I see you: a Chaplain case study on existential distress and transdisciplinary support.

In the setting of major disease progression coupled with active pain, hospitalized patients may become disconnected from their metanarratives and personal grounding. Transdisciplinary palliative care teams are poised to foster patients' connection with their metanarratives by collaborating across areas of expertise to establish goals of care and manage total pain. This case study demonstrates: (1) the unique value of the palliative Chaplain in journeying with the patient through existential distress towards self-discovery, and (2) the role of the palliative chaplain in encouraging a transdisciplinary approach to total pain within a palliative care team.

Depressive Symptoms and Palliative Care Concerns Among Patients With Non-communicable Diseases in Two Southern African Countries.

CONTEXT: Non-communicable diseases (NCDs), associated with health-related suffering, can benefit from palliative care in resource-limited settings, where over four-fifths of these deaths occur. OBJECTIVE: To measure the prevalence of depressive symptoms, palliative care-related concerns, physical and other psychological symptoms among adult patients with NCDs in Malawi and Namibia. METHODS: This multi-center, cross-sectional study consecutively recruited outpatients from four tertiary referral hospitals. Stepwise regression analysis was used to assess factors associated with physical and psychological symptom burden. RESULTS: Among 457 participants, primary diagnosis was cancer (n=147, 32%); cardiovascular disease (CVD) (n=130, 28%), chronic respiratory disease (CRESD) (n=73, 16%) or diabetes (n=107, 23%). Over half were female (58.9%; n=269), mean age was 48 (SD=15.7). Clinically significant psychological distress was identified among cancer (57.2%), diabetes (57.0%), CRESD (45.2%) and CVD patients (43.1%), with criterion for major depression symptoms met for cancer (42.9%), diabetes (39.2%), CVD (30.0%) and CRESD (28.8%). Most severe palliative care concerns were: first sharing feelings (i.e., not at all/not very often), reported by CVD (28%), CRESD (23%), cancer (22%) and diabetes (21%) patients; second help and advice (i.e., none/very little), among cancer (28%), CVD (26%), diabetes (22%), and CRESD (16%) patients. High prevalence of moderate-to-severe pain was reported (cancer 54%, CVD 41%, CRESD 38%, diabetes 38%). Functional status, age, and presence of comorbidities were associated with physical and psychological symptom distress. CONCLUSION: Given the high burden of physical and psychosocial symptoms and symptom distress, the findings highlight the need for integrated person-centered palliative care for NCDs to optimize care outcomes.

Relação entre tempo de cuidado e necessidades de familiares cuidadores de idoso em cuidados paliativos / Relación entre el tiempo de cuidado y las necesidades de cuidadores familiares de personas adultas mayores en cuidados paliativos / Relationship between care time and the needs of family caregivers of elderly people in palliative care

Objetivo: Verificar la relación entre el factor tiempo dispensado en la prestación de cuidados y las principales necesidades de la persona cuidadora familiar de población adulta mayor hospitalaria y en cuidados paliativos. Método: Estudio descriptivo transversal con abordaje cuantitativo, realizado con 205 cuidadores familiares de personas adultas mayores sometidas a cuidados paliativos en un gran hospital de una capital del Noreste de Brasil. La recolección de datos se llevó a cabo entre agosto y octubre de 2019, mediante un cuestionario validado que incluía datos sociodemográficos, el tiempo de cuidado y 21 preguntas relacionadas con las necesidades humanas básicas. Se utilizó la prueba de chi-cuadrado para verificar la asociación entre los aspectos de cada dimensión (físico, emocional, social y espiritual) y la duración del cuidado, considerando un valor de p ≤ 0.05 como estadísticamente significativo. Resultados: Las personas cuidadoras familiares presentaron altos porcentajes de necesidades, relacionadas con el control emocional, la resolución de conflictos consigo mismas, salir de casa, hacer planes y poder llevarlos a cabo y suprimir sus demandas económicas y financieras asociadas al mayor tiempo dedicado al seguimiento de su familiar. Conclusiones: Los resultados de este estudio aportan un perfil de las principales necesidades de la persona cuidadora familiar, evidenciando que esta persona necesita apoyo del equipo de salud, con el fin de desarrollar estrategias para su control emocional, minimizar conflictos consigo misma, revisar sus demandas personales y mantener la rutina de actividades de ocio, además de sentirse bien para realizar planes futuros.

Objetivo: verificar a relação entre o fator tempo dispensado na prestação dos cuidados e as principais necessidades do familiar cuidador de pessoas idosas hospitalizadas e em cuidados paliativos. Método: estudo descritivo de corte transversal e abordagem quantitativa, realizado com 205 familiares cuidadores de pessoas idosas em cuidados paliativos num hospital de grande porte de uma capital do Nordeste brasileiro. A coleta de dados ocorreu entre os meses de agosto e outubro de 2019 utilizando-se de um questionário validado que contemplou dados sociodemográficos, o tempo de cuidados e 21 perguntas relacionadas as necessidades humanas básicas. Foi usado o teste qui quadrado para verificar a relação entre os aspectos de cada uma das dimensões (física, emocional, social e espiritual) e o tempo de cuidado considerando-se como estatisticamente significante um p-valor ≤ 0,05. Resultados: Os cuidadores familiares apresentaram elevados percentuais de necessidades relacionadas ao controle emocional, resolução de conflitos consigo mesmo, dificuldade em sair de casa, fazer planos e poder realizá-los e suprimir suas demandas econômico-financeiras associadas ao maior tempo gasto no acompanhamento do ente querido. Conclusões: os resultados deste estudo fornecem um perfil das principais necessidades do familiar cuidador, ficando evidente que esse cuidador necessita de suporte, por parte da equipe de saúde, no sentido de desenvolver estratégias para seu controle emocional, minimizar os conflitos consigo próprio, rever suas demandas pessoais e manter a rotina de atividades de lazer, além de sentir-se bem para realizar planos futuros.

Objective: to verify the relationship between the time spent in providing care and the main needs of the family caregiver of hospitalized elderly people in palliative care. Method: this was a descriptive, cross-sectional study with a quantitative approach. It was carried out with 205 family caregivers of elderly people undergoing palliative care in a large hospital in a Northeast of Brazil capital. The data collection took place between August and October 2019 using a validated questionnaire that included sociodemographic data, care time, and 21 questions related to basic human needs. A chi-square test was used to verify the relationship between the aspects of each dimension (physical, emotional, social and spiritual) and the length of care; a p-value of ≤ 0.05 was considered to be statistically significant. Results: family caregivers had high percentages of needs related to emotional control, conflict resolution with themselves, difficulty leaving home, making plans and being able to carry them out, and suppressing their economic and financial demands related with the longer time spent in monitoring their beloved one. Conclusion: the results of this study provide a profile of the main needs for family caregiver. This makes evident that caregivers need support from the health team in order to develop strategies for their emotional control, minimize their conflicts with themselves, review their personal demands, and maintain a routine of leisure activities while also feeling good to perform future plans.

Intervenções não farmacológicas implementadas por enfermeiros no controlo da dor em cuidados paliativos: protocolo scoping review / Non-pharmacological pain-relief interventions implemented by nurses in palliative care: scoping review protocol

Objetivo: Identificar e mapear a evidência científica existente no âmbito das intervenções não farmacológicas implementadas por enfermeiros, com o objetivo de proporcionar controlo da dor, da pessoa em situação paliativa. Metodologia: Protocolo de Scoping review com base na metodologia proposta pelo Joanna Briggs Institute. Na pesquisa e identificação dos estudos, serão usadas as bases de dados eletrónicas MEDLINE (via Pubmed), CINAHL Complete (via EBSCOhost), Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, Scielo, JBI Library of Systematic Reviews, Scopus. Adicionalmente, a pesquisa de estudos não publicados incluirá o Repositório Científico de Acesso Aberto de Portugal (RCAAP) e o OpenGrey. A estratégia de pesquisa abrangerá todos os artigos publicados em português, espanhol e inglês, nos últimos 5 anos. Resultados: Os resultados serão apresentados em formato narrativo, recorrendo a tabelas, de acordo com o objetivo, foco e questão de revisão. O mapeamento das intervenções não farmacológicas implementadas por enfermeiros, no âmbito do controlo da dor, irá contribuir para a disseminação da evidência disponível. Conclusão: Espera-se que a presente scoping review contribua para a análise crítica das intervenções não farmacológicas implementadas pelos enfermeiros neste âmbito, dado o potencial impacte destas no controlo da dor e na qualidade dos cuidados prestados.

Objetivo: Identificar y mapear la evidencia científica existente en el ámbito de las intervenciones no farmacológicas implementadas por enfermeras, con el objetivo de proporcionar el control del dolor a la persona en situación paliativa. Método: Protocolo de scoping review, según la metodología de Instituto Joanna Briggs. En la estrategia de investigación e identificación de estudios, se utilizarán las bases de datos electrónicas CINAHL Complete (vía EBSCOhost), MEDLINE (vía Pubmed), Registro Cochrane Central de Ensayos Controlados, Base de Datos Cochrane de Revisiones Sistemáticas, Scielo, JBI Library of Systematic Reviews. Scopus. A su vez, la búsqueda de estudios inéditos incluirá el Repositorio Científico de Acceso Abierto de Portugal (RCAAP) y OpenGrey. La estrategia de búsqueda incluirá todos los artículos publicados en portugués, español e inglés en los últimos 5 años. Resultados: Los resultados se presentarán en formato narrativo, mediante tablas, de acuerdo con el objetivo, enfoque y pregunta de revisión. El mapeo de las intervenciones no farmacológicas, en el ámbito del control del dolor, contribuirá para la difusión de la evidencia disponible. Conclusión: Se espera que la presente revisión contribuya para el análisis crítico de las intervenciones no farmacológicas en esta área, dado el potencial impacto de estas en el control del dolor y en la cualidad de los cuidados prestados.

Aim: To identify and map the existing scientific evidence within the scope of non-pharmacological interventions implemented by nurses with the objective of providing pain relief to the people in a palliative situation. Method: This study followed the scoping review protocol based on the Joanna Briggs Institute methodology. In regard to the research strategy and identification of studies, the following electronic databases were consulted: MEDLINE (via Pubmed), CINAHL Complete (via EBSCOhost), Cochrane Central Register of Controlled Trials, Cochrane Database of Systematic Reviews, Scielo, JBI Library of Systematic Reviews, and Scopus. In addition, the search for unpublished studies included the Scientific Repository for Open Access of Portugal (RCAAP) and OpenGrey. The research strategy included all the articles published in Portuguese, Spanish and English in the last 5 years. Results: Following the main objective, focus and research question, the results will be presented in a narrative format, using tables. The mapping of the non-pharmacological interventions implemented by nurses focused on pain relief will contribute to the dissemination of the available evidence. Conclusion: It is expected that the present scoping review will contribute to the critical analysis of non-pharmacological interventions implemented by nurses in this area given the potential impact of these on pain relief and the quality of care provided.

Death in delirious palliative-care patients occurs irrespective of age: A prospective, observational cohort study of 229 delirious palliative-care patients.

OBJECTIVES: Patients with terminal illness are at high risk of developing delirium, in particular, those with multiple predisposing and precipitating risk factors. Delirium in palliative care is largely under-researched, and few studies have systematically assessed key aspects of delirium in elderly, palliative-care patients. METHODS: In this prospective, observational cohort study at a tertiary care center, 229 delirious palliative-care patients stratified by age: <65 (N = 105) and ≥65 years (N = 124), were analyzed with logistic regression models to identify associations with respect to predisposing and precipitating factors. RESULTS: In 88% of the patients, the underlying diagnosis was cancer. Mortality rate and median time to death did not differ significantly between the two age groups. No inter-group differences were detected with respect to gender, care requirements, length of hospital stay, or medical costs. In patients ≥65 years, exclusively predisposing factors were relevant for delirium, including hearing impairment [odds ratio (OR) 3.64; confidence interval (CI) 1.90-6.99; P < 0.001], hypertension (OR 3.57; CI 1.84-6.92; P < 0.001), and chronic kidney disease (OR 4.84; CI 1.19-19.72; P = 0.028). In contrast, in patients <65 years, only precipitating factors were relevant for delirium, including cerebral edema (OR 0.02; CI 0.01-0.43; P = 0.012). SIGNIFICANCE OF RESULTS: The results of this study demonstrate that death in delirious palliative-care patients occurs irrespective of age. The multifactorial nature and adverse outcomes of delirium across all age in these patients require clinical recognition. Potentially reversible factors should be detected early to prevent or mitigate delirium and its poor survival outcomes.

Percepções de cuidadores familiares sobre o uso da hipodermóclise no domicílio / Percepciones de los cuidadores familiares sobre el uso de la hipodermoclisis en el hogar / Perceptions of family caregivers about the use of hypodermoclysis at home

Resumo Objetivo: conhecer as percepções de cuidadores familiares sobre o uso da hipodermóclise no domicílio. Métodos: foram realizadas, em outubro de 2018, entrevistas semiestruturadas com 10 participantes, em um serviço de Atenção Domiciliar brasileiro. Os dados foram organizados no programa Etnograph, e submetidos à análise de conteúdo de Bardin. Resultados: os cuidadores apresentaram medo e receio ao assumirem a responsabilidade pelos cuidados com a hipodermóclise, pois a associaram à morte. Com o transcorrer do tempo, reconheceram essa via como facilitadora do cuidado e conforto. Conclusão: o acompanhamento por profissionais de saúde pode auxiliar na adaptação dos cuidadores familiares frente ao uso da hipodermóclise no domicílio.

Abstract This study aimed to investigate the perceptions of family members in the care of patients about the use of hypodermoclysis at home. A descriptive qualitative investigation was developed in which semi-structured interviews were conducted with 10 participants in a Brazilian home care service. The data will be organized into the y program and will eventually be analyzed by Bardin containment analysis. As a result, the person in charge of caring for the patients expresses concerns and concerns about taking responsibility for the care of the hypodermoclisis, as well as the partner with the patient. However, over time, I recognize that this method facilitates care and enhances patient comfort. It is concluded that the assistance of health professionals can help family members in patient care adapt to the use of hypodermoclisis at home.

Resumen El objetivo de este estudio fue investigar las percepciones de los familiares a cargo del cuidado de pacientes sobre el uso de la hipodermoclisis en el domicilio. Se desarrolló una investigación cualitativa descriptiva en donde se realizaron entrevistas semiestructuradas con 10 participantes en un servicio de atención domiciliaria brasileño. Los datos se organizaron en el programa Etnograph y se sometieron al análisis de contenido de Bardin. Como principal resultado se obtuvo que las personas a cargo del cuidado de los pacientes expresaron miedos e inquietudes con respecto a asumir la responsabilidad por los cuidados con hipodermoclisis, pues la asocian con la muerte. Sin embargo, con el paso del tiempo, reconocieron que este método facilita el cuidado y mejora la comodidad del paciente. Se concluye que la asistencia de profesionales de la salud puede ayudar a que los familiares a cargo del cuidado de pacientes se adapten al uso de la hipodermoclisis en el domicilio.

Spiritual care provided by nursing home physicians: a nationwide survey.

OBJECTIVE: To examine perceptions and experiences regarding providing spiritual care at the end of life of elderly care physicians practising in nursing homes in the Netherlands, and factors associated with spiritual care provision. METHODS: A cross-sectional survey was sent to a representative sample of 642 elderly care physicians requesting information about their last patient who died and the spiritual care they provided. We compared their general perception of spiritual care with spiritual and other items abstracted from the literature and variables associated with the physicians' provision of spiritual care. Self-reported reasons for providing spiritual care were analysed with qualitative content analysis. RESULTS: The response rate was 47.2%. Almost half (48.4%) provided spiritual end-of-life care to the last resident they cared for. Half (51.8%) identified all 15 spiritual items, but 95.4% also included psychosocial items in their perception of spirituality and 49.1% included other items. Physicians who included more non-spiritual items reported more often that they provided spiritual care, as did more religious physicians and those with additional training in palliative care. Reasons for providing spiritual care included a request by the resident or the relatives, resident's religiousness, fear of dying and involvement of a healthcare chaplain. CONCLUSION: Most physicians perceived spirituality as a broad concept and this increased self-reported spiritual caregiving. Religious physicians and those trained in palliative care may experience fewer barriers to providing spiritual care. Additional training in reflecting upon the physician's own perception of spirituality and training in multidisciplinary spiritual caregiving may contribute to the quality of end-of-life care for nursing home residents.

Surgical Management of Malignant Intestinal Obstruction: Outcome and Prognostic Factors.

Background: Malignant intestinal obstruction is a frequent complication in advanced stages cancer patients. The prognosis is poor, with mean survival rate beneath 3 months. Clinical treatment, endoscopic or surgical procedures are options for malignant intestinal obstruction management. There is no generally accepted management strategy. Objectives: To evaluate prognostic factors of patients with malignant intestinal obstruction who underwent surgical treatment. Methods: A retrospective analysis was performed including patients of a single institution with diagnosis of malignant intestinal obstruction. Demographic data, in-hospital stay, postoperative complications, and overall survival were assessed. Logistic regression was used to evaluate associated prognostic factors. Results: Two hundred thirty-three surgeries were performed due to suspicion for malignant intestinal obstruction over a seven-year period. This diagnosis was confirmed in 210 operations (90.1%). The main causes of malignant obstruction were colorectal (49.5%) and gynecological cancer (21.9%). The rate of severe complications was 11.42%. In-hospital mortality rate was 40.95% (CI 95%: 34.16-47.74%). Functional status impairment,high serum urea, and low albumin levels were associated to higher mortality rate. Conclusion: Malignant intestinal obstruction implies poor prognosis, with high in-hospital mortality rate and severe postoperative complications. The decision regarding management of malignant intestinal obstruction must be multimodal and individualized, according to individual prognostic factors.

O fenômeno da conspiração do silêncio em pacientes em cuidados paliativos: uma revisão integrativa / El fenomeno de la conspiración del silencio en pacientes en cuidados paliativos: una revisión integrativa / The phenomenon of the conspiracy of silence in patients in palliative care: an integrative review

Resumo Objetivou identificar o fenômeno da conspiração do silêncio navivência de pacientes em cuidados paliativos, familiares e profissionais de saúde. Trata-se de uma revisão integrativa, realizada a partir de buscas na Biblioteca Virtual de Saúde (BVS) primeiramente por meio dos descritores "Cuidados Paliativos", "Cuidados Paliativos na terminalidade da vida" e "Conspiración de silencio", sendo AND o operador booleano utilizado. Em seguida utilizou-se uni-termos "conspiración de silencio" e "pacto de silencio". Os critérios de incluso foram: ano de publicação, últimos 10 (dez) anos (2008 a 2017); idiomas: português, inglês e espanhol; e texto na íntegra. Assim selecionou 9 artigos, sendo 7 (77,8%) indexados no BDENF e 2 (22,2%) na LILACS. Os resultados demonstraram alta incidência da conspiração do silêncio em pacientes sob cuidados paliativos, a comunicação ineficaz contribui para a falta de informação entre profissionais de saúde, pacientes e familiares sobre o diagnóstico e prognóstico da enfermidade. Sentimentos de medo, angústia e ansiedade são vivenciados por pacientes e familiares. Conclui-se que há necessidade de aprender a ouvir os pacientes e familiares como objetivo de perceber como direcionar da melhor forma a comunicação sobre a terminalidade de vida, fornecendo autonomía ao paciente na condução das suas atitudes frente ao processo que está vivenciando.

Resumen Objetivo identificar el fenómeno de la conspiración del silencio en la vivencia de pacientes en cuidados paliativos, familiares y profesionales de salud. Se trata de una revisión integrativa, realizada a partir de búsquedas en la Biblioteca Virtual de Salud (BVS) primero por medio de los descriptores "Cuidados Paliativos", "Cuidados Paliativos en la terminalidad de la vida" y "Conspiración de silencio", siendo AND el operador boleano utilizado. En seguida se utilizó uni-términos "conspiración de silencio" y "pacto de silencio". Los criterios de inclusión fueron: año de publicación, últimos 10 (diez) años (2008 a 2017); Idiomas: portugués, inglés y español; y el texto en su totalidad. Así seleccionó 9 artículos, siendo 7 (77,8%) indexados en el BDENF y 2 (22,2%) en la LILACS. Los resultados demostraron alta incidencia de la conspiración del silencio en pacientes bajo cuidados paliativos, la comunicación ineficaz contribuye a la falta de información entre profesionales de salud, pacientes y familiares sobre el diagnóstico y pronóstico de la enfermedad. Los sentimientos de miedo, angustia y ansiedad son experimentados por pacientes y familiares. Se concluye que hay necesidad de aprender oír a los pacientes y familiares con el objetivo de percibir cómo dirigir de la mejor forma la comunicación sobre la terminalidad de vida, proporcionando autonomía al paciente en la conducción de sus actitudes frente al proceso que está viviendo.

Abstract The objective was to identify the phenomenon of the conspiracy of silence in the experience of patients in palliative care, family and health professionals. This is anintegrative review, carried out based on searches in the Virtual Health Library (VHL), firstly by means of the descriptors "Palliative Care", "Palliative Care in the terminality of life" and "Conspiracy of silence", being AND the operator boolean used. Then we used the terms "conspiracy of silence" and "pact of silence". The inclusión criteria were: year of publication, last 10 (ten) years (2008 to 2017); languages: Portuguese, English and Spanish; and text in full. Thus, 9 articles were selected, 7 (77.8%) indexed in the BDENF and 2 (22.2%) in LILACS. The results showed a high incidence of the conspiracy of silence in patients undergoing palliative care, ineffective communication contributes to the lack of information among health professionals, patients and families about the diagnosis and prognosis of the disease. Feelings of fear, anguish and anxiety are experienced by patients and family members. It is concluded that there is a need to learn to listen to patients and their families with the objective of understanding how to best communicate the communication about the terminality of life, providing autonomy to the patient in the conduct of their attitudes towards the process they are experiencing.

Estrutura de famílias de crianças com câncer em cuidados paliativos: estudo à luz do modelo Calgary / Family structure of children with cancer in palliative care: study in the light of Calgary Model

Introdução: Cuidados paliativos no âmbito da oncologia pediátrica visam melhorar a qualidade de vida da criança comcâncer, mediante a promoção de assistência humanizada e integral durante o processo da doença e na fase de terminalidade, bem como propiciam suporte para família. Esta dissertação é constituída por dois artigos, o primeiro, de revisão, intitula-se: Cuidados paliativos e a criança com câncer: estudo bibliométrico. Objetivo: analisar a produção científica publicada em periódicos online sobre os cuidados paliativos e a criança com câncer. Metodologia: trata-se de um estudo bibliométrico, realizado com uma amostra de 58 artigos, publicados entre 2006 e 2016 e selecionados nas bases de dados LILACS, MEDLINE e BDENF. Resultados:o maior quantitativo de publicações acerca da temática se deu nos anos 2013 -2016. Dos 38 periódicos selecionados para o estudo, o que mais publicou sobre a temática foi a revista PediatricBloodCancer(3,0%). OBrasil (50,0%)foi o país que apresentou o maior número de artigos publicados. Predominaram as publicações produzidas por pesquisadores da área de Enfermagem(57,0%)e autores com o título de doutor(36,0%). Conclusão: o estudo demonstrou que há um número reduzido de publicações disseminadas em periódicos nacionais e internacionais acerca dos cuidados paliativos relacionados a criança com câncer.O segundoartigo tem como título:Estrutura familiar de criança com câncer em cuidados paliativos: estudo à luz do Modelo Calgary. Objetivo: analisar a estrutura da família de crianças em cuidados paliativos à luz do Modelo Calgaryde Avaliação da Família. Metodologia: trata-se de umapesquisa de campo com natureza qualitativa e participaram do estudo cinco famílias de crianças com câncer em cuidados paliativos, representadas por suas genitoras. A pesquisa foi realizada em uma casa de apoio para crianças e adolescentes com câncer, localizada na cidade de João Pessoa ­PB, Brasil. Para viabilizar a coleta de dados foram utilizados a técnica de entrevista e os instrumentos genograma e o ecomapa para delinear as estruturas internas, externas e de contexto familiar. Essa ocorreu no período de abril a junho de 2017. O material empírico foi analisado à luz do Modelo Calgary de Avaliação Familiar. Resultados: os resultados a partir dos três aspectos da estrutura familiar: estrutura interna, estrutura externa eo contexto, permitiram identificar que,das composições das famílias inseridas no estudo, três são do tipo nuclear extensas e duas monoparentais.No que diz respeito à rede de suporte social, a maioria referiu apoio de familiares, amigos e da igreja. As famílias do estudo relataram ter uma boa relação com os vizinhos. Todas as mães de crianças com câncer destacaram a importância da religião e espiritualidade para o enfrentamento diante do processo de adoecimento dos seus filhos. Conclusão:os instrumentos genograma e ecomapa apontaram ser de grande relevância para compreender melhor a estrutura familiar de crianças com câncer sob cuidados paliativos, como também são de suma relevância para o planejamento da assistência de enfermagem a criança com câncer e sua família. (AU)

10ABSTRACT: OLIVEIRA, T.C.Family structure of children with cancer in palliative care: study in the light of Calgary Model.2018. 85f.Dissertation (Masters) ­Health Science Center, Federal University ofParaíba, João Pessoa, 2018.Introduction: palliative care in the field of pediatric oncology aim to improve the life quality of the child with câncer, through the promotion of a humanized and integral care during the illness process and in the phase of terminality, as well as it propitiates support for the family. Thisdissertation is constituted by two articles, the first, the revision one is entitled: Palliative care and the child with cancer: bibliometric study.Objective: to analyze the scientific production published in online journals on palliative care and the child with cancer. Methodology:this is a bibliometric study, performed with a sample of 58 articles, published between 2006 and 2016 and selected in databases LILACS, MEDLINE e BDENF.Results: the years of 2013 and 2016 presented a higher quantitative of publications. From the 38 selected journals for the study, the one that published more on the thematic was the magazine Pediatric Blood Cancer. The United States of America was the country that presented the higher number of published articles. The publications produced by researches of the Nursing area and authors with doctor's degree prevailed. Conclusion:the study demonstrated that there is a reduced number of disseminated publications in national and international online journals on palliative care related to child with cancer. The second is entitled: Family structure of child with cancer in palliative care: study in the light of Calgary Model of Family Evaluation.Objective:to analyze thefamily structure of children in palliative care in the light of Calgary Model of Family Evaluation. Methodology:this is a field research of qualitative nature and participated in the study five families of children with cancer in palliative care, represented by their genitors. The research took place in a support house for children and adolescents with cancer, located in the city of João Pessoa ­PB, Brazil. To allow data collection were utilized the interview technique and the instruments genogram and ecomapto delineate internal, external structuresand family context. This one occurred in the period from April to June 2017. Empirical material was analyzed in the light of Cangary Model of Family Evaluation. Results:the results from three aspects of family estructure: internal structure, external structure and context, it was possible to identify that from compositions of the families of the study, three are nuclear extended and two single parent.In what regards support network, most referred to friend, family and church support. The families of the study reported having a good relationship with neighbors. All mothers of children with cancer highlighted the importance of religion and spirituality to face the process of their sons' sickness.Conclusion: genogram and ecomap instruments indicated to be of great relevance to better comprehend the family structure of children with cancer under palliative care, as well as they are of supreme relevance to plan the assistance of nursing to the child with cancer and its family. (AU)

[Empirical findings concerning transfer of dying persons]. / Empirische Befunde zur Verlegungspraxis Sterbender.

BACKGROUND: Own studies from the years 2013 and 2014 had shown that patients in hospital or inhabitants of nursing home get transferred even in their last, terminal phase of life. METHOD: In order to describe such transfers, a 27-item questionnaire was developed in 2016. This was addressed to employees from hospitals and nursing homes. The questionnaire determines the frequency of the laying (a), preferred periods (b), location (c) and influencing factors (d). 101 hospitals and 65 nursing homes of different sizes, carriers and federal states were included. RESULTS: In about 20% of the cases in the hospitals and in about 25% of the cases in nursing homes, dying patients are transferred. This would account for a total of approximately 150,000 patients or residents. Nursing homes place dying patients in hospitals. In the hospitals the relocations take place within the facility. No preferences of weekday or daytime could be identified. Acute physical deterioration of the state is identified as the central cause of displacement. In contrast, mental-psychological reasons are less significant. If relatives and other care partners are well involved, fewer relocations occur. Written patient agreements have a medium to distinct influence. Continuously insufficient staff has a stronger impact than an acute lack of personnel. RECOMMENDATIONS: Physiological deterioration of the dying person must not result in an alarm and associated solution chain. A special risk management or case management for this group could prevent misallocation. The "Advance Care Planing" passed by the Hospiz- and Pallitativgesetz in 2015 should also reduce the relocation frequency.