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1.
Perspect Public Health ; : 17579139231180744, 2023 Jun 25.
Article in English | MEDLINE | ID: mdl-37357430

ABSTRACT

AIMS: To scope the breadth of existing cultural and community assets and how alcohol drinkers and community health workers perceived them in relation to reducing alcohol-related harm. METHODS: The study was conducted in Chitwan, south-central Nepal, which has considerable alcohol problems. Participatory asset mapping was conducted using field notes, photography, and through engaging with communities to explore how community assets affect alcohol consumption. Semi-structured photovoice interviews were conducted with harmful/hazardous drinkers (AUDIT score 8 to 19) and community health workers. Purposive and snowball sampling were used to recruit participants. During interviews, participants used their photographs to reflect on how community assets influenced alcohol use. Thematic framework analysis was used to analyse the data. RESULTS: We recruited 12 harmful/hazardous drinkers (3 females) and 6 health workers (2 females). The mean AUDIT score of the former was 12.17 (SD ±2.86). Thematic analysis of the photovoice interviews produced three themes: 'influences and impact of families and communities'; 'culture and spirituality'; and 'nature and the environment'. The community mapping produced five assets that promoted alcohol consumption: (1) availability; (2) advertising; (3) negative attitudes towards users; (4) festivals/gatherings; and (5) illiteracy/poverty. Six assets that discouraged consumption were: (1) legislation restricting use; (2) community organisations; (3) cultural/spiritual sites; (4) healthcare facilities; (5) family and communities; and (6) women's community groups. Those from certain ethnic groups consumed more alcohol, experienced more family discord, or felt stigmatised due to their drinking. Assets 'festivals/gatherings' and 'negative attitudes toward users' and the theme 'family and communities' concerned with relationships and community activities were perceived to both promote and reduce alcohol use. CONCLUSIONS: This study provides new insight into a variety of cultural and community assets that promote and reduce alcohol use. The study identifies new possibilities to build on visual participatory and arts-based methods that have potential to be effectively implemented at scale.

2.
J Int Assoc Provid AIDS Care ; 20: 23259582211053964, 2021.
Article in English | MEDLINE | ID: mdl-34841956

ABSTRACT

BACKGROUND: HIV (human immunodeficiency virus) and AIDS (acquired immunodeficiency syndrome) became a public issue in Libya after the infection of 400 children in El-Fatih Hospital in 1988. Due to the civil war, social and religious barriers, HIV prevalence is hard to establish, but it is generally believed to be increasing. OBJECTIVE: This review (a) assesses the size and scope of the available literature on the HIV epidemic in Libya; and, (b) identifies the nature and extent of research conducted to date. METHODS: A comprehensive search was performed using PubMed, Medline, Web of Science, ScienceDirect, Scopus, Academic Search Ultimate, Cochrane Library and Google Scholar. Primary research studies and official reports that are exclusively on Libya published during 1988-2021 were considered. RESULTS: In total 25 studies were included: Ten primary research studies, four online news articles, six Government reports, one letter to the editor, one manuscript, three online databases. CONCLUSION: Despite the low-quality data, the literature suggests there is an increase in HIV infection rates in Libya. Culturally sensitive research on sexual activities, women, HIV preventative methods and attitudes of the Libyan public will assist in developing an effective National AIDS Programme, reducing HIV stigma, supporting People Living with HIV (PLHIV) and decreasing infection rates.


Subject(s)
Acquired Immunodeficiency Syndrome , Epidemics , HIV Infections , Child , Female , HIV Infections/epidemiology , Humans , Libya/epidemiology , Social Stigma
3.
Int J Adolesc Med Health ; 33(4)2019 Apr 17.
Article in English | MEDLINE | ID: mdl-30995205

ABSTRACT

BACKGROUND: With the rising trend of sexual engagement among Vietnamese young adults in recent years, concerns were raised over the issue of premarital sex and its potential health consequences. In order to prevent such consequences and further promote health, an in-depth understanding of factors influencing young people to have premarital sex would be valuable. OBJECTIVE: To generate a grounded theory explaining factors influencing engagement in premarital sex among Vietnamese young adults. SUBJECTS: Vietnamese adults aged 18-24 who have voluntarily engaged in premarital sex (n = 18). METHOD: The study was conducted using the grounded theory approach by Glaser. Purposive and theoretical sampling was used. Ten in-depth interviews and three additional focus group discussions were carried out. The interviews were audio-recorded and transcribed verbatim. Data analysis involved using the constant comparative method and open and theoretical coding. Sampling, data collection and data analysis happened simultaneously until theoretical saturation was achieved. RESULTS: The grounded theory is constructed around six emergent themes: (a) desire as the 'direct cause'; (b) the facilitators; (c) social changes; (d) media; (e) peer and (f) absence of family. The latter four themes are 'indirect causes' that influence through desire and the facilitators. CONCLUSION: The study has contributed a grounded theory that identified the factors and described their relationships in a comprehensive way. It suggested a need for a reliable source of information to be tailor-designed to suit young people. Additionally, the stigma of talking about sex needs to be reduced to allow for more open discussions on sex and sexual health.

4.
Int J Obstet Anesth ; 39: 60-67, 2019 08.
Article in English | MEDLINE | ID: mdl-30772121

ABSTRACT

BACKGROUND: Paper-based charts remain the principal means of documenting the vital signs of hospitalised pregnant and postnatal women. However, poor chart design may contribute to both incorrect charting of data and clinical responses. We decided to identify design faults that might have an adverse clinical impact. METHODS: One hundred and twenty obstetric early warning charts and escalation protocols from consultant-led maternity units in the United Kingdom and the Channel Islands were analysed using an objective and systematic approach. We identified design errors that might impede their successful use (e.g. generate confusion regarding vital sign documentation, hamper the recognition of maternal deterioration, cause a failure of the early warning system or of any clinical response). RESULTS: We found 30% (n=36/120) of charts contained at least one design error with the potential to confuse staff, render the charts difficult to use or compromise patient safety. Amongst the most common areas were inadequate patient identification, poor use of colour, illogical weighting, poor alignment and labelling of axes, and the opportunity for staff to 'game' the escalation. CONCLUSIONS: We recommend the urgent development of an evidence-based, standardised obstetric observation chart, which integrates 'human factors' and user experience. It should have a clear layout and style, appropriate colour scheme, correct language and labelling, and the ability for vital signs to be documented accurately and quickly. It should incorporate a suitable early warning score to guide clinical management.


Subject(s)
Consultants , Vital Signs , Female , Humans , Pregnancy , United Kingdom
5.
Kathmandu Univ Med J (KUMJ) ; 17(67): 206-211, 2019.
Article in English | MEDLINE | ID: mdl-33305749

ABSTRACT

Background Maternal deaths and complications are highly preventable with good antenatal, postnatal and skilled care during childbirth. Inadequate information on the factors affecting these services could be barrier to a reduction of maternal deaths in lowincome countries. Objective To assess the uptake of antenatal, postnatal and skilled care during childbirth. Method A cross-sectional study was conducted in eight villages of Nawalparasi district in southern Nepal. A total of 447 women who had given birth within the preceding 24 months were recruited using multistage random sampling. Data were collected using a pre-tested semi-structured questionnaire. Chi-square tests were used to assess association between variables. Result Over 70% of women had gone for at least four antenatal care check-ups while only 14.3% had at least three postnatal check-ups in their last pregnancies. The proportion of institution delivery was 54%. Women's literacy was associated with the uptake of antenatal services (p=< 0.001), postnatal care (p=0.04) and institutional delivery (p=< 0.001). Knowledge of antenatal (p=< 0.001) and postnatal care was also associated with uptake of respective services (p=< 0.001). Conclusion The uptake and knowledge of antenatal care was much better than of postnatal care. Home delivery rates were still very high. A scaling-up of education and awarenessraising interventions in this community could help improve the uptake of maternal health services.


Subject(s)
Maternal Health Services , Postnatal Care , Cross-Sectional Studies , Delivery, Obstetric , Female , Health Services Accessibility , Humans , Nepal , Pregnancy , Prenatal Care , Rural Population
6.
Int J Obstet Anesth ; 30: 44-51, 2017 May.
Article in English | MEDLINE | ID: mdl-28385419

ABSTRACT

BACKGROUND: Obstetric early warning systems are recommended for monitoring hospitalised pregnant and postnatal women. We decided to compare: (i) vital sign values used to define physiological normality; (ii) symptoms and signs used to escalate care; (iii) type of chart used; and (iv) presence of explicit instructions for escalating care. METHODS: One-hundred-and-twenty obstetric early warning charts and escalation protocols were obtained from consultant-led maternity units in the UK and Channel Islands. These data were extracted: values used to determine normality for each maternal vital sign; chart colour-coding; instructions following early warning system triggering; other criteria used as triggers. RESULTS: There was considerable variation in the charts, warning systems and escalation protocols. Of 120 charts, 89.2% used colour; 69.2% used colour-coded escalation systems. Forty-one (34.2%) systems required the calculation of weighted scores. Seventy-five discrete combinations of 'normal' vital sign ranges were found, the most common being: heart rate=50-99beats/min; respiratory rate=11-20breaths/min; blood pressure, systolic=100-149mmHg, diastolic ≤89mmHg; SpO2=95-100%; temperature=36.0-37.9°C; and Alert-Voice-Pain-Unresponsive assessment=Alert. Most charts (90.8%) provided instructions about who to contact following triggering, but only 41.7% gave instructions about subsequent observation frequency. CONCLUSION: The wide range of 'normal' vital sign values in different systems suggests a lack of equity in the processes for detecting deterioration and escalating care in hospitalised pregnant and postnatal women. Agreement regarding 'normal' vital sign ranges is urgently required and would assist the development of a standardised obstetric early warning system and chart.


Subject(s)
Hospital Departments/statistics & numerical data , Records , Vital Signs , Adult , Early Diagnosis , Emergency Medical Services , Female , Hospitalization , Humans , Patient Safety , Pregnancy , Records/standards , United Kingdom , Women's Health
7.
BJOG ; 122(2): 260-7, 2015 Jan.
Article in English | MEDLINE | ID: mdl-25394518

ABSTRACT

OBJECTIVE: To analyse the culture of a Kabul maternity hospital to understand the perspectives of healthcare providers on their roles, experiences, values and motivations and the impact of these determinants on the care of perinatal women and their babies. DESIGN: Qualitative ethnographic study. SETTING: A maternity hospital, Afghanistan. POPULATION: Doctors, midwives and care assistants. METHODS: Six weeks of observation followed by 22 semi-structured interviews and four informal group discussions with staff, two focus group discussions with women and 41 background interviews with Afghan and non-Afghan medical and cultural experts. MAIN OUTCOME MEASURES: The culture of care in an Afghan maternity hospital. RESULTS: A large workload, high proportion of complicated cases and poor staff organisation affected the quality of care. Cultural values, social and family pressures influenced the motivation and priorities of healthcare providers. Nepotism and cronyism created inequality in clinical training and support and undermined the authority of management to improve standards of care. Staff without powerful connections were vulnerable in a punitive inequitable environment-fearing humiliation, blame and the loss of employment. CONCLUSIONS: Suboptimal care put the lives of women and babies at risk and was, in part, the result of conflicting priorities. The underlying motivation of staff appeared to be the socio-economic survival of their own families. The hospital culture closely mirrored the culture and core values of Afghan society. In setting priorities for women's health post-2015 Millennium Development Goals, understanding the context-specific pressures on staff is key to more effective programme interventions and sustainability.


Subject(s)
Attitude of Health Personnel , Developing Countries , Hospitals, Maternity/standards , Hospitals, Urban/standards , Quality of Health Care , Afghanistan , Clinical Competence , Culture , Family Relations , Fear , Female , Hospitals, Maternity/organization & administration , Hospitals, Urban/organization & administration , Humans , Internship and Residency , Midwifery , Motivation , Obstetrics/education , Organizational Culture , Patient Satisfaction , Qualitative Research , Social Norms , Workload
8.
Anaesthesia ; 69(7): 687-92, 2014 Jul.
Article in English | MEDLINE | ID: mdl-24801160

ABSTRACT

The Confidential Enquiries into Maternal Deaths in the UK have recommended obstetric early warning systems for early identification of clinical deterioration to reduce maternal morbidity and mortality. This survey explored early warning systems currently used by maternity units in the UK. An electronic questionnaire was sent to all 205 lead obstetric anaesthetists under the auspices of the Obstetric Anaesthetists' Association, generating 130 (63%) responses. All respondents reported use of an obstetric early warning system, compared with 19% in a similar survey in 2007. Respondents agreed that the six most important physiological parameters to record were respiratory rate, heart rate, temperature, systolic and diastolic blood pressure and oxygen saturation. One hundred and eighteen (91%) lead anaesthetists agreed that early warning systems helped to prevent obstetric morbidity. Staffing pressures were perceived as the greatest barrier to their use, and improved audit, education and training for healthcare professionals were identified as priority areas.


Subject(s)
Anesthesia, Obstetrical/standards , Health Care Surveys/methods , Pregnancy Complications/diagnosis , Safety Management/methods , Vital Signs/physiology , Blood Pressure , Body Temperature , Early Diagnosis , Female , Guidelines as Topic , Health Care Surveys/statistics & numerical data , Heart Rate , Humans , Oxygen/blood , Pregnancy , Respiratory Rate , Surveys and Questionnaires , United Kingdom
9.
Kathmandu Univ Med J (KUMJ) ; 11(43): 262-5, 2013.
Article in English | MEDLINE | ID: mdl-24442179

ABSTRACT

For most students and junior researchers, writing an abstract for a poster or oral presentation at a conference is the first piece they may write for an audience other than their university tutors or examiners. Since some researchers struggle with this process we have put together some advice on issues to consider when writing a conference abstract. We highlight a number of issues to bear in mind when constructing one's abstract.


Subject(s)
Abstracting and Indexing , Writing , Congresses as Topic
10.
Kathmandu Univ Med J (KUMJ) ; 9(36): 301-5, 2011.
Article in English | MEDLINE | ID: mdl-22710544

ABSTRACT

There has been a steady growth in recent decades in Nepal in health and health services research, much of it based on quantitative research methods. Over the same period international medical journals such as The Lancet, the British Medical Journal (BMJ), The Journal of the American Medical Association (JAMA) and the Journal of Family Planning and Reproductive Health Care and many more have published methods papers outlining and promoting qualitative methods. This paper argues in favour of more high-quality qualitative research in Nepal, either on its own or as part of a mixed-methods approach, to help strengthen the country's research capacity. After outlining the reasons for using qualitative methods, we discuss the strengths and weaknesses of the three main approaches: (a) observation; (b) in-depth interviews; and (c) focus groups. We also discuss issues around sampling, analysis, presentation of findings, reflexivity of the qualitative researcher and theory building, and highlight some misconceptions about qualitative research and mistakes commonly made.


Subject(s)
Health Services Research/methods , Qualitative Research , Research Design , Humans , Interviews as Topic , Nepal , Translating
11.
Kathmandu Univ Med J (KUMJ) ; 8(31): 325-32, 2010.
Article in English | MEDLINE | ID: mdl-22610739

ABSTRACT

This review is to explore the factors affecting the uptake of skilled birth attendants for delivery and the issues associated with women's role and choices of maternal health care service for delivery in Nepal. Literature was reviewed across the globe and discussed in a Nepalese context. Delivery by Skilled Birth Attendance serves as an indicator of progress towards reducing maternal mortality worldwide, the fifth Millennium Development Goal. Nepal has committed to reducing its maternal mortality by 75% by 2015 through ensuring accessibility to the availability and utilisation of skilled care at every birth. The literature suggests that several socio-economic, cultural and religious factors play a significant role in the use of Skilled Birth Attendance for delivery in Nepal. Availability of transportation and distance to the health facility; poor infrastructure and lack of services; availability and accessibility of the services; cost and convenience; staff shortages and attitudes; gender inequality; status of women in society; women's involvement in decision making; and women's autonomy and place of residence are significant contributing factors for uptake of Skilled Birth Attendance for delivery in Nepal. The review found more quantitative research studies exploring the determinants of utilisation of the maternal health services during pregnancy in Nepal than qualitative studies. Findings of quantitative research show that different social demographic, economic, socio-cultural and religious factors are responsible for the utilisation of maternal health services but very few studies discussed how and why these factors are responsible for utilisation of skilled birth attendants in pregnancy. It is suggested that there is need for more qualitative research to explore the women's role and choice regarding use of skilled birth attendants services and to find out how and why these factors are responsible for utilisation of skilled birth attendants for delivery. Qualitative research will help further exploration of the issues and contribute to improvement of maternal health services.


Subject(s)
Maternal Health Services/statistics & numerical data , Midwifery/statistics & numerical data , Patient Acceptance of Health Care/ethnology , Age Factors , Culture , Female , Gender Identity , Health Knowledge, Attitudes, Practice , Health Services Accessibility , Health Workforce/statistics & numerical data , Humans , Nepal , Pregnancy , Residence Characteristics/statistics & numerical data , Socioeconomic Factors , Transportation
12.
Health Place ; 16(2): 359-64, 2010 Mar.
Article in English | MEDLINE | ID: mdl-20004606

ABSTRACT

In many countries rural maternity care is under threat. Consequently rural pregnant women will have to travel further to attend larger maternity units to receive care and deliver their babies. This trend is not dissimilar from the disappearance of other rural services, such as village shops, banks, post offices and bus services. We use a comparative approach to draw an analogy with large-scale supermarkets, such as the Wal-Mart and Tesco and their effect on the viability of smaller rural shops, depersonalisation of service and the wider community. The closure of a community-maternity unit leads to women attending a different type of hospital with a different approach to maternity care. Thus small community-midwifery units are being replaced, not by a very similar unit that happens to be further away, but by a larger obstetric unit that operates on different models, philosophy and notions of risk. Comparative analysis allows a fresh perspective on the provision of rural maternity services. We argue that previous discussions focusing on medicalisation and change in maternity services can be enhanced by drawing on experience in other sectors and taking a wider societal lens.


Subject(s)
Maternal Health Services , Rural Health Services , Commerce/economics , Commerce/organization & administration , Commerce/trends , Female , Health Policy , Health Services Accessibility/economics , Health Services Accessibility/organization & administration , Health Services Accessibility/standards , Health Services Accessibility/trends , Humans , Maternal Health Services/economics , Maternal Health Services/organization & administration , Maternal Health Services/supply & distribution , Maternal Health Services/trends , Pregnancy , Rural Health Services/economics , Rural Health Services/organization & administration , Rural Health Services/supply & distribution , Rural Health Services/trends , Socioeconomic Factors , Sociology, Medical
13.
Qual Saf Health Care ; 18(1): 42-8, 2009 Feb.
Article in English | MEDLINE | ID: mdl-19204131

ABSTRACT

OBJECTIVE: To explore women's perceptions of "choice" of place of delivery in remote and rural areas where different models of maternity services are available. SETTING AND METHODS: Remote and rural areas of the North of Scotland. A qualitative study design involved focus groups with women who had recent experience of maternity services. RESULTS: Women had varying experiences and perceptions of choice regarding place of delivery. Most women had, or perceived they had, no choice, though some felt they had a genuine choice. When comparing different places of birth, women based their decisions primarily on their perceptions of safety. Consultant-led care was associated with covering every eventuality, while midwife-led care was associated with greater quality in terms of psycho-social support. Women engaged differently in the choice process, ranging from "acceptors" to "active choosers." The presentation of choice by health professionals, pregnancy complications, geographical accessibility and the implications of alternative places of delivery in terms of demands on social networks were also influential in "choice." CONCLUSIONS: Provision of different models of maternity services may not be sufficient to convince women they have "choice." The paper raises fundamental questions about the meaning of "choice" within current policy developments and calls for a more critical approach to the use of choice as a service development and analytical concept.


Subject(s)
Choice Behavior , Delivery, Obstetric/psychology , Rural Health Services , Adult , Evaluation Studies as Topic , Female , Focus Groups , Humans , Midwifery , Pregnancy , Scotland
14.
Kathmandu Univ Med J (KUMJ) ; 7(28): 445-53, 2009.
Article in English | MEDLINE | ID: mdl-20502093

ABSTRACT

This article identifies and addresses opportunities for and challenges to current school-based sex and sexual health education in Nepal. Key literature searches were conducted of electronic databases and relevant web-sites, furthermore personal contact with experts and the hand searching of key journals was included. The review of this literature generated the following challenges: Limitations to teaching including lack of life skill-based and human right-based approach, inappropriate teaching aid and reliance on conventional methods, existing policy and practice, parental/community support, and lack of research into and evaluation of sex education. Diverse methodology in teaching, implementation of peer education programme, partnership with parents, involvement of external agencies and health professionals, capacity building of teachers, access to support and service organisation, and research and evaluation in sex education have been suggested for improving the current practice of sex and sexual health education in Nepalese schools. Key words: Sex education, education, school, adolescence, Nepal.


Subject(s)
School Health Services/standards , Sex Education/standards , Adolescent , Developing Countries , Female , Forecasting , Humans , Male , Nepal , School Health Services/trends , Sex Education/trends
15.
Kathmandu Univ Med J (KUMJ) ; 6(2): 248-56, 2008.
Article in English | MEDLINE | ID: mdl-18769100

ABSTRACT

This article attempts to summarise the situation of sexual and reproductive health among young people in Nepal. Modernisation and social transformation are occurring rapidly in Nepalese society. Growing expansion of communication and transportation networks, urbanisation and in-migration of population to urban areas is creating a different socio-cultural environment, which is conducive to more social interactions between young girls and boys in Nepal. Rising age at marriage has now opened a window of opportunity for pre-marital and unsafe sexual activity among young people in Nepal which creates risks of unwanted pregnancy, STIs/HIV and AIDS. Several socio-economic, demographic and cultural factors have been identified as encouraging factors for risk taking behaviours among young people. Improving access to youth friendly services, implementing peer education programmes for school and out of school going adolescents, developing effective Information, Communication and Education (IEC) materials and curricula have been highly suggested to improve the existing young people's sexual and reproductive health status.


Subject(s)
Acquired Immunodeficiency Syndrome/epidemiology , Sexual Behavior/statistics & numerical data , Sexually Transmitted Diseases/epidemiology , Adolescent , Female , Humans , Incidence , Male , Nepal/epidemiology , Population Dynamics/trends , Pregnancy , Pregnancy, Unplanned , Prevalence , Risk-Taking , Young Adult
17.
BJOG ; 115(5): 560-9, 2008 Apr.
Article in English | MEDLINE | ID: mdl-17903223

ABSTRACT

OBJECTIVE: To explore women's preferences for, and trade-offs between, key attributes of intrapartum care models. DESIGN: Mixed-methods study using discrete choice experiments (DCEs) and focus groups. SETTING: The North of Scotland. POPULATION: Women from the catchment areas of eight rural maternity units in the North of Scotland. METHODS: Based on current policy, 'model of care' and 'time travelled' were selected as key attributes of intrapartum care in remote and rural settings. A DCE questionnaire explored women's preferences for and trade-offs between these attributes. Focus groups validated the DCE attributes and provided valuable information about the drivers of women's preferences for place of delivery. MAIN OUTCOME MEASURES: Preferences for attributes of intrapartum care. RESULTS: Eight focus groups were conducted, and 877 eligible women completed the questionnaire. Overall, the DCE results found women preferred delivery in a unit to home birth and consultant-led care (CLC) to midwife-managed care (MMC). Women preferring CLC associated it with covering every eventuality and increased safety. Although women preferred shorter travel times, trade-offs indicated a willingness to travel for approximately 2 hours to get one's preferred choice. Focus group findings and subgroup DCE analysis showed heterogeneity of preferences related to experience, risk status, geographic location, perception of care and family circumstances. CONCLUSIONS: In contrast to service redesign offering local midwife-managed intrapartum care, most rural women in our study expressed a preference to give birth in hospital and have CLC because they felt safer. Women were willing to travel for this but within limits. Qualitative results showed that women's preferences were influenced by their home and family context, beliefs and previous pregnancy experiences. Challenges for service redesign are to provide comprehensive obstetric services within acceptable travel time, while responding to the heterogeneity of women's preferences.


Subject(s)
Obstetric Labor Complications/psychology , Patient Satisfaction , Pregnant Women/psychology , Prenatal Care/standards , Adolescent , Adult , Family , Female , Home Childbirth/psychology , Hospitalization , Humans , Middle Aged , Obstetric Labor Complications/prevention & control , Pain/prevention & control , Pain/psychology , Pregnancy , Prospective Studies , Rural Health , Scotland , Time Factors , Travel
18.
Clin Genet ; 71(2): 120-9, 2007 Feb.
Article in English | MEDLINE | ID: mdl-17250660

ABSTRACT

Previous research and clinical experience suggest that Huntington's disease (HD) can considerably affect family life, particularly for young people (YP) at risk. The goal of this study was to describe the experiences of YP from families affected by HD. YP were identified through the regional genetics clinic and the Scottish Huntington's Association. In-depth interviews were used to explore YP's experiences of finding out about HD in the family; perceptions of their own risk; caring activities; protective or risk factors; and the impact of HD on relationships with siblings, parents, extended family members, and the wider community. Thirty-three YP between the ages of 9 and 28 years were interviewed. A qualitative thematic analysis was undertaken. The analysis revealed four main themes: YP as carers, the worried well, those who cope, and those at risk/in need. These themes highlight the varied experience of growing up in a family affected by HD. Whilst some YP successfully coped, others experienced considerable problems and were at risk of physical and/or emotional harm. In understanding why some cope better than others, our findings suggest protective and risk factors within these themes. In particular, participants who grew up knowing about HD from an early age seemed to cope better.


Subject(s)
Huntington Disease/genetics , Huntington Disease/psychology , Adaptation, Psychological , Adolescent , Adult , Caregivers , Child , Family , Female , Humans , Male , Risk Factors , Scotland , Social Support
19.
Qual Saf Health Care ; 15(3): 214-9, 2006 Jun.
Article in English | MEDLINE | ID: mdl-16751473

ABSTRACT

OBJECTIVE: To explore what happened to poor women in Bangladesh once they reached a hospital providing comprehensive emergency obstetric care (EmOC) and to identify support mechanisms. DESIGN: Mixed methods qualitative study. SETTING: Large government medical college hospital in Bangladesh. SAMPLE: Providers and users of EmOC. METHODS: Ethnographic observation in obstetrics unit including interviews with staff and women using the unit and their carers. RESULTS: Women had to mobilise significant financial and social resources to fund out of pocket expenses. Poorer women faced greater challenges in receiving treatment as relatives were less able to raise the necessary cash. The official financial support mechanism was bureaucratic and largely unsuitable in emergency situations. Doctors operated a less formal "poor fund" system to help the poorest women. There was no formal assessment of poverty; rather, doctors made "adjudications" of women's need for support based on severity of condition and presence of friends and relatives. Limited resources led to a "wait and see" policy that meant women's condition could deteriorate before help was provided. CONCLUSIONS: Greater consideration must be given to what happens at health facilities to ensure that (1) using EmOC does not further impoverish families; and (2) the ability to pay does not influence treatment. Developing alternative finance mechanisms to reduce the burden of out of pocket expenses is crucial but challenging. Increased investment in EmOC must be accompanied by an increased focus on equity.


Subject(s)
Emergencies/economics , Health Services Accessibility/economics , Maternal Health Services/economics , Obstetrics and Gynecology Department, Hospital/economics , Patient Acceptance of Health Care/psychology , Poverty , Pregnancy Complications/economics , Academic Medical Centers , Adult , Bangladesh , Female , Hospitals, Public , Humans , Maternal Health Services/statistics & numerical data , Obstetrics and Gynecology Department, Hospital/statistics & numerical data , Patient Acceptance of Health Care/statistics & numerical data , Practice Patterns, Physicians' , Pregnancy , Pregnancy Complications/therapy , Qualitative Research , Social Support , Social Welfare , Time Factors
20.
BJOG ; 113(3): 268-75, 2006 Mar.
Article in English | MEDLINE | ID: mdl-16487197

ABSTRACT

BACKGROUND: Women who deliver by caesarean section have been shown to be less likely to have a subsequent pregnancy. It is not clear whether this is due to a direct effect of the procedure on future fertility or due to deliberate avoidance of a future pregnancy. OBJECTIVE: To investigate whether absence of conception following caesarean section is voluntary or involuntary. DESIGN: Follow up of a population-based retrospective cohort. SETTING: Grampian region, Scotland. POPULATION: Women who had no further viable pregnancies within 5 years of an initial delivery. METHODS: Cases included women who delivered their first child by caesarean section between 1980 and 1995 but had no further viable pregnancies by December 2000. Controls included women who delivered their first child during the same period, by means of either spontaneous vaginal delivery (SVD) or instrumental vaginal delivery (IVD), and who had no further viable pregnancies by December 2000. Eligible women were identified from the Aberdeen Maternity and Neonatal Databank (AMND) and sent postal questionnaires to determine the extent to which not conceiving after first delivery was voluntary and the reasons for avoiding further pregnancies. Characteristics of the different mode of delivery groups were compared using univariate techniques. MAIN OUTCOME MEASURES: Extent to which absence of conception following an initial delivery by caesarean section is voluntary. RESULTS: Questionnaires were returned by 3204 (60%) of 5300 women identified from the AMND. Of these, 1675 women had not conceived at all during the follow-up period (median duration = 13 years). Absence of conception was voluntary in 488 (69%; 95% CI 66-73%) women following caesarean section, 340 (71%; 95% CI 67-76%) following SVD and 354 (72%; 95% CI 68-76%) following IVD. Few women considered seeking fertility treatment (caesarean section = 72 [10%], SVD = 50 [11%], IVD = 39 [8%]). Of the women who decided to delay or avoid a further pregnancy, fewer women who delivered by SVD reported that the birth experience influenced their decision (caesarean section = 163 [32%], SVD = 67 [18%], IVD = 136 [35%]; P < 0.001). CONCLUSIONS: Irrespective of mode of delivery, not conceiving following the birth of the first child is mainly voluntary. The experience of the previous birth is one of several factors affecting women's decisions to avoid a subsequent pregnancy.


Subject(s)
Cesarean Section/adverse effects , Cesarean Section/psychology , Mothers/psychology , Pregnancy/statistics & numerical data , Adult , Attitude to Health , Case-Control Studies , Cesarean Section/statistics & numerical data , Cohort Studies , Decision Making , Female , Humans , Infertility, Female/psychology , Obstetric Labor Complications/psychology , Obstetric Labor Complications/surgery , Pregnancy/psychology , Retrospective Studies , Scotland
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