Your browser doesn't support javascript.
loading
Show: 20 | 50 | 100
Results 1 - 20 de 26
Filter
1.
Front Psychol ; 15: 1420287, 2024.
Article in English | MEDLINE | ID: mdl-39257404

ABSTRACT

Introduction: There remains a dearth of knowledge concerning the phenomenology of suicidal thoughts, with research focusing on reasons for feeling suicidal rather than their mental expression. While clinical interviews remain the standard phenomenological approach, such exploration of lived experiences may prove challenging for this sensitive topic. As a complementary alternative, the use of naturally-occurring online data is opportune for capturing elaborations on tabooed phenomena. Methods: In this phenomenological study, we present a thematic analysis on lived experiences of suicidal thoughts as spontaneously reported by non-identified users of a Reddit online board (r/Depression), collecting 668 posts using the search terms "suicidal ideation," "suicidal thoughts," and "suicide." Codes were grouped into descriptive categories summarizing the properties of thoughts, their effects, and their relation to suicide. Then, an interpretative synthesis yielded global themes connecting salient meanings on the experience of suicidal thoughts. Results: With a long-term and recurring nature, thoughts of suicide appear in the form of vivid imagery and daydreaming's, initially bringing relief to adverse feelings but eventually becoming conditioned and all-consuming. Rather than a wonderment, they are experienced as intrusive thoughts by people struggling to make meaning of their occurrence. When conciliating the presence of unwanted thoughts, users express intricate relations to wishing or not to die, as well as varying perceptions of control over actions or fear of suicidal behavior. Discussion: With an innovative application of big qualitative data into phenomenological analysis, this study contributes to an initial characterization of suicidal thoughts, uncovering findings that are not contemplated into current conceptualizations of suicidality. The analysis is limited by a restricted context of posts and unknown demographics, and further research with clinical interviews is warranted for in-depth exploration of suicidal thoughts.

2.
Psicol. USP ; 35: e220082, 2024. tab, graf
Article in Portuguese | LILACS, Index Psychology - journals | ID: biblio-1564959

ABSTRACT

Resumo: A versão de sentido foi desenvolvida há mais de vinte anos como instrumento de registro e reflexão na prática psicoterápica. Trata-se de um modo breve de registrar a experiência essencial de uma sessão, diferentemente do costumeiro e longo relatório. Desde a sua origem, o uso da versão de sentido tem se espalhado por várias regiões do Brasil, tanto na clínica quanto na academia. Esta revisão integrativa tem como objetivo verificar a evolução do conceito de versão de sentido desde a sua concepção até os dias atuais e em quais contextos é utilizada. Os 29 trabalhos selecionados revelam que a versão de sentido vem sendo usada em diversos contextos, com uma variedade de procedimentos e caracterizações que, no entanto, não eliminam a intenção comum de facilitar o acesso ao sentido vivido pelos participantes do encontro.


Abstract: The "expression of meaning" was developed over twenty years ago as an instrument of register and reflection in psychotherapeutic practice. It is brief way to register the essential experience of a session, unlike the usual and long session notes. Since its origin, the use of expression of meaning has spread to several regions of Brazil, both in clinical work and in the academia. This integrative review aims to verify the evolution of the concept of expression of meaning since its conception to the present day and in what contexts it is used. The 29 selected works reveal that expression of meaning has been used in several contexts, with a variety of procedures and characterizations that, however, do not eliminate their common intent of facilitating access to the participant's lived meaning of an event.


Résumé : La « version du sens ¼ a été développée il y a plus de 20 ans comme instrument d'enregistrement et de réflexion sur la pratique psychothérapeutique. Il s'agit d'une manière brève d'enregistrer l'expérience essentielle d'une session par rapport au long compte rendu habituel. Depuis sa création, l'usage de l'instrument s'est répandue dans plusieurs régions du Brésil à la fois en clinique et en recherche. Cet article est une revue intégrative des œuvres qui utilisent ou discutent de la version du sens depuis sa conception, décrivant comment et pourquoi elle a été utilisée, pour mettre à jour sa conceptualisation et clarifier sa signification. Les 29 travaux sélectionnés révèlent que l'instrument a été utilisée dans plusieurs contextes, avec de procédures et de caractérisations variées qui, cependant, n'éliminent pas l'intention commune de faciliter l'accès au sens vécu par les patients.


Resumen: La versión de sentido se desarrolló hace más de veinte años como instrumento de registro y reflexión en la práctica psicoterápica. Se trata de un modo breve de registrar la experiencia esencial de una sesión, a diferencia del habitual y largo informe. Desde su origen, el uso de la versión de sentido se ha extendido por varias regiones de Brasil tanto en la clínica como en la academia. Esta revisión integradora tiene como objetivo determinar la evolución de la versión de sentido desde su origen hasta el día de hoy y los contextos en los cuales ha sido utilizada. Los 29 trabajos seleccionados revelan que esta herramienta es utilizada en diversos contextos, con una variedad de procedimientos y caracterizaciones que, sin embargo, no eliminan la intención común de facilitar el acceso al sentido vivido por los participantes del encuentro.


Subject(s)
Psychotherapy , Case Reports , Records , Philosophy
4.
Soc Sci Med ; 320: 115714, 2023 03.
Article in English | MEDLINE | ID: mdl-36758495

ABSTRACT

Although the United States has been a nation of immigrants since its founding, the massive number of asylum seekers arriving at the US-Mexico Border is a relatively new phenomenon that requires attention and study. This paper describes the lived experience of three asylum seekers, demonstrating how physical and mental health are structured by US policies and politics. The in-depth accounts are informed by participant observation and policy analysis of humanitarian, non-governmental organizations advocating for asylum seekers. We focus on health and geographical trajectories using the triple trauma paradigm that includes trauma in the country of origin, trauma incurred during transit/flight, and the trauma of arrival and relocation/resettlement in the host country. We suggest that a form of necropower, understood as processes exacerbating the potentiality for death, is embedded in the structure of the US asylum apparatus.


Subject(s)
Emigrants and Immigrants , Refugees , Humans , Refugees/psychology , Mental Health , Policy , Mexico
5.
Matern Child Health J ; 27(1): 117-125, 2023 Jan.
Article in English | MEDLINE | ID: mdl-36352290

ABSTRACT

OBJECTIVES: To explore and compare anxiety relating to the threat of Covid-19 in pregnancy by women who conceived through assisted reproductive technology (ART) and spontaneously. We also examined the psychological coping strategies used and lived experience for both groups. METHODS: A total of 21 women who conceived through ART at a private university based IVF and a matched sample of women who conceived spontaneously were enrolled from July 2020 to February 2021. This was a mixed methods study. Covid-19-specific anxiety was measured using the coronavirus anxiety scale (CAS) as well as a validating qualitative data model with the use of open-ended questions to expand on quantitative findings. RESULTS: In both groups of women the level of anxiety detected by the CAS was low and mixed coping strategies (emotion-focused and problem-solving) were utilized. The ART group expressed more positive feelings towards pregnancy during the Covid-19 pandemic. CONCLUSION: The vulnerable ART group is no more at risk for negative emotional well-being during the Covid-19 pandemic. Additionally, healthcare providers ought to be knowledgeable of various Covid-19 coping strategies that may provide emotionally protective measures for all women of reproductive age. This is of particular importance as effective coping may ultimately prevent disruptions that could compromise prenatal care during the covid-19 pandemic.


Subject(s)
COVID-19 , Pregnancy , Humans , Female , COVID-19/epidemiology , Pandemics , Fertilization , Reproductive Techniques, Assisted/psychology , Prenatal Care
6.
J. Phys. Educ. (Maringá) ; 34: e3451, 2023.
Article in English | LILACS | ID: biblio-1550460

ABSTRACT

ABSTRACT The study aimed to determine the lived experiences of physical education teachers in online teaching during the pandemic. This study is qualitative in nature, utilizing phenomenological research design to identify the experiences of physical educators teaching online. The participants in the study consisted of four physical education teachers from two private schools, who are experienced in teaching PE in an online class environment. A semi-structured interview was conducted with an open-ended questionnaire. Transcribing, coding, and thematic analysis were used to analyze the data. From the analysis, themes emerged based on the experiences encountered by PE teachers in teaching online in terms of positive experiences, problems encountered, and solutions taken in dealing with problems or difficulties in online teaching. The findings of the study showed that PE teachers had expressed their lived experiences in teaching PE online, with benefits and problems encountered, as well as solutions and best teaching practices during the COVID-19 pandemic.


RESUMO O estudo teve como objetivo conhecer as experiências vividas por professores de educação física no ensino online durante a pandemia. Este estudo é de natureza qualitativa, utilizando desenho de pesquisa fenomenológica para identificar as experiências de educadores físicos ensinando online. Os participantes do estudo foram quatro professores de educação física de duas escolas particulares, com experiência no ensino de EF em ambiente de aula online. Foi realizada uma entrevista semiestruturada com questionário aberto. Para análise dos dados foram utilizadas transcrição, codificação e análise temática. Da análise, surgiram temas baseados nas experiências encontradas pelos professores de EF no ensino online em termos de experiências positivas, problemas encontrados e soluções tomadas ao lidar com problemas ou dificuldades no ensino online. As conclusões do estudo mostraram que os professores de EF expressaram as suas experiências vividas no ensino de EF online, com os benefícios e problemas encontrados, bem como as soluções e melhores práticas de ensino durante a pandemia da COVID-19.


Subject(s)
Humans , Physical Education and Training , Education, Distance , Faculty , Life Change Events , Technology , Pliability , Internet , Pandemics , COVID-19
8.
Clin Child Psychol Psychiatry ; 27(3): 598-612, 2022 Jul.
Article in English | MEDLINE | ID: mdl-35156863

ABSTRACT

Receiving a diagnosis of depression can have an important impact on the lives of adolescents. However, there is limited information about how youth tackle, attribute meaning to and understand mental health diagnoses. The aim of this study was to explore adolescents' initial reactions after receiving a clinical diagnosis of Major Depressive Disorder in the context of a neurobiological study of depression in Brazil. Using a qualitative design, eight Brazilian adolescents were interviewed twice: immediately after a psychiatric assessment and neuroimaging study, in which they were given a diagnosis of depression, and in a follow-up visit 2 weeks later. Interviews were designed to explore the subjective experience of receiving the diagnosis and the impacts of depression on adolescents' lives. Framework Analysis was used to analyze the accounts. Diagnosis was perceived as a reification of an abnormal status, highlighting the role of stigma and the process of disclosing the diagnosis to others. Adolescents reported the multiple sensemaking processes that occurred when they received a diagnosis of depression, and most struggled with the idea that negative emotions would equate their experience with a disorder. The results show that future efforts could enhance clinical assessment processes with adolescents by exploring adolescents' reactions to diagnosis, as well as the support networks available to them, resulting in increased help-seeking behaviors, and diminished social and personal stigma.


Subject(s)
Depression , Depressive Disorder, Major , Adolescent , Brazil , Depression/psychology , Depressive Disorder, Major/diagnosis , Humans , Qualitative Research , Social Stigma
9.
J Ment Health ; 31(1): 50-57, 2022 Feb.
Article in English | MEDLINE | ID: mdl-33179559

ABSTRACT

BACKGROUND: The experience of psychosis is individual and influenced by a complex intersection of identity, thought processes, perceptions and culture. Little is known about the lived experience of psychosis in Nicaragua. AIM: To explore the subjective experience of psychosis in Nicaragua from the perspectives of service users. METHODS: Focus groups with 28 service users with experience of psychosis. A qualitative analysis using both inductive and deductive approaches was used to analyse these data. RESULTS: Participants mostly attributed the onset of psychosis to external factors such as physical or psychological trauma and highlighted the impact of long-term conflict in the area. Whilst medication was generally viewed positively where this was available participants foregrounded lay and community support networks and engagement in valued activities in their narratives about the management of psychosis. Religious and magical forces were salient in participants' accounts of causal pathways, wider Nicaraguan culture and management practices. Stigma, social exclusion and limited access to formal health services and psychological interventions in particular were the major barriers reported to recovery from psychosis. CONCLUSION: Our findings point to the potential utility of culturally adapted psychological interventions in Nicaragua as well as the value of lay and community workforces in delivering such interventions.


Subject(s)
Psychological Trauma , Psychotic Disorders , Humans , Nicaragua , Psychotic Disorders/therapy , Qualitative Research , Social Stigma
10.
rev. cuid. (Bucaramanga. 2010) ; 12(2): e1368, mayo 1, 2021. tab, graf
Article in Spanish | LILACS, BDENF - Nursing | ID: biblio-1341825

ABSTRACT

Resumen Introducción El incremento del número de personas adultas, en situación de dependencia, discapacidad y con necesidades de cuidado, ha generado el surgimiento de los cuidadores familiares, quienes asumen esta responsabilidad, sin la formación o conocimientos previos, situación que puede comprometer el desempeño de este nuevo rol y sus resultados en el receptor de cuidado. Materiales y Métodos Se realizó un Scoping Review con la metodología de Arksey y O'Malley, que incluyó la revisión de los estudios disponibles en bases de datos en línea, en idioma inglés y español, a partir de lo cual se extrajo información relacionada con la asunción del rol de cuidador familiar novel de adultos en situación de dependencia. Resultados Se incluyeron un total de 42 artículos y surgieron cinco temas; que incluyen, las tendencias sociodemográficas, la trayectoria y dinámicas a lo largo del tiempo, las transiciones que implica el nuevo rol, la participación en la toma de decisiones y los dominios e impactos en quien ejerce el cuidado. Discusión Se evidenció que ejercer el rol de cuidador familiar novel de personas en situación de dependencia, implica adquirir una serie de competencias, conocimientos, y habilidades, además; de requerir un adecuado soporte social, aspectos que deben ser explorados, reconocidos y abordados por Enfermería. Conclusiones Este estudio proporciona información para comprender las experiencias e implicaciones que tiene convertirse en cuidador novel, de forma que los profesionales de la salud adapten las intervenciones destinadas a apoyar a los cuidadores y mejorar su bienestar.


Abstract Introduction An increase in the number of adults with dependencies, disabilities or care needs has led to the emergence of family caregivers, who regularly assume this responsibility without any previous training or knowledge, which may result in compromising their performance in this new role and their outcomes in care recipients. Materials and Methods A scoping review was conducted following Arksey and O'Malley's scoping framework, which included the review of studies in English and Spanish that are available in online databases to extract the information related to the adoption of the role of novice family caregiver of dependent adults. Results A total of 42 articles was selected from which five major themes were identified, including sociodemographic trends, course and dynamics over time, transitions involved in this new role, participation in decision making, and domains and impacts on caregivers. Discussion Performing the role of a novice family caregiver of dependent adults involves acquiring a series of competencies, knowledge and skills, as well as requiring adequate social support, all of which are aspects that should be explored, recognized and addresses by nursing professionals. Conclusions This study provides information to understand the experiences and implications of becoming a novice caregiver, thus enabling healthcare professionals to adapt interventions aimed to support caregivers and improve their well-being.


Resumo Introdução O aumento do número de adultos, em situação de dependência, incapacidade e com necessidades de cuidados, tem gerado o surgimento de cuidadores familiares, que assumem essa responsabilidade, sem formação ou conhecimento prévio, situação que pode comprometer o desempenho deste novo papel e seus resultados no recebedor de cuidados. Materiais e Métodos Foi realizada uma Scoping Review com a metodologia de Arksey e O'Malley, que incluiu uma revisão dos estudos disponíveis em bases de dados on-line, nos idiomas inglês e espanhol, de onde foram extraídas informações relacionadas à aceitação do papel como novo cuidador familiar de adultos em situação de dependência. Resultados Foram incluídos um total de 42 artigos e surgiram cinco temas; que incluem as tendências sociodemográficas, a trajetória e dinâmica ao longo do tempo, as transições implicadas pelo novo papel, a participação na tomada de decisões e os domínios e impactos em quem exerce cuidado. Discussão Evidenciou-se que o exercício da função de novo cuidador familiar de pessoas em situação de dependência implica em adquirir uma série de competências, conhecimentos e habilidades, além disso; de exigir suporte social adequado, aspectos que devem ser explorados, reconhecidos e abordados pela Enfermagem. Conclusões Este estudo fornece informações para compreender as experiências e implicações de se tornar um cuidador iniciante, de forma que os profissionais de saúde adaptem as intervenções destinadas a apoiar aos cuidadores e melhorar seu bem-estar.


Subject(s)
Caregivers , Disabled Persons , Adult , Life Change Events
11.
J Intellect Disabil Res ; 64(6): 455-462, 2020 06.
Article in English | MEDLINE | ID: mdl-31638300

ABSTRACT

BACKGROUND: Pedagogical hope is a fundamental disposition for raising children. This attitude among fathers of children with Down syndrome (DS) plays an essential role in their children's development. This phenomenological study sought to explore fathers' lived experiences and to reflect on what it means to be a pedagogically hopeful father of a child with DS. METHODS: Max van Manen's hermeneutic-phenomenological method was applied. Phenomenological interviews were held with 10 fathers of children with DS in Spain, Ecuador and Scotland. Anecdotal narratives from the transcribed interviews were analysed based on philosophical, philological and human science methods. RESULTS: The four eidetic themes in the phenomenological text show how a pedagogically hopeful father (1) is realistic; (2) believes in the strengths of his child with DS; (3) trusts in his positive influence; and (4) is open to unexpected surprises. CONCLUSIONS: Lived experiences of pedagogical hope reveal fathers' fundamental roles in stimulating the utmost development of their child's capabilities. Reflecting on this pedagogical attitude will undoubtedly encourage fathers, educators and health care professionals to make the most of this disposition and enhance their relationship with their children with DS.


Subject(s)
Child Rearing/psychology , Disabled Children , Down Syndrome , Father-Child Relations , Fathers/psychology , Adolescent , Adult , Child , Child, Preschool , Ecuador , Female , Hope , Humans , Male , Netherlands , Qualitative Research , Spain
12.
Psicol. USP ; 31: e190079, 2020. tab
Article in Portuguese | LILACS, Index Psychology - journals | ID: biblio-1135797

ABSTRACT

Resumo Esta pesquisa objetivou compreender a experiência de psicólogos que vivenciaram a formação em residência multiprofissional em saúde. Consistiu em pesquisa qualitativa de caráter exploratório inspirada na fenomenologia husserliana. Realizaram-se encontros dialógicos, entre a pesquisadora e seis participantes provenientes de programas de residência de um município de São Paulo, analisados por meio de narrativas compreensivas e uma narrativa síntese. Evidenciaram-se quatro elementos experienciais significativos: (1) transformação pessoal e profissional desencadeada pela dedicação integral característica da aprendizagem em serviço; (2) apropriação do ser psicólogo privilegiando a construção de práticas interdisciplinares e integralidade no cuidado; (3) apropriação da atenção psicológica estrategicamente desenvolvida conforme a rede assistencial à saúde; e (4) tensão entre exigências e estratégias de ensino e serviço, que se revelou prejudicial ao processo de aprendizagem. Concluiu-se que as vivências intersubjetivas propiciaram aprendizagens significativas de cunho pessoal e profissional, sinalizando a importância de estratégias pedagógicas que considerem os processos afetivo-emocionais vividos pelos residentes.


Abstract This study analyzed the experience of psychologists who went through a multiprofessional internship in public health. It is a qualitative and exploratory investigation inspired by Husserl's phenomenology. The researcher held dialogical encounters with six participants who attended different Multiprofessional Internship Programs in a town in the state of São Paulo, which were then analyzed by composition of comprehensive narratives and a synthesis narrative. Four significant experiencial elements were observed: (1) personal and professional growth stemming from learning in full dedication to the internship; (2) a reassessment of the psychologists' role regarding integrated and interdisciplinary healthcare; (3) a reassessment of psychological attention following an integrated health system; (4) tension between academic and health service demands and strategies interfered negatively on the learning process. Conclusion: the intersubjective experiences provided significant personal and professional learning, implying the importance of pedagogical strategies that consider the affective-emotional processes experienced by residents.


Résumé Cette recherche visait à comprendre l'expérience de psychologues ayant fait l'expérience de formation en résidence dans des établissements de santé multidisciplinaires. Il s'agissait de recherches exploratoires qualitatives basées sur la phénoménologie husserlienne. Des réunions de dialogue ont eu lieu entre la chercheuse et six participants de programmes de résidence dans une ville de São Paulo, analysées par des récits détaillés et un récit de synthèse. Quatre éléments expérientiels significatifs sont évidents: (1) la transformation personnelle et professionnelle déclenchée par le dévouement total caractéristique de l'apprentissage en cours; (2) l'appropriation du psychologue privilégiant la construction de pratiques interdisciplinaires et l'intégralité des soins; (3) l'appropriation des soins psychologiques stratégiquement développés en fonction du réseau de santé; (4) la tension entre les exigences d'enseignement et de service et les stratégies préjudiciables au processus d'apprentissage. Conclusion : les expériences intersubjectives ont fourni un apprentissage personnelle et professionnelle significatif, signalant l'importance des stratégies pédagogiques qui tiennent compte des processus affectifs-émotionnels vécus.


Resumen Esta investigación objetivó comprender la experiencia de psicólogos que han experimentado la formación en residencia multiprofesional en la salud. Es una investigación cualitativa, de carácter exploratorio, basándose en la fenomenología husserliana. Hubo reuniones dialógicas entre la investigadora y seis participantes de programas de residencia en un municipio de São Paulo, que fueron analizadas utilizando narrativas comprensivas y una síntesis narrativa. Se presentaron cuatro elementos experienciales significativos: (1) transformación personal y profesional provocada por el servicio de aprendizaje que requiere dedicación completa; (2) apropiación de la forma de ser un psicólogo que se centra en la construcción de prácticas interdisciplinarias e integridad en el cuidado; (3) apropiación de estrategias de atención psicológica desarrolladas según la red de atención a la salud; y (4) tensión entre exigencias y estrategias de enseñanza y servicio, que resultó perjudicial para el proceso de aprendizaje. Se concluye que las experiencias intersubjetivas proporcionaron aprendizajes personal y profesional significativos, lo que apunta a la importancia de estrategias pedagógicas que consideren los procesos afectivo-emocionales experimentados por los residentes.


Subject(s)
Humans , Female , Adult , Patient Care Team , Psychology , Interdisciplinary Placement , Public Health , Qualitative Research
13.
Glob Qual Nurs Res ; 6: 2333393619850775, 2019.
Article in English | MEDLINE | ID: mdl-31192272

ABSTRACT

We conducted this qualitative, phenomenological study to further understanding of how second-generation Mexican American adolescent mothers perceive their young motherhood experience, drawing on the context of their Mexican heritage background. Through in-person interviews with 18 young mothers, we discerned shared essential meanings reconstructed around two major domains: (a) grounded ethnicity, a firm desire to remain true to and share their heritage culture, and (b) authentic mothering, strong relationality to their infants. We found that young mothers embraced their Mexican heritage mothering approaches, such as fostering familismo, valuing family above other obligations. The adolescents in this study sensed their young motherhood as an opportunity to protect and improve qualities of traditional familial cultural heritage, while absorbing elements of American culture to enhance the future for themselves and their infants. We discuss how providers can help reduce stigmatization and promote self-efficacy by respecting and partnering with young mothers to provide culturally congruent services.

14.
J. coloproctol. (Rio J., Impr.) ; 38(4): 295-301, Oct.-Dec. 2018. tab
Article in English | LILACS | ID: biblio-975965

ABSTRACT

ABSTRACT Objectives: To describe the experiences of persons with permanent colostomy regarding their quality of life. Methods: The study design used descriptive phenomenology following the approach of Collaizzi. There were 12 participants who qualified using purposive sampling based on the inclusion criteria.The data generated were in-depth interviews. Analysis and interpretation used verbatim descriptions. Results: The research data revealed seven themes, namely: limitation in daily living activities, limitations in marital relations and social relationship with others, negative feelings about having the colostomy, financial difficulties, increasing demands of living with colostomy, changes in the needs of rest, physical and expectation of complications, and hoping to live a normal life after colostomy. Conclusion: This study revealed that persons with permanent colostomy experience difficulties and limitations pertaining to daily living activities, including marital and social relations. Importantly, they experience psychological concerns, e.g. having negative feelings about ways of living their lives, including financial difficulties and adjusting to new ways of living. However, there is always the hope to live a normal life. This study provides an understanding of the quality of life of persons with permanent colostomy, allowing nurses to provide appropriate nursing care.


RESUMO Objetivos: Descrever as experiências de pessoas com colostomia permanente quanto à qualidade de vida. Métodos: O desenho do estudo utilizou a fenomenologia descritiva seguindo a abordagem de Collaizzi. Havia 12 participantes que se qualificaram usando amostragem intencional com base nos critérios de inclusão. Os dados gerados foram entrevistas detalhadas. A análise e a interpretação usaram descrições literais. Resultados: Os dados da pesquisa revelaram sete temas, a saber: limitação nas atividades da vida diária, limitações nas relações conjugais e relação social com os outros, sentimentos negativos sobre a colostomia, dificuldades financeiras, crescentes demandas de viver com colostomia, mudanças nas necessidades de repouso, físicas e expectativa de complicações, e esperança de viver uma vida normal após a colostomia. Conclusão: Este estudo revelou que pessoas com colostomia permanente apresentam dificuldades e limitações relativas às atividades da vida diária, incluindo relações conjugais e sociais. É importante destacar que têm preocupações psicológicas, p.ex., sentimentos negativos sobre formas de viver suas vidas, incluindo dificuldades financeiras e adaptação a novas formas de viver. No entanto, há sempre a esperança de viver uma vida normal. Este estudo fornece uma compreensão da qualidade de vida de pessoas com colostomia permanente, possibilitando aos enfermeiros fornecer cuidados de enfermagem apropriados.


Subject(s)
Humans , Male , Female , Adult , Middle Aged , Aged , Aged, 80 and over , Quality of Life , Colostomy , Life Change Events , Life Style , Nursing Care , Colorectal Neoplasms/surgery
15.
Chronic Illn ; 13(1): 62-72, 2017 03.
Article in English | MEDLINE | ID: mdl-27358286

ABSTRACT

Hermansky-Pudlak Syndrome is a rare form of albinism, affecting approximately one in 500,000 to one in 1,000,000 non-Hispanic individuals. The syndrome is more commonly found in Hispanics, where one in 18,00 individuals in Northwestern Puerto Rico are impacted. Because of the rarity of this chronic condition, patients often face challenges in their ability to cope with the diagnosis. A phenomenological study was conducted to explore the experience of individuals with this rare genetic disease. A purposive sample of adults between the ages of 20 and 49 diagnosed with Hermansky-Pudlak Syndrome was interviewed (N = 23). The majority (83%) were female. Data analysis resulted in the emergence of themes related to long road to diagnosis, learning to move forward, burden of being the expert, and survival through belonging to the HPS community.


Subject(s)
Hermanski-Pudlak Syndrome/psychology , Quality of Life/psychology , Rare Diseases/psychology , Adult , Female , Hermanski-Pudlak Syndrome/epidemiology , Humans , Male , Middle Aged , Puerto Rico/epidemiology , Young Adult
16.
Horiz. enferm ; 28(2): 79-94, 2017. ilus
Article in Spanish | LILACS, BDENF - Nursing | ID: biblio-1179383

ABSTRACT

OBJETIVO: Develar la experiencia vivida del proceso de embarazo y parto de una mujer con diagnóstico de infertilidad que logra concebir mediante técnicas de reproducción asistida. MÉTODO: Se trata de un estudio de caso con diseño fenomenológico. Se seleccionó una mujer portadora del fenómeno en estudio que accedió a compartir su experiencia mediante una entrevista en profundidad. La pregunta que guió el estudio fue ¿Cómo se muestra la experiencia vivida del proceso de embarazo y parto de una mujer con diagnóstico de infertilidad que logra concebir mediante técnicas de reproducción asistida? El análisis fue realizado de acuerdo a Streubert(1). Los pasos a seguir fueron: obtener la descripción de la participante, separar los supuestos del investigador ("bracketing"), leer la transcripción hecha "verbatim", revelar esencias, comprender las unidades de significado, desarrollar las descripciones, devolver a la participante para su validación, revisar literatura relevante, y compartir los resultados con la comunidad de enfermería. RESULTADOS: Destacan unidades de significado sobre sufrimiento por el tratamiento y las múltiples pérdidas que enfrenta la entrevistada. Se contraponen felicidad y angustia durante el embarazo, y esperanza al lograr el objetivo de vida planteado con su pareja. Surge el fortalecimiento del vínculo con su esposo, y finalmente miedo ante el verse enfrentada a la maternidad. Como conclusión se permite comprender que las mujeres enfrentadas a TRA tienen necesidades de cuidado únicas, por lo que el rol de enfermería es fundamental, sobre todo de acompañamiento. Se debe seguir estudiando este fenómeno en mujeres chilenas, e involucrar la perspectiva del padre.


OBJECTIVE: Reveal the lived experience of pregnancy and delivery of a woman diagnosed with infertility who did conceive through assisted reproduction techniques. METHOD: This is a case study with a qualitative health research design of phenomenology. The participant was a woman who is carrier of the phenomenon understudy and that agreedto share her experience through an in-depth interview. The study base question was ¿How the pregnancy and delivery process lived experience of a woman with infertility diagnosis who did conceive through assisted reproduction techniques is shown?. According to Streubert(1),the phenomenological analysis process steps are: to obtain the participant's description, to separate the assumptions of the researcher ("bracketing"), to read the transcript made "verbatim". Reveal essences, understand the units of meaning, develop the descriptions, return the participant for validation, review relevant literature, and share the results with the nursing community. RESULTS: There are significant units of meaning of suffering due to the treatment and the multiple losses that the interviewee faces. There is also the contrast between happiness and anguish in the course of pregnancy, and hope for having achieved the goal of life raised with her partner. The strengthening of the bond with her husband arises, and finally fears of being confronted with motherhood. As a conclusion, it is possible to understand that women facing ART have unique care needs, so the role of nursing is fundamental, especially accompaniment. This phenomenon should continue to be studied in Chilean women, and involve the perspective of the father.


Subject(s)
Humans , Female , Reproductive Techniques, Assisted , Parturition/psychology , Infertility, Female/psychology , Infertility, Female/drug therapy , Nurses , Pregnancy/psychology , Interviews as Topic , Abortion
17.
Psicol. USP ; 27(3): 531-541, set.-dez. 2016.
Article in English, Portuguese | LILACS | ID: biblio-835140

ABSTRACT

Este artigo descreve como psicoterapeutas e clientes vivenciam uma experiência em psicoterapia de grupo sob a lente humanista-fenomenológica a partir do recorte de uma pesquisa qualitativa de cunho fenomenológico, utilizando como instrumento de pesquisa as Versões de Sentido escritas por dois psicoterapeutas e dez clientes. A análise fenomenológica crítica dos temas emergentes sugere que, quando pessoas estão juntas na busca por crescimento, num ambiente de cuidado mútuo e aceitação, as suas histórias espontaneamente se cruzam, surgindo uma sabedoria própria do grupo, que o mobiliza em uma direção própria e criativa de dar continuidade à vida. A utilização da lente fenomenológica crítica proporcionou a aproximação aos fenômenos em seus múltiplos contornos, nas infindáveis possibilidades que um grupo de pessoas em processo de psicoterapia pode revelar, anunciando que tudo acontece no entrelaçamento psicoterapeutas-clientes-mundo.


Cet article décrit comment psychothérapeutes et ses clients vivent une expérience en psychothérapie humaniste-phénoménologique de groupe, faite dans le cadre d’une recherche phénoménologique qualitative, qui utilise comme instrument Versions de Sens, écrit par deux thérapeutes et dix clients. L’analyse phénoménologique des questions critiques émergentes suggère que, lorsque les gens sont ensemble dans la quête de la croissance, dans un environnement de soin et entente mutuel, leurs histoires s’entrecroisent spontanément, en dévoilant une sagesse propre du groupe qui le mobilise dans une direction créative d’assurer la continuité de la vie. L’utilisation d’une approche critique phénoménologique a guidé un rapprochement aux phénomènes, avec ses plusieurs contours, moyennant les possibilités infinies qu’un groupe de personnes en processus de psychothérapie pourrait révéler, annonçant que tout se passe dans l’entrelacs psychothérapeutes-clients-monde.


En este texto se describe la experiencia de psicoterapeutas y clientes en psicoterapia humanística-fenomenológica de grupo, hecha a partir de un estudio cualitativo fenomenológico, en el cual se empleó como herramientas de investigación versiones de sentido escritas por dos terapeutas y diez clientes.El análisis fenomenológico de los asuntos críticos emergentes sugiere que cuando las personas están juntas en busca de crecimiento, en un ambiente de mutuo cuidado y aceptación, sus historias se cruzan de forma espontánea, surgiendo así sabiduría del propio grupo, que lo moviliza a una dirección propia y creativa de dar continuidad a la vida. El uso de la perspectiva crítica fenomenológica ha proporcionado una aproximación a los fenómenos en sus múltiples contornos, en las infinitas posibilidades que puede revelar un grupo de personas en el proceso de psicoterapia, anunciando que todo sucede en el entrelazamiento psicoterapeuta-clientes-mundo.


This article describes how psychotherapists and clients live the experience of group psychotherapy under the humanistic-phenomenological view executed as part of qualitative study of phenomenological nature, in which Versions of Meaning written by two psychotherapists and ten clients are used as tools. The critical phenomenological analysis of the emerging issues suggests that when people are together seeking growth, in a mutual care and acceptation atmosphere, their life stories meet and a wisdom that is particular of the group arises, guiding it into its own creative way to continue life. The use of critical phenomenological approach provided an approximation to the phenomena with their multiple outlines, in the varied possibilities that a group of people in the process of psychotherapy can reveal, announcing that everything happens in the interlace psychotherapist-clients-world.


Subject(s)
Humans , Female , Adult , Middle Aged , Psychotherapy, Group
18.
Psicol. rev. (Belo Horizonte) ; 22(3): 636-653, dez. 2016.
Article in Portuguese | LILACS | ID: biblio-955818

ABSTRACT

Este trabalho busca tecer uma compreensão inicial, em termos clínicos e teóricos, das relações entre os tipos de sugestões hipnóticas e os níveis de experiência vivida de pessoas com dores crônicas. Partindo de duas breves ilustrações clínicas, propõe relações entre os tipos de sugestões que se utilizam dos signos semióticos ícones, índices e símbolos, relacionando-os aos níveis de experiência vivida da pessoa, seja ela vital ou subjetiva. Destaca que, ao mesmo tempo em que as sugestões sempre podem envolver os três tipos de signos, elas podem enfatizar preferencialmente aqueles que melhor se endereçam a determinado nível de experiência vivida. O artigo se conclui ressaltando que a relação entre sugestões hipnóticas e níveis de experiência deve ser concebida numa perspectiva ampla de subjetividade, incluindo principalmente a dimensão do sujeito e suas diferentes formas de autonomia.


This article interweaves basic clinical and theoretical understandings of the relationships between types of hypnotic suggestions and the levels of living experiences described by people with chronic pain. Based on two brief clinical examples, it proposes relationships between the types of suggestions that use the semiotic signs of icons, indexes, and symbols, and relates them to the levels of vital and subjective experience. It is important to note that, while the suggestions can always involve all three types of signs, they can preferentially emphasize those that best address a specific level of living experience. In its conclusion, the article emphasizes that the relationship between hypnotic suggestions and levels of experience should be approached from a perspective of ample subjectivity, especially including the dimension of the subject and its different manners of autonomy


Este trabajo busca establecer una comprensión inicial, en términos clínicos y teóricos, de las relaciones entre los tipos de sugestiones hipnóticas y los niveles de experiencia vivida de personas con dolores crónicos. Partiendo de dos breves ilustraciones clínicas, propone relaciones entre los tipos de sugestiones que utilizan signos semióticos íconos, índices y símbolos relacionándolos con los niveles de experiencia vivida de la persona, sea ella vital o subjetiva. Destaca que, al mismo tiempo en que las sugestiones siempre pueden involucrar a los tres tipos de signos, ellas pueden enfatizar preferencialmente aquellos que mejor se dirigen a un a determinado nivel de experiencia vivida. El artículo concluye resaltando que la relación entre sugestiones hipnóticas y niveles de experiencia debe ser concebida en una perspectiva amplia de subjetividad, incluyendo principalmente la dimensión del sujeto y sus diferentes formas de autonomía


Subject(s)
Chronic Pain , Hypnosis , Life Change Events
19.
Article in English | MEDLINE | ID: mdl-26341889

ABSTRACT

AIM: To explore the lived experiences of adolescents with sickle cell disease, in Kingston, Jamaica. METHOD: A descriptive qualitative design was used for this research. In-depth interviews were conducted with six adolescents with sickle cell disease at a Sickle Cell Unit operated by the University of the West Indies. Interviews were audiotaped, transcribed, and thematically analyzed. RESULTS: The majority of the adolescents demonstrated a positive self-concept. They reported strong family, school, and peer support which made them feel accepted. All were actively engaged in social activities such as parties, but had challenges participating in sporting activities. Various coping strategies were utilized to address challenges of the disease including praying, watching television, and surfing the Internet. CONCLUSION: Sickle cell disease can be very challenging for the adolescent, but with positive self-concept and increased social support, especially from family and peers, these adolescents were able to effectively cope with their condition and live productive lives.


Subject(s)
Adaptation, Psychological , Adolescent Behavior/psychology , Anemia, Sickle Cell/psychology , Attitude to Health , Self Concept , Social Support , Students/psychology , Adolescent , Family/psychology , Female , Humans , Jamaica , Male , Peer Group , Qualitative Research , Young Adult
20.
Med Anthropol Q ; 29(1): 42-60, 2015 Mar.
Article in English | MEDLINE | ID: mdl-24942649

ABSTRACT

Drawing on data from a longitudinal study of 47 adolescents of diverse ethnic backgrounds hospitalized for psychiatric disorder in New Mexico, the article critically examines the relevance of post-traumatic stress disorder (PTSD) to address anthropological questions of how to define the problem. Factors include the utility/limitation of psychiatric diagnostic categories, the lived experience of severe distress, the socioeconomic and political conditions of suffering, and reciprocal relations between immediate and remote social institutions. I discuss the mental health care system for adolescents and present two case studies of young inpatients, emphasizing the need for dual specification of the conditions of trauma and the structure of experience. I argue for understanding patterns of abandonment that shape the raw existence of young people at both the personal and collective levels to apprehend their depth and durability.


Subject(s)
Child Abuse/psychology , Mental Disorders/psychology , Stress Disorders, Post-Traumatic/psychology , Adolescent , Anthropology, Medical , Child , Female , Humans , Longitudinal Studies , Male , New Mexico
SELECTION OF CITATIONS
SEARCH DETAIL