Death and Dying in the Emergency Department.

The Research to Practice column is intended to improve the research critique skills of the advanced practice registered nurse (APRN) and to assist with the translation of research into practice. For each column, a topic and a particular research study are selected. The stage is set with a case presentation. The research article is then reviewed and critiqued, and the findings are discussed in relation to the case presented. Our current column discusses factors associated with the quality of the death and dying experience in the emergency department (ED) from the perspective of health care providers with implications for APRN practice and strategies using the following study: . "Exploring the quality of the dying and death experience in the emergency department: An integrative literature review," International Journal of Nursing Studies, 85, 106-117. Our case involves a man with metastatic colon cancer where his oncology nurse practitioner recommends no further treatment and tells him he has approximately 6 months to live.

Predictive Biomarkers: Understanding Their Use in Treatment Decision Making.

Predictive biomarkers are revolutionizing decisions about colon cancer treatment. Knowing which biomarkers are altered provides valuable information about which treatment may be more effective. DNA mismatch repair and microsatellite instability testing may also identify families that could benefit from further genetic evaluation to determine if there is hereditary risk for colon cancer. Nurses need to be able to explain what these biomarkers mean and how they affect treatment decisions, as well as recommend genetic counseling and testing for hereditary risk when appropriate.

Hereditary Colorectal Cancer Syndromes.

OBJECTIVES: To review the most common hereditary colorectal cancer syndromes with known associated mutated genes, associated cancer risks, and current screening and prevention current. DATA SOURCES: Online search of PubMed, EBSCOhost, and Medline, review of the literature for each syndrome described. CONCLUSION: Hereditary colon cancer accounts for approximately 10% of all colorectal cancers in the United States. There are multiple hereditary colorectal cancer syndromes known with respective associated genetic mutations, cancer risks, and screening and prevention recommendations. IMPLICATIONS FOR NURSING PRACTICE: Nurses at all levels of practice need to be knowledgeable about the various hereditary colorectal cancer syndromes to guide appropriate referral to a genetics professional and to provide appropriate care to these high-risk individuals.

Aproximación a la vivencia de las personas en el proceso de una colostomía / Approaching the experience of people through the process of a colostomy

Objetivo: Este trabajo tiene como objeto explorar las vivencias de las personas que transitan por el proceso de una colostomía. Método: Abordaje metodológico descriptivo de tipo cualitativo y con un encuadre fenomenológico, a través de entrevistas en profundidad. Seis mujeres y 12 hombres, entre 38 y 86 años de edad, fueron entrevistados antes y después de la cirugía, entre los 3 y los 6 meses posteriores a la intervención. Los discursos fueron grabados y transcritos verbatim y analizados siguiendo las 3 etapas de Taylor y Bogdan: de descubrimiento en progreso, de codificación de los datos y refinamiento de la comprensión del tema de estudio, y de relativización de los descubrimientos. Resultados: El cáncer de colon y la colostomía suponen cambios en la vivencia de la esfera privada, en la que se introduce este componente vital con connotaciones de «estigma». Se observa que la percepción del deterioro de la imagen corporal no está relacionada con el sexo sino más bien con la edad, con la situación laboral, con el tipo de trabajo que realiza el individuo y con el contexto social y cultural al que se pertenece. Conclusiones: La reconstrucción del mapa de relaciones del individuo, como estrategia de adaptación al proceso, se interrelaciona con factores sociales, culturales, de manejo del estoma y con la capacidad del individuo para la resolución efectiva de problemas (AU)

Objective: The purpose of this paper is to explore the experience of people who go through the process of a colostomy. Method: Methodological approach of qualitative type and with a phenomenological framework, through in-depth interviews. Six women and 12 men, between 38 and 86 years of age, were interviewed before and after surgery, between 3 and 6 months after the intervention. The discourses were recorded and transcribed verbatim and analyzed following the 3 stages of Taylor and Bogdan: finding in progress, data coding and refinement of the understanding of the subject of study, and relativisation of the findings. Results: Colon cancer and colostomy involve changes in a person's experience of privacy, and the connotations of "stigma" that can be attached to this vital element. It has been observed that the perception of deteriorated body image does not relate to an individual's gender, but rather to their age, work situation, type of work and social and cultural context. Conclusions: The reconstruction of an individual's relationship map, as a strategy for adapting to the process, is interrelated with social, cultural, and stoma management factors, and with their capacity for effective problem solving (AU)

'I could not have survived without Kelly and her team'.

With her team of unsung heroes at Sandwell General Hospital in the West Midlands, Kelly carries out sterling work in the aftercare of patients with bowel cancer, rectal cancer and other debilitating aspects of incontinence.

The Robin.

A meditation on fragility, loss, and resilience in patients, family, the natural world.

Improving care for people with learning disabilities.

People with learning disabilities have poorer health than the general population and experience health inequalities - partly as a result of problems with accessing health services. Health services have a duty to address health inequalities, by making reasonable adjustments to their services so they are more accessible to people with learning disabilities, but this does not always happen. Failure to make reasonable adjustments can have significant adverse effects for people with learning disabilities and their families. Nurses are well placed to implement reasonable adjustments, many of which are simple to do and can save lives.

["And suddenly I have a tumor" - the situation of family S./N]. / «Und plötzlich habe ich einen Tumor¼ - Die Situation von Frau S. und ihrer Familie.

BACKGROUND: Many families affected by a terminal illness need professional help and support. In order to be able to cope with emotional stress, loss of light-heartedness and changes in family structure thorough information is important for patients and their families. The Calgary Family-Assessment and Calgary Family Intervention-Model are suitable to determine the needs of concerned families and hence to offer appropriate interventions. PURPOSE: In an instrumental case study the situation of Mrs. S.2 and her family was analyzed. Mrs. S. is suffering from an inoperable adenocarcinoma. METHOD: An assessment classified the different information given during the first meeting and determined the focus of the interventions. RESULTS: Interventions concentrated on cognitive and emotional support. CONCLUSIONS: The case study showed how family models for nurses could systematically guide professionals in supporting families. Listening and spending time with the concerned person and their families showed to offer important factors, which were perceived as very helpful by the families.

Evaluation of a breast and colon cancer survivorship program.

This article describes a cancer survivorship program that addressed quality of life (QOL) changes related to chemotherapy. The program focused on adult breast and colon cancer survivors at a community oncology practice in the southeastern United States, and consisted of an educational visit designed to identify and address QOL changes that occurred as a result of chemotherapy. The QOL of Cancer Survivors (QOL-CS) survey administered before and after the visit analyzed QOL metrics, which were combined with program evaluation data to assess physical, psychosocial, social, and spiritual well-being changes that may have occurred as a result of program participation. Differences in QOL-CS scores did not represent statistically significant changes in QOL for program participants. However, program evaluation responses identified perceived changes in QOL as a result of participating in cancer treatment and a subsequent cancer survivorship program, which demonstrated clinical significance for program participants. Physical, psychosocial, social, and spiritual well-being measures were affected by program participation. Improvement in distress related to the initial cancer diagnosis and family distress were the most significant reported changes, and male gender and advanced age were associated with improved psychosocial well-being.

DPC in acute-phase inpatient hospital care. Visualization of amount of nursing care provided and accessibility to nursing care.

OBJECTIVE: The purpose of this study was to improve accessibility to nursing care by clarifying the relationship between patient characteristics and the amount of nursing care for the Diagnosis Procedure Combination system (DPC). METHOD: The subjects included 528 lung cancer patients; 170 gastric cancer patients; and 91 colon cancer patients, who were hospitalized from July 1, 2008, to March 31, 2010, at a university hospital. The patients were categorized into groups according to factors that could affect the amount of nursing care. Next, the relationship between the patient characteristics and the amount of nursing care was analyzed. Then the results from this study were used to classify patient characteristics according to the patient type and the amount nursing care required. RESULTS: The patient characteristics, which affected the amount of nursing care, varied according to each DPC code. The major factors affecting the amount of nursing care were whether the patient had received a surgical (under general anesthetics) treatment or a non-surgical treatment and the level of activities of daily living (ADL) of the hospitalized patients. For those who had received a surgical operation for colon cancer, the patient's age also affected the amount of nursing care. CONCLUSIONS: The findings show that the method for the visualization of the amount of nursing care based on the classification of patient characteristics can be implemented into the electronic health record system. This method can then be used as a management tool to assure appropriate distribution of nursing resources.

The extended arm of health professionals? Relatives' experiences of patient's recovery in a fast-track programme.

AIM: To report a study of the lived experience of being a close relative to a patient with colon cancer participating in a fast-track programme. BACKGROUND: Studies have documented that postoperative recovery can be accelerated and that hospitalization can be reduced through fast-track programmes. Due to the early discharge and the increasing demands on patients for self-care, patients' relatives seem to play a pivotal role in fast-track programmes. However, research is limited into how patients' close relatives are affected by and involved in the postoperative recovery process. DESIGN: A descriptive phenomenological approach using Reflective Lifeworld Research. METHODS: The study was carried out within the descriptive phenomenological framework of Reflective Lifeworld Research. Data were collected in 2008 from in-depth interviews with twelve relatives. FINDINGS: Relatives experienced a huge responsibility for both the patient's well-being and for the patient's compliance with the daily regimen. Relatives were caught in a conflicting double role. They were the extended arm of the health professionals but also the caring, supporting partner. A tension arose between relatives' desire to help the patient by taking an active part in the recovery process and the feelings of not always having the resources needed. CONCLUSION: Relatives seem to suffer in silence as they bear the burden of the patient's diagnosis, the disruption of life, and the taken-for-granted responsibility for the patient's recovery process. From an existential perspective, this caring responsibility can be understood as ethical pain. Relatives should be seen as a distinct group with special caring needs of their own.

Cancer family caregivers: a new direction for interventions.

BACKGROUND: Descriptive studies of cancer family caregivers demonstrate role-related psychosocial and physical burden; however, little is known about which factors contribute to or obviate burden. Systematic reviews of caregiver intervention studies demonstrate mixed results, perhaps because some caregiver needs are still unknown and not adequately addressed. The purpose of our study was to explore the lived experience of being a caregiver for an adult with lung or colon cancer, so as to guide the development of future intervention studies. METHOD: Using phenomenologic methods, open-ended interviews were conducted at a chemotherapy clinic, New Haven, CT with 135 caregivers to adults with lung or colon cancer. Interviews were audio-recorded and transcribed. Thematic analysis was conducted with transcripts coded, reviewed, and recoded multiple times. The final 69 codes were reduced to 13 code clusters (thematic categories) distributed among 4 themes. RESULTS: Four inter-related themes emerged: 1) becoming a caregiver; 2) new and altered relationships; 3) personal responses to caregiving and 4) antecedents and social context. Caregivers describe hearing the cancer diagnosis as "life-changing". The cancer creates the context for the caregiver's relationships (with the patient, self, others, and the healthcare system), and cognitive, behavioral, affective, and spiritual responses. The caregiver's antecedent experiences and social support network form the foundation for their perceptions of the diagnosis, relationships, and personal responses. CONCLUSION: This study implicates several intervention components to be developed and tested as favorably supporting caregivers, namely, reinforcing positive aspects of caregiving, cultivating open communication, and acknowledging the prior experiences and social foundation of the caregiver's life that can be supportive or burdensome.

[SENS is making sense - on the way to an innovative approach to structure Palliative Care problems]. / SENS macht Sinn - Der Weg zu einer neuen Assessment-Struktur in der Palliative Care.

Assessment in Palliative Care is a broad field trying to integrate various dimensions from physical, psychological, social and spiritual problems and suffering. Medical diagnosis alone may not successfully reflect this multidimensional aspects, as it may be true for nursing diagnosis. In addition, any assessment procedures in palliative care needs a) to be performed in an interprofessional way, i.e. integrating various perspectives, b) to avoid additional burden for the patient, and c) to allow repetitive longitudinal follow up in order to assess the outcomes of interventions. Derived from WHO definition of Palliative Care from 2002 we developed at our centre the problem- rather than diagnosis based SENS-Model and started its clinical implementation. This new tool to structure narratives from patients may facilitate not only to prioritize the various problems, but also to define tasks and responsibilities within the team including the evaluation of the intended benefit. Apart, SENS may help to avoid medicalisation and focus on pathological rather then salutogenetic interpretation. By this, SENS may develop towards a first problem - based ";classification and assessment system" in palliative care, possibly valuable for other chronic diseases and its multidimensional problems, too.

High-fidelity simulation and legal/ethical concepts: a transformational learning experience.

Students in an undergraduate legal and ethical issues course continually told the authors that they did not have time to study for the course because they were busy studying for their clinical courses. Faculty became concerned that students were failing to realize the value of legal and ethical concepts as applicable to clinical practice. This led the authors to implement a transformational learning experience in which students applied legal and ethical course content in a high-fidelity human simulation (HFHS) scenario. A preliminary evaluation compared the new HFHS experience with in-person and online student groups using the same case. Based on both student and faculty perceptions, the HFHS was identified as the best of the three approaches for providing a transformational learning experience regarding legal and ethical content.