A bioethical perspective on the meanings behind a wish to hasten death: a meta-ethnographic review.

BACKGROUND: The expressions of a "wish to hasten death" or "wish to die" raise ethical concerns and challenges. These expressions are related to ethical principles intertwined within the field of medical ethics, particularly in end-of-life care. Although some reviews were conducted about this topic, none of them provides an in-depth analysis of the meanings behind the "wish to hasten death/die" based specifically on the ethical principles of autonomy, dignity, and vulnerability. The aim of this review is to understand if and how the meanings behind the "wish to hasten death/die" relate to and are interpreted in light of ethical principles in palliative care. METHODS: We conducted a meta-ethnographic review according to the PRISMA guidelines and aligned with Noblit and Hare's framework. Searches were performed in three databases, Web of Science, PubMed, CINAHL, with no time restrictions. Original qualitative studies exploring the meanings given by patients, family caregivers and healthcare professionals in any context of palliative and end-of-life care were included. A narrative synthesis was undertaken. PROSPERO registration CRD42023360330. RESULTS: Out of 893 retrieved articles, 26 were included in the analysis, accounting for the meanings of a total of 2,398 participants. Several factors and meanings associated with the "wish to hasten death" and/or "wish to die" were identified and are mainly of a psychosocial and spiritual nature. The ethical principles of autonomy and dignity were the ones mostly associated with the "wish to hasten death". Ethical principles were essentially inferred from the content of included articles, although not explicitly stated as bioethical principles. CONCLUSIONS: This meta-ethnographic review shows a reduced number of qualitative studies on the "wish to hasten death" and/or "wish to die" explicitly stating ethical principles. This suggests a lack of bioethical reflection and reasoning in the empirical end-of-life literature and a lack of embedded ethics in clinical practice. There is a need for healthcare professionals to address these topics compassionately and ethically, taking into account the unique perspectives of patients and family members. More qualitative studies on the meanings behind a wish to hasten death, their ethical contours, ethical reasoning, and implications for clinical practice are needed.

Percepciones sobre la aplicación de principios bioéticos en mujeres puérperas en un Hospital público del Ecuador

Fundamento: El puerperio es el periodo de tiempo que comienza en la finalización del parto hasta las seis semanas posparto; durante el cual, es necesario brindar atención conforme a los principios bioéticos inscritos en la normativa de salud vigente en el Ecuador. Objetivo: Analizar las percepciones que tienen las mujeres puérperas sobre la aplicación de los 4 principios bioéticos durante la atención en salud. Metodología: El estudio es de tipo descriptivo con enfoque cualitativo. Los datos corresponden a 10 mujeres puérperas mayores de edad, atendidas en el Hospital Gineco Obstétrico Pediátrico de Nueva Aurora "Luz Elena Arizmendi" de la ciudad de Quito, que respondieron a una entrevista sobre los principios bioéticos aplicados en la atención recibida. Se realizaron análisis de contenido a través del software ATLAS TI versión 23. Resultados: Se obtuvo una percepción positiva de las mujeres puérperas acerca de la aplicación del principio de justicia. Por otra parte, se evidencian dificultades en el de autonomía, sobre todo en la comprensión de la información brindada a la paciente acerca de los procedimientos durante el parto y puerperio, además de coacciones por parte del personal sanitario. Se percibe el consentimiento informado como un mero trámite administrativo. El principio de beneficencia se lo asume como parte de la vocación del personal y la no maleficencia genera malestar si no va acompañado de información clara y oportuna. Conclusiones: Los principios bioéticos son transversales en la normativa de salud vigente, pero sobresale el de justicia en la atención a mujeres puérperas.

Background: The puerperium is the period of time beginning at the end of labor until six postpartum weeks; during which it is necessary to provide attention in accordance with the bioethical principles included in the current health guidelines in Ecuador. Objective: To analyze the perceptions that postpartum women have about the 4 bioethical principles application during health care. Methodology: The study type is descriptive with a qualitative approach. The data correspond to 10 adult postpartum women assisted at the Nueva Aurora "Luz Elena Arizmendi" Pediatric Obstetric and Gynecological Pediatric Hospital in the Quito city, who responded to an interview about the bioethical principles applied in the received care. Content analysis was conducted through ATLAS TI version 23 software. Results: A positive perception was obtained from postpartum women concerning the application of the Justice principle. Furthermore, difficulties are evident in the Autonomy section, mainly in the comprehension of the information provided to the patient about the procedures during the labor and puerperium, as well as coercion by health personnel. Informed consent is perceived as a mere administrative formality. The Beneficence principle is assumed as part of the vocation of the personnel and Non-maleficence generates discomfort if it is not accompanied by clear and opportune information. Conclusions: Bioethical principles are transversal in current health guidelines, but that of Justice stands out in the care of postpartum women.

When Ethics and the Law Collide: A Multicenter Demonstration Cohort Study of Pre-Exposure Prophylaxis Provision to Adolescent Men Who Have Sex With Men and Transgender Women in Brazil.

PURPOSE: To explore legal and ethical challenges related to adolescents' participation in human immunodeficiency virus (HIV) research that may affect their best interests. METHODS: We analyzed the ethical principles and legal aspects of the participation of 15-17-year-old men who have sex with men and transgender women in the pre-exposure prophylaxis (PrEP) 1519 study, a PrEP demonstration cohort study in three Brazilian cities. The analyses of ethics review committees' (ERCs) evaluations and court decisions followed ethical and human rights principles. An HIV vulnerability score was created, and descriptive statistics and multivariate logistic regression were performed using data from 347 participants. RESULTS: The ERCs evaluated the benefits and risks of research participation, all finding that the benefits outweighed the risks. ERCs deferred responsibility for decisions about waiving parental consent to the judiciary. State courts reached different decisions about waiving parental consent, reflecting variation in recognition of adolescents' evolving capacities and the adolescent as a subject of sexual rights and the primary agent capable of deciding on their health and best interests. The most vulnerable adolescent participants were found in sites where the blanket waiver was in place. DISCUSSION: Judicializing the ethical review process is detrimental to fulfilling the ethical principle of justice and vulnerable adolescents' access to health research. ERCs must be sufficiently independent and autonomous and have the capacity to respect, protect, and help fulfill the rights of participants while ensuring the generation of adequate evidence to inform public health practice.

Ethical considerations in evaluating discharge readiness from the intensive care unit.

Evaluating readiness for discharge from the intensive care unit (ICU) is a critical aspect of patient care. Whereas evidence-based criteria for ICU admission have been established, practical criteria for discharge from the ICU are lacking. Often discharge guidelines simply state that a patient no longer meets ICU admission criteria. Such discharge criteria can be interpreted differently by different healthcare providers, leaving a clinical void where misunderstandings of patients' readiness can conflict with perceptions of what readiness means for patients, families, and healthcare providers. In considering ICU discharge readiness, the use and application of ethical principles may be helpful in mitigating such conflicts and achieving desired patient outcomes. Ethical principles propose different ways of understanding what readiness might mean and how clinicians might weigh these principles in their decision-making process. This article examines the concept of discharge readiness through the lens of the most widely cited ethical principles (autonomy [respect for persons], nonmaleficence/beneficence, and justice) and provides a discussion of their application in the critical care environment. Ongoing bioethics discourse and empirical research are needed to identify factors that help determine discharge readiness within critical care environments that will ultimately promote safe and effective ICU discharges for patients and their families.

A dialog on common morality in medical ethics in a pluralist setting in Iran: a qualitative content analysis.

The concept of common morality is fundamental in medical ethics, and lack of universal content and characteristics of common morality is a product of its multifaceted nature. This study aimed to identify the ideas and experiences of academic faculties regarding common morality in a pluralistic setting to promote conceptual knowledge and strengthen moral reasoning and ethical decision-making. The study was conducted using a qualitative method, employing semi-structured in-depth interviews with thirteen faculty members who were selected purposively. In order to assess their ideas and experiences, the transcripts of the interviews were analyzed using the content analysis method through directed and conventional approaches. The interviews were coded manually. Two themes were reflected in the interviews: ontology and epistemology of common morality. The study indicates that the debate about the subjective or objective dependence of common morality questions the coherence of Beauchamp and Childress' common morality (CM) theory, as common morality is the result of various individual and social factor that influence moral and decision -making in pluralistic environments. Additional studies are needed in order to investigate the effect of cultural, social, theoretical, ideological and individual factors on promoting clinical ethical reasoning and decision-making skills.

Estudio transversal en profesionales de la salud sobre aplicación y percepción de conocimientos bioéticos adquiridos en urgencias pediátricas / Estudio transversal en profesionales de la salud sobre aplicación y percepción de conocimientos bioéticos adquiridos en urgencias pediátricas

Introducción En comparación con ciencias clínicas básicas o aplicadas, la bioética es considerada una disciplina secundaria y subutilizada en la práctica diaria. Sin embargo, el razonamiento ético es indispensable para la calidad del cuidado. Existen pocos estudios sobre bioética en unidades de emergencia pediátrica. Nuestro objetivo fue evaluar la percepción sobre la importancia y la suficiencia del conocimiento teórico adquirido y la aplicación de los principios bioéticos en casos estandarizados. Métodos Realizamos un estudio descriptivo transversal en profesionales médicos y de enfermería que se desempeñan en unidades de emergencia pediátrica de Puerto Montt. Mediante una encuesta, evaluamos la percepción de la importancia y suficiencia del conocimiento bioético obtenido y la aplicación de los principios bioéticos en casos hipotéticos, pero probables, en la atención de urgencias pediátricas. Resultados De una población total de 50 médicos y 53 enfermeras, participaron en nuestro estudio 30 médicos (60%) y 20 enfermeras (37,7%). La mayoría reportó formación ética en pregrado (84%). Una minoría reportó formación durante la práctica (20%). Sin embargo, sólo 60% percibía tener conocimientos suficientes de bioética y 72% la consideraba importante para la práctica diaria. Además, al aplicar los principios de Beauchamp y Childress a casos clínicos estandarizados, el 82,7% no reconoció el principio de justicia y solo 50% reconoció los principios de autonomía y no maleficencia. Conclusión Aunque la mayoría de los profesionales de la salud tienen formación en bioética, el aprendizaje muchas veces se considera insuficiente y no se incorpora a la práctica diaria en las unidades de emergencia pediátrica.

Background Compared to basic or applied clinical sciences, bioethics is frequently considered as a secondary discipline and underutilized in daily practice. However, ethical reasoning is indispensable for the quality of care. There are few studies on bioethics in pediatric emergency units. Our objective was to evaluate the perception of the acquired bioethical knowledge and the application of bioethical principles in standardized cases. Methods We conducted a cross-sectional descriptive study in medical and nursing professionals working at pediatric emergency units in Puerto Montt. Through a survey, we assessed the perception of the sufficiency of the acquired bioethics knowledge and the application of bioethical principles on hypothetical, but probable cases in emergency pediatric care. Results Of a total population of 50 physicians and 53 nurses, 30 physicians (60.0%) and 20 nurses (38.7%) participated in our study. The majority reported ethics training in undergraduate education: 84%. A minority reported training during practice: 20%. However, only 60.0% perceived having sufficient knowledge of bioethics and 72.0% considered it important for daily practice. Further, when applying the principles of Beauchamp and Childress to standardized clinical cases, 82.7% did not recognize the justice principle and only 50.00% the principles of autonomy and nonmaleficence. Conclusion Although most health professionals undergo bioethics training, learning is often considered insufficient and not incorporated into daily practice at pediatric emergency units.

Controversias éticas en la atención del aborto, fertilización in vitro y anticoncepción en la mujer

En relación con los procesos de reproducción, las evidencias científicas de los últimos años y la vasta y mejor información con la que se cuenta para medir y estimar los indicadores de morbilidad y mortalidad en salud reproductiva han llevado a definir nuevas estrategias en el marco del derecho a la salud que tienen las mujeres. Para algunas personas son planteamientos claros, pero para otros no tanto, generando a la luz de los principios de ética controversias que es necesario plantear y, si es posible, resolver. En ese sentido, se ha seleccionado para esta presentación el aborto, la reproducción asistida y la anticoncepción, temas actuales que suscitan opiniones diferentes o contrapuestas de personas o instituciones, no siempre producto de una reflexión, justa, honrada, no ideologizada, buscando el bienestar de las personas. A veces, es el resultado de la satisfacción de un interés personal o institucional.

In relation to reproductive processes, the scientific evidence of recent years and the vast and better information available for measuring and estimating morbidity and mortality indicators in reproductive health have led to the definition of new strategies within the framework of women's right to health. For some people these approaches are clear, but for others they are not so clear, generating controversies in the light of ethical principles that need to be raised and, if possible, resolved. In this sense, we have selected for this presentation abortion, assisted reproduction and contraception, current issues that raise different or opposing opinions of individuals or institutions, not always the product of a reflection, fair, honest, non-ideologized, looking for the welfare of people. Sometimes, it is the result of the satisfaction of a personal or institutional interest.

[Ethical aspects of mechanical resuscitation in a child : Results of an expert workshop within the BMBF project CLAIRE-Children's Automated Intelligent Resuscitation]. / Ethische Aspekte mechanischer Reanimationshilfen beim Kind : Ergebnisse eines Expertenworkshops im Rahmen des BMBF-Projekts CLAIRE ­ Children's Automated Intelligent Resuscitation.

BACKGROUND: While the use of mechanical resuscitation devices can be considered for adult resuscitation, the European Resuscitation Council guidelines do not yet mention their use for pediatric resuscitation. Only one device has been partially approved for use in children; further pediatric appliances are currently being used off-label. Ethical considerations arising from the use of mechanical resuscitation devices have not yet been presented in a structured way. OBJECTIVE: To elaborate ethical considerations in the development phase of mechanical resuscitation devices for children. METHODS: Based on several fictitious case reports, an interdisciplinary expert focus group discussion was conducted. This was followed by a moderated discussion, summarizing the results. Guiding principles and research desiderata were formulated using these results as well as existing literature. RESULTS: According to the group of experts, ethical considerations regarding mechanical resuscitation devices in pediatrics predominantly concern the subject of indication and discontinuation criteria. Ethical aspects concerning psychosocial impacts on affected families and intervention teams cannot be generalized and need to be analyzed on a case-by-case basis. CONCLUSION: The considerations presented regarding the use of mechanical resuscitation devices in the pediatric context, which is still in its developmental stage, could also have practical implications for adult out-of-hospital resuscitation decisions. Concerning ethical aspects of out-of-hospital resuscitation decisions, especially using mechanical resuscitation devices, the need for accompanying empirical research is substantial.

Complex challenges should be approached by a multitude of theories and models.

The ongoing pandemic may be regarded as a wicked problem. Therefore, it should be analyzed by a multitude of theories and models. Approaching the complex set of challenges posed to individuals and society by singular methods, can lead to suboptimal decisions. Good decisions must take into account the large set of uncertainties we are facing, by using well established procedures, as for example health technology assessment (HTA) and a nuanced ethical framework.

El trabajo educativo curricular desde el tema Medicamentos antiulcerosos en la asignatura Farmacología II / Curricular educational work on the topic of anti-ulcer medications in the subject Pharmacology II

El trabajo educativo consiste en transmitir un mensaje coherente desde la propia ciencia y estimula la motivación del aprendizaje de los estudiantes y su propia actividad cognoscitiva. El propósito de la educación médica superior es egresar un profesional integral; por tanto, se trata de instruir y educar a los estudiantes en los más altos valores patrióticos, morales y éticos en cada uno de los escenarios docentes, desde la propia ciencia. El objetivo de esta comunicación es ejemplificar algunos contenidos sobre la temática referente a medicamentos antiulcerosos en los que se puede intencionar el trabajo educativo desde la propia ciencia.

The educational work consists of transmitting a coherent educational message from science itself and stimulates the students' learning motivation and their own cognitive activity. The purpose of higher medical education is to graduate a comprehensive professional; therefore, it is about instructing and educating students in the highest patriotic, moral and ethical values in each of the teaching scenarios, from science itself. The objective of this research paper is to exemplify some content on the subject related to antiulcer drugs from which educational work can be intentioned from science itself.

Validez de la unidad nacional en el pensamiento de Fidel Castro para enfrentar la COVID-19 / Validity of national unity in the thought of Fidel Castro to face COVID-19

En el ideario de Fidel Castro se aprecian sus consideraciones acerca de la necesidad de la unidad para vencer cualquier obstáculo que pretenda detener el curso de la Revolución cubana, en lo fundamental dirigidas hacia las maniobras desestabilizadoras de los enemigos de la patria; sin embargo, esa convicción fidelista de que la unidad garantiza el triunfo está presente en la batalla que se ha librado, y aún se libra, contra la COVID-19, donde el pueblo, organizado en diversos sectores, continúa obteniendo resultados positivos en contra de esta pandemia. Es objetivo de estos autores compartir algunas de sus ideas que servirán de análisis e inspiración para su aplicación en el actual contexto epidemiológico.

In Fidel Castro's ideology, his considerations about the need for unity to overcome any obstacle that tries to stop the course of the Cuban Revolution are appreciated, fundamentally directed towards the destabilizing maneuvers of the enemies of the homeland; however, this Fidel´s conviction that unity guarantees victory is present in the battle that has been waged, and is still being waged, against COVID-19, where the people, organized in various sectors, continue to obtain positive results against this pandemic. It is the objective of these authors to share some of their ideas that will serve as analysis and inspiration for their application in the current epidemiological context.

ChatGPT y su impacto en la formación de competencias en terapeutas ocupacionales: una reflexión sobre la integridad académica / ChatGPT e seu impacto na formação de competências para terapeutas ocupacionais: uma reflexão sobre a integridade acadêmica / ChatGPT and its impact on competence training in occupational therapists: a reflection on academic integrity

Resumen El acceso público a la inteligencia artificial y específicamente el ChatGPT está presentando desafíos y retos en la formación profesional de los terapeutas ocupacionales. En este contexto, este ensayo busca describir el impacto de la inteligencia artificial, con énfasis en el ChatGPT, en la formación de terapeutas ocupacionales y proponer estrategias para integrar estas tecnologías en la educación superior desde una perspectiva integradora, ética y acorde a los valores y principios de la integridad académica. A pesar de que esta herramienta se puede utilizar para proporcionar conocimientos teóricos y favorecer el aprendizaje de contenidos, también representa un riesgo para las conductas deshonestas en el ámbito académico. Por tanto, es trascendental que los formadores puedan comprender su uso y fomentar metodologías experienciales que promuevan la creatividad, el pensamiento crítico y la reflexión. El desafío reside en la implementación de políticas y estrategias que promuevan el desarrollo de competencias profesionales y el uso ético y efectivo de estas tecnologías en la formación de futuros terapeutas ocupacionales, como declarar su uso en trabajos escritos, el modelaje por parte de los profesores y la integración en las metodologías de formación.

Resumo O acesso público à inteligência artificial e, especificamente, ao ChatGPT, está apresentando desafios na formação profissional dos terapeutas ocupacionais. Neste contexto, este ensaio procura descrever o impacto da inteligência artificial, com ênfase no ChatGPT, na formação de terapeutas ocupacionais e propõe estratégias para integrar estas tecnologias no ensino superior a partir de uma perspectiva integradora, ética e de acordo com os valores e princípios da integridade acadêmica. Embora esta ferramenta possa ser usada para fornecer conhecimento teórico e favorecer a aprendizagem de conteúdos, também representa um risco para comportamentos desonestos no âmbito acadêmico. Portanto, é fundamental que os educadores compreendam seu uso e promovam metodologias experienciais que estimulem a criatividade, o pensamento crítico e a reflexão. O desafio reside na implementação de políticas e estratégias que promovam o desenvolvimento de competências profissionais e o uso ético e eficaz destas tecnologias na formação de futuros terapeutas ocupacionais, como declarar seu uso em trabalhos escritos, modelagem por parte dos professores e integração nas metodologias de formação.

Abstract Public access to artificial intelligence, and specifically to ChatGPT, is presenting challenges in the professional training of occupational therapists. In this context, this essay aims to describe the impact of artificial intelligence, with an emphasis on ChatGPT, on the training of occupational therapists and proposes strategies to integrate these technologies into higher education from an integrative, ethical perspective, in line with the values and principles of academic integrity. While this tool can be used to provide theoretical knowledge and enhance content learning, it also poses a risk for dishonest behaviors in the academic realm. Therefore, it is essential that educators understand its use and promote experiential methodologies that encourage creativity, critical thinking, and reflection. The challenge lies in the implementation of policies and strategies that promote the development of professional skills and the ethical and effective use of these technologies in training future occupational therapists, such as declaring its use in written works, modeling by teachers, and integration into training methodologies.

Nursing Ethics Education: Thinking, Feeling, and Technology.

Health care ethics education has focused on the four principles approach. Although relevant and important, this dimension is insufficient on its own. Emotional, cultural, spiritual, and relational aspects of ethics must also be addressed. Ethics cases are important in ethics education but should include everyday ethics scenarios that can be messy and emotional. Such situations occur regularly in nursing practice, making microethics particularly relevant to nurses. Art, songs, film, and literature provide stories that allow exploration of everyday ethics. Technology can facilitate this and promote ethics comportment, but more work is needed to demonstrate how best to do this.

Where the public health principles meet the individual: a framework for the ethics of compulsory outpatient treatment in psychiatry.

BACKGROUND: Compulsory treatments represent a legal means of imposing treatment on an individual, usually with a mental illness, who refuses therapeutic intervention and poses a risk of self-harm or harm to others. Compulsory outpatient treatment (COT) in psychiatry, also known as community treatment order, is a modality of involuntary treatment that broadens the therapeutic imposition beyond hospitalization and into the community. Despite its existence in over 75 jurisdictions worldwide, COT is currently one of the most controversial topics in psychiatry, and it presents significant ethical challenges. Nonetheless, the ethical debate regarding compulsory treatment almost always stops at a preclinical level, with the different ethical positions arguing for or against its use, and there is little guidance to support for the individual clinicians to act ethically when making the decision to implement COT. MAIN BODY: The current body of evidence is not clear about the efficacy of COT. Therefore, despite its application in several countries, evidence favouring the use of COT is controversial and mixed at best. In these unclear circumstances, ethical guidance becomes paramount. This paper provides an ethical analysis of use of COT, considering the principlist framework established by Ross Upshur in 2002 to justify public health interventions during the 2002-2004 severe acute respiratory syndrome outbreak. This paper thoroughly examines the pertinence of using the principles of harm, proportionality, reciprocity, and transparency when considering the initiation of COT. CONCLUSION: Ross Upshur's principlist model provides a useful reflection tool for justifying the application of COT. This framework may help to inform sounder ethical decisions in clinical psychiatric practice.

Trascendencia de los Comités de Ética de Investigación en Seres Humanos en el Ecuador / Research Ethics Committees of Human Beings in Ecuador

INTRODUCCIÓN. Los Comités de Ética de Investigación en Seres Humanos deben proteger la dignidad, los derechos, el bienestar y la seguridad de los sujetos investigados; evalúan aspectos éticos, metodológicos y jurídicos de los protocolos de investigación, competencia otorgada por el ente sanitario del país que ameritó observar si se cumplió. OBJETIVO. Evaluar la situación de los Comités de Ética de Investigación en Seres Humanos, basados en la percepción del cursillista, la normativa, las repercusiones y consecuencias para mantener su condición activa y su trascendencia. MATERIALES Y MÉTODOS. Estudio descriptivo, transversal y ambispectivo con un universo de 1 327 profesionales del área de la salud y una muestra de 385 encuestados que expresaron su percepción sobre trece Comités de Ética de Investigación en Seres Humanos a nivel nacional, con revisión bibliográfica nacional e internacional, se excluyeron los suspendidos. Se aplicó encuesta validada online, período abril a octubre de 2019. Data analizada en Excel y SPSS versión 23. RESULTADOS. El 76,92% Comités de Ética de Investigación en Seres Humanos fueron de la ciudad de Quito. Los cursillistas percibieron que el 64,16%, no trascendieron en su labor; desconocieron que: la Dirección Nacional de Inteligencia de la Salud, cuestionó el nombramiento de algún miembro un 97,14%; el cuestionamiento estuvo basado en la norma vigente un 79,48%; sobre la aprobación del plan anual de capacitación en investigación, 2019, un 95,06%; el plan anual de capacitación específico un 77,40%, y no recibieron directrices ni retroalimentación en temas de capacitación en calidad de investigador, un 90,39%. Además, percibieron que los Comités fueron responsables de capacitar otros Comités de ética de Investigación en Seres Humanos, un 81,82% y a los investigadores, un 85,71%; que deben elaborar el plan anual de educación específica para los miembros del comité, un 89,35%. CONCLUSIÓN. Se identificó entre los problemas que los investigadores casi no los conocen y hay necesidad de actualizar la norma que afectó el funcionamiento. Los justificativos para mantener la condición activa no se cumplieron, se evidenció la necesidad de asesoría para los comités por parte de las autoridades competentes, sin lograr conformación consolidada con actores y repercutió en su trascendencia.

INTRODUCTION. The Research Ethics Committees on Human Beings must protect the dignity, rights, well-being and safety of the research subjects; evaluate ethical, methodological and legal aspects of the research protocols, a competence granted by the health entity of the country that merited see if it is done. OBJECTIVE. Evaluate the situation of the Ethics Committees for Research in Human Beings, based on the perception of the trainee, the regulations, the repercussions and consequences to maintain their active condition and their transcendence. MATERIALS AND METHODS. Descriptive, cross-sectional and ambispective study with a universe of 1,327 professionals in the health area and a sample of 385 respondents who expressed their perception of thirteen Research Ethics Committees on Human Beings at the national level, with national and international bibliographic review. those suspended were excluded. An online validated survey was applied, from April to October 2019. Data analyzed in Excel and SPSS version 23. RESULTS. 76.92% Human Research Ethics Committees were from the city of Quito. The trainees perceived that 64,16%, did not transcend in their work; they did not know that: the National Directorate of Health Intelligence, questioned the appointment of a member 97,14%; the questioning was based on the current norm 79,48%; on the approval of the annual research training plan, 2019, 95,06%; the specific annual training plan 77,40%, and did not receive guidelines or feedback on training issues as a researcher, 90,39%. In addition, they perceived that the Committees were responsible for training other Human Beings Research Ethics Committees, 81,82% and the researchers, 85,71%; that they must prepare the annual specific education plan for the members of the committee, 89,35%. CONCLUSION. It was identified among the problems that the researchers hardly know them and there is a need to update the norm that affected the operation. The justifications to maintain the active condition were not fulfilled, the need for advice for the committees by the competent authorities was evidenced, without achieving a consolidated conformation with actors and had repercussions on its importance. hardly know them and there is a need to update the norm that affected the operation. The justifications to maintain the active condition were not fulfilled, the need for advice for the committees by the competent authorities was evidenced, without achieving a consolidated conformation with actors and had repercussions on its importance.

El legado de Fidel Castro como premisa y fortaleza para el enfrentamiento a la COVID-19 / The legacy of Fidel Castro as a premise and strength to face COVID-19

RESUMEN Fidel Castro Ruz es una de las grandes personalidades de los siglos XX y XXI, hombre de dimensión nacional e internacional por la profundidad de su pensamiento y obra humanitaria. En Cuba constituye un referente obligatorio en el sector de la salud, la ciencia y la educación médica, así como en la batalla contra la COVID-19. El desafío del pueblo cubano contra la pandemia, desde marzo de 2020 hasta la actualidad, tiene como premisa el legado de Fidel. El artículo tiene como propósito valorar el pensamiento fidelista como premisa y fortaleza para el enfrentamiento a la pandemia en Cuba.

ABSTRACT Fidel Castro Ruz is one of the greatest personalities of the 20th and 21st centuries, a man of national and international dimension due to the depth of his thought and humanitarian work. In Cuba, it constitutes a mandatory reference in the health, science and medical education branch, as well as in the struggle against COVID-19. The challenge of the Cuban people against the pandemic, from March 2020 to the current time, has as its premise in the legacy of Fidel. The purpose of the article is to assess Fidel´s thought as a premise and strength to faceg the pandemic in Cuba.

Grounded theory qualitative approach from Foucault's ethical perspective: Deconstruction of patient self-determination in the clinical setting.

This paper aims to explain the construction of the autonomous subject from Foucault's ethical perspective for the qualitative analysis of interprofessional relationships, patient-professional relationships, and moral ethics critique. Foucault tried to break loose from the self, which is merely the result of a biopolitical subjectivation and constituted an interpersonal level. From this, different elements involved in the decision-making capacity of patients in a clinical setting were analysed. Firstly, the context in which decision-making occurs has been explained, distinguishing between traditional practices involved in self-care and the more modern conceptions that make certain possible transformations. Secondly, an attempt is made to explain the formation of the medicalisation of society using the transformations of what Foucault called "techniques of the self". Finally, the ethical framework for a subject's "self-creation", insisting more on the exercises of self-subjectivation, reinforcing the ethics of the self by itself, the "care of the self", has been explained. The role of the patient is understood as an autonomous subject to the extent that the clinical institution and the professionals involved comprehend how the patient's autonomy in the clinical environment is constituted. All these elements could generate grounded theory on the qualitative methodology of this phenomenon. The current ethical model based on universal principles is not useful to provide a capacity for patients decision-making, relegating to the background their opinions and beliefs. Consequently, a new ethical perspective emerges that aims to return the patient to the fundamental axis of attention.

[Big Data in health: a new paradigm to regulate, a challenge for social justice.] / Big Data en salud: Un nuevo paradigma para regular, un desafío para la justicia social.

In addition to the opportunities posed by the use of Big Data in health, it also generates important challenges in the field of research, especially from the point of view of its management and ethical considerations. The European Union has been promoting different initiatives that allow the exploitation of this data in the context of the knowledge economy. The UNESCO Ethics Committee has identified three ethical principles to take into account regarding the application of Big Data in Health: independence, privacy and justice. The protection of privacy and patient safety is questioned in a context where cybersecurity is far to be complete. In addition, an imbalance in the exploitation of these data by the public and private sectors could generate inequalities that would represent a significant problem of social justice. This article follows a qualitative methodology based on the documentary analysis of current legislative texts, especially the recently approved General Data Protection Regulation (GDPR), as well as non-legislative documents of projects and parliamentary communications throughout the last two legislatures, with the aim of analyzing them and evaluating how they conform to the principles outlined by UNESCO, especially with respect to the principle of social justice. The most representative national projects that have started to be adopted are also reviewed.

Además de las oportunidades que supone el uso de Big Data en salud, también genera desafíos importantes en el campo de la investigación, especialmente desde el punto de vista de su gestión y de las consideraciones éticas. La Unión Europea ha estado promoviendo diferentes iniciativas que permitan la explotación de estos datos en el contexto de la economía del conocimiento. El Comité de Ética de la UNESCO ha identificado tres principios éticos a tener en cuenta sobre la aplicación de Big Data en Salud: independencia, privacidad y justicia. La protección de la privacidad y la seguridad de los pacientes se cuestiona en un contexto en el que la ciberseguridad está lejos de ser completa. Además, un desequilibrio en la explotación de estos datos por parte de los sectores público y privado podría generar inequidades que significarían un problema importante de justicia social. Este artículo sigue una metodología cualitativa basada en el análisis documental de los textos legislativos vigentes, especialmente el recientemente aprobado reglamento general de protección de datos (RGPD), así como documentos no legislativos de proyectos y comunicaciones parlamentarias a lo largo de las dos últimas legislaturas, con el objetivo es analizarlas y evaluar cómo se ajustan a los principios esbozados por la UNESCO, especialmente con respecto al principio de justicia social. También se revisan los proyectos nacionales más representativos que han empezado a adoptarse.

Conocimientos sobre la aplicación de los principios de la Bioética en Licenciados en Enfermería / Knowledge about the application of the principles of Bioethics in Nursing Graduates

RESUMEN Fundamento: la Enfermería se reconoce socialmente como una de las profesiones orientadas a ayudar y cuidar la salud de las personas. Brindar una atención con calidad y eficiencia es una de las premisas fundamentales de este profesional, garantizada por el conocimiento y aplicación de los principios de la Bioética. Objetivo: determinar el nivel de conocimientos sobre los principios de la bioética en los profesionales de Enfermería de la provincia Villa Clara. Métodos: se realizó un estudio transversal, descriptivo, en el período febrero 2017-junio 2019. Se utilizaron métodos teóricos: análisis-síntesis e inducción-deducción, histórico-lógico; y empíricos: cuestionario. Las variables definidas fueron: sexo, años de experiencia laboral, principios de la bioética, aplicación de los principios, error de aplicación y estado del conocimiento. Resultados: predominaron el sexo femenino y los graduados de más de 20 años en el ejercicio de la profesión. El principio Beneficencia fue bien aplicado entre los encuestados. Los errores detectados más frecuentes estuvieron en el principio No maleficencia. Predominó el estado de conocimiento medio sobre la temática analizada. Conclusiones: existen insuficiencias en los conocimientos sobre los principios de la bioética y su aplicación en la práctica profesional del Licenciado en Enfermería.

ABSTRACT Background: Nursing is socially recognized as one of the professions aimed at helping and caring for people's health. Providing quality and efficient care is one of the fundamental premises of this professional, guaranteed by the knowledge and application of the principles of Bioethics. Objective: to determine the level of knowledge about the principles of bioethics in the Nursing professionals of Villa Clara province. Methods: a descriptive cross-sectional study was carried out from February 2017 to June 2019. Theoretical methods were used: analysis-synthesis and induction-deduction, historical-logical; and empirical ones: questionnaire. The defined variables were: sex, professional background, principles of bioethics, application of the principles, application error and state of knowledge. Results: the female sex and the graduates of more than 20 years in the exercise of the profession predominated. The principle of Beneficence was well applied among the respondents. The most frequent errors detected were in the principle No maleficence. The average state of knowledge prevailed on the subject analyzed. Conclusions: there are deficiencies in the knowledge about the principles of bioethics and their application in the professional practice of the Nursing Graduates.