What are the cost and resource implications of voluntary assisted dying and euthanasia?

Objectives Voluntary assisted dying (VAD) legislation has now been passed in all Australian states. Although VAD has been operating in many settings worldwide for a considerable time, the specific costs associated with VAD seem unclear. The aim of this study was therefore to outline the common resource implications associated with VAD. Methods A rapid literature review and grey literature search were undertaken. Results We found a paucity of empirically informed detail regarding the actual costs required to implement VAD. Hence, we tabulated a list of potential costs that could be used for subsequent evaluation and a future research agenda. Conclusions There is a lack of publicly available information related to the costs associated with implementing VAD. Given that this is a significant change in policy and many multidisciplinary practitioners may be directly or indirectly involved in VAD it is important that associated costs are clearly outlined so that appropriate resources can be allocated.

Eutanásia Voluntária Ativa, Suicídio Assistido, Ortotanásia e os Cuidados Paliativos: um panorama das discussões no Poder Legislativo Federal Brasileiro / Eutanàsia Voluntària Activa, Suïcidi Assistit, Ortotanàsia i Cures Pal·liatives: un panorama de les discussions en el Poder Legislatiu Federal brasiler / Eutanasia Voluntaria Activa, Suicidio Asistido, Ortotanasia y Cuidados Paliativos: un panorama de las discusiones en el Poder Legislativo Federal brasileño / Voluntary Active Euthanasia, Assisted Suicide, Orthothanasia and Palliative Care: An overview of the discussions in the Brazilian Federal Legislative Power

No âmbito das proposições legislativas brasileiras, buscou-se compreender os desafiose obstáculos no percurso delimitativo das práticas de fim de vida. Analisou-se 193 documentos, desde 1981 até 2020, com base na metodologia hermenêutica-dialética. Evidenciou-se distintas propostas regulamentadoras das práticas de eutanásia e ortotanásia,na relação com os cuidados paliativos. As associações dos termos “cuidados paliativos” e “ortotanásia”, em oposição à “eutanásia/suicídio assistido, revelaram a conflituosa construção de valores que perpassa nossa sociedade. Com a tramitação de projetos relacionados à ortotanásia e eutanásia, compreendemos o sentido das decisões políticas que envolvem as possibilidades de escolhas e liberdade das pessoas, entre o direito à vida e o direito à morte digna. Compreendemos a problemática da legalização da ortotanásia, como forma do poder legislativo se furtar ao debate sobre a eutanásia/suicídio assistido, como alternativa à distanásia e ao sofrimento no processo de morrer.(AU)

En el context de les propostes legislatives brasileres, busquem comprendre els reptes i obstacles en el camí cap a la delimitació de les pràctiques al final de la vida. S'han analitzat 193 documents, des de 1981 fins a 2020, basant-se en la metodologia hermenèutica-dialèctica. S'han evidenciat diferents propostes normatives per a les pràctiques d'eutanàsia i ortotanàsia, en relació als cures pal·liatius. Les associacions dels termes "cures pal·liatius" i "ortotanàsia", en oposició a "eutanàsia/suïcidi assistit", revelen la construcció conflictiva de valors que impregna la nostra societat. Amb la tramitació dels projectes relacionats amb la ortotanàsia i l'eutanàsia, entenem el sentit de les decisions polítiques que implica les possibilitats de tria i llibertat de les persones, entre el dret a la vida i el dret a una mort digna. Comprenguem el problema de la legalització de la ortotanàsia com una forma que el poder legislatiu eviti el debat sobre l'eutanàsia/suïcidi assistit, com a alternativa a la distanàsia i al patiment en el procés de morir.(AU)

En el ámbito de las propuestas legislativas brasileñas, se buscó comprender los desafíos y obstáculos en el camino de la regulación de las prácticas al final de la vida. Se analizaron 193 documentos desde 1981 hasta 2020, utilizando la metodología hermenéutica-dialéctica. Se evidenciaron diferentes propuestas regulatorias relacionadas con la eutanasia y la ortotanasia, en relación con los cuidados paliativos. La asociación de los términos "cuidados paliativos" y "ortotanasia", en contraposición a "eutanasia/suicidio asistido", reveló la conflictiva construcción de valores que atraviesa nuestra sociedad. Con la tramitación de proyectos relacionados con la ortotanasia y la eutanasia, comprendemos el sentido de las decisiones políticas que involucran las posibilidades de elección y libertad de las personas, entre el derecho a la vida y el derecho a una muerte digna. También comprendemos la problemática de la legalización de la ortotanasia como una forma de que el poder legislativo evite el debate sobre la eutanasia/suicidio asistido, como una alternativa a la distanasia y al sufrimiento en el proceso de morir.(AU)

Within the scope of Brazilian legislative proposals, we sought to understand the challenges and obstacles in the delimiting path of end-of-life practices. 193 documents were analyzed, from 1981 to 2020, based on the hermeneutic-dialectical methodology. Different regulatory proposals for the practices of euthanasia and orthothanasia, in relation to palliative care, were evidenced. The associations of the terms “palliative care” and “orthothanasia”, as opposed to “euthanasia/assisted suicide, revealed the conflicting construction of values that permeates our society. With the processing of projects related to orthothanasia and euthanasia, we understand the meaning of political decisions that involve the possibilities of choices and freedom of people, between the right to life and the right to a dignified death. We understand the problem of legalizing orthothanasia as a way for the legislative power to evade the debate on euthanasia/assisted suicide, as an alternative to dysthanasia and suffering in the dying process.(AU)

La regulación de la eutanasia en España y el farmacéutico de hospital: estado de la cuestión / The regulation of euthanasia in Spain and the hospital pharmacist: state of the art

Objetivo: Conocer la realidad del farmacéutico de hospital en relación a la Ley Orgánica 3/2021 de regulación de la eutanasia. Método: Se diseñó una encuesta de 22 preguntas acerca de la Ley de regulación de la eutanasia y se difundió via on-line a los farmacéuticos hospitalarios pertenecientes a la Sociedad Española de Farmacia Hospitalaria. La solicitud de participación se llevó a cabo en mayo 2022. Resultados: Se recopilaron 242 respuestas siendo un 66% facultativos especialistas de área. Cabe destacar que el 81% afirmaban conocer la Ley Orgánica 3/2021 de regulación de la eutanasia y el 63% no se declararía objetor de conciencia. Los protocolos de actuación para la prestación de ayuda para morir sólo existían antes de tener el primer caso en el 31% de los hospitales. Conclusiones: Solo conociendo el pronunciamiento del profesional facultativo ante la prestación de ayuda para morir puede conocerse la realidad y mejorar la asistencia. Ante las incógnitas y falta de desarrollo normativo se crea la necesidad de contar con equipos de profesionales formados que lleven a cabo esta prestación. (AU)

Objective: To know the reality of the hospital pharmacist in relation to the Spanish Law 3/2021, of regulation of euthanasia Methods: A 22-question survey regarding the Law that regulates euthanasia in Spain was designed and spread online to hospital pharmacists belonging to the Spanish Society of Hospital Pharmacy. The request for participation was sent in May 2022. Results: 242 responses were collected, 66% of which came from area specialists. It is important to highlight that 81% claimed to be aware of the Spanish Law 3/2021 and the results showed that 63% of the respondents would not declare themselves a conscientious objector. The action protocols for the provision of Aid in Dying only existed before the first case was carried out in 31% of the hospitals in Spain. Conclusions: Only by knowing the pronouncement of the health professionals regarding the provision of Aid in Dying, the current situation can be known and, therefore, the patient care been improved. Given the unknowns and lack of normative development, the need for teams of trained professionals to carry out the provision for the service is needed. (AU)

What About Us? Experiences of Relatives Regarding Physician-Assisted Death for Patients Suffering from Mental Illness: A Qualitative Study.

Physician-assisted death (PAD) for patients suffering from mental illness is legally permitted in the Netherlands. Although patients' relatives are not entrusted with a legal role, former research revealed that physicians take into account the patient's social context and their well-being, in deciding whether or not to grant the request. However, these studies focussed on relatives' experiences in the context of PAD concerning patients with somatic illness. To date, nothing is known on their experiences in the context of PAD concerning the mentally ill. We studied the experiences of relatives with regard to a PAD request by patients suffering from mental illness. The data for this study were collected through 12 interviews with relatives of patients who have or had a PAD request because of a mental illness. We show that relatives are ambivalent regarding the patient's request for PAD and the following trajectory. Their ambivalence is characterised by their understanding of the wish to die and at the same time hoping that the patient would make another choice. Respondents' experiences regarding the process of the PAD request varied, from positive ('intimate') to negative ('extremely hard'). Some indicated that they wished to be more involved as they believe the road towards PAD should be a joint trajectory. To leave them out during such an important event is not only painful, but also harmful to the relative as it could potentially complicate their grieving process. Professional support during or after the PAD process was wanted by some, but not by all.

Estudio médico legal de la Ley Orgánica de Regulación de la Eutanasia en España en comparación con el resto de los países que regulan la eutanasia y/o el suicidio asistido / Medico legal study of the organic law of the regulation of euthanasia in Spain compared to the rest of the countries that regulate euthanasia and / or assisted suicide

La regulación de la eutanasia ha sido objeto de debate desde hace años, desde los campos de la medicina, el derecho y la bioética, y por tanto de la medicina legal, en la que estas 3 disciplinas convergen. En los últimos 30 años hemos vivido un proceso de despenalización y regulación en diferentes países del mundo. Actualmente la eutanasia y/o el suicidio asistido están regulados en 7 países: Holanda, Bélgica, Luxemburgo, Canadá, Colombia, Nueva Zelanda y España, así como en 11 estados de EE. UU.: Oregón, Washington, Montana, Vermont, California, Colorado, Hawai, Maine, Nueva Jersey, Nuevo México y el Distrito Federal de Columbia/Washington D.C., y en 2 estados de Australia: Estado de Victoria y Australia Occidental. En este trabajo de revisión realizamos un estudio sobre los aspectos más importantes de la nueva Ley Orgánica de Regulación de la Eutanasia en España comparando con el resto de los países en los que también tienen la regularización de la eutanasia y/o el suicidio asistido. (AU)

The regulation of euthanasia has been the subject of debate for years, from the fields of Medicine, Law and Bioethics, and therefore of Legal Medicine, in which these three disciplines converge. In the last thirty years we have experienced a process of decriminalization and regulation in different countries of the world. Currently euthanasia and/or assisted suicide are regulated in 7 countries: Holland, Belgium, Luxembourg, Canada, Colombia, New Zealand and Spain, as well as in 11 US states: Oregon, Washington, Montana, Vermont, California, Colorado, Hawaii, Maine, New Jersey, New Mexico and the Federal District of Columbia / Washington D.C, and in 2 states of Australia: State of Victoria and Western Australia. In this review work we carry out a study on the most important aspects of the new law of the regulation of euthanasia in Spain compared to the rest of the countries in which they also have the regularization of euthanasia and / or assisted suicide. (AU)

Assessment of capacity to give informed consent for medical assistance in dying: a qualitative study of clinicians' experience.

BACKGROUND: Under the Canadian Criminal Code, medical assistance in dying (MAiD) requires that patients give informed consent and that their ability to consent is assessed by 2 clinicians. In this study, we intended to understand how Canadian clinicians assessed capacity in people requesting MAiD. METHODS: This qualitative study used interviews conducted between August 2019 and February 2020, by phone, video and email, to explore how clinicians assessed capacity in people requesting MAiD, what challenges they had encountered and what tools they used. The participants were recruited from provider mailing listserves of the Canadian Association of MAiD Assessors and Providers and Aide médicale à mourir. Interviews were audio-recorded and transcribed verbatim. The research team met to review transcripts and explore themes as they emerged in an iterative manner. We used abductive reasoning for thematic analysis and coding, and continued to discuss until we reached consensus. RESULTS: The 20 participants worked in 5 of 10 provinces across Canada, represented different specialties and had experience assessing a total of 2410 patients requesting MAiD. The main theme was that, for most assessments, the participants used the conversation about how the patient had come to choose MAiD to get the information they needed. When the participants used formal capacity assessment tools, this was mostly for meticulous documentation, and they rarely asked for psychiatric consults. The participants described how they approached assessing cases of nonverbal patients and other challenging cases, using techniques such as ensuring a quiet environment and adequate hearing aids, and using questions requiring only "yes" or "no" as an answer. INTERPRETATION: The participants were comfortable doing MAiD assessments and used their clinical judgment and experience to assess capacity in ways similar to other clinical practices. The findings of this study suggest that experienced MAiD assessors do not routinely require formal capacity assessments or tools to assess capacity in patients requesting MAiD.

Physician attitudes to voluntary assisted dying: a scoping review.

BACKGROUND: Voluntary assisted dying (VAD) became legal in the Australian state of Victoria on 19 June 2019 and will be legal in Western Australia from 2021. Other Australian states are progressing similar law reform processes. In Australia and internationally, doctors are central to the operation of all legal VAD regimes. It is broadly accepted that doctors, as a profession, are less in favour of VAD law reform than the rest of the community. To date, there has been little analysis of the factors that motivate doctors' support or opposition to legalised VAD in Australia. AIM: To review all studies reporting the attitudes of Australian doctors regarding the legalisation of VAD, including their willingness to participate in it, and to observe and record common themes in existing attitudinal data. DESIGN: Scoping review and thematic analysis of qualitative and quantitative data. DATA SOURCES: CINAHL, Embase, Scopus, PubMed and Informit were searched from inception to June 2019. RESULTS: 26 publications detailing 19 studies were identified. Thematic analysis of quantitative and qualitative findings was performed. Three overarching themes emerged. 'Attitudes towards regulation' encompassed doctors' orientation towards legalisation, the shortcomings of binary categories of support or opposition and doctors' concerns about additional regulation of their professional practices. 'Professional and personal impact of legalisation' described tensions between palliative care and VAD, and the emotional and social impact of being providers of VAD. 'Practical considerations regarding access' considered doctors' concerns about eligibility criteria and their willingness to provide VAD. CONCLUSION: A detailed understanding of medical perspectives about VAD would facilitate the design of legislative models that take better account of doctors' concerns. This may facilitate their greater participation in VAD and help address potential access issues arising from availability of willing doctors.

[Euthanasia in patients with dementia]. / Euthanasie bij patiënten met dementie.

BACKGROUND: Euthanasia in patients with dementia is legally permitted, but many physicians experience it as (too) complex. They are frightened of the legal consequences and do not know how to assess the nature of the suffering. They also find it difficult to assess the patient's ability to provide consent. CASE DESCRIPTION: Here we describe two cases of patients who were registered at Euthanasia Expertise Centre by a family member: a 72-year-old woman who had been diagnosed with Alzheimer disease 18 months previously and a 67-year-old man with Lewy body dementia. During the various consultations we had with them we were given a distinct picture of the nature of their suffering, and it became clear to us why they found this suffering unbearable. CONCLUSION: By paying extra attention to the assessment of the ability to give consent and by exploring the degree of suffering experienced it is possible to meet the request for euthanasia by a patient with dementia within the framework of the law.

Medical Assistance in Dying: A Review of Canadian Regulatory Documents.

After years of heated debate about the issue, medical assistance in dying (MAiD) was legalized in Canada in 2016. Canada became the first jurisdiction where MAiD may be delivered by nurse practitioners as well as physicians. Experience has revealed significant public demand for the service, and Canadians expect nurses to advocate for safe, high-quality, ethical practice in this new area of care. Pesut et al. offer a superb analysis of the related Canadian nursing regulatory documents and the challenges in creating a harmonized approach that arise in a federation where the Criminal Code is a federal entity and the regulation of health care providers and delivery of care fall under provincial and territorial legislation. Organizations like the Canadian Nurses Association contribute to the development of good legislation by working with partners to present evidence to help legislators consider impacts on public health, health care, and providers. Nursing regulators across Canada responded quickly to the unfolding policy landscape as the federal legislation evolved and will face that task again: In February 2020, the federal government tabled legislation to relax conditions related to MAiD requests that will force regulators and professional associations back to public advocacy and legislative tables. The success of the cautious approach exercised by nursing bodies throughout this journey should continue to reassure Canadians that their high trust in the profession is well placed.

Euthanasia and physician-assisted suicide for patients with depression: thought-provoking remarks.

Euthanasia and medical assistance in dying entail daunting ethical and moral challenges, in addition to a host of medical and clinical issues, which are further complicated in cases of patients whose decision-making skills have been negatively affected or even impaired by psychiatric disorders. The authors closely focus on clinical depression and relevant European laws that have over the years set firm standards in such a complex field. Pertaining to the mental health realm specifically, patients are required to undergo a mental competence assessment in order to request aid in dying. The way psychiatrists deal and interact with decisionally capable patients who have decided to end their own lives, on account of sufferings which they find to be unbearable, may be influenced by subjective elements such as ethical and cultural biases on the part of the doctors involved. Moreover, critics of medical aid in dying claim that acceptance of such practices might gradually lead to the acceptance or practice of involuntary euthanasia for those deemed to be nothing more than a burden to society, a concept currently unacceptable to the vast majority of observers. Ultimately, the authors conclude, the key role of clinicians should be to provide alternatives to those who feel so hopeless as to request assistance in dying, through palliative care and effective social and health care policies for the weakest among patients: lonely, depressed or ill-advised people.

Last-Minute Recovery of a Psychiatric Patient Requesting Physician-Assisted Death.

Physician-assisted death is becoming legal in an increasing number of jurisdictions, but psychiatric patients are often explicitly excluded. However, in some countries, including the Netherlands, physician-assisted death of psychiatric patients is allowed. This Open Forum describes a patient with schizophrenia and symptoms diagnosed as refractory musical hallucinations. The patient requested assistance in dying only to recover after a mandatory second opinion, where his complaints were recognized as intrusive thoughts and treated accordingly. This case is used to reflect on how to deal with uncertainty about physician-assisted death of psychiatric patients and to argue for implementation of a due-diligence procedure, such as the one proposed in the Dutch Psychiatric Association's recent guideline concerning this issue.

Euthanasia and assisted suicide in the context of psychiatric disorders: sharing experiences from the Low Countries. / Eutanazja i wspomagane samobójstwo w kontekscie zaburzen psychicznych w krajach niderlandzkich: doswiadczenie poparte praktyka.

Euthanasia and physician assisted suicide (E/PAS) in the context of unbearable psychological or emotional suffering related to psychiatric disorders (psychiatric E/PAS) is ahighly debated topic. In Belgium and The Netherlands, the law allows for psychiatric E/PAS since 2002. The aim of this article is to give an overview of the Belgian and Dutch experiences and the questions raised during the last decade of real-life experiences with psychiatric E/PAS. We use the available national data on psychiatric E/PAS to present a quantitative overview of the current situation. In addition, we identified different challenges; i.e. ethical, medicalpsychiatric and legal, that increasingly impact and change the attitudes within the medical and psychiatric professional community towards psychiatric E/PAS.