Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study.

BACKGROUND: Systemic lupus erythematosus (SLE) is a chronic autoimmune inflammatory disease affecting various organs with a wide range of clinical manifestations. Cutaneous lupus erythematosus (CLE) can manifest as a feature of SLE or an independent skin ailment. Health-related quality of life (HRQoL) is frequently compromised in individuals living with lupus. Understanding patients' perspectives when living with a disease is crucial for effectively meeting their unmet needs. Social listening is a promising new method that can provide insights into the experiences of patients living with their disease (lupus) and leverage these insights to inform drug development strategies for addressing their unmet needs. OBJECTIVE: The objective of this study is to explore the experience of patients living with SLE and CLE, including their disease and treatment experiences, HRQoL, and unmet needs, as discussed in web-based social media platforms such as blogs and forums. METHODS: A retrospective exploratory social listening study was conducted across 13 publicly available English-language social media platforms from October 2019 to January 2022. Data were processed using natural language processing and knowledge graph tagging technology to clean, format, anonymize, and annotate them algorithmically before feeding them to Pharos, a Semalytix proprietary data visualization and analysis platform, for further analysis. Pharos was used to generate descriptive data statistics, providing insights into the magnitude of individual patient experience variables, their differences in the magnitude of variables, and the associations between algorithmically tagged variables. RESULTS: A total of 45,554 posts from 3834 individuals who were algorithmically identified as patients with lupus were included in this study. Among them, 1925 (authoring 5636 posts) and 106 (authoring 243 posts) patients were identified as having SLE and CLE, respectively. Patients frequently mentioned various symptoms in relation to SLE and CLE including pain, fatigue, and rashes; pain and fatigue were identified as the main drivers of HRQoL impairment. The most affected aspects of HRQoL included "mobility," "cognitive capabilities," "recreation and leisure," and "sleep and rest." Existing pharmacological interventions poorly managed the most burdensome symptoms of lupus. Conversely, nonpharmacological treatments, such as exercise and meditation, were frequently associated with HRQoL improvement. CONCLUSIONS: Patients with lupus reported a complex interplay of symptoms and HRQoL aspects that negatively influenced one another. This study demonstrates that social listening is an effective method to gather insights into patients' experiences, preferences, and unmet needs, which can be considered during the drug development process to develop effective therapies and improve disease management.

Intensive care nurses' experiences of caring for patients during the COVID-19 pandemic based on an analysis of blog posts.

BACKGROUND: In 2019, coronavirus disease 2019 (COVID-19) broke out worldwide, leading to a pandemic. Studies have shown that COVID-19 patients in intensive care units (ICUs) require more nursing care than other patients. ICU nurses who care for patients with COVID-19 have shown signs of psychological and physical strain. AIM: The aim of this study was to illuminate ICU nurses' experiences of caring for patients with COVID-19 in ICUs during the first wave of the pandemic. STUDY DESIGN: A qualitative, descriptive and inductive approach was used. A total of 70 blog posts from 13 bloggers in the United States, Great Britain, Finland and Sweden were analysed using qualitative inductive manifest content analysis. RESULTS: The results reveal an overall theme: 'An overturned existence under extreme conditions'. Furthermore, three categories-'the virus caused changes in work and private lives', 'unreasonable demands', and to hold on to caring ideals thanks to the support of others'-and seven subcategories were identified. CONCLUSIONS: Caring for patients with COVID-19 during the first wave of the pandemic was demanding because of a lack of knowledge about the disease and the severity of the illness. This led to ICU nurses experiencing extreme conditions that affected various aspects of their lives. Support from colleagues and teamwork were revealed to be particularly important for how nurses dealt with the demands of working during a pandemic, as was sufficient recovery time between work shifts. RELEVANCE TO CLINICAL PRACTICE: Work in ICUs was challenging and demanding, even before the pandemic. This study contributes to an understanding of the complex work environment that existed in hospitals during the first wave of the COVID-19 pandemic. The knowledge obtained from this study can be used to revise working conditions and identify health interventions for ICU nurses.

The rebel, the professor, and the entrepreneur: Qualitative study to explore creator stories of FOAM.

Introduction: The free open access medical education (#FOAMed, or FOAM) movement creates educational content intended to inform medical education and clinical practice and is distributed in an unrestricted fashion (e.g., open access website). The who, what, and in particular the how of FOAM has raised important questions about the sustainability of the movement. Methods: We recruited a diverse research team that included educational researchers, FOAM contributors, a business academician, and medical trainees to design and conduct a qualitative study exploring the work of FOAM creators. We analyzed the transcripts of interviews with 11 participants from top FOAM websites in emergency medicine and critical care. The team met frequently to iteratively identify and discuss emergent themes (major and minor) until saturation of concepts was achieved. Results: Creators of FOAM could be categorized using three archetypes: the rebel, the professor, and the entrepreneur. The rebel was categorized as distinctly rejecting "traditional academic structures" yet was compelled to deliver educational content via alternative routes. The professor retained a traditional academic role, instead creating FOAM to supplement academic activities (teaching courses, disseminating scholarship, promotion). Entrepreneurs focused on creating a sustainable entity in an effort to supplement their income and reduce clinical obligations. Conclusion: While all FOAM creators appear unified in their passion to create, promote, and distribute educational material with unfettered access to educators, their motivations for creating content could be differentiated. Given the grassroots nature of FOAM, creators share concerns related to financing, time commitments, and threats to sustainability of these businesses. The longevity of FOAM and what business models are best suited to support them are uncertain. Further exploration of the implications could investigate the best ways to engage with and support the different FOAM creator archetypes and develop models of sustainability.

An intelligent film recommender system based on emotional analysis.

The existing personalized film recommendation methods take the user's historical rating as an important basis for recommendation. However, the user's rating standards are different, so it is difficult to mine the user's real preferences and form accurate push. Therefore, to achieve high-quality personalized recommendation of films, it is particularly important to mine the emotion of user reviews. In this article, a personalized recommendation method based on sentiment analysis of film reviews is proposed, where natural language processing technology is used to mine the emotional tendency of user reviews. The multi-modal emotional features are weighted and the weighted fusion feature vector after PSO is taken as the overall emotion vector, then the emotional similarity of weighted fusion is calculated by considering the time factor of content publishing and the average emotional tendency of users. By calculating the matching degree of emotional value between users and films, the top-N film recommendation for target users is given. The test results show that the effect of the personalized film recommendation system based on multimodality is superior to that of the comparison method, which effectively solves the problem of different user rating scales, and really increases users' interest in watching films.

Social Media Listening and Digital Profiling Study of People With Headache and Migraine: Retrospective Infodemiology Study.

BACKGROUND: There is an unmet need for a better understanding and management of headache, particularly migraine, beyond specialist centers, which may be facilitated using digital technology. OBJECTIVE: The objective of this study was to identify where, when, and how people with headache and migraine describe their symptoms and the nonpharmaceutical and medicinal treatments used as indicated on social media. METHODS: Social media sources, including Twitter, web-based forums, blogs, YouTube, and review sites, were searched using a predefined search string related to headache and migraine. The real-time data from social media posts were collected retrospectively for a 1-year period from January 1, 2018, to December 31, 2018 (Japan), or a 2-year period from January 1, 2017, to December 31, 2018 (Germany and France). The data were analyzed after collection, using content analysis and audience profiling. RESULTS: A total of 3,509,828 social media posts related to headache and migraine were obtained from Japan in 1 year and 146,257 and 306,787 posts from Germany and France, respectively, in 2 years. Among social media sites, Twitter was the most used platform across these countries. Japanese sufferers used specific terminology, such as "tension headaches" or "cluster headaches" (36%), whereas French sufferers even mentioned specific migraine types, such as ocular (7%) and aura (2%). The most detailed posts on headache or migraine were from Germany. The French sufferers explicitly mentioned "headache or migraine attacks" in the "evening (41%) or morning (38%)," whereas Japanese mentioned "morning (48%) or night (27%)" and German sufferers mentioned "evening (22%) or night (41%)." The use of "generic terms" such as medicine, tablet, and pill were prevalent. The most discussed drugs were ibuprofen and naproxen combination (43%) in Japan; ibuprofen (29%) in Germany; and acetylsalicylic acid, paracetamol, and caffeine combination (75%) in France. The top 3 nonpharmaceutical treatments are hydration, caffeinated beverages, and relaxation methods. Of the sufferers, 44% were between 18 and 24 years of age. CONCLUSIONS: In this digital era, social media listening studies present an opportunity to provide unguided, self-reported, sufferers' perceptions in the real world. The generation of social media evidence requires appropriate methodology to translate data into scientific information and relevant medical insights. This social media listening study showed country-specific differences in headache and migraine symptoms experienced and in the times of the day and treatments used. Furthermore, this study highlighted the prevalence of social media usage by younger sufferers compared to that by older sufferers.

Adults with ME/CFS report surprisingly high rates of youth symptoms: A qualitative analysis of patient blog commentary.

BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic illness that impacts pediatric populations. OBJECTIVE: The current study aimed to better understand adult perceptions of their experiences leading up to their diagnosis of ME/CFS. METHOD: Patients provided data regarding symptoms of ME/CFS they may have experienced during childhood through a popular community blog forum, with participants interacting via blog comments in real-time and across various geographical locations. RESULTS: Descriptive analyses indicated that roughly 43% of adult survey participants reported having developed ME/CFS prior to age 18. A standard content analysis of patient blog commentary revealed several themes, such as poor mental health, family pattern/history, healthy childhood preceding sick adulthood, feeling misunderstood, lack of clarity until adulthood, sharing of resources, poor school functioning, isolation/poor social supports, and coping mechanisms. CONCLUSION: There are unique benefits and insights that can be used by investigators who collaborate with patient organizations as a means of better understanding ME/CFS illness severity, presentation, and lived experiences.

Tablet-Based Praxis Developed for Children in Primary Education Studying Natural Sciences and Mathematics.

Information and Communication Technologies are now a common feature in classroom activities. The aim of this study was to present praxis developed for the tablet for use by primary education students (aged 6-12) studying the natural sciences and mathematics. This research is qualitative and follows the narrative-ethnographic approach. The study sample consisted of 120 primary education students and 52 educational blogs. The results and conclusions reveal praxis that is rarely innovative or ludic. The bulk of tablet-based activities were for natural sciences classes rather than mathematics, and the most common practice with the tablet in the natural sciences was information searching and content exploration. The most widely used apps were the Google search engine, YouTube and the tablet's default apps (camera, image and video editor). Course content in the natural sciences focused on living beings and states of matter, and the activities developed for children to do on the tablet aimed to foster learning through discovery, exploration and enquiry. In mathematics, a traditional methodological approach was apparent in children's use of the tablet for typical activities related to units of measurement.

Nurses' Work Concerns and Disenchantment During the COVID-19 Pandemic: Machine Learning Analysis of Web-Based Discussions.

BACKGROUND: Web-based forums provide a space for communities of interest to exchange ideas and experiences. Nurse professionals used these forums during the COVID-19 pandemic to share their experiences and concerns. OBJECTIVE: The objective of this study was to examine the nurse-generated content to capture the evolution of nurses' work concerns during the COVID-19 pandemic. METHODS: We analyzed 14,060 posts related to the COVID-19 pandemic from March 2020 to April 2021. The data analysis stage included unsupervised machine learning and thematic qualitative analysis. We used an unsupervised machine learning approach, latent Dirichlet allocation, to identify salient topics in the collected posts. A human-in-the-loop analysis complemented the machine learning approach, categorizing topics into themes and subthemes. We developed insights into nurses' evolving perspectives based on temporal changes. RESULTS: We identified themes for biweekly periods and grouped them into 20 major themes based on the work concern inventory framework. Dominant work concerns varied throughout the study period. A detailed analysis of the patterns in how themes evolved over time enabled us to create narratives of work concerns. CONCLUSIONS: The analysis demonstrates that professional web-based forums capture nuanced details about nurses' work concerns and workplace stressors during the COVID-19 pandemic. Monitoring and assessment of web-based discussions could provide useful data for health care organizations to understand how their primary caregivers are affected by external pressures and internal managerial decisions and design more effective responses and planning during crises.

Ethos e produção de subjetividade no "Mundo dos depressivos": uma análise institucional de discurso / Ethos and production of subjectivity in the "World of depressives": an institutional discourse analysis / Ethos et production de subjectivité dans le "Monde des dépressifs": une analyse institutionnelle du discours / Ethos y producción de subjetividad en el "Mundo de los depresivos": un análisis institucional del discurso

O presente artigo se debruça sobre o corpus encontrado no blog "Mundo dos depressivos", em que seu criador apresenta um olhar sobre como é ser um indivíduo deprimido. O objetivo é o de delimitar os contornos de subjetividade que se produzem ali. Este trabalho foi construído a partir da perspectiva da Análise Institucional do Discurso. A estratégia de pensamento, motriz de todo trabalho, organiza-se em torno de conceitos como discurso, cena discursiva, efeitos de reconhecimento e desconhecimento e ethos. Por meio da construção de cenas de antagonismo entre o indivíduo com depressão e a sociedade, o enunciador do blog configura um ethos não como prostração ou abatimento, como se poderia esperar, mas como um lugar de potência e resistência.

This article focuses on the corpus found on the blog "World of Depressives", in which its creator portrays the experience of being a depressed individual. The objective is to delimit the contours of subjectivity within the blog. This work was constructed from the perspective of Institutional Discourse Analysis. The thought strategy driving all work is organized around concepts such as discourse, discursive scene, effects of recognition and ignorance, and ethos. Through the construction of scenes of antagonism between the individual with depression and society, the blog's enunciator shapes an ethos, not as prostration or despondency, as one might expect, but as a place of power and resistance.

Cet article se concentre sur le corpus trouvé sur le blog "Monde des dépressifs", dans lequel son créateur présente un regard sur ce que c'est que d'être un individu dépressif. L'objectif est de délimiter les contours de la subjectivité qui s'y produisent. Ce travail a été construit dans la perspective de l'Analyse Institutionnel du Discours. La stratégie de pensée, moteur de tout travail, s'organise autour de concepts tels que discours, scène discursive, effets de reconnaissance et d'ignorance et d'ethos. Par la construction de scènes d'antagonisme entre l'individu dépressif et la société, l'énonciateur du blog configure un ethos, non comme prostration ou abattement, comme on pourrait s'y attendre, mais comme lieu de pouvoir et de résistance.

Este artículo se centra en el corpus encontrado en el blog "Mundo dos depresivos", donde su creador ofrece una mirada sobre cómo es ser un individuo deprimido. El objetivo es delimitar los contornos de subjetividad que se producen allí. Este trabajo fue construido desde la perspectiva del Análisis Institucional del Discurso. La estrategia de pensamiento, que impulsa todo el trabajo, se organiza en torno a conceptos como discurso, escena discursiva, efectos de reconocimiento e ignorancia, y ethos. A través de la construcción de escenas de antagonismo entre el individuo con depresión y la sociedad, el enunciador del blog configura un ethos, no como postración o disminución, como cabría esperar, sino como lugar de poder y resistencia.

Striving for a Realistic and Unapologetic View of Huntington's Disease.

This article describes how the author, a Huntington's disease (HD) gene expansion carrier and long-time advocate, has helped give voice to the HD community through his blog, At Risk for Huntington's Disease. Since 2005, the 321 articles have helped document the new and harrowing experience of living in the gray zone between a genetic test result and disease onset. At Risk for HD has explored major challenges for the HD community, has become a key reference for HD families, and has chronicled the quest to defeat the disease. This article analyzes the blog's thematic impact.

[The medicine and blogosphere: publications review].

The article presents the review of national and foreign publications reflecting aspects of development of medical blogosphere as communication space for medical workers and patients. The methodology of content analysis was applied. The main groups of medical bloggers (doctors, patients, nurses), characteristics of the blogs content, motivation for blogosphere posting are identified. The information and communication significance of the medical blogosphere is high and topical vectors are quite diversified. The development of the medical blogosphere testifies high level of demand for information forming the content of medical blogs both in patients and in colleagues-representatives of professional community.

A Fork in the Road for Emergency Medicine and Critical Care Blogs and Podcasts: Cross-sectional Study.

BACKGROUND: Free open-access meducation (FOAM) refers to open-access, web-based learning resources in medicine. It includes all formats of digital products, including blogs and podcasts. The number of FOAM blog and podcast sites in emergency medicine and critical care increased dramatically from 2002 to 2013, and physicians began to rely on the availability of these resources. The current landscape of these FOAM sites is unknown. OBJECTIVE: This study aims to (1) estimate the current number of active, open-access blogs and podcasts in emergency medicine and critical care and (2) describe observed and anticipated trends in the FOAM movement using the Theory of Disruptive Innovation by Christensen as a theoretical framework. METHODS: The authors used multiple resources and sampling strategies to identify active, open-access blogs and podcasts between April 25, 2022, and May 8, 2022, and classified these websites as blogs, podcasts, or blogs+podcasts. For each category, they reported the following outcome measures using descriptive statistics: age, funding, affiliations, and team composition. Based on these findings, the authors projected trends in the number of active sites using a positivist paradigm and the Theory of Disruptive Innovation as a theoretical framework. RESULTS: The authors identified 109 emergency medicine and critical care websites, which comprised 45.9% (n=50) blogs, 22.9% (n=25) podcasts, and 31.2% (n=34) blogs+podcasts. Ages ranged from 0 to 18 years; 27.5% (n=30) sold products, 18.3% (n=20) used advertisements, 44.0% (n=48) had institutional funding, and 27.5% (n=30) had no affiliation or external funding sources. Team sizes ranged from 1 (n=26, 23.9%) to ≥5 (n=60, 55%) individuals. CONCLUSIONS: There was a sharp decline in the number of emergency medicine and critical care blogs and podcasts in the last decade, dropping 40.4% since 2013. The initial growth of FOAM and its subsequent downturn align with principles in the Theory of Disruptive Innovation by Christensen. These findings have important implications for the field of medical education.

Extracting Multiple Worries From Breast Cancer Patient Blogs Using Multilabel Classification With the Natural Language Processing Model Bidirectional Encoder Representations From Transformers: Infodemiology Study of Blogs.

BACKGROUND: Patients with breast cancer have a variety of worries and need multifaceted information support. Their accumulated posts on social media contain rich descriptions of their daily worries concerning issues such as treatment, family, and finances. It is important to identify these issues to help patients with breast cancer to resolve their worries and obtain reliable information. OBJECTIVE: This study aimed to extract and classify multiple worries from text generated by patients with breast cancer using Bidirectional Encoder Representations From Transformers (BERT), a context-aware natural language processing model. METHODS: A total of 2272 blog posts by patients with breast cancer in Japan were collected. Five worry labels, "treatment," "physical," "psychological," "work/financial," and "family/friends," were defined and assigned to each post. Multiple labels were allowed. To assess the label criteria, 50 blog posts were randomly selected and annotated by two researchers with medical knowledge. After the interannotator agreement had been assessed by means of Cohen kappa, one researcher annotated all the blogs. A multilabel classifier that simultaneously predicts five worries in a text was developed using BERT. This classifier was fine-tuned by using the posts as input and adding a classification layer to the pretrained BERT. The performance was evaluated for precision using the average of 5-fold cross-validation results. RESULTS: Among the blog posts, 477 included "treatment," 1138 included "physical," 673 included "psychological," 312 included "work/financial," and 283 included "family/friends." The interannotator agreement values were 0.67 for "treatment," 0.76 for "physical," 0.56 for "psychological," 0.73 for "work/financial," and 0.73 for "family/friends," indicating a high degree of agreement. Among all blog posts, 544 contained no label, 892 contained one label, and 836 contained multiple labels. It was found that the worries varied from user to user, and the worries posted by the same user changed over time. The model performed well, though prediction performance differed for each label. The values of precision were 0.59 for "treatment," 0.82 for "physical," 0.64 for "psychological," 0.67 for "work/financial," and 0.58 for "family/friends." The higher the interannotator agreement and the greater the number of posts, the higher the precision tended to be. CONCLUSIONS: This study showed that the BERT model can extract multiple worries from text generated from patients with breast cancer. This is the first application of a multilabel classifier using the BERT model to extract multiple worries from patient-generated text. The results will be helpful to identify breast cancer patients' worries and give them timely social support.

How do prenatal people describe their experiences with anxiety? a qualitative analysis of blog content.

BACKGROUND: Despite elevated prevalence rates of prenatal (antenatal) anxiety across studies (13-21%), and prenatal people's use of the Internet to search for pregnancy-related information and support, research investigating prenatal people's experiences with online mental health communication, such as blogs, is lacking. This study examined blog entries focused on anxiety in pregnancy to better understand prenatal people's Internet discourse concerning their experiences with anxiety. METHODS: A Google search using the keywords "anxiety," "pregnant," and "blog" resulted in N = 18 blogs that met inclusion criteria (public blog written in English describing a personal experience with prenatal anxiety in 250 words or more). Blog content was analyzed using a thematic analytic approach based on grounded theory principles. RESULTS: Three main themes capturing prenatal people's experiences with anxiety as written in public blog content were developed from qualitative analyses: 1) etiology (subthemes: before pregnancy, during the current pregnancy, related to a previous pregnancy), 2) triggers (subthemes: uncertainty, perceived lack of control, and guilt and shame for not having a normal pregnancy), and 3) symptoms (subthemes: intertwined emotional, cognitive and physical symptoms, in addition to behavioural symptoms). CONCLUSIONS: Our findings demonstrate a need for perinatal professionals to address anxiety symptoms and triggers in pregnancy. One way to address this may be by providing credible information regarding prenatal mental and physical health to pregnant people through online mediums, such as blogs. Bloggers often discussed experiencing a combination of emotional, cognitive, physical, and behavioural symptoms, which suggests that medical and mental health professionals should work collaboratively to provide care for prenatal people experiencing anxiety. Furthermore, Cognitive Behavioural Therapy (CBT) addresses these types of symptoms, which suggests that interventions developed or adapted to meet this populations' needs could employ this therapeutic approach. Future research should explore the reasons why prenatal people experiencing anxiety engage with blogs, the characteristics of bloggers and readers, the impact of the blogging experience on both the blogger and their audience, and the information quality of blog content.

Medical Education Blog and Podcast Utilization During the COVID-19 Pandemic.

Introduction The coronavirus disease 2019 (COVID-19) pandemic disrupted traditional in-person learning models. Free Open Access Medical (FOAM) education resources naturally filled this void, so we evaluated how medical blog and podcast utilization changed during the early months of the pandemic. Methods Academic medical podcast and blog producers were surveyed on blog and podcast utilization immediately before (January-March 2020) and after (April-May 2020) the COVID-19 pandemic declaration and subsequent lockdown. Utilization is quantified in terms of blog post pageviews and podcast downloads. Linear regression was used to estimate the effect of publication during the COVID-19 period on 30-day downloads or pageviews. A linear mixed model was developed to confirm this relationship after adjustment for independent predictors of higher 30-day downloads or pageviews, using the podcast or blog as a random intercept. Results Compared to the pre-pandemic period, downloads and pageviews per unique blog and podcast publication significantly increased for blogs (median 30-day pageviews 802 to 1860, p<0.0001) but not for podcasts (median 30-day downloads 2726 to 1781, p=0.27). Publications that contained COVID-19 content were strongly associated with higher monthly utilization (ß=7.21, 95% CI 6.29-8.14 p<0.001), and even non-COVID-19 material had higher utilization in the early pandemic (median 30-day downloads/pageviews 868 to 1380, p<0.0001). Discussion The increased blog pageviews during the early months of the COVID-19 pandemic demonstrated the important role of blogs in rapid knowledge translation. Podcasts did not experience a similar increase in utilization.

Avaliando comunicativamente na Educação Física escolar: experiências e narrativas por meio das tecnologias de informação e comunicação / Communicatively evaluating in Physical Educationat school: experiences and narratives through information and communication technologies / Evaluando comunicativamente em la Educación Física escolar: vivencias y narrativas por medio de las tecnologías de información y comunicación

Este artigo se sustenta na apresentação e na discussão de uma investigação avaliativa sob uma abordagem qualitativa de pesquisa. Em suas descrições e análises, ele foi fortemente influenciado pelas discussões sobre Tecnologias de Informação e Comunicação (TIC) na Educação. Problematizaram-se questões sobre avaliações comunicativas para a aprendizagem por meio da utilização do blog no ensino médio de uma escola estadual de Minas Gerais, ancoradas na Teoria do Agir Comunicativo habermasiana. Concluiu-se que os estudantes se demonstraram afetados pela proposição e pelos significados partilhados pelos diferentes atores do ensino médio envolvidos e pelas diferentes situações educativas apresentadas e problematizadas via TIC. Concluiu-se, ainda, que as TIC, quando utilizadas no processo de avaliação de modo sistematizado, articuladas, inclusive, a outros métodos e em sintonia com os preceitos comunicativos, potencializam as aulas de Educação Física, inclusive no período "pós" pandêmico.

This article is based on the presentation and discussion of na evaluative investigation under a qualitative research approach. In its descriptions and analyses, it was heavily influenced by discussions of Information and Communication Technologies (ICT). Questions about communicative assessments for learning were problematized through the use of the blog in the high school of a state school in Minas Gerais, anchored in the Habermas Theory of Communicative Action. It was concluded that the students were affected by the proposition and them eanings shared by the different high school actors involved and by the different educational situations presented and problematized throug ICT. It was also concluded that the ICT, when used in the evaluation process in a systematic way, combined, more over, too ther methods and in tune with the communicative precepts, enhance the Physical Education classes, potentially, even, in the period "post" pandemic.

En este artículo se sostiene la presentación y discusión de una investigación evaluativa sobre un abordajen cualitativa de pesquisa. En sus descripciones y análisis, él fue fuertemente influcenciado por las discusiones de las Tecnologías de Información y Comunicación (TIC) em Educación. La problematización se lo ocurre devido a cuestiones sobre las evaluaciones comunicativas para el aprendizajen por médio de la utilización del blog en la enseñanza secundaria de una escuela del Gobierno de Minas Gerais, anclado en las Teoría de Actuación Comunicativa habermasiana. Concluye que los estudiantes se demuestran afectados por la proposición y por los significados impartidos por los distintos actores y la enseñanza secundaria envueltos y por las distintas situaciones educativas presentadas y problematizadas por las TIC. Concluyese, aún, que las TIC, cuando utilizadas en el processo de evaluación de manera sistematizada, articuladas, incluso, a otros métodos y en sintonía con los preceptos comunicativos, que pueden potencializar las clases de Educación Física, potencialmente, incluso, en el período "post" pandémico.

Internet-based health communication opportunities (blogs, podcasts, video channels) and the social media / Internetalapú egészségkommunikációs lehetoségek (blogok, podcastok, videócsatornák) és a közösségi média.

Összefoglaló. Az elmúlt években mind laikus, mind szakmai oldalról az internet vált az elso számú egészségügyi információforrássá, amit a COVID-19-pandémia tovább fokozott. Az online térben számos, különbözo jellegu platform áll rendelkezésre egészségkommunikációs célokra, melyek markánsan különböznek egymástól az átadható információ mennyiségében és minoségében, a létrehozásukhoz szükséges anyagi vagy idobeli ráfordításban, továbbá az ott létrehozott tartalom fogyasztási lehetoségeiben. Összefoglaló közleményünkben rendszerezve mutatjuk be a szöveg-, a hang-, illetve a videóalapú online egészségügyi edukációs formák elonyeit és hátrányait. Külön foglalkozunk a közösségi média (social media) egészségügyi vonatkozásaival, a benne rejlo lehetoségekkel, kiemelve a pandémia kapcsán felmerült problémákat. Az egyes platformok egészségüggyel kapcsolatos történelmének feldolgozása mellett gyakorlati oldalról mutatjuk be azok hasznosíthatóságát, elosegítve ezzel az online térbe terelt kollégák munkáját. Orv Hetil. 2022; 163(4): 132-139. Summary. In recent years, the internet has become the leading source of health-related information for both professionals and laymen, and this process has been further speeded up by the Covid-19 pandemic. There are many different platforms available for health communication purposes online, that vary greatly in the quantity and quality of transferable information; the time or financial input, which are necessary to create them; and the possibilities of the utilization of the created content. In our review, we present systematically the advantages and disadvantages of the text-, audio-, and video-based online health-related education platforms. We specify the health-related aspects of social media and its potential usability, focusing on the problems allied to the pandemic. We present the practical use of the different platforms from a healthcare perspective through the review of their respective histories, thus providing guidance to the colleagues working online. Orv Hetil. 2022; 163(4): 132-139.

Why does library holding format really matter for book impact assessment?: Modelling the relationship between citations and altmetrics with print and electronic holdings.

Scholarly books are important outputs in some fields and their many publishing formats seem to introduce opportunities to scrutinize their impact. As there is a growing interest in the publisher-enforced massive collection of ebooks in libraries in the past decade, this study examined how this influences the relationship that library print holdings (LPH), library electronic holdings (LEH) and total library holdings (TLH) have with other metrics. As a follow up study to a previous research on OCLC library holdings, the relationship between library holdings and twelve other metrics including Scopus Citations, Google Books (GB) Citations, Goodreads engagements, and Altmetric indicators were examined for 119,794 Scopus-indexed book titles across 26 fields. Present study confirms the weak correlation levels observed between TLH and other indicators in previous studies and contributes additional evidence that print holdings can moderately reflect research, educational and online impact of books consistently more efficient than eholdings and total holdings across fields and over time, except for Mendeley for which eholdings slightly prevailed. Regression models indicated that along with other dimensions, Google Books Citations frequently best explained LPH (in 14 out of 26 fields), whereas Goodreads User counts were weak, but the best predictor of both LEH and TLH (in 15 fields out of 26), suggesting significant association of eholdings with online uptake of books. Overall, findings suggest that inclusion of eholdings overrides the more impactful counts of print holdings in Total Library Holdings metric and therefore undermines the statistical results, whilst print holdings has both statistically and theoretically promising underlying assumptions for prediction of impact of books and shows greater promise than the general Library Holding metric for book impact assessment. Thus, there is a need for a distinction between print and electronic holding counts to be made, otherwise total library holding data need to be interpreted with caution. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s11192-021-04239-9.

"Unheard minds, again and again": autistic insider perspectives and theory of mind.

PURPOSE: The Theory of Mind (ToM) deficit hypothesis is a dominant construct used to explain the social and communication difficulties observed in autistic individuals. This hypothesis was based on an interpretation of autistic individuals' observable behavior, not based on insider accounts. Insider perspectives still remain mostly absent in research on ToM. We aimed to gain an understanding of the relevance and applicability of ToM by examining writings of autistic bloggers. METHODS: As part of a series of studies examining insider autistic perspectives, we used a descriptive qualitative approach and conducted a thematic analysis of content scraped from 40 blogs written by autistic authors. RESULTS: The blogs offered important perspectives on the applicability of ToM to autistic individuals. The primary themes reflected empirical contradictions to ToM, explicit critiques of ToM, and pointed to ToM as a source of harm. CONCLUSION: The insider perspectives call into question the ways clinicians, researchers, and society use ToM to understand autistic individuals and point to the harmful effects of ToM on autistic lived experience. These findings emphasize the importance of attending to autistic people in building a body of knowledge that better reflects autistic experiences and promotes more effective and ethical clinical practices.Implications for RehabilitationOur paper indicates the need for a timely and thorough re-evaluation of the ToM deficit hypothesis of autism.Autistic insider perspectives not only empirically demonstrate and explicitly critique the ToM deficit hypothesis, but reveal the hypothesis as harmful to autistic experience by reinforcing negative stereotypes, prompting acts of discrimination, and perpetuating autistic insider's exclusion from the research concerning them.Given the varied experiences of autistic people and the harmful impacts of the ToM deficit hypothesis, it is safer for clinicians and researchers to presume a presence of ToM and empathy, before they presume a deficit in autistic individuals.Autistic insiders are able, eager, and deserve to be included in the research and practices that concern them.

"Personal road map for recovery:" examining the therapeutic use of weblogs by stroke survivors with aphasia.

BACKGROUND: Strokes are a leading cause of disability in the United States. Approximately 25-40% of individuals who experience a stroke will have aphasia. Individuals with aphasia experience many life changes and some have found that writing activities, such as publishing text entries on a personal website, or weblog, to be therapeutic. PURPOSE: This study aimed to gain a greater understanding of the therapeutic use of blogs for stroke survivors with aphasia. DESIGN: Inductive qualitative content analysis. METHODS: Potential, publicly available weblogs written by people with aphasia were identified using a pre-determined search method and five met inclusion criteria. Data were collected from websites and collated into 453 pages of narratives. An inductive qualitative content analysis process was used to extract codes that were reduced to sub-categories and generic categories. RESULTS: A main category of therapeutic healing and three generic categories of (1) living with aphasia, (2) accepting a new identity, and (3) creating a community were identified. CONCLUSION: Weblog writing was therapeutic for stroke survivors with aphasia. Authors reported benefits across cognitive, psychological, emotional, and social domains. Health professionals should consider recommending weblog writing, journaling, or other methods of writing for stroke survivors with aphasia.Implications for rehabilitationCreating illness weblog posts can be therapeutically beneficial for stroke survivors with aphasia as a tool that addresses psychological, emotional, and social aspects in their recovery.Blogging appeared to offer a medium for stroke survivors with aphasia to practice writing, to express what living with aphasia is like, to explore changes in their post-stroke identities, and to create a community with others.Health professionals should consider recommending weblog writing, journaling, or other methods of writing for stroke survivors with aphasia.