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1.
J Bioeth Inq ; 2024 Jun 04.
Article in English | MEDLINE | ID: mdl-38833101

ABSTRACT

This paper reviews briefly the main approaches in the literature on ethics of war and suggests the need to move beyond an ethic of justice towards an ethic of care. The analysis problematizes dominant understandings of "just war" and "just peace" in the literature and highlights that incorporating elements of an ethic of care, our understanding of ethics of war and peace can be redefined, sharpened, and redeployed through an enlarged ethical lens. The author suggests that scholars and practitioners in different fields of study and domains of social and political life can make important contributions by defining, elucidating, and advocating why both perspectives, those of ethic of justice and care, together allow us to capture the prospects of a broader understanding and the practice of peace.

2.
Arts Health ; : 1-16, 2024 Feb 25.
Article in English | MEDLINE | ID: mdl-38402628

ABSTRACT

BACKGROUND: This paper explores the opportunities that creative, nature-based activities offer for mobilising social connections via community-centred approaches to improve individual and collective wellbeing. METHODS: The study involved ethnographic methods and data was gathered from a nature for wellbeing project implemented in a rural village in North East England. RESULTS: The findings indicate creative, nature-based activities delivered within an environment marked by an ethic of care and kindness enabled the project to engage with participants at individual and collective levels simultaneously, which enhanced the project's ability to mobilise community skills and assets, and affect connectedness, equity and control within social groups facing significant disadvantages. CONCLUSION: Creative, nature-based activities, delivered with an ethic of care, present an opportunity to recognise and engage complex and, at times, opposing undercurrents inherent in social connections between individuals and social groups.

3.
Nurs Ethics ; 30(5): 720-729, 2023 Aug.
Article in English | MEDLINE | ID: mdl-37946386

ABSTRACT

The unique role of the nurse ethicist in the clinical setting is one meant to enhance the ethical capacity of nurses, and front-line healthcare providers. As a nurse ethicist, it is also my goal to enhance the ethical climate of each individual work area, patient care unit, and the broader institution by encouraging ethical conversations, navigating ethical dilemmas, and seeking creative solutions to minimize moral distress and burnout. To provide preventive ethics support and education, I began regularly visiting patient care areas for ethics rounds, which I affectionately named "E-walks" (for Ethics Walks). I will discuss and reflect upon the lessons that have emerged as three key components of "E-Walks": Recognition, Solidarity and Dialogue. These themes will speak to the unique presence and availability of a nurse ethicist as a valuable resource to front-line healthcare providers who face ethical dilemmas and morally concerning cases. I will go on to argue and demonstrate that my role as the nurse ethicist lies at the intersection of bioethics and the theoretical framework of the "ethic of care," which is focused on building, creating, and sustaining caring interprofessional relationships through the work of ethics, nursing, and education.


Subject(s)
Bioethics , Ethics, Nursing , Humans , Ethicists , Burnout, Psychological , Stress, Psychological , Morals
5.
Early Child Educ J ; : 1-13, 2023 Apr 27.
Article in English | MEDLINE | ID: mdl-37360604

ABSTRACT

Caring relationships among families and providers are at the heart of high-quality early care and education (ECE). This study examines relationships between parents and providers in a nationally representative sample of infants and toddlers and their families (N = 527) enrolled in the two-generation Early Head Start (EHS) program in the U.S. EHS' primary services include home visiting and center-based early education, taking a whole family approach to provide comprehensive services within caring and trusting relationships. Using weighted lagged regression models, we found that parent and provider reports of their positive relationships with one another at age 2 years were related to some child and family outcomes at the end of their EHS experience at age 3 years. Providers who reported better relationships with parents rated children as having lower behavior problems and enhanced social competence, language comprehension, language production, and home environments. Parents who reported better relationships with providers also reported lower parenting stress and family conflict. Findings suggest that caring relationships between providers and parents are a key part of high-quality ECE within an environment dedicated to an ethic of care not just for children, but for the whole family.

6.
Article in English | MEDLINE | ID: mdl-36674121

ABSTRACT

BACKGROUND: Since the 1960s, the Independent Life Movement has demanded personal assistance as a right for people with disabilities to access autonomy. In turn, feminist movements have shown a special concern for the care and profile of the providers. Both postures have created tensions around the provision of personal assistance and care for people with disabilities. AIM: To know and analyze the scientific evidence regarding approaches to personal assistance and care for people with disabilities. METHODS: An Integrative Literature Review using five databases: Dialnet, Scielo, PubMed, Scopus, and Web of Science. The Boolean combinations were: "Personal assistance AND disability"; "Personal assistance AND care AND disability"; "Care AND disability" in English, and "Asistencia personal AND discapacidad"; "Asistencia personal AND cuidados AND discapacidad"; "Cuidados AND discapacidad" in Spanish. A total of 31 scientific articles were obtained. A content analysis was then, with five analysis dimensions emerging. RESULTS: The articles approached the positive aspects of personal assistance. Others established the need for more resources in order to not be an exclusive reality for developed countries. Profiles were made of racialized, young, migrant women as the identity behind (informal) care. From the perspective of a feminist disability care ethic, new forms of providing care are proposed, by changing the focus from individual and family responsibility, towards a social and collective focus. CONCLUSION: The evidence analyzed considers various dimensions of the epistemo-political tension between personal assistance and care. The meeting point between both perspectives is interdependence and autonomy; on the one side, for people with disabilities, and on the other, for the women profiled as the main caregivers.


Subject(s)
Disabled Persons , Humans , Female , Caregivers
7.
J Sch Leadersh ; 33(4): 409-427, 2023 Jul.
Article in English | MEDLINE | ID: mdl-38603420

ABSTRACT

The ethic of care is a moral philosophy that has been used to describe and guide the work of educators, especially those working with students with special education needs (SEN). In this study, 36 principals and vice principals from four provinces in Canada were interviewed about their work with students with SEN during the pandemic. Responses were analyzed using the ethic of care framework. Accordingly, responses indicated that principals were particularly aware of, and responsive towards, the wide range of need experienced by students, their families, and school staff. Principals appeared especially concerned about the social needs of their students with SEN, the emotional support needs of the students' families, and the teachers' distress at not being able to meet all the educational needs of their students. Although most principals described the emotional toll of their work during the pandemic, none identified efforts directed towards self-care. This paper considers these findings in regard to motivational displacement as it relates to an ethic of care and calls for a broader consideration of need within education, such that support is extended to students, school staff and school leaders as the most effective means to foster healthy, future-ready schools. Key words: pandemic, principal, inclusive education, ethic of care, mental health.

8.
Soc Sci Med ; 308: 115222, 2022 09.
Article in English | MEDLINE | ID: mdl-35930848

ABSTRACT

The activities of community-based health actors are widely recognized as critical to pandemic response; yet, there exists a lack of clarity concerning who is included in this ecosystem of actors and how these actors experience the complexity of delivering community-level care in the context of a public health emergency. The objectives of this study were (1) to characterize the lived experiences of community-based health actors during the COVID-19 pandemic in the Philippines; and (2) to identify opportunities for further supporting these critical actors in the health workforce. Virtual semi-structured interviews were conducted (January-February 2021) with 28 workers employed by a Philippines-based non-governmental organization (NGO) to explore their lived experiences during the COVID-19 pandemic. Data were analyzed thematically using a hybrid inductive-deductive coding process, informed by Tronto's conceptualization of an ethic of care. Lived experiences among study participants were shaped by discourses of fear and care, and the interaction between these two affects. Participants reported everyday experiences of fear: NGO workers' fears of contracting and transmitting COVID-19 to others; perceived fear among community members where they worked; and fears around COVID-19 testing, recognizing the personal and social implications (e.g. stigma) of a positive test. Amid fear, participants had everyday experiences of care: care was a powerful motivator to continue their work; they felt supported by a caring organization that implemented safety protocols and provided material supports to those in quarantine; and they engaged in self-care practices. These findings contribute to understanding the ecosystem of actors involved in community-based health care and engagement efforts and the challenges they encounter in their work, particularly in a pandemic context. We highlight implications for civil society organizations charged with protecting the mental and physical well-being of their workers and describe how these actions can contribute to local health systems strengthening.


Subject(s)
COVID-19 , COVID-19/epidemiology , COVID-19 Testing , Ecosystem , Fear , Humans , Pandemics , Philippines , Public Health
9.
BMC Public Health ; 22(1): 1092, 2022 06 01.
Article in English | MEDLINE | ID: mdl-35650565

ABSTRACT

BACKGROUND: Public health guidance and associated interventions seek to bring about change in diet and physical activity behaviours to improve life expectancy and healthy life expectancy in the population. Low socioeconomic status (SES) groups suffer from reduced life/healthy life expectancy compared with the population as a whole. This in-depth qualitative study, investigates the lives and experiences of mothers with young children living in a low SES area in a London (UK) borough, to understand the context in which current public health guidance on diet and physical activity is received and viewed, and how this understanding could be used to inform the development of public health guidance and interventions for this group. METHODS: The mothers (n = 20), were recruited from a Surestart Centre, Children's Centres and through the local branch of a national charity. The mothers took part in a series of three in depth interviews over two years (2016-2017). Thematic analysis was used to generate an iterative set of codes informing an understanding of motherhood, diet and physical activity. RESULTS: Motherhood was found to be a major factor for understanding and interpreting how women in low SES areas respond to public health guidance on diet and physical activity. The mothers were well informed about dietary guidance, considered that provision of healthy food was critical to the mothering role, but found it difficult to implement the guidance in their own lives. In contrast, physical activity was not seen as integral to the mothering role, although it was acknowledged that it played a part in ensuring that the mothers remained healthy enough to fulfil all their duties. Constrained by the ethic of care, and a lack of material and time resources, the mothers prioritised their family's health above their own. This study, enabled the mothers to articulate ideas for interventions that would be supportive of a healthy lifestyle and of practical application in their busy lives. CONCLUSIONS: Mothers from this low SES area responded differently to the public health guidance on diet and on physical activity. Whilst providing and modelling a healthy diet was seen as an essential part of the mother's role, participating in leisure based physical activity was problematic, and unless carefully framed, could be perceived as selfish behaviour, inappropriate for the "good" mother.


Subject(s)
Diet , Public Health , Child , Child, Preschool , Exercise , Female , Healthy Lifestyle , Humans , Mothers
10.
Front Psychol ; 13: 766283, 2022.
Article in English | MEDLINE | ID: mdl-35222181

ABSTRACT

Dignity is a universal principle that requires us to treat every person as having worth beyond who a particular person is or what they do. Dignity is a complex and sometimes contested idea, that at times can be compromised in health care and allegedly also within the practice of outdoor therapy. Outdoor therapies comprise a range of therapeutic approaches including nature-based therapy, adventure therapy, animal-assisted therapy, forest therapy, wilderness therapy, surf therapy, and more. Within the literature of outdoor therapies there has been limited research on ethics related to common understandings of care concepts such as relational dignity and human rights. The aim of this paper is therefore to unravel briefly whether dignity in general, and relational qualities of dignified care more particularly, might be a useful concept to apply in order to support an ethical practice in outdoor therapies.

11.
Article in English | MEDLINE | ID: mdl-35162095

ABSTRACT

Socioeconomic status (SES) is known to influence strongly both life expectancy and healthy life expectancy. Whilst there are multiple factors with complex interactions that provide the explanation for this observation, differences in the uptake of physical activity between high and low SES groups play a role. This in-depth qualitative study set out to understand the response of a group of mothers with young children living in a low SES area of a London (UK) borough to the current physical activity guidance and to investigate whether existing and established interventions based on behavior change are appropriate for this group. A series of three in depth interviews was carried out with the mothers (n = 20) over a period of 16 months, and the data collected were analyzed thematically. Four main themes were identified: (1) mothering comes before exercise; (2) mothers are a special case; (3) alone or together; and (4) facilities fail mothers. The mothers were unsure about the benefits of exercise, whether it was relevant for them and how to accommodate exercise alongside their mothering responsibilities. Family and peer group could be both a barrier and a facilitator to participation in physical activity. Without an in depth understanding of the role of physical activity in the lives of mothers of young children, behavior change-based public interventions are likely to fail to meet the needs of this group. A reduction in the current health inequities will only be possible when the needs of the mothers are acknowledged and used as the basis of appropriate public health guidance.


Subject(s)
Exercise , Mothers , Child , Child, Preschool , Female , Humans , Income , Qualitative Research , Social Class
12.
Cult Stud Crit Methodol ; 21(3): 301-305, 2021 Jun.
Article in English | MEDLINE | ID: mdl-38603112

ABSTRACT

At the outset of the coronavirus pandemic, before we had a chance to acclimate to our world turned upside-down, I was genuinely confounded by the inflexibility of some professors to help students. After all, we had been offered the grace of an extension on tenure-track requirements, and afforded the opportunity, and relative safety, of working from home. How was it possible then, to not understand that students, too, might need grace? And how could anyone be OK with choosing not to help? Far from traditional research questions, my wonderings provoked lively conversations with colleagues, and a lens through which to consider my own positionality and difficulties in dealing with the challenges posed by the pandemic. Framed by Nel Noddings' Ethic of Care, and through poetic inquiry, this article presents a personal response to teaching in an Educator Preparation Program during a global pandemic.

15.
Interdisciplinaria ; 36(2): 283-298, dic. 2019. graf
Article in Spanish | LILACS-Express | LILACS | ID: biblio-1056553

ABSTRACT

Resumen La crisis económica actual ha sido un fenómeno nuevo e inesperado; es parte del sistema capitalista, bancario y económico que ha sido conocido hasta el año 2008. La crisis ha llevado a los bancos, los Estados, las instituciones internacionales, así como a las personas del común, a ver profundos cambios en sus representaciones sobre la economía. En este escenario, se plantea la pregunta: ¿cómo los hombres y las mujeres de estratos sociales diferentes afrontan el fenómeno complejo y desconocido de la crisis económica? ¿El género y el estatus social justifican diferentes significados atribuidos a la crisis, sus causas y consecuencias? En el presente artículo se elige la teoría de las representaciones sociales para estudiar el papel del género y el nivel educativo en la producción de las representaciones de la crisis. Se presentan resultados de encuestas realizadas en el sur de Italia (N = 120), los cuales revelan que tanto el género como el nivel educativo de las personas marcan diferencias en la forma de definir y afrontar la crisis. Por un lado, los participantes de alto nivel definen la crisis en términos más abstractos que los participantes de bajo nivel. Por otra parte, los hombres de alto nivel mantienen un estado de coping más proactivo con la crisis que los otros participantes, especialmente mujeres. La discusión se enfoca en el papel de la teoría de la representación social entendiendo la relación entre género, estatus y comportamiento económico, aportando ideas sobre cómo la igualdad de género puede ser mejorada.


Abstract The current economic crisis has been a new and unexpected phenomenon; it is part of the capitalist banking and economic system that has been known until 2008. The crisis has led to banks, states, international institutions, as well as common people, changing profoundly their representations about the economy. In this scenario, some questions arise: how do men and women of different social status face the complex and unknown phenomenon of the economic crisis? Do gender and social status justify the different meanings attributed to the crisis, to its causes and its consequences? When confronted with an external threat like the economic crisis, people draw on social representations to provide meaning to that unfamiliar situation. Through media and interpersonal communication, social groups produce naive theories that improve familiarity with an unexpected and distressing phenomenon. In order to analyze these lay theories elaborated though daily economic thinking and acting, this research has been conducted using Social Representation Theory and its methodological approaches. This theory, in fact, contributes to our understanding of the societal process of sense making when an unexperienced external shock affects society. It offers a way to understand economic phenomena's impact on social groups. Social representations (SRs) serve the purpose of making the unfamiliar become familiar, and the unusual become usual, as well as to provide orientation in times of change. In this sense, in this article, social representations theory is used to examine the role of gender and educational status in the production of representations of the crisis. Presented findings came from a survey carried out in Southern Italy (N = 120) revealing status and gender differences in the ways people define the crisis and cope with it. Participants were asked to order the first most important five statements and the first least important statements, among a list of 15 (according to the rule of a multiple of 3) to code every item with a score of 1 (less characteristic), 3 (more characteristic), or 2 (not chosen). Every Questionnaire of Characterization was created starting from social descriptions and explanations of the crisis, identified in a previous study. They covered every sub-dimension of the content (complementary to the structure) of the social representation of the crisis, such as: cognitive-evaluative aspects about the representation's structure (central and peripheral elements); descriptive-defining aspects of the representation; informative sources and interaction networks; level of involvement/implication with the object; relationship between representation and social practices; perceptions, attributions and categorizations (causes, responsibilities, duration/evolution, solutions, positive implications, the EU's role). In this paper, we will only consider the answers related to the following dimensions: crisis definitions, strategies to tackle the crisis and social practices related to the crisis. The analysis of the data was carried out primarily using Multiple Correspondence Analysis (MCA). In this analysis, in order to uncover the objectification and anchoring processes, we considered the interaction of status and gender as an illustrative variable. These findings were further substantiated with the use of Discriminant analysis. The social anchoring of social representations of the economic crisis is influenced by gender and social status. Nevertheless, the difference in status modifies the stereotypical dimensions, also coherently with predictions derived from gender role theory about the reduction of the impact of gender stereotypes when men and women occupy similar social positions. On the one hand, high-status participants defined the crisis in more abstract terms than low-status participants. On the other hand, high-status men hold a more proactive style of coping with the crisis than other participants, especially women. The discussion focuses on the role of social representations theory in understanding the relationships between gender, status and economic behavior, providing insights into how gender equality might be improved.

16.
Qual Health Res ; 28(9): 1421-1433, 2018 07.
Article in English | MEDLINE | ID: mdl-29766747

ABSTRACT

The involvement of "people with experience" in research has developed considerably in the last decade. However, involvement as co-analysts at the point of data analysis and synthesis has received very little attention-in particular, there is very little work that involves people living with dementia as co-analysts. In this qualitative secondary data analysis project, we (a) analyzed data through two theoretical lenses: Douglas's cultural theory of risk and Tronto's Ethic of Care, and (b) analyzed data in workshops with people living with dementia. The design involved cycles of presenting, interpreting, representing and reinterpreting the data, and findings between multiple stakeholders. We explore ways of involving people with experience as co-analysts and explore the role of reflexivity, multiple voicing, literary styling, and performance in participatory data analysis.


Subject(s)
Community-Based Participatory Research/organization & administration , Dementia/psychology , Patient Participation , Research Design , Caregivers/ethics , Caregivers/psychology , Humans , Qualitative Research , Resilience, Psychological
17.
Article in English | MEDLINE | ID: mdl-27980721

ABSTRACT

The proliferation of medically assisted reproduction (MAR) for the treatment of infertility has brought benefit to many individuals around the world. But infertility and its treatment continue to be a cause of suffering, and over the past decade, there has been a steady growth in a new global market of inter-country medically assisted reproduction (IMAR) involving 'third-party' individuals acting as surrogate mothers and gamete donors in reproductive collaborations for the benefit of other individuals and couples who wish to have children. At the same time there is evidence of a double standard of care for third-party women involved in IMAR, violations of human rights of children and women, and extreme abuses that are tantamount to reproductive trafficking. This paper is the report of an inter-disciplinary working group of experts who convened in Israel to discuss the complex issues of IMAR. In Israel too IMAR practices have grown rapidly in recent years, mainly because of restrictions on access to domestic surrogacy for same sex couples and a chronically insufficient supply of egg cells for the treatment of couples and singles in need. Drawing upon local expertise, the paper describes documented practices that are harmful, suggests principles of good practice based on an ethic of care, and calls for action at the international, national and professional levels to establish a human rights based system of international governance for IMAR based on three regulatory models: public health monitoring, inter-country adoption, and trafficking in human beings, organs and tissues.


Subject(s)
Human Rights , Reproductive Techniques, Assisted/ethics , Child , Consensus , Female , Global Health/ethics , Human Trafficking/prevention & control , Humans , Infant, Newborn , Infertility/therapy , Israel , Male , Medical Tourism , Public Health Surveillance , Reproductive Techniques, Assisted/legislation & jurisprudence
18.
OTJR (Thorofare N J) ; 36(4): 216-226, 2016 Oct.
Article in English | MEDLINE | ID: mdl-27591435

ABSTRACT

Ethical tensions arise daily in health care practice and are frequently related to health care system structures or policies. Collective case study methodology was adopted to examine ethical tensions reported by occupational therapists practicing in different settings in Southwestern Ontario, Canada. Inductive analysis involving multiple layers of coding was conducted. This article focuses on tensions related to systemic constraints. Participants reported ethical tensions related to balancing client priorities with those of health care services. Four themes related to systemic constraints were identified including imposed practices, ineffective processes, resource limitations, and lack of services. Therapists' aims could be seen to align with an "ethic of care" and were seen to be in tension in light of systemic constraints. The findings raise issues related to occupational justice, particularly related to occupational alienation in occupational therapy practice, and open conversations related to neoliberalist health care agendas.

19.
J Lesbian Stud ; 20(2): 251-65, 2016.
Article in English | MEDLINE | ID: mdl-26914825

ABSTRACT

Discussions of public sexual spaces in the social science literature have, until recently, been dominated by analyses of men's use of these spaces for erotic expression. In the late 1990s, feminist collectives began to explore the emancipatory potentials these spaces can have for lesbian sexualities. After a police raid on one such event called the "Pussy Palace," scholars in diverse disciplines began to explore how these events have both opened up and restricted erotic possibilities for lesbians, queer women, and trans* attendees. This article reviews the existing social science literature on lesbian and queer bathhouse events and highlights several key themes and subthemes that have dominated the discourse, including the importance that these spaces be recognized for their ability to both shape and be shaped by principles of community, safety, and sexual health/wellness.


Subject(s)
Homosexuality, Female , Homosexuality, Male , Public Facilities , Sexual Behavior , Baths , Female , Humans , Male , Social Behavior
20.
Bioethics ; 30(3): 181-7, 2016 Mar.
Article in English | MEDLINE | ID: mdl-26194147

ABSTRACT

Genetic testing reveals information about a patient's health status and predictions about the patient's future wellness, while also potentially disclosing health information relevant to other family members. With the increasing availability and affordability of genetic testing and the integration of genetics into mainstream medicine, the importance of clarifying the scope of confidentiality and the rules regarding disclosure of genetic findings to genetic relatives is prime. The United Nations International Declaration on Human Genetic Data urges an appreciation for principles of equality, justice, solidarity and responsibility in the context of genetic testing, including a commitment to honoring the privacy and security of the person tested. Considering this global mandate and recent professional statements in the context of a legal amendment to patient privacy policies in Australia, a fresh scrutiny of the legal history of a physician's duty to warn is warranted. This article inquiries whether there may be anything ethically or socially amiss with a potential future recommendation for health professionals or patients to universally disclose particular cancer predisposition genetic diagnosis to genetic family members. While much of the discussion remains applicable to all genetic diagnosis, the article focuses on the practice of disclosure within the context of BRCA1/2 diagnosis. An 'ethic of care' interpretation of legal tradition and current practice will serve to reconcile law and medical policy on the issue of physician disclosure of genetic results to family members without patient consent.


Subject(s)
Confidentiality/ethics , Conflict, Psychological , Duty to Warn/ethics , Duty to Warn/legislation & jurisprudence , Genetic Privacy/ethics , Personal Autonomy , Physician's Role , Physician-Patient Relations/ethics , Privacy/legislation & jurisprudence , Australia , Conscience , Ethics, Medical , Family , Genetic Predisposition to Disease , Genetic Testing , Humans , Informed Consent/ethics , Legislation, Medical/ethics , Legislation, Medical/standards , Legislation, Medical/trends , Neoplasms/genetics , Neoplasms/psychology , Public Policy , United States
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