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1.
Soc Sci Med ; 355: 117099, 2024 Jul 06.
Article in English | MEDLINE | ID: mdl-39018998

ABSTRACT

According to popular understandings, children grow from a state of dependence to eventually become independent adults. Interdependence helps to disrupt the in/dependence binary and is a useful concept for making sense of the experiences young people with variations in sex characteristics in relation to healthcare. This study used semi-structured interviews with 32 health professionals, 33 caregivers and 12 young people recruited in the UK and Sweden. The analysis is guided by the questions: (1) how do young people, carers and health professionals position themselves in the adult/young person relationship in the context of healthcare? (2) how is the (in/ter)dependence of young people imagined when young people, carers and health professionals talk about healthcare? Our analysis shows how carers and health professionals might support dominant understandings about young people growing towards independence while providing little opportunity for young people's agency and voice. Interviews with young people gave clear examples of their negotiating relational ways of being, seeking agency in the context of healthcare and not simply becoming independent of adults. This analysis also draws attention to the ways young people might be silenced within healthcare contexts. The present paper is based on secondary analysis of data from the SENS. It works with concepts of relationality and interdependence to draw out the possibilities of voice and agency for young people with variations in sex characteristics in healthcare contexts.

2.
Front Psychol ; 15: 1352374, 2024.
Article in English | MEDLINE | ID: mdl-38800685

ABSTRACT

Research shows that the human-nature relationship positively impacts human well-being. Forest School (FS) practice offers young children a structured program of nature connection through activities, aiming to enhance their self-esteem and social skills. FS is now adapted in countries such as Australia, Canada and New Zealand where a unique cultural interface occurs between European settlers and Indigenous peoples. Responding to socio-cultural diversities, geographical contexts, and the traditional ecological knowledges, FS needs to go beyond play pedagogy and incorporate theoretical perspectives that promote human-nature relationship in local context-specific environments. We argue that the synergies between Western perspectives on affordances perceived in person-environment relationship and Indigenous place-based relationality perspective provide a more suitable approach for developing reciprocal relationships between FS participants and land/place/nature. We propose that the synergies between affordances perceived in FS and place-based relationality cultivated in participants will enhance social and emotional well-being. We call for specific research investigating such synergies supporting participant well-being. Future research on FS practice should be directed toward initiating and exploring co-designed studies by Indigenous and non-Indigenous researchers incorporating methodologies that study participant experience as well as evaluating the impact of FS programs embedding affordances and place-based relationality perspectives.

3.
Soc Sci Med ; 350: 116944, 2024 Jun.
Article in English | MEDLINE | ID: mdl-38728979

ABSTRACT

We adopt Rapley's (2008) concept of distributed decision making to explore the role of the body in people's decisions to seek medical care. We conducted in-depth interviews with patients diagnosed with atrial fibrillation (AF) who were taking long-term anticoagulants to prevent stroke. We interviewed seventeen patients recruited from English anticoagulant clinics using the biographic-narrative-interpretive method, and conducted thematic, structural and metaphorical analyses. This pluralistic analysis focused on how distributed decision-making was enacted through a range of socio-material, relational and embodied practices. Participants told how they experienced AF-related sensations that fluctuated in intensity and form. Some had no symptoms at all; others experienced sudden incapacitation - these experiences shaped different journeys towards seeking medical help. We draw on work by Mol (2002) to show how the body was differently observed, experienced and done across contexts as the narratives unfolded. We show that as part of a relational assemblage, involving social, material and technological actors over time, a new body-in-need-of-help was enacted and medical help sought. This body-in-need-of-help was collectively discussed, interpreted and experienced through distribution of body parts, fluids and technological representations to shape decisions. RAPLEY T., 2008. Distributed decision making: the anatomy of decisions-in-action. Sociology of Health & Illness, 30, 429-444. MOL A., 2002. The body multiple: ontology in medical practice. Duke University Press: Durham.


Subject(s)
Atrial Fibrillation , Decision Making , Qualitative Research , Humans , Atrial Fibrillation/psychology , Male , Female , Aged , Middle Aged , Patient Acceptance of Health Care/psychology , Aged, 80 and over , Anticoagulants/therapeutic use , Stroke/psychology , Interviews as Topic
4.
Explore (NY) ; 20(6): 103007, 2024 May 18.
Article in English | MEDLINE | ID: mdl-38806378

ABSTRACT

Whanau (Maori understandings of family) are comprised of unique and vital relationships that support and scaffold rangatahi (youth) wellbeing, yet are often reduced to nuclear family structures within individualised notions of wellbeing. While rangatahi contend with racialised discourses in a colonial socio-cultural context, their whanau can be an important site for mitigating these challenges, supporting rangatahi agency and wellbeing. This article explores how whanau practices inform rangatahi wellbeing, drawing upon photo-projects and interviews with 51 rangatahi and their whanau. Interviews were thematically analysed, informing four themes that drew on Maori (the Indigenous people of Aotearoa) concepts and whakatauki: te haerenga whakamua, kotahitanga, he toa takitini and tatai hono. These themes speak to the significance of vitalising relationships between rangatahi, their whanau and beyond. We outline a strengths-based activity with rangatahi and their whanau, identifying and drawing from the delightful array of whanau relationships, qualities and characteristics that may be likened to a 'whanau chocolate box' for rangatahi to derive influence, systems of support and inspiration for future identities and inspiration.

5.
J Med Humanit ; 2024 Mar 04.
Article in English | MEDLINE | ID: mdl-38433163

ABSTRACT

Informed by medical science and biotechnology, Karoline Georges's novel Under the Stone offers a reflection on suffering bodies and imagines responses to an overwhelming sense of fear and passivity that embodied trauma and the world's many crises can create. In line with the editors' reclaiming of the milieu for the medical humanities, I draw on Deleuze and Guattari's geophilosophy and Sara Ahmed's notions of stranger and encounter for reading the novel's spatialization of oppressive power dynamics and its imagination of subversive emergence. I also complicate the literary text's discourse on space and body by relying on wonder studies to examine further its alternative forms of careful attunement enacted through the protagonist's affective and disembodied awakening, the latter fueled by his escape from "the incessant movement of automatic components that delineat[e] [his] presence in the world" (Georges 2016, 61). Happening from and because of the Tower's milieu, this escape becomes a mitigating force to physical, affective, and social struggles. I thus contend that Georges's text provides thought-provoking material about the functions and effects of art for addressing the dangers and promises of bioethics, body sovereignty, and life protection.

6.
BMC Geriatr ; 24(1): 255, 2024 Mar 14.
Article in English | MEDLINE | ID: mdl-38486169

ABSTRACT

BACKGROUND: This article examines the concept of autonomy in the context of person-centred dementia research and care, which is frequently being used but not clearly defined. Also, there is no clear conceptual relation between autonomy and personhood in this context. METHODS: Therefore, literature on person-centred dementia research and care was examined to answer the following question: How is the concept of autonomy discussed in person-centred dementia research and care literature? RESULTS: This analysis revealed heterogeneous perspectives on autonomy within the context of dementia. These were assigned to two different perspectives on personhood: one that links personhood to the existing cognitive abilities and the other one, that understands personhood relationally as the result of a socially constructed process. These results are discussed with regard to a nursing and care practice that could be considered as being deficit-oriented, but also with regard to the concept of social health in dementia. CONCLUSIONS: Derived from this analysis, there is a clear need for general conceptual sensitivity in this field. Also, an in-depth examination of the social constructionist approach to personhood in the context of dementia is warranted.


Subject(s)
Dementia , Personhood , Humans , Cognition , Dementia/therapy
7.
Heliyon ; 10(4): e25769, 2024 Feb 29.
Article in English | MEDLINE | ID: mdl-38370244

ABSTRACT

Over the last three decades, research in history education has led to the development of more relevant, student-centred approaches to history curricula. Some researchers have argued that the mastery of historical literacy fosters individual students' personal attitudes or dispositions toward history, ranging from historical understanding to historical consciousness and empathy. This paper sets out to compare, to what extent and how, history curricula developed in Australia and Singapore have helped to encourage historical consciousness, and empathy in lower secondary school students and strengthen students' sense of relationality with those individuals and groups in society who are different from themselves. The comparative education approach adopted in this paper begins by briefly describing the social, political, and cultural context of each country before presenting a comparative analysis of the history curriculum documents of both countries. This analysis is discussed alongside personal responses from history academics, lower secondary classroom teachers, and senior teachers in charge of history. The findings indicate the two countries' curriculum documents do seek to foster historical consciousness, while the comments of teacher participants demonstrated how their understanding of the curriculum documents had led to examples of empathy and relationality in their classroom teaching.

8.
Med Anthropol ; 43(1): 31-45, 2024 01 02.
Article in English | MEDLINE | ID: mdl-37988129

ABSTRACT

HIV prevention programs focus on global "key populations" and more localized "priority populations" to ensure effective targeting of interventions. These HIV population categories have been subject to considerable scholarly scrutiny, particularly key populations, with less attention given to critically unpacking priority populations at local levels, for example "serodiscordant couples" (one partner has HIV, but not the other). We examine this population in the context of Papua New Guinea to consider how local configurations, relational pathways, and lived realities of serodiscordant relationships strain the boundaries of this population category and raise intriguing questions about its intersection with contemporary biomedical agendas.


Subject(s)
HIV Infections , Sexual Partners , Humans , HIV Infections/prevention & control , Papua New Guinea , Anthropology, Medical
9.
Fam Process ; 63(1): 1-16, 2024 Mar.
Article in English | MEDLINE | ID: mdl-38129316

ABSTRACT

Couple therapists have the unique and challenging opportunity of helping people find deeper connection in their intimate relationships. These clinicians apply therapeutic models and interventions designed to help couples. However, many of these models are derived from theoretical, scientific, and sociocultural traditions that conceptualize human phenomena as individualistic and reductionistic, and the language in these theories may not match clients' experiences, which include deeply relational phenomena such as love and loss. We review how Western scientific and sociocultural traditions have shaped conceptualization of problems and clinical intervention in couple therapy. In contrast, we provide an alternative, strongly relational framework for couple therapy that draws upon philosophical perspectives asserting that relational, rather than individual, experience is fundamental in human interaction. These ideas provide relational language which can influence how couple therapy is viewed and enacted. Specifically, we discuss how a strongly relational approach changes how therapists understand and intervene with conflict, abuse, love, and deception. This relational framework can help couples in their own goals to become more unified. Implications for the therapeutic relationship, interventions, and scholarship are provided.


Subject(s)
Couples Therapy , Interpersonal Relations , Humans , Love , Sexual Behavior , Sexual Partners
10.
Front Psychol ; 14: 994508, 2023.
Article in English | MEDLINE | ID: mdl-37928574

ABSTRACT

In this article, we consider prosociality through the lens of an Indigenous "ethics of belonging" and its two constitutive concepts: kin relationality and ecological belonging. Kin relationality predicates that all living beings and phenomena share a familial identity of interdependence, mutuality, and organization. Within the value system of ecological belonging, an individual's identity is constituted in relation to the natural environment, centered on the sentiments of responsibility and reverence for Nature. We detail how Indigenous perspectives upon prosociality differ from Western scientific accounts in terms of the motives, scope, and rewards of altruistic action. Grounded in this understanding, we then profile three self-transcendent states, compassion, gratitude, and awe, and their similarities across Indigenous and Western approaches, and how kin relationality and ecological belonging give rise to cultural variations. We consider convergent insights across Indigenous and Western science concerning the role of ritual and narrative and the cultural cultivation of kin relationality and ecological belonging. We conclude by highlighting how these two core concepts might guide future inquiry in cultural psychology.

11.
Psychol Sport Exerc ; 64: 102342, 2023 01.
Article in English | MEDLINE | ID: mdl-37665823

ABSTRACT

Intervention research entails the measurement of change in a situation or individual after a modification has been imposed. In sport and exercise psychology, interventions have been implemented in a variety of situations (e.g., performance, doping, physical activity, mental health) for a variety of individuals (e.g., athletes, coaches, sedentary people). Despite their widespread use, accruing evidence indicates that interventions in sport and exercise psychology have had less than anticipated success in instigating change. While some scholars have pointed to the need to confront the methodological challenges of intervention implementation, others have called for the creation of viable alternative forms of inquiry that can complement intervention research. The purpose of the present article is to propose an ontological shift from intervention to intravention in sport and exercise psychology. This shift is undertaken through the deployment of Barad's (2007) agential realist ontology. The paper is divided into six sections. First, the concept of interaction is situated as it forms the basis for how interventions are conducted. Second, the Baradian ontology of agential realism is explained, along with key concepts. Third, intravention is positioned in relation to five guiding principles that delineate the progression for conducting intravention inquiries. Fourth, alternate meanings are proposed for behaviour, change, and knowledge. Fifth, examples are provided as to how intravention inquiries can be deployed in sport and exercise psychology. Sixth, concluding thoughts are offered. As an ontological becoming of interventions, intraventions are situated as open-ended approaches to inquiry that can help researchers derive alternate understandings of existence and can take the psychology of sport and exercise in exciting and affirmative directions.


Subject(s)
Doping in Sports , Sports , Humans , Exercise , Athletes , Mental Health
12.
J Bioeth Inq ; 20(4): 657-666, 2023 Dec.
Article in English | MEDLINE | ID: mdl-37624548

ABSTRACT

COVID-19 catalyzed a renewed focus on the interconnected nature of human health. Together with the climate crisis, it highlighted not only intra-human connections but the entanglement of human health with the health of non-human animals, plants, and ecological systems more broadly. In this article, we challenge the persistent notion that humans are ontologically distinct from the rest of nature and the ethics that flow from this understanding. Imposing this privileged view of humans has devastating consequences for beings other than humans and for humans and impedes effective responses to crises. We situate the COVID-19 pandemic within the "polycrisis," and argue that one component of addressing multidimensional crises must involve fully embracing a relational ontology and ethics. We discuss two approaches to relationality, one articulated by ecofeminists and the second inhering in an Indigenous Maori worldview. Two dominant approaches, One Health and Planetary Health, purport to take account of relational ontologies in their approaches to health, but, we argue, persist in casting the more-than-human world in an instrumental role to secure human health. We suggest that Multispecies Justice, which draws on ecofeminist and Indigenous approaches, affords a fully relational approach to health and well-being. We explore the implications of relationality, and suggest fresh ways of understanding humans' connections with the more-than-human world.


Subject(s)
COVID-19 , Animals , Humans , COVID-19/epidemiology , Pandemics , Maori People , Ecosystem , Social Justice
13.
Am J Community Psychol ; 72(1-2): 230-246, 2023 09.
Article in English | MEDLINE | ID: mdl-37469166

ABSTRACT

This paper provides a review of empirical studies published with a decolonial epistemic approach in psychology. Our goal was to better understand how decolonial approaches are being practiced empirically in psychology, with an emphasis on community-social psychology. We first discuss the context of colonization and coloniality in the research process as orienting information. We identified 17 peer-reviewed empirical articles with a decolonial approach to psychology scholarship and discerned four waves that characterize the articles: relationally-based research to transgress fixed hierarchies and unsettle power, research from the heart, sociohistorical intersectional consciousness, and desire-based future-oriented research to rehumanize and seek utopia. Community-social psychology research with a decolonial approach has the potential to remember grassroots efforts, decolonizing our world.


Subject(s)
Colonialism , Utopias , Humans , Psychology, Social , Empirical Research , Fellowships and Scholarships
14.
Int J Equity Health ; 22(1): 122, 2023 06 28.
Article in English | MEDLINE | ID: mdl-37380998

ABSTRACT

BACKGROUND: In 2015, a Brisbane tertiary hospital's cardiac unit implemented a new model of multidisciplinary care (Better Cardiac Care (BCC)) for Aboriginal and Torres Strait Islander patients. Since then, clinical indicators for Aboriginal and Torres Strait Islander cardiac patients have improved, but the recipients' voices have not been heard. This research aimed to determine the acceptability and appropriateness, features of value, and opportunities for improvements in this model of care, from the perspective of patients and their family members. METHODS: This descriptive qualitative study employed a narrative methodology. BCC Health Workers contacted prospective participants; with consent, interested individuals were then contacted by the Aboriginal Research Officer (RO) who arranged yarning sessions and consent. Family members were also invited to share their stories of their loved ones' hospitalisation. Two researchers conducted the interviews, using a yarning approach. Inductive narrative analysis, informed by Aboriginal and Torres Strait Islander ways of Being, Knowing, and Doing, focused on enabling participants' stories to be heard and understood from their perspectives. RESULTS: Relationality was at the heart of the BCC model of care, particularly between patients and Aboriginal and Torres Strait Islander staff. The relationality included a responsibility for holistic care, extending beyond hospital discharge, although support and handover for family members required improvement. The Aboriginal and Torres Strait Islander staff understood the contextual and structural challenges faced by participants, including the disempowerment and racism experienced in healthcare. This understanding was shared with the BCC team who, in turn, protected, advocated for, and holistically supported participants through their cardiac health journeys. CONCLUSIONS: Empowering (and employing) Aboriginal and Torres Strait Islander staff, and relating to patients as people, enabled BCC to meet Aboriginal and Torres Strait Islander patient's needs and improve outcomes. The wider health system and health academia could benefit from exploring and valuing Aboriginal and Torres Strait Islander discourses of relationality.


Subject(s)
Family , Health Facilities , Humans , Prospective Studies , Health Personnel , Patient Outcome Assessment
15.
Article in English | MEDLINE | ID: mdl-36900876

ABSTRACT

Previous work has focused on the role of social capital on resilience. However, this research tends to search for civic and other organizations, often formal institutionalized groups which, when they are not found, leads to questions about how social networks are possibly governed. Without formal organizational structures to govern these networks, how is pro-environmental/pro-social behavior sustained. In this article, we focus on a diffused mechanism for collective action, which is referred to as relationality. Relationality is a theory that underscores how social connectedness, through mechanisms of empathy, foster collective action in noncentralized modes of network governance. The concept of relationality addresses important issues not considered by the literature on social capital --so being, we will refer to relational elements as relational capital. Relational capital constitutes a type of asset that communities can activate vis-a-vis environmental and other perturbation. As we describe, the evidence for relationality as an important mechanism for sustainability and resilience is accumulating.


Subject(s)
Social Behavior , Social Capital , Social Environment
16.
Phenomenol Cogn Sci ; 22(1): 217-245, 2023.
Article in English | MEDLINE | ID: mdl-36644374

ABSTRACT

Micro-phenomenology is an interview and analysis method for investigating subjective experience. As a research tool, it provides detailed descriptions of brief moments of any type of subjective experience and offers techniques for systematically comparing them. In this article, we use an auto-ethnographic approach to present and explore the method. The reader is invited to observe a dialogue between two authors that illustrates and comments on the planning, conducting and analysis of a pilot series of five micro-phenomenological interviews. All these interviews asked experienced researchers of micro-phenomenology to browse their memories to identify one successful and one challenging instance of working with micro-phenomenology. The interview then focused on this reflective task to investigate whether applying the method to itself might reveal quality criteria. The article starts by presenting a shortened and edited version of the first of these interviews. Keeping the dialogue format, we then outline the micro-phenomenological analysis procedure by demonstrating its application to part of this data and corresponding passages of other interviews. We focus on one unexpected finding: interviewed researchers judge the quality of an interview in part based on a connection or contact between interviewer and interviewee. We discuss these results in the context of the means and intentions of the method and suggest avenues for future research.

17.
Innov High Educ ; 48(2): 219-238, 2023.
Article in English | MEDLINE | ID: mdl-35702506

ABSTRACT

This article reports findings from a study of laboratory-styled humanities undergraduate research (UR) programming designed to increase access to this high-impact practice, better reaching historically excluded students and less visible institutions. The Humanities Collaboratory (HLAB) is a ten-week summer research program that emerged from the partnership of a research university and the area community college system. Aimed at actively addressing educational inequity, and the more specific lack of access humanities students have to impactful UR opportunities, HLAB offers an intensive humanities research experience to first-generation students, low-income students, and Students of Color currently enrolled in two-year colleges, HBCUs, MSIs, and HSIs. Since the program's creation in 2018, qualitative data collected from 50 participating students over three years of self-evaluations illustrates why HLAB presents a significant learning opportunity for students and highlights the critical importance of relationship-building in UR. Analyzing students' responses through the heuristic of communities of practice provides insight into a community-focused UR pedagogy that emphasizes relationality among students, mentors, and institutions. Students detail the importance of collaborative skill-building, opportunities for peer support, networking connections, and possibilities for more holistic personal growth in UR experiences. Our findings describing the benefits of relational UR signal the need for cooperative programming designs that increase access to undergraduate research for humanities students across institutions of higher education.

18.
J Homosex ; 70(1): 71-87, 2023 Jan 02.
Article in English | MEDLINE | ID: mdl-35984394

ABSTRACT

Based on narratives shared by queer Iranian Americans, this essay explores the cultural construct of aberoo (saving face for family and community) as a form of queer familial relationality. This work extends theorizations of queer worldmaking and relationality into familial contexts, which are crucial elements of identity for many queer people of color around the globe. Focusing on Iranian Americans in particular, this study demonstrates the futility of "the closet" metaphor and how its inadequacies and oversimplifications fail to honor non-Western contexts and experiences. By contrast, understanding aberoo as a queer relationality in itself allows unique insight into queer identity formations beyond white normativities.


Subject(s)
Sexual and Gender Minorities , Humans , Iran , Gender Identity , Family Relations , Narration
19.
J Homosex ; 70(1): 53-70, 2023 Jan 02.
Article in English | MEDLINE | ID: mdl-36154841

ABSTRACT

In this article, I explore what I term Sasso relationality-a framework for making sense of the untenable space where heteropatriarchal intimate commitments randomly fail to reproduce its normative mandates on the body. By exploring Sasso worldmaking in the postcolonial context of Ghana, I use autoethnographic narratives to closely examine the modes of relating that allows for spontaneous desires and pleasures to occur in particular spaces conditioned by heteronormativity. In doing so, I argue that Sasso relationality blurs the rigid boundaries that tend to separate normativity and nonnormativity in how we theorize queer relationalities. Thus, I conclude that explorations of Sasso relationality allow queer scholars to challenge Western normativities around sexuality by contesting what constitutes queerness in the Ghanaian cultural context.


Subject(s)
Sexual Behavior , Sexual and Gender Minorities , Humans , Ghana , Gender Identity , Sexuality
20.
Med Law Rev ; 31(1): 83-108, 2023 Feb 27.
Article in English | MEDLINE | ID: mdl-36018272

ABSTRACT

Action needs to be taken to map out the fairest way to meet the needs of all NHS stakeholders in the post-pandemic 'new normal'. In this article, we review the NHS Constitution, looking at it from a relational perspective and suggesting that it offers a useful starting point for such a project, but that new ways of thinking are required to accommodate the significant changes the pandemic has made to the fabric of the NHS. These new ways of thinking should encompass concepts of solidarity, care, and (reciprocal) responsibility, grounded in an acceptance of the importance of relationships in society. To this end, we explore and emphasise the importance of our interconnections as NHS stakeholders and 're-view' the NHS Constitution from a relational perspective, concentrating on the rights and responsibilities it describes for patients and the public as NHS stakeholders. We argue that the NHS Constitution, of which most stakeholders are probably unaware, can be used as a tool to engage us, and to catalyse conversation about how our responsibilities as NHS stakeholders should change in the post-pandemic 'new normal'.


Subject(s)
Pandemics , State Medicine , Humans , Communication
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