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1.
PLoS One ; 13(8): e0201532, 2018.
Article in English | MEDLINE | ID: mdl-30074994

ABSTRACT

Recently, the ubiquitousness of smartphones and tablet computers have changed the style of people's daily life. With this tendency, location based service (LBS) has become one of the prosperous types of service along with the wireless and positioning technology development. However, as the LBS server needs precise location information about the user to provide service result, the procedure of LBS may reveal location privacy, especially when a user is utilizing continuous query along the road. In continuous query, attributes of the user are released inadvertently with per-query, and the information can be collected by an adversary as background knowledge to correlate the location trajectory and infer the personal privacy. Although, a user can employ a central server (CS) to provide privacy preservation for his location, the trustfulness of CS still is without testified and it is usually considered as an un-trusted entity. Thus, in this paper, the trustfulness of CS is verified by a game tree, and then with the result we propose a hash based attribute anonymous scheme (short for HBAA) to obfuscate the attributes released in each query along the road. With the help of HBAA, the CS has no opportunity to get any information about the user who sends his query for generalization service. Furthermore, as the set of attributes is transmitted into a fixed length of hash value, the processing time that spent in attribute generalization is stripped down and the performance of executive efficiency is improved. At last, security analysis and simulation experiment are proposed, and then results of security proving as well as simulation experiments further reflect the superiority of our proposed scheme.


Subject(s)
Data Anonymization/psychology , Information Dissemination/legislation & jurisprudence , Privacy , Smartphone , Wireless Technology/legislation & jurisprudence , Data Anonymization/legislation & jurisprudence , Geographic Information Systems/legislation & jurisprudence , Humans , Information Dissemination/methods , Trust
2.
Am J Kidney Dis ; 71(1): 52-64, 2018 01.
Article in English | MEDLINE | ID: mdl-29157730

ABSTRACT

BACKGROUND: Maintaining anonymity is a requirement in the Netherlands and Sweden for kidney donation from live donors in the context of nondirected (or unspecified) and paired exchange (or specified indirect) donation. Despite this policy, some donors and recipients express the desire to know one another. Little empirical evidence informs the debate on anonymity. This study explored the experiences, preferences, and attitudes of donors and recipients toward anonymity. STUDY DESIGN: Retrospective observational multicenter study using both qualitative and quantitative methods. SETTING & PARTICIPANTS: 414 participants from Dutch and Swedish transplantation centers who received or donated a kidney anonymously (nondirected or paired exchange) completed a questionnaire about anonymity. Participation was a median of 31 months after surgery. FACTORS: Country of residence, donor/recipient status, transplant type, time since surgery. OUTCOMES: Experiences, preferences, and attitudes toward anonymity. RESULTS: Most participants were satisfied with their experience of anonymity before and after surgery. A minority would have liked to have met the other party before (donors, 7%; recipients, 15%) or after (donors, 22%; recipients, 31%) surgery. Significantly more recipients than donors wanted to meet the other party. Most study participants were open to meeting the other party if the desire was mutual (donors, 58%; recipients, 60%). Donors agree significantly more with the principle of anonymity before and after surgery than recipients. Donors and recipients thought that if both parties agreed, it should be permissible to meet before or after surgery. There were few associations between country or time since surgery and experiences or attitudes. The pros and cons of anonymity reported by participants were clustered into relational and emotional, ethical, and practical and logistical domains. LIMITATIONS: The relatively low response rate of recipients may have reduced generalizability. Recall bias was possible given the time lag between transplantation and data collection. CONCLUSIONS: This exploratory study illustrated that although donors and recipients were usually satisfied with anonymity, the majority viewed a strict policy on anonymity as unnecessary. These results may inform policy and education on anonymity.


Subject(s)
Data Anonymization , Kidney Transplantation , Living Donors , Tissue and Organ Harvesting , Transplant Recipients , Adult , Attitude , Data Anonymization/ethics , Data Anonymization/psychology , Family/psychology , Female , Humans , Kidney Transplantation/ethics , Kidney Transplantation/methods , Kidney Transplantation/statistics & numerical data , Living Donors/psychology , Living Donors/statistics & numerical data , Male , Netherlands , Personal Satisfaction , Personally Identifiable Information , Public Opinion , Sweden , Tissue and Organ Harvesting/ethics , Tissue and Organ Harvesting/methods , Tissue and Organ Harvesting/psychology , Transplant Recipients/psychology , Transplant Recipients/statistics & numerical data
3.
PLoS One ; 10(5): e0125208, 2015.
Article in English | MEDLINE | ID: mdl-25993308

ABSTRACT

Research outlets are increasingly adopting open data policies as a requisite for publication, including studies with human subjects data. We investigated whether open data policies influence participants' rate of consent by randomly assigning participants to view consent forms with and without discussion of open data policies. No participants declined to participate, regardless of condition, nor did rates of drop-out vs. completion vary between conditions. Furthermore, no significant change in potential consent rates was reported when participants were openly asked about the influence of open data policies on their likelihood of consent. However, follow-up analyses indicated possible poor attention to consent forms, consistent with previous research. Moreover, thematic analysis of participants' considerations of open data policy indicated multiple considerations such as concerns regarding confidentiality, anonymity, data security, and study sensitivity. The impact of open data policies on participation raises complex issues at the intersection of ethics and scientific innovation. We conclude by encouraging researchers to consider participants as stakeholders in open data policy and by providing recommendations for open data policies in human subjects research.


Subject(s)
Access to Information/psychology , Human Experimentation/standards , Research Subjects/psychology , Adult , Computer Security/standards , Confidentiality/psychology , Confidentiality/standards , Consent Forms/standards , Data Anonymization/psychology , Data Anonymization/standards , Female , Human Experimentation/statistics & numerical data , Humans , Male , Research Subjects/statistics & numerical data
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