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Pediatr Emerg Care ; 35(8): 579-584, 2019 Aug.
Article in English | MEDLINE | ID: mdl-29912083

ABSTRACT

Epidermolysis bullosa (EB) refers to a heterogeneous group of genetic disorders characterized by epithelial fragility. We provide guidelines for management of pediatric patients with EB in the emergency department based on a review of literature, as well as insights from our own experiences caring for patients with EB. The purpose of the guidelines proposed is prevention of avoidable iatrogenic trauma to the skin and mucosa of patients with EB who are presenting to the emergency department for a variety of reasons.


Subject(s)
Epidermolysis Bullosa/epidemiology , Iatrogenic Disease/prevention & control , Mucous Membrane/injuries , Skin/injuries , Bandages/ethics , Bandages/standards , Emergency Service, Hospital , Epidermolysis Bullosa/physiopathology , Epidermolysis Bullosa/therapy , Humans , Mucous Membrane/pathology , Patient Care Management/ethics , Patient Care Management/methods , Practice Guidelines as Topic , Skin/pathology , Wounds and Injuries/therapy
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