manual para padres. Conclusión: Este estudio muestra el proceso de adaptación cultural desde el MEV a fin de contar con los materiales necesarios para que la aplicación del programa CASCAdE en un contexto mexicano (AU)
Objective:Describe the process of the cultural adaptation of the CASCAdE intervention program for parents of childhood cancer survivors in Mexico. Method: The Ecological Validation Model (EVM) was used in two stages. The first consisted of the translation (from English to Spanish) and cultural adaptation of the program content while second involved the evaluation of the treatment content and integrity. Results. Changes were made in the wording of the text; the second person singular was changed to the third person singular usted, the formal way to say you in Spanish. The following were chosen from the EVM for the adaptation of materials: language, people, metaphors, or sayings, narrative and concepts. Among the most relevant changes are the use of the third person singular (acceptability) and the adaptation of metaphors to make them understandable in this context (relevance). The following aspects were adapted for the intervention: methods, context, and objectives, which resulted in individual application, changes in graphic design and the inclusion of attractive images for parents (acceptability). In the content evaluation by expert judges, 50% of agreement was obtained in the writing of the introductory sessions of the facilitators manual and 75% in the wording of session four of the parents manual. Conclusions. This study shows the process of cultural adaptation based on the EVM to obtain the necessary materials for the implementation of the CASCAdE program in a Mexican context (AU)
Subject(s)
Humans , Male , Female , Child, Preschool , Child , Adolescent , Cancer Survivors/psychology , Cognitive Behavioral Therapy , Parents/psychology , Cultural Characteristics , Translations , MexicoABSTRACT
BACKGROUND: Parents of childhood cancer survivors may be vulnerable to experiencing poor health outcomes, but little is known about how these parents use healthcare. This study investigated the nature and extent of survivors' parents' healthcare and medication use relative to a comparison group. We also examined whether demographic or cancer-related factors were related to healthcare use and whether healthcare use was associated with parents' general functioning. METHODS: We conducted a cross-sectional study involving 55 parents of cancer survivors recruited through eight Australian hospitals, and 135 parents of children without a cancer diagnosis, through an online recruitment platform. Participants responded to a questionnaire assessing their health service usage, regular medications, general functioning (engagement activities including work/study) and anxiety and depression symptoms (using PROMIS short forms). We performed regression analysis to determine factors related to healthcare and medication use in parents of survivors. RESULTS: More parents of survivors reported accessing mental health services than comparison parents (56% vs. 33%, p=.003), mainly due to their use of social workers. Fewer parents of survivors reported accessing other community health services, particularly general practitioners (51% vs. 78%, p<.001). Having a child survivor who was male was associated with greater use of community health services (B= -0.67, p=.008). No other demographic or cancer-related variables were associated with health service use. Health service use was not associated with general functioning, but greater medication use was associated with higher anxiety scores (B = 1.41, p=.008). CONCLUSION: Parents of childhood cancer survivors showed different patterns of health service use relative to comparison parents, but the extent of their use was not significantly linked with demographic or cancer-related variables. Comprehensive assessment of parents' needs in clinical encounters remains vital to identify and appropriately match support needs with available services.
