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2.
Open Med (Wars) ; 18(1): 20230674, 2023.
Article in English | MEDLINE | ID: mdl-37009051

ABSTRACT

The objective of this cross-sectional study was to investigate health management, well-being, and pandemic-related perspectives of chronic disease patients in the context of stringent measures, and associated correlates. A self-report survey was administered during the Omicron wave lockdown in Shanghai, China. Items from the Somatic Symptom Scale (SSS) and Symptom Checklist-90 were administered, as well as pandemic-related items. Overall, 1,775 patients (mostly married females with hypertension) were recruited through a community family physician group. Mean SSS scores were 36.1 ± 10.5/80, with 41.5% scoring in the elevated range (i.e., >36). In an adjusted model, being female, diagnosis of coronary artery disease and arrhythmia, perceived impact of pandemic on life, health condition, change to exercise routine, tolerance of control measures, as well as perception of future and control measures were significantly associated with greater distress. One-quarter perceived the pandemic had a permanent impact on their life, and 44.1% perceived at least a minor impact. One-third discontinued exercise due to the pandemic. While 47.6% stocked up on their medications before the lockdown, their supply was only enough for two weeks; 17.5% of participants discontinued use. Chief among their fears were inability to access healthcare (83.2%), and what they stated they most needed to manage their condition was medication access (65.6%). Since 2020 when we assessed a similar cohort, distress and perceived impact of the pandemic have worsened. Greater access to cardiac rehabilitation in China could address these issues.

3.
Article in English | MEDLINE | ID: mdl-34831732

ABSTRACT

Physical activity behaviour is complex, particularly in low-resource settings, while existing behavioural models of physical activity behaviour are often linear and deterministic. The objective of this review was to (i) synthesise the wide scope of factors that affect physical activity and thereby (ii) underpin the complexity of physical activity in low-resource settings through a qualitative meta-synthesis of studies conducted among patients with cardiometabolic disease living in low-to-middle income countries (LMIC). A total of 41 studies were included from 1200 unique citations (up to 15 March 2021). Using a hybrid form of content analysis, unique factors (n = 208) that inform physical activity were identified, and, through qualitative meta-synthesis, these codes were aggregated into categories (n = 61) and synthesised findings (n = 26). An additional five findings were added through deliberation within the review team. Collectively, the 31 synthesised findings highlight the complexity of physical activity behaviour, and the connectedness between person, social context, healthcare system, and built and natural environment. Existing behavioural and ecological models are inadequate in fully understanding physical activity participation in patients with cardiometabolic disease living in LMIC. Future research, building on complexity science and systems thinking, is needed to identify key mechanisms of action applicable to the local context.


Subject(s)
Cardiovascular Diseases , Developing Countries , Cardiovascular Diseases/epidemiology , Delivery of Health Care , Exercise , Humans , Poverty , Qualitative Research
4.
Glob Heart ; 16(1): 17, 2021 02 24.
Article in English | MEDLINE | ID: mdl-33833941

ABSTRACT

Background: Patient education is the first step in implementing a cardiac rehabilitation (CR) program and a powerful tool for promoting behavioral changes in cardiac patients. In China, the clinical workload is so heavy that a short and reliable tool for assessing disease-related knowledge is needed for targeted patient education. Objective: The aim of this study was to translate, adapt and validate the Chinese version of the Coronary Artery Disease Education Questionnaire - Short Version (CADE-Q SV). Methods: The CADE-Q SV was translated to simplified Chinese and culturally adapted to the Chinese context. The translated version was reviewed by a committee of seven experts in cardiovascular disease, and the content validity of the questionnaire was established. The psychometric properties of the questionnaire were analyzed considering the responses of 240 CR patients. The Kuder-Richardson-20 (KR-20) coefficient and Cronbach's alpha were used to assess internal consistency. The intraclass correlation coefficient (ICC) was used to assess test-retest reliability. The criterion-related validity was evaluated by determining whether there were differences in the total scores of patients with different educational levels. Confirmatory factor analysis (CFA) was used to assess the factor structure. Results: Three items from the original version were adapted to reflect Chinese culture. The content validity index was 0.94. The KR-20 score was 0.856. All ICC values were > 0.70. The knowledge scores of patients with different educational levels were significantly different, indicating that the criterion-related validity of the Chinese CADE-Q-SV was acceptable. CFA validated the five-factor structure of the Chinese CADE-Q-SV. Conclusion: The Chinese CADE-Q SV questionnaire has good reliability and validity. This short, efficient tool can be completed quickly, assess disease-related knowledge in cardiovascular patients and serve as a reference for individualized patient education in China. It can also be used to evaluate the effectiveness of CR-related patient education interventions.


Subject(s)
Cardiac Rehabilitation , Coronary Artery Disease , China , Coronary Artery Disease/diagnosis , Health Knowledge, Attitudes, Practice , Humans , Reproducibility of Results , Surveys and Questionnaires
5.
BMC Health Serv Res ; 19(1): 615, 2019 Sep 02.
Article in English | MEDLINE | ID: mdl-31477103

ABSTRACT

BACKGROUND: Despite clinical practice guideline recommendations that cardiovascular disease patients participate, cardiac rehabilitation (CR) programs are highly unavailable and underutilized. This is particularly true in low-resource settings, where the epidemic is at its' worst. The reasons are complex, and include health system, program and patient-level barriers. This is the first study to assess barriers at all these levels concurrently, and to do so in a low-resource setting. METHODS: In this cross-sectional study, data from three cohorts (healthcare administrators, CR coordinators and patients) were triangulated. Healthcare administrators from all institutions offering cardiac services, and providers from all CR programs in public and private institutions of Minas Gerais state, Brazil were invited to complete a questionnaire. Patients from a random subsample of 12 outpatient cardiac clinics and 11 CR programs in these institutions completed the CR Barriers Scale. RESULTS: Thirty-two (35.2%) healthcare administrators, 16 (28.6%) CR providers and 805 cardiac patients (305 [37.9%] attending CR) consented to participate. Administrators recognized the importance of CR, but also the lack of resources to deliver it; CR providers noted referral is lacking. Patients who were not enrolled in CR reported significantly greater barriers related to comorbidities/functional status, perceived need, personal/family issues and access than enrollees, and enrollees reported travel/work conflicts as greater barriers than non-enrollees (all p < 0.01). CONCLUSIONS: The inter-relationship among barriers at each level is evident; without resources to offer more programs, there are no programs to which physicians can refer (and hence inform and encourage patients to attend), and patients will continue to have barriers related to distance, cost and transport. Advocacy for services is needed.


Subject(s)
Cardiac Rehabilitation , Developing Countries , Health Resources/supply & distribution , Health Services Accessibility , Hospital Administrators/psychology , Aged , Brazil , Cardiovascular Diseases , Cross-Sectional Studies , Female , Health Services Accessibility/statistics & numerical data , Humans , Male , Middle Aged , Referral and Consultation , Surveys and Questionnaires
6.
Patient Prefer Adherence ; 12: 1587-1596, 2018.
Article in English | MEDLINE | ID: mdl-30214161

ABSTRACT

OBJECTIVES: It is necessary to assess disease-related knowledge in patients with coronary artery disease (CAD) for tailored patient education; however there is a lack of a well-validated measurement in China. The objective of this study was to translate and validate a Chinese version of the Coronary Artery Disease Education Questionnaire-II (CADEQ-II). METHODS: The Chinese version of CADEQ-II was translated and culturally adapted. Then, it was tested for psychometric properties through a convenient sampling. Content validity was examined based on a panel of five experts. The item difficulty index and item discrimination index were calculated to assess the item difficulty and item discrimination. Internal consistency reliability was measured with the Cronbach's alpha coefficient. Criterion-related validity was established through comparing scores in patients with different education levels. Construct validity was assessed through confirmatory factor analysis (CFA). RESULTS: The Chinese version of the CADEQ-II was finalized after deleting three items and modifying two items from the original version. Three hundred and sixteen participants completed the whole questionnaire. Content validity index of the whole questionnaire was 0.87. The Cronbach's alpha coefficient of the overall questionnaire was 0.907. The significant difference of the knowledge scores among patients with different education levels supported criterion-related validity. CFA confirmed the proposed four-factorial structure of the questionnaire. CONCLUSION: The Chinese version of CADEQ-II had an acceptable reliability and validity among Chinese patients with CAD. It could be used to develop individualized health education for Chinese patients with CAD. Also, it could serve as a suitable outcome measurement to evaluate the effectiveness of education interventions related to CAD.

7.
Patient Educ Couns ; 95(1): 143-50, 2014 Apr.
Article in English | MEDLINE | ID: mdl-24457175

ABSTRACT

OBJECTIVE: To (1) describe cardiac rehabilitation (CR) participant information needs, (2) investigate whether CR providers are cognizant of patient's information needs and preferred delivery formats, and (3) investigate whether patient information needs change over the course of CR. METHODS: In this cross-sectional study, 306 CR patients and 28 CR providers completed a survey. The survey consisted of the Information Needs in CR (INCR) questionnaire, and items about preferred education delivery formats. RESULTS: Low-income CR participants had significantly greater information needs than high-income participants. CR providers were cognizant of patient information needs, except patients did desire more information on diagnosis and treatment than providers perceived (p<0.01). Books, lectures and discussion were identified as the preferred delivery formats by both patients and providers. There were some significant differences in patient information needs over the course of the program, particularly in relation to concerns and risk factors. CONCLUSION: CR patients desire information in many areas, particularly regarding emergency/safety and diagnosis/treatment. CR providers were highly cognizant of patient information needs; however, these do change over time. PRACTICE IMPLICATIONS: These findings could inform evaluation and improvement of CR education programming, to ensure programs are meeting patient information needs across all stages of recovery.


Subject(s)
Health Knowledge, Attitudes, Practice , Health Personnel , Heart Diseases/rehabilitation , Needs Assessment , Patient Education as Topic/methods , Aged , Aged, 80 and over , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Socioeconomic Factors , Surveys and Questionnaires
8.
J Cardiopulm Rehabil Prev ; 33(3): 173-9, 2013.
Article in English | MEDLINE | ID: mdl-23635836

ABSTRACT

PURPOSE: Despite its well-established benefits, cardiac rehabilitation (CR) is greatly underutilized globally. Barriers to its utilization have been identified in high-income countries. Given the growing epidemic of noncommunicable diseases in low- to middle-income countries, the identification of barriers to use of these low-cost interventions is warranted. The aim of this study was to describe and compare barriers to CR use in Brazilian and Canadian cardiac outpatients. METHODS: Two cardiac samples consisting of 237 Brazilian (recruited from 2 CR centers in southern Brazil) and 1434 Canadian (recruited from 11 community and academic hospitals in Ontario) outpatients were compared cross-sectionally. Barriers were assessed by using the Cardiac Rehabilitation Barriers Scale, psychometrically validated in English and Portuguese. Mann-Whitney U tests were used to compare barriers between samples. RESULTS: Overall, 139 (58.6%) Brazilian and 779 (54.3%) Canadian respondents were enrolled in CR. The mean total barriers score for Brazilian respondents was 1.71 ± 0.63, and 2.37 ± 1.0 (P < .01) for the Canadians. For 17 of 21 barriers, Canadians reported significantly greater barriers than Brazilians (P < .02). As their greatest barriers, Canadians rated already exercising at home or in the community and personal travel, while Brazilians identified distance to and cost of the CR program. CONCLUSION: Despite the significantly lower availability of CR in Brazil and the universal health care system in Canada, cardiac outpatients in Canada perceived significantly greater CR barriers. Arguably, however, these barriers were more modifiable.


Subject(s)
Cardiac Rehabilitation , Health Services Accessibility/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Quality of Health Care/statistics & numerical data , Aged , Brazil , Canada , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Outpatients , Perception , Psychometrics , Surveys and Questionnaires
9.
Eur J Prev Cardiol ; 20(2): 291-300, 2013 Apr.
Article in English | MEDLINE | ID: mdl-22345685

ABSTRACT

BACKGROUND: The Coronary Artery Disease Education Questionnaire (CADE-Q) is a validated specific tool used to assess the knowledge and educate coronary patients in cardiac rehabilitation on aspects related to coronary artery disease (CAD). The aim of this study is to translate, cross-culturally adapt and validate from Portuguese to English the Coronary Artery Disease Education Questionnaire (CADE-Q). METHODS: Two independent translations were performed by qualified translators. After back-translation, both versions were reviewed by a committee of experts. A final English version was tested in a pilot study. For the psychometric validation, the tool was administered to 200 Canadian coronary patients enrolled in cardiac rehabilitation (CR). The internal consistency was assessed using Cronbach's alpha, the test-retest reliability using intraclass correlation coefficient (ICC), and the construct validity through factor analysis. Criterion validity of CADE-Q was assessed with regard to patients' characteristics. RESULTS: Eleven of 19 questions were modified and culturally adapted in the English version. Cronbach's alpha was 0.809 and ICC was 0.846. Factor analysis revealed five factors, all internally consistent and well defined by the items. Criterion validity was supported by significant differences in mean scores by family income (p = 0.02) and educational level (p < 0.001). CONCLUSION: The English version of the CADE-Q was demonstrated to have adequate reliability and validity, supporting its use in further studies.


Subject(s)
Coronary Artery Disease/rehabilitation , Health Knowledge, Attitudes, Practice , Language , Patient Education as Topic , Surveys and Questionnaires , Aged , Analysis of Variance , Chi-Square Distribution , Coronary Artery Disease/diagnosis , Coronary Artery Disease/psychology , Cultural Characteristics , Female , Humans , Male , Middle Aged , Ontario , Pilot Projects , Predictive Value of Tests , Psychometrics , Reproducibility of Results , Translating
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