ABSTRACT
OBJECTIVE: The aim of this study is to identify the main processes and outcomes related to family-centred care (FCC) in neuromotor and functional rehabilitation of preschool children with cerebral palsy (CP). BACKGROUND: FCC is considered a reference for best practices in child rehabilitation. CP is the most common cause of physical disability in childhood with repercussions on functionality. There is a gap in knowledge of the practical principles of FCC, and it is necessary to develop a reference model for the practice of child rehabilitation professionals. METHODS: In this scoping review, the main databases selected were as follows: LILACS; Pubmed; Embase; The Cochrane Library; CINAHL (EBSCO); Scopus; Web of Science; PEDro (Physiotherapy Evidence Database); Open Gray and other banks of thesis. The terms combined in the search strategy were as follows: 'Family-centered', 'Family-centred' and 'CP'. Inclusion criteria are as follows: studies on preschool-aged children with CP, undergoing family-centred functional therapeutic interventions (FCFTI) with outcomes on bodily structures and functions and/or activities and/or participation. RESULTS: The main participatory care methods identified were home intervention, environmental enrichment, collaborative realistic goal setting, planning of home-based activities and routine, child assessment feedback, family education/training, family coaching, encouraging discussion, observation of therapist and supervised practice. The main relational care qualities identified were as follows: respect, active listening, treat parents as equals, clear language, respect parents' ability to collaborate, demonstrate genuine care for the family, appreciate parents' knowledge and skills, demonstrate competence, experience and commitment. The main outcomes identified in children were improvement in motor and cognitive function and the child's functional ability. The main parentaloutcomes identified were empowerment, feeling of competence, self-confidence, motivation and engagement. CONCLUSION: The main differences in FCFTI programs refer to the parental education/guidance component and the amount of intervention carried out by parents. It is possible that the elements chosen by the therapist in a FCFTI depend on characteristics of the child and caregivers.
Subject(s)
Cerebral Palsy , Humans , Cerebral Palsy/rehabilitation , Child, Preschool , Child , Patient-Centered Care , Family Therapy/methods , Professional-Family RelationsABSTRACT
Estudo descritivo realizado com clientes e familiares durante o encontro musical, estratégia de cuidado na quimioterapia para a comunicação dos participantes e a expressão dos sentimentos sobre adoecimento e morte. Objetivou se analisar as concepções de clientes em tratamento quimioterápico e familiares participantes dos encontros musicais sobre a morte e os recursos utilizados para o seu enfrentamento. Foi aplicada pesquisa convergente-assistencial, sendo obtidos dados através de entrevistas individuais e grupos de convergência num total de oito encontros semanais com 27 sujeitos. Pesquisa realizada no Hospital Central do Exército, na cidade do Rio de Janeiro, em 2009. Os resultados apontam que os encontros facilitaram a expressão de crenças e sentimentos acerca do processo vida/morte, contribuindo para o enfrentamento da ansiedade na quimioterapia. O cuidado em oncologia deve abarcar a criação de espaços de compartilhamento que incluam atividades criativas como recurso para o enfrentamento da perspectiva de morte.
Descriptive research developed at the Central Army Hospital, in Rio de Janeiro, RJ, Brazil, 2009, with family and clients undergoing chemotherapy. The music session is a care strategy to encourage communication and expression feelings regarding illness and death. Its primary objective was to analyze participants perceptions of death as well as their resources for coping with it. Data was obtained with Assistential-Convergent Research, through individual interviews and convergence groups with 27 subjects for 8 weekly meetings. Results show meetings facilitated the expression of beliefs and feelings aboutlife / death, and contributed with mechanisms for coping with anxiety about chemotherapy. Oncology care should include the opening up of space for sharing creative activities for coping with death.
Estudio llevado a cabo con clientes y familiares durante el encuentro musical, estrategia de cuidado en la quimioterapia, para la comunicación de los participantes y la expresión de los sentimientos sobre adolecer y muerte. Se objetivó analizar las percepciones de clientes en tratamiento de quimioterapia y de familiares participantes acerca de lamuerte y los recursos utilizados para su confrontación. Metodología: Investigación Convergente Asistencial, datos obtenidos a través de entrevistas individuales y grupos de convergencia en un total de 8 reuniones semanales con 27 sujetos. La investigación se realizó en el Hospital Central del Ejército, en la ciudad de Río de Janeiro-Brasil, en 2009. Los resultados indican que las reuniones facilitaron la expresión de las creencias y sentimientos sobre el proceso vida / muerte, lo que contribuye para enfrentar la ansiedad en la quimioterapia. La atención en oncología debe incluir la creación de espacios que incluyen compartir actividades creativas como un recurso para la confrontación de perspectiva de la muerte.