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1.
J Autism Dev Disord ; 49(11): 4707, 2019 Nov.
Article in English | MEDLINE | ID: mdl-31468274

ABSTRACT

During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript.

2.
J Autism Dev Disord ; 49(9): 3786-3797, 2019 Sep.
Article in English | MEDLINE | ID: mdl-31172337

ABSTRACT

The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline.


Subject(s)
Attitude , Autism Spectrum Disorder/psychology , Biomedical Research , Caregivers/psychology , Adolescent , Adult , Child , Female , Humans , Male , Stakeholder Participation
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