Subject(s)
Confidentiality/legislation & jurisprudence , Health Insurance Portability and Accountability Act/history , Confidentiality/history , Genetic Privacy/legislation & jurisprudence , Government Regulation/history , Health Insurance Portability and Accountability Act/legislation & jurisprudence , History, 20th Century , History, 21st Century , Information Dissemination/legislation & jurisprudence , United States , United States Dept. of Health and Human ServicesABSTRACT
With advances in technology, patients increasingly expect to access their health information on their phones and computers seamlessly, whenever needed, to meet their clinical needs. The 1996 passage of the Health Insurance Portability and Accountability Act (HIPAA), modifications made by the Health Information Technology for Economic and Clinical Health Act (HITECH), and the recent 21st Century Cures Act (Cures) promise to make patients' health information available to them without special effort and at no cost. However, inconsistencies among these policies' definitions of what is included in "health information", widespread variation in electronic health record system capabilities, and differences in local health system policies around health data release have created a confusing landscape for patients, health care providers, and third parties who reuse health information. In this article, we present relevant regulatory history, describe challenges to health data portability and fluidity, and present the authors' policy recommendations for lawmakers to consider so that the vision of HIPAA, HITECH, and Cures may be fulfilled.
Subject(s)
Electronic Health Records/legislation & jurisprudence , Health Insurance Portability and Accountability Act , Patient Access to Records/legislation & jurisprudence , American Recovery and Reinvestment Act/history , Confidentiality , Consumer Health Informatics , Health Insurance Portability and Accountability Act/history , Health Policy/legislation & jurisprudence , History, 20th Century , History, 21st Century , United StatesSubject(s)
Confidentiality/legislation & jurisprudence , Health Insurance Portability and Accountability Act , Health Records, Personal , Privacy/legislation & jurisprudence , Europe , European Union , Health Insurance Portability and Accountability Act/history , Health Insurance Portability and Accountability Act/legislation & jurisprudence , History, 20th Century , Humans , Legislation as Topic , Marketing , United StatesSubject(s)
Electronic Health Records , Medical Informatics , Patient Access to Records , Government Regulation , Health Insurance Portability and Accountability Act/history , Health Records, Personal , History, 20th Century , Humans , Medical Informatics/history , Patient Access to Records/legislation & jurisprudence , Patient-Centered Care , Telemedicine , United StatesSubject(s)
Biomedical Technology/history , Delivery of Health Care/history , Physicians , Professional Practice/history , Electronic Health Records , Health Insurance Portability and Accountability Act/history , History, 20th Century , History, 21st Century , Humans , Liability, Legal/history , Societies, Medical/history , United StatesABSTRACT
The Centers for Medicare & Medicaid Services is developing a Web-based application, Consolidated Renal Operations in a Web-Enabled Network (CROWNWeb), which is designed to facilitate data entry, updating, and retrieval for dialysis facilities nationwide. Part 1 of this three-part series outlines the history of end-stage renal disease and Medicare, and covers the rapid growth of ESRD data management as well as other events that require progression to an online data collection and management system.
