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1.
Psychol Rep ; : 332941241248595, 2024 Apr 22.
Article in English | MEDLINE | ID: mdl-38648517

ABSTRACT

Based on the need to implement strategies to reduce recovery gaps in mental health with the community as axes of recovery, the objective of the present study was to assess the impact on psychosocial disability and care continuity in individuals with suicidal behavior, of the clinical and community components of the Mental Health Gap Action Program (mhGAP), versus exclusive psychiatric care. For this, a controlled community trial carried out in 2023 was conducted, comprising intervention groups: Support Group (SG), mhGAP Group (mhGAPG) and a Control Group (CG). Self-report measurements were collected pretest and posttest, utilizing the Psychosocial Disability Scale and the Alberta Continuity of Care Scale. The study involved the participation of 94 individuals with a history of suicidal behavior, with 30 individuals in the SG, 34 in the mhGAP group, and 30 in the CG. Categorical variables were summarized using frequency distribution tables. Descriptive statistics were used to examine participants' characteristics at the study outcome and estimate treatment compliance. The Mann-Whitney U Test examined differences in sociodemographic variable frequencies. The Jarque-Bera test confirmed a normal distribution for psychological variables, warranting the use of parametric tests. Differences in mean values across groups, each with two measurements per individual, were assessed using a type II repeated measures ANOVA. There were significant differences based on the intervention, with the effect being greater in the SG across all domains. Significant improvement was observed in all domains of the disability and continuity of care scale within the intervention groups. Both groups showed improvement, with better results for the SG. In conclusion, a methodology is proposed for implementing support groups based on core components, which effectively enhances psychosocial disability and the continuity of mental health care, especially in suicidal behavior.

2.
J Med Internet Res ; 26: e49409, 2024 Apr 16.
Article in English | MEDLINE | ID: mdl-38625726

ABSTRACT

BACKGROUND: The incidence of stroke in children is low, and pediatric stroke rehabilitation services are less developed than adult ones. Survivors of pediatric stroke have a long poststroke life expectancy and therefore have the potential to experience impairments from their stroke for many years. However, there are relatively few studies characterizing these impairments and what factors facilitate or counteract recovery. OBJECTIVE: This study aims to characterize the main barriers to and facilitators of recovery from pediatric stroke. A secondary aim was to explore whether these factors last into adulthood, whether they change, or if new factors impacting recovery emerge in adulthood. METHODS: We performed a qualitative thematic analysis based on posts from a population of participants from a UK-based online stroke community, active between 2004 and 2011. The analysis focused on users who talked about their experiences with pediatric stroke, as identified by a previous study. The posts were read by 3 authors, and factors influencing recovery from pediatric stroke were mapped into 4 areas: medical, physical, emotional, and social. Factors influencing recovery were divided into short-term and long-term factors. RESULTS: There were 425 posts relating to 52 survivors of pediatric stroke. Some survivors of stroke posted for themselves, while others were talked about by a third party (mostly parents; 31/35, 89% mothers). In total, 79% (41/52) of survivors of stroke were aged ≤18 years and 21% (11/52) were aged >18 years at the time of posting. Medical factors included comorbidities as a barrier to recovery. Medical interventions, such as speech and language therapy and physiotherapy, were also deemed useful. Exercise, particularly swimming, was deemed a facilitator. Among physical factors, fatigue and chronic pain could persist decades after a stroke, with both reported as a barrier to feeling fully recovered. Tiredness could worsen existing stroke-related impairments. Other long-standing impairments were memory loss, confusion, and dizziness. Among emotional factors, fear and uncertainty were short-term barriers, while positivity was a major facilitator in both short- and long-term recovery. Anxiety, grief, and behavioral problems hindered recovery. The social barriers were loneliness, exclusion, and hidden disabilities not being acknowledged by third parties. A good support network and third-party support facilitated recovery. Educational services were important in reintegrating survivors into society. Participants reported that worrying about losing financial support, such as disability allowances, and difficulties in obtaining travel insurance and driving licenses impacted recovery. CONCLUSIONS: The lived experience of survivors of pediatric stroke includes long-term hidden disabilities and barriers to rehabilitation. These are present in different settings, such as health care, schools, workplaces, and driving centers. Greater awareness of these issues by relevant professional groups may help ameliorate them.


Subject(s)
Chronic Pain , Emotions , Adult , Humans , Child , Anxiety , Anxiety Disorders , Fatigue , United Kingdom
3.
J Med Internet Res ; 26: e49440, 2024 Mar 15.
Article in English | MEDLINE | ID: mdl-38488858

ABSTRACT

BACKGROUND: Pediatric stroke is relatively rare and underresearched, and there is little awareness of its occurrence in wider society. There is a paucity of literature on the effectiveness of interventions to improve rehabilitation and the services available to survivors. Access to online health communities through the internet may be a means of support for patients with pediatric stroke and their families during recovery; however, little research has been done in this area. OBJECTIVE: This study aims to identify the types of social support provided by an online peer support group to survivors of pediatric stroke and their families. METHODS: This was a qualitative thematic analysis of posts from a pediatric stroke population on a UK online stroke community active between 2004 and 2011. The population was split into 2 groups based on whether stroke survivors were aged ≤18 years or aged >18 years at the time of posting. The posts were read by 2 authors who used the adapted Social Support Behavior Code to analyze the types of social support exchanged. RESULTS: A total of 52 participants who experienced a pediatric stroke were identified, who posted a total of 425 messages to the community. About 41 survivors were aged ≤18 years at the time of posting and were written about by others (31/35 were mothers), while 11 were aged >18 years and were writing about themselves. Survivors and their families joined together in discussion threads. Support was offered and received by all participants, regardless of age. Of all 425 posts, 193 (45.4%) contained at least 1 instance of social support. All 5 types of social support were identified: informational, emotional, network, esteem support, and tangible aid. Informational and emotional support were most commonly exchanged. Emotional support was offered more often than informational support among participants aged ≤18 years at the time of posting; this finding was reversed in the group aged >18 years. Network support and esteem support were less commonly exchanged. Notably, the access subcategory of network support was not exchanged with the community. Tangible aid was the least commonly offered type of support. The exchanged social support provided insight into rehabilitation interventions and the unmet needs of pediatric stroke survivors. CONCLUSIONS: We found evidence of engagement of childhood stroke survivors and their families in an online stroke community, with peer support being exchanged between both long- and short-term survivors of pediatric stroke. Engagement of long-term survivors of pediatric stroke through the online community was key, as they were able to offer informational support from lived experience. Further interventional research is needed to assess health and rehabilitation outcomes from engagement with online support groups. Research is also needed to ensure safe, nurturing online communities.


Subject(s)
Social Support , Stroke , Female , Humans , Child , Self-Help Groups , Stroke/therapy , Survivors , Social Networking , Internet
4.
Nutrients ; 16(2)2024 Jan 10.
Article in English | MEDLINE | ID: mdl-38257120

ABSTRACT

Postpartum depression is a significant health issue affecting both mothers and newborns during the postpartum period. Group support interventions during this period have proven effective in helping women cope with depression and improving breastfeeding rates. This study aimed to assess the effectiveness of a midwife-led breastfeeding support group intervention on breastfeeding rates, postpartum depression and general self-efficacy. This was a multicentric cluster randomised controlled trial with control and intervention groups and was not blinded. It was conducted in Andalusia (southern Spain) from October 2021 to May 2023. A total of 382 women participated in the study. The results showed a significant difference in exclusive breastfeeding rates at 4 months postpartum between the groups (control 50% vs. intervention 69.9%; p < 0.001). Additionally, there was a lower mean score on the Edinburgh Postnatal Depression Scale in the intervention group (12.49 ± 3.6 vs. 13.39 ± 4.0; p = 0.044). Similarly, higher scores of general self-efficacy were observed among breastfeeding women at 2 and 4 months postpartum (77.73 ± 14.81; p = 0.002 and 76.46 ± 15.26; p < 0.001, respectively). In conclusion, midwife-led breastfeeding support groups enhanced self-efficacy, prolonged breastfeeding and reduced postpartum depression 4 months after giving birth.


Subject(s)
Depression, Postpartum , Midwifery , Infant, Newborn , Pregnancy , Female , Humans , Depression, Postpartum/prevention & control , Breast Feeding , Postpartum Period , Postnatal Care
5.
Int J Health Plann Manage ; 39(1): 36-47, 2024 Jan.
Article in English | MEDLINE | ID: mdl-37796724

ABSTRACT

AIMS: To develop and validate an instrument to identify the core components of community strategies for mental health, especially mutual aid groups: The Mutual Aid Scale . METHODS: 135 community strategies leaders participated in the study. The core components are active agency, coping strategies, recognition, and management of emotions, problem-solving strategies, supportive interaction, trust, self-identity construction, and strengthening of social networks. With these components a scale was designed. Content validity was carried out in addition to an exploratory factor analysis. RESULTS: Two dimensions resulted, strengthening of agency capacity and Coping strategies, and the internal consistency of both factors was acceptable, with a Cronbach's alpha of 0.722 and 0.727, respectively. The Kaiser-Meyer-Olkin (KMO) statistic was used with a score of 0.831 and the Barlett Sphericity Test, with a significant value of 265.175. CONCLUSION: This scale identifies the components of community interventions for mental health and can contribute to a better implementation of these strategies. It also articulates autonomous community processes with strategies developed in health services.


Subject(s)
Mental Health , Surveys and Questionnaires , Reproducibility of Results , Factor Analysis, Statistical
6.
Eur Arch Psychiatry Clin Neurosci ; 274(2): 375-422, 2024 Mar.
Article in English | MEDLINE | ID: mdl-37755487

ABSTRACT

This paper offers a systematic review of quantitative and qualitative studies on the main twelve-step mutual-help (TSMH) groups (excluding Alcoholics Anonymous) and four meta-analyses exploring the correlation between (i) duration or involvement in TSMH groups and; (ii) severity of symptoms or quality of life. Systematic review was conducted following PRISMA guidelines. Searches of databases (MEDLINE, PsychInfo), a register (ClinicalTrials) and citations were conducted, from inception through November 01 2022. Fifty five articles were included (24 quantitative, 27 qualitative, 4 mixed-methods), corresponding to 47 distinctive studies. 68% of these studies were conducted in North America, 17% in Middle East, 11% in the European Union and 4% in Australia. The most studied TSMH group were Gamblers Anonymous (28% of the 47 studies), Narcotics Anonymous (26%), Double Trouble in Recovery (15%), Overeaters Anonymous (19%) and TSMH groups for compulsive sexual behaviors (11%). The four meta-analyses pooled data from 9 studies. Pooled mean age ranged from 36.5 to 40.5. 80-81% of participants were male. TSMH attendance and involvement were negatively correlated with severity of symptoms (high and medium levels of evidence) and positively correlated with quality of life (low levels of evidence). Twenty-one qualitative papers reported factors influencing recovery: Social (n = 15), emotional (n = 9), spiritual (n = 8), self-identification or psychological (n = 6) factors. Review provides characteristics of TSMH groups others than Alcoholics Anonymous, with implications for both research and healthcare practice. The perspective to implement TSMH groups targeting ontological addiction, at the root of all addiction, is discussed.Protocol registration: Prospero registration number: CRD42022342605.


Subject(s)
Behavior, Addictive , Self-Help Groups , Humans , Compulsive Sexual Behavior Disorder , Gambling , Quality of Life
7.
Rev. peru. med. exp. salud publica ; 41(1): 54-61, 2024. tab
Article in Spanish | LILACS-Express | LILACS | ID: biblio-1560410

ABSTRACT

RESUMEN Objetivo. Explorar la percepción de los beneficios de participar en un grupo de apoyo de cuidadoras de niños con discapacidad múltiple. Materiales y métodos. Estudio cualitativo, enfoque etnográfico focalizado, realizado de octubre del 2022 a febrero del 2023, muestreo por conveniencia, participaron 20 cuidadoras de niños con discapacidad múltiple. La información se recolectó mediante observación participante, grupos de discusión y entrevistas semiestructuradas. Se realizó análisis temático aplicando las propuestas por Braun y Clark. Resultados. Los temas emergentes fueron: red de apoyo social: integrarse, informarse y ayudarse mutuamente; espacio de aprendizaje: se aprende a cuidar y a cuidarse; promueve el empoderamiento: identificar y enfrentar barreras de acceso. Conclusiones. El grupo de apoyo funciona como una red de apoyo social, proporciona información, reduce la incertidumbre, facilita el afrontamiento y la resiliencia tras el nacimiento y crianza de un hijo con discapacidad múltiple. Espacio donde se aprende a cuidar y a cuidarse a sí mismo y donde se promueve el empoderamiento para la defensa de los derechos de los niños con discapacidad.


ABSTRACT Objective . To explore the perceived benefits of participating in a support group of caregivers of children with multiple disabilities. Materials and methods. A qualitative study with a focused ethnographic approach was conducted from October 2022 to February 2023, in which we applied convenience sampling. We included 20 caregivers of children with multiple disabilities. Information was collected through participant observation, focus groups, and semi-structured interviews. Thematic analysis was performed by applying Braun and Clark's proposals. Results. The emerging themes were: social support network: integrating, informing, and helping each other; learning space: learning to take care and to take care of oneself; promoting empowerment: identifying and facing access barriers. Conclusions. We found that the support group functions as a social support network provides information, reduces uncertainty, and facilitates coping and resilience after the birth and upbringing of a child with multiple disabilities. It is a space where one learns to care for and take care of oneself and where empowerment for the defense of the rights of children with disabilities is promoted.

8.
Health Policy Plan ; 38(9): 1033-1049, 2023 Oct 11.
Article in English | MEDLINE | ID: mdl-37599510

ABSTRACT

This scoping review aims to identify and critically appraise published economic evaluations of self-help group (SHG) interventions in low- and middle-income countries (LMICs) that seek to improve health and potentially also non-health outcomes. Through a systematic search of MEDLINE ALL (Ovid), EMBASE Ovid, PsychINFO, EconLit (Ovid) and Global Index Medicus, we identified studies published between 2014 and 2020 that were based in LMICs, included at least a health outcome, estimated intervention costs and reported the methods used. We critically analysed whether the methods employed can meaningfully inform decisions by ministries of health and other sectors, including donors, regarding whether to fund such interventions, and prioritized the aspects of evaluations that support decision-making and cross-sectoral decision-making especially. Nine studies met our inclusion criteria. Randomized controlled trials were the most commonly used vehicle to collect data and to establish a causal effect across studies. While all studies clearly stated one or more perspectives justifying the costs and effects that are reported, few papers clearly laid out the decision context or the decision maker(s) informed by the study. The latter is required to inform which costs, effects and opportunity costs are relevant to the decision and should be included in the analysis. Costs were typically reported from the provider or health-care sector perspective although other perspectives were also employed. Four papers reported outcomes in terms of a generic measure of health. Contrary to expectation, no studies reported outcomes beyond health. Our findings suggest limitations in the extent to which published studies are able to inform decision makers around the value of implementing SHG interventions in their particular context. Funders can make better informed decisions when evidence is presented using a cross-sectoral framework.

9.
Alcohol Clin Exp Res (Hoboken) ; 47(10): 1904-1916, 2023 Oct.
Article in English | MEDLINE | ID: mdl-37553754

ABSTRACT

BACKGROUND: Concerns regarding symptom severity and the risk of relapse among people seeking recovery from alcohol use disorder (AUD) have been raised since the onset of the COVID-19 pandemic. Owing to preventive measures implemented during the pandemic (social distancing or lockdown), self-help group (SHG) meetings were restricted. However, the impact of deprivation of onsite recovery meetings on drinking behavior and risk among SHG members with AUD remains unclear. We examined the proportion of SHG members who reported drinking and their reasons for drinking during the early stages of the pandemic and the effect of nonattendance at onsite recovery meetings on drinking behavior during the early pandemic period, stratified by gender. METHODS: A national cross-sectional survey of Japanese SHG members was conducted to measure self-reported alcohol consumption, sociodemographic characteristics, AUD diagnosis, treatment status, SHG meeting attendance, membership duration, psychological distress, and health-related variables. Of 6478 SHG members, 2955 (male: n = 2678; female: n = 277; response rate: 46.7%) responded, and the responses were analyzed using a gender-stratified multivariate logistic regression model. RESULTS: Most participants reported having abstained from alcohol use, while 6% of the respondents reported having consumed alcohol during the early stages of the pandemic. The proportion of "drinkers" among women (10.5%) was significantly higher than that among men (5.9%; p = 0.012). Through multivariate model analysis, the factors associated with drinking during the pandemic were identified as psychological distress (among men and women) and not attending onsite recovery meetings (among men). Conversely, a longer duration of SHG membership was associated with less drinking during the pandemic for both genders. CONCLUSIONS: Most SHG members appear to have remained abstinent during the early stages of the COVID-19 pandemic. However, psychological distress in both genders and the inability to attend recovery meetings among men may have influenced drinking behavior.

10.
Heliyon ; 9(6): e16477, 2023 Jun.
Article in English | MEDLINE | ID: mdl-37274720

ABSTRACT

In order to link the unorganised with the formal financial sector in India, the National Bank for Agriculture and Rural Development (NABARD) introduced the Self-Help Group Bank Linkage Programme (SHG-BLP) as a trial initiative in 1992 and mainstreamed it in 1996. Microfinance services are available in Assam through SHG-BLPs registered with the Deendayal Antyodaya Yojana-National Rural Livelihoods Mission (DAY-NRLM). In central Assam, there are the most active SHG-BLP units. In light of this, the present study aims to explore contribution of SHG-BLP in financial along with the social inclusion of the marginalised rural people of central Assam. The impact of SHG-BLP is facilitated by the application of the propensity score matching method. The empirical results show that the SHG-BLP considerably reduces social exclusion among participants relative to their non-participant counterparts and ensures financial inclusion too. Based on this empirical finding, the study recommends that the coverage of SHG registration under DAY-NRLM be expanded. Simultaneously, efforts must be made to expand the alternative model of SHGs, the MFI-Bank Linkage Model, for expanding SHG coverage.

11.
Asian Pac J Cancer Prev ; 24(3): 991-997, 2023 Mar 01.
Article in English | MEDLINE | ID: mdl-36974554

ABSTRACT

OBJECTIVE: This study aims to examine the effectiveness of the Self-Help Group (SHG) intervention in smoking prevention among adolescents. METHODS: This study was carried out in 2 Junior High Schools in Aceh Besar using a quasi-experimental method, which was conducted in the intervention and the control groups with a pre-post design. The number of samples was determined based on power analysis with medium effect size and power (0.08) with 40 respondents per group. After randomizing the schools, a total of 40 students who met the criteria were randomly selected for each school. The data were collected by using a self-report questionnaire, consisting of knowledge, as well as smoking attitudes, intentions, and behavior. The SHG intervention consist of 6 sessions, each of which was conducted per week with a duration of 40-60 minutes per session. The data were analyzed using descriptive and inferential statistics. RESULTS: The results of statistical tests using the Mann-Whitney and t-test showed that there was an effect of the SHG intervention on knowledge (p-value 0.043), attitude (p-value 0.001), intention (p-value 0.029), and behavior (p-value 0.003). The average score of knowledge was higher in the SHG intervention group than in the control group, while the average score of attitude, smoking intention and behavior was lower in the SHG intervention group than in the control group. CONCLUSION: Health practitioners, specifically community nurses are suggested to implement SHG interventions as one of the strategies for preventing smoking among adolescents.


Subject(s)
Smoking Prevention , Smoking , Adolescent , Humans , Attitude , Indonesia/epidemiology , Schools , Self-Help Groups , Smoking Prevention/methods
12.
Anticancer Res ; 43(4): 1663-1673, 2023 Apr.
Article in English | MEDLINE | ID: mdl-36974816

ABSTRACT

BACKGROUND/AIM: Head and neck cancer (HNC) is associated with a high risk of malnutrition. Malnutrition is defined as acute weight loss greater than 5% and increases mortality 1.7-fold for HNC patients. The aim of the study was to investigate the social and nutritional impairments that patients face throughout cancer-survivorship. PATIENTS AND METHODS: The study was conducted nationwide via the self-help network and in a single oncological center. We analysed 134 patient reported outcome (PRO) questionnaires with a mean age of 65.5±9.4 years, including 88 males, 36 females, and ten participants of undisclosed sex. The questionnaire contained 47 items enquiring about demography, weight development, and how treatment impaired nutrition. RESULTS: The patient data showed a weight loss of 8% after surgery, 13% after (chemo)radiotherapy [(C)RT] and a return to baseline weight in convalescence. However, patients with a baseline weight >100 kilogram (kg), had a 22% weight loss after (C)RT (p<0.0001) and this remained permanent at 11% (p=0.0041). Treatment-associated side-effects gradually decreased in the course compared to the time of treatment: loss of taste (55% to 21%), xerostomia (56% to 42%), dysphagia (57% to 43%), and dental problems (33%/ to 21%). (C)RT immediately led to more loss of taste (p=0.0461) and dysphagia (p=0.0334), and surgery as a singular modality scored the lowest odds ratio for side-effects. Social Impact: mood, supporting networks, and supplement satisfaction were rated "good" (Likert Scale). CONCLUSION: Malnutrition is common among HNC patients. High baseline weight and extensive multimodal treatment are important risk factors that require enhanced stewardship.


Subject(s)
Ageusia , Deglutition Disorders , Head and Neck Neoplasms , Malnutrition , Male , Female , Humans , Middle Aged , Aged , Deglutition Disorders/epidemiology , Deglutition Disorders/etiology , Treatment Outcome , Malnutrition/etiology , Malnutrition/therapy , Head and Neck Neoplasms/complications , Head and Neck Neoplasms/therapy , Body Weight , Weight Loss , Patient Reported Outcome Measures
13.
Eval Program Plann ; 98: 102258, 2023 06.
Article in English | MEDLINE | ID: mdl-36958273

ABSTRACT

This paper used a blended approach that involves multiple techniques to, first, test a set of assumptions around a health behavior change communication intervention theory of change (ToC) and, second, surface some unidentified assumptions involving the local context. The intervention was integrated with women's self-help groups (SHGs) in Uttar Pradesh, India. The key assumption tested in this paper was the linkage between SHG membership, program exposure, and maternal, newborn, and child health practices. Learnings were substantiated through empirical investigations, including structural equation modeling and mediation analysis, as well as 'co-learning' workshops within the community. The workshops aimed to capture and interpret the heterogeneity of local contexts through deep dialogs with the community and program implementers at various levels. Statistical analyses indicated a significant association between the amount of women's program exposure and their health practices. SHG membership was shown to affect maternal health practices; however, it did not have a direct effect on neonatal or child health practices. The 'co-learning' workshops revealed crucial aspects, such as prevailing socio-cultural norms, which prevented pregnant or recently delivered women from participating in SHG meetings. This paper encourages evaluators to work with the community to interpret and co-construct meaning in unpacking the contextual forces that seldom appear in the program ToC.


Subject(s)
Health Behavior , Maternal Health , Infant, Newborn , Pregnancy , Child , Female , Humans , Program Evaluation , India , Self-Help Groups
14.
Index enferm ; 32(4): [e14483], 20230000.
Article in Spanish | IBECS | ID: ibc-231542

ABSTRACT

Objetivo principal: comprender los significados de la experiencia de pertenecer a un grupo de apoyo para los habitantes de calle en una ciudad del sur de Colombia. Metodología: estudio cualitativo de diseño fenomenológico-hermenéutico. La información fue recolectada durante el año 2022 mediante entrevistas a profundidad, para comprender los significados de la experiencia. Previa firma del consentimiento informado, se realizó un muestreo casual orientado por criterio. Resultados principales: los temas emergentes del análisis de los datos fueron los siguientes: la experiencia de vida en calle: dolor y pérdidas, buscar estar mejor: decisión de cambio, recuperar la vida: renacer, soporte y seguimiento: herramientas de superación. Conclusión principal: el significado para los habitantes de calle de pertenecer a un grupo de apoyo fue expresado como una experiencia que aportó a su bienestar, proporcionó un sólido soporte social, les ayudó a recuperar y mejorar la calidad de vida y al proceso de socialización.(AU)


Objective: Understand the meanings of the experience of belonging to a support group for the Homeless people in a city in southern Colombia. Methods: Qualitative study of phenomenological-hermeneutic design, the information was collected through in-depth interviews to understand the meanings of the experience, after signing the informed consent during the year 2022, a casual sampling oriented by criteria was carried out. Results: The emerging themes of the data analysis were the following: the experience of life on the street: pain and losses, seeking to be better: decision to change, recovering life: rebirth, support, and follow-up: tools for improvement. Main conclusion: The meaning for homeless people of belonging to a support group was expressed as an experience that contributed to their well-being, provided solid social support, helped them recover and improve their quality of life and the socialization process.(AU)


Subject(s)
Humans , Male , Female , Self-Help Groups , Social Support , Substance-Related Disorders , Quality of Life , Qualitative Research , Public Health , Nursing , Colombia
15.
Eur J Cancer Care (Engl) ; 31(6): e13700, 2022 Nov.
Article in English | MEDLINE | ID: mdl-36104303

ABSTRACT

INTRODUCTION: Although cancer self-help groups (CSHGs) have increased in importance in recent years, certain aspects have not yet been sufficiently investigated in studies to date. In particular, little is known about members' experiences in face-to-face peer led CSHGs. This systematic review aims to synthesise qualitative studies documenting personal experiences of CSHG members and to enlighten group processes and mechanisms. It focuses on benefits and challenges of participating in face-to-face CSHGs in studies based on qualitative research. METHODS: MEDLINE, PsycINFO and PSYNDEX were used to identify relevant studies published from January 2000 to April 2022. RESULTS: Of the 978 studies screened for eligibility, 20 studies were included in the review and were methodologically assessed using the Critical Appraisal Skills Programme. All included studies consistently indicate that participation in a peer led CSHG leads to multiple perceived benefits, that is, informational support, shared experience, learning from others, helping others as well as cultivating humour as a coping strategy. Additionally, various challenges in CSHGs were identified, that is, confrontation with the suffering of others, divergent information needs, distressing group dynamics and challenging aspects concerning leadership and sustainability. CONCLUSION: This indicates that groups need low-threshold offers to be able to organise support in case of need.


Subject(s)
Neoplasms , Self-Help Groups , Humans , Qualitative Research , Peer Group , Counseling , Neoplasms/therapy
16.
J Adv Nurs ; 78(10): 3225-3234, 2022 Oct.
Article in English | MEDLINE | ID: mdl-35451524

ABSTRACT

AIM: To identify a serial multiple mediation effect of social support in online health communities and collective empowerment on the relationship between diabetes-related burden (DRB) and self-efficacy, among mothers using a continuous glucose monitoring device for children with type 1 diabetes (T1D). DESIGN: A secondary analysis, cross-sectional, descriptive study. METHODS: Data were obtained from 198 mothers of children with T1D via a web survey, from August to September 2020. Measures used were the Collective Empowerment in the Online Health Community Scale, a modified version of the Multidimensional Scale of Perceived Social Support, Problem Areas in Diabetes Survey-Parent Revised version and a modified version of the Maternal Self-efficacy for Diabetes Management Scale. Data were analysed using SPSS 25.0, and PROCESS MACRO for SPSS v3.5. RESULTS: A serial multiple mediation model was used. The indirect effects of both social support in online health communities and collective empowerment were identified in the relationship between DRB and diabetes self-efficacy (DSE). However, there was no indirect effect of social support in online health communities on these relationships. CONCLUSION: These findings suggest that online social support alone has a limited role in chronic disease management self-efficacy. Collective empowerment should be a strategic component in intervention development using online health communities to strengthen DSE in mothers of children with T1D. IMPACT: This study provides novel insights into the functional mechanism of online health communities for T1D. Peer mentor coaching by parents of children with T1D effectively helps other children's parents with its recent diagnosis. The findings recognize a need for strategies enhancing collective empowerment among parents of children with T1D. Along with peer coaching, these strategies should strengthen knowledge of resources and methods to impact social change as well as resource mobilization for collective actions.


Subject(s)
Diabetes Mellitus, Type 1 , Blood Glucose , Blood Glucose Self-Monitoring , Child , Cross-Sectional Studies , Diabetes Mellitus, Type 1/therapy , Female , Humans , Self Efficacy , Social Support
17.
Br J Health Psychol ; 27(3): 666-690, 2022 09.
Article in English | MEDLINE | ID: mdl-34704309

ABSTRACT

OBJECTIVES: Social-cure research has shown that ingroup identification can be beneficial for personal health and well-being. Initial evidence for healthy participants suggests that this might be due to group membership providing a sense of personal control. In this research, we investigate this pathway for chronically ill patients, assuming that any ingroup (even patient identity) can serve as social cure by increasing control as long as the ingroup is perceived as agentic (i.e., effective). DESIGN: We conducted six correlational field studies with patients suffering from different chronic conditions, e.g., cancer (Ntotal = 795). METHODS: All participants were asked about one specific ingroup, e.g., their self-help group. Our main measures were ingroup identification, ingroup agency, personal control and well-being, as well as self-esteem and social support (both discussed as alternative mediators). We performed simple mediation and/or moderated mediation analyses for each study and across studies (merging Studies 2-6). RESULTS: Overall, the impact of ingroup identification on personal well-being was uniquely mediated via personal control (Studies 1, 2, 3, 6) but, as expected, only for those perceiving their ingroup as highly agentic (Studies 4, 5, 6). CONCLUSIONS: Ingroup agency is a boundary condition for the control-based pathway of the social cure effect supporting the model of group-based control. This has practical implications for clinical interventions with chronically ill patients.


Subject(s)
Self Concept , Social Identification , Chronic Disease , Humans
18.
Indian J Med Res ; 156(2): 191-197, 2022 08.
Article in English | MEDLINE | ID: mdl-36629179

ABSTRACT

Background & objectives: In the current health system, cash incentives are given to accredited social health activists for referring women to public health facilities for specific maternal and child health services, however many reproductive health problems are not included in these services. The objective of this study was to assess the impact of involvement of self-help groups (SHGs) in improving reproductive health seeking behaviour and service utilization by tribal women. Methods: An experimental study was conducted in two tribal blocks of Nasik district (Kalvan and Surgana) in Maharashtra, India, over a period of 18 months. Interventions included training of SHG women and providing incentives to them for conducting health education sessions for reproductive age group women in the community and referring those with the requisite problems, to the health facilities. Pre- and post-intervention focus group discussions and in-depth interviews among SHG women were conducted. Training of service providers on diagnosis and treatment of reproductive morbidities was done, and health service utilization was assessed. Results: Sixty five per cent of the referred women with reproductive morbidities availed services at the public health facilities. A review of records of women seeking services for reproductive health problems showed that there was a significant improvement in the intent for seeking services in the study block as compared to the control block (χ[2]-9.06, P<0.002). Interpretation & conclusions: This study demonstrates the feasibility of utilizing the potential of SHGs for improving reproductive health seeking behaviour of the tribal women. The results suggest that this model could be scaled up to address the neglected reproductive health needs of women without burdening the existing human resources.


Subject(s)
Health Behavior , Reproductive Health , Child , Female , Humans , India/epidemiology , India/ethnology , Self-Help Groups
19.
J Educ Health Promot ; 10: 295, 2021.
Article in English | MEDLINE | ID: mdl-34667795

ABSTRACT

BACKGROUND: The mental health of the mothers of the children with cancer is strongly influenced by the child's illness and treatment process. This study aimed to investigate the effect of a self-help educational program with peer group on anxiety of the mothers of the children with cancer. MATERIALS AND METHODS: This clinical trial study was conducted on 44 mothers of the children with cancer in an educational Hospital of Isfahan University of Medical Sciences, Iran. Convenience sampling method was performed on the eligible mothers, and using random allocation, they were divided into two groups of the intervention (n = 22) and the control (n = 22). Both groups completed the Hamilton Anxiety Questionnaire before and after the intervention. The intervention of the study was a self-help educational program with peer group that was performed in collaboration with the mothers of the children with cancer, a psychiatrist, and cancer nurses in the hospital within 3 months. RESULTS: The results showed that 55% of the mothers of the intervention group had severe and very severe anxiety before the intervention, but the intensity of their anxiety was reported to be moderate after the intervention. The analysis of covariance with adjusted anxiety score in the two groups showed that the mean score of anxiety in the intervention group decreased from 22.3 to 12.3 after the intervention, showing a significant difference (P < 0.05). CONCLUSION: The program, designed to support the mothers and guide the specialists and psychiatrists to counsel the mothers, can enhance their self-help and reduce their anxiety level.

20.
J Family Med Prim Care ; 10(5): 1829-1834, 2021 May.
Article in English | MEDLINE | ID: mdl-34195111

ABSTRACT

OBJECTIVES: Women's self-help groups (SHGs) are actively promoted to advance women's empowerment. SHGs are estimated to cover 112 million households in 2017; more than 90% are women. This article answers if membership in women's group is associated with better health and women's empowerment. METHODS: Data on district level health and empowerment indicators were obtained from the fourth round of the National Family Health Survey 2015-16. Data on SHG activity, defined as concentration of SHG at district, was obtained from publicly available data. Twelve indicators were clubbed to measure four domains: maternal health, women's empowerment, child health, and health protection. Binary logistic regressions were computed with education and wealth as control in each model to analyze the change in 12 indicators with the presence of SHG. RESULTS: Districts with higher concentration of SHG members were associated with higher odds of women delivering their babies in an institution (OR: 1.53), taking iron pills, sprinklers, or syrup (OR: 1.11), using family planning methods (OR: 1.03), having knowledge of ovulatory cycle (OR: 1.10), owning house or land (either alone or jointly) (OR: 1.18) and lower odds of women suffering from anemia (OR: 0.92). The odds improve when districts with higher concentration of SHG members were compared with those with lower concentration. CONCLUSION: Membership in women's group is associated with better health measures as well as asset ownership; higher the concentration of SHG, higher is the impact.

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