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1.
J Law Med Ethics ; 51(2): 301-313, 2023.
Article in English | MEDLINE | ID: mdl-37655566

ABSTRACT

This article provides a critical review of new policies in China, the United States, and the European Union that characterize genomic data as a national strategic resource. Specifically, we review policies that regulate human genomic data for economic, national security, or other strategic purposes rather than ethical or individual rights purposes.


Subject(s)
Biomedical Research , Genomics , Humans , European Union , Policy , Information Dissemination
2.
Article in Chinese | WPRIM (Western Pacific) | ID: wpr-513248

ABSTRACT

The information commons concept-based stereoscopic resources support system for academic library with brand-new connotations and its application were proposed according to the increasing development and expansion of informationization, networking and digitization in different social fields, the significant change in disseminating methods of information resources, and the need of readers for library service.

3.
Article in Chinese | WPRIM (Western Pacific) | ID: wpr-605958

ABSTRACT

The change of library space is driven by various factors, such as technology innovation, users demand and the changing competitive environments. The evolution processes of library space were thus clarified by retrie-ving CNKI, namely from computer and IT to Internet and wide application of information and communication tech-nology, from physical space to virtual space, from space function to information commons, learning, pioneering work and social intercourse, which can eventually lead to the intelligent, individual and ubiquitous library space.

4.
Article in Chinese | WPRIM (Western Pacific) | ID: wpr-460372

ABSTRACT

The freshmen admission education in academic library is characterized by multiple contents and forms with gradual transformation of education position to network in information environment .The cases of freshmen ad-mission education in libraries of Beijing Normal University , Qinghua University , Shanghai Jiaotong University , and Jinan University were analyzed with its new techniques and new models summarized .The future direction of fresh-men admission education was forecasted , including establishment of standard freshmen education concept , use of more new techniques and more innovative methods .

5.
Article in Chinese | WPRIM (Western Pacific) | ID: wpr-601433

ABSTRACT

After the connotation and features of open information environment were briefly described , the challen-ges of open information environment to the central position of information resources and information service functions in academic library were pointed out with measures put forward for development of academic library.

6.
Health Inf Sci Syst ; 2: 4, 2014.
Article in English | MEDLINE | ID: mdl-25825668

ABSTRACT

We review traits of reusable clinical data and offer a typology of clinical repositories with a range of known examples. Sources of clinical data suitable for research can be classified into types reflecting the data's institutional origin, original purpose, level of integration and governance. Primary data nearly always come from research studies and electronic medical records. Registries collect data on focused populations primarily to track outcomes, often using observational research methods. Warehouses are institutional information utilities repackaging clinical care data. Collections organize data from more organizations than a data warehouse, and more original data sources than a registry. Therefore even if they are heavily curated, their level of internal integration, and thus ease of use, can be less than other types. Federations are like collections except that physical control over data is distributed among donor organizations. Federations sometimes federate, giving a second level of organization. While the size, in number of patients, varies widely within each type of data source, populations over 10 K are relatively numerous, and much larger populations can be seen in warehouses and federations. One imagined ideal structure for research progress has been called an "Information Commons". It would have longitudinal, multi-leveled (environmental through molecular) data on a large population of identified, consenting individuals. These are qualities whose achievement would require long term commitment on the part of many data donors, including a willingness to make their data public.

7.
Article in Chinese | WPRIM (Western Pacific) | ID: wpr-573006

ABSTRACT

A scheme for constructing the information commons with characteristics of medical and pharmaceutical colleges and universities was put forward in term of its construction model, function layout and implementation steps in combination with the practical conditions in Library of Guangdong Pharmaceutical College according to the ques-tionnaire investigation and analysis of the suggestions proposed by the readers for the construction of information commons.

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