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1.
BMJ Open Qual ; 13(2)2024 May 27.
Article in English | MEDLINE | ID: mdl-38802270

ABSTRACT

OBJECTIVE: Develop a process map of when patients learn about their proposed surgery and what resources patients use to educate themselves. DESIGN: A mixed methods design, combining semistructured stakeholder interviews, quantitative validation using electronic healthcare records (EHR) in a retrospective cohort and a cross-sectional patient survey. SETTING: A single surgical centre in the UK. PARTICIPANTS: Fourteen members of the spinal multidisciplinary team were interviewed to develop the process map.This process map was validated using the EHR of 50 patients undergoing elective spine surgery between January and June 2022. Postprocedure, feedback was gathered from 25 patient surveys to identify which resources they used to learn about their spinal procedure. Patients below the age of 18 or who received emergency surgery were excluded. INTERVENTIONS: Elective spine surgery and patient questionnaires given postoperatively either on the ward or in follow-up clinic. PRIMARY AND SECONDARY OUTCOME MEASURES: The primary outcome was the percentage of the study cohort that was present at encounters on the process map. Key timepoints were defined if >80% of patients were present. The secondary outcome was the percentage of the study cohort that used educational resources listed in the patient questionnaire. RESULTS: There were 342 encounters which occurred across the cohort, with 16 discrete event categories identified. The initial surgical clinic (88%), anaesthetic preoperative assessment (96%) and admission for surgery (100%) were identified as key timepoints. Surveys identified that patients most used verbal information from their surgeon (100%) followed by written information from their surgeon (52%) and the internet (40%) to learn about their surgery. CONCLUSIONS: Process mapping is an effective method of illustrating the patient pathway. The initial surgical clinic, anaesthetic preoperative assessment and surgical admission are key timepoints where patients receive information. This has future implications for guiding patient education interventions to focus at key timepoints.


Subject(s)
Elective Surgical Procedures , Patient Education as Topic , Humans , Cross-Sectional Studies , Elective Surgical Procedures/statistics & numerical data , Female , Male , Surveys and Questionnaires , Middle Aged , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Cohort Studies , Retrospective Studies , United Kingdom , Aged , Adult
2.
Intern Med J ; 53(7): 1188-1195, 2023 07.
Article in English | MEDLINE | ID: mdl-34779559

ABSTRACT

BACKGROUND: Nationally, Indigenous Australians are more likely to have diabetes and diabetic retinopathy (DR) than non-Indigenous Australians. However, the prevalence of DR and impaired vision in regional primary care settings is unclear. AIM: To describe the prevalence and severity of DR and presenting vision level among Indigenous Australian adults with diabetes attending an indigenous primary care clinic in regional Australia. METHODS: Participants underwent nurse-led retinal imaging and DR screening with offsite retinal grading in the integrated Diabetes Education and Eye Screening (iDEES) project implemented at a regional indigenous primary healthcare setting between January 2018 and March 2020. RESULTS: Of 172 eligible adults, 135 (79%) were recruited and screened for DR and vision level. The median age was 56 (46-67) years, 130 (96%) had type 2 diabetes of median (interquartile range) duration 6 (2-12) years and 48 (36%) were male. Images from 132 (97.8%) participants were gradable. DR was present in 38 (29%) participants: mild non-proliferative in 33 (25%); moderate-severe in three (2.5%); and sight-threatening two (1.5%). Subnormal presenting vision was present in 33%. CONCLUSIONS: A nurse-led model of care integrating diabetes eye screening and education at a single visit was successful at recruiting Indigenous Australian adults with diabetes, screening their vision and acquiring a high rate of gradable images. Even for a short duration of known diabetes, DR was present in three out of 10 patients screened.


Subject(s)
Australian Aboriginal and Torres Strait Islander Peoples , Diabetic Retinopathy , Health Services, Indigenous , Mass Screening , Nurse's Role , Vision, Low , Female , Humans , Male , Middle Aged , Australia/epidemiology , Diabetes Mellitus, Type 2/complications , Diabetes Mellitus, Type 2/diagnosis , Diabetes Mellitus, Type 2/epidemiology , Diabetic Retinopathy/diagnosis , Diabetic Retinopathy/epidemiology , Diabetic Retinopathy/etiology , Mass Screening/methods , Mass Screening/nursing , Mass Screening/statistics & numerical data , Prevalence , Primary Health Care/methods , Primary Health Care/statistics & numerical data , Vision Disorders/diagnosis , Vision Disorders/epidemiology , Vision Disorders/etiology , Vision, Low/diagnosis , Vision, Low/epidemiology , Vision, Low/etiology , Aged , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Health Services, Indigenous/supply & distribution , Australian Aboriginal and Torres Strait Islander Peoples/statistics & numerical data
3.
BMC Cancer ; 22(1): 159, 2022 Feb 09.
Article in English | MEDLINE | ID: mdl-35139808

ABSTRACT

BACKGROUND: Comprehensible, relevant information empowers patients, allowing them to take an active part in their care. We aim to investigate how Swedish melanoma patients perceive information provided in routine clinical practice and explore the correlation between satisfaction with information, symptoms and functioning scales, and quality of life. METHODS: A cross-sectional study where EORTC QLQ-C30, EORTC QLQ-INFO25 and EQ-5D-3L questionnaires were sent to 1213 patients by post and 792 responded (65%). RESULTS: Only 0.5% reported that they wished to have received less information. The amount of information received and the satisfaction with that information was age-dependent, where older patients reported receiving less information than younger patients. Middle-aged patients were more satisfied with the information compared to both younger and older patients. The perception of having received sufficient information correlated negatively with anxiety. Higher satisfaction with the information also correlated positively with scores for functioning scales and negatively with degree of symptoms. No difference was perceived in information levels between disease stage apart from the scale "information about other services", where patients with more severe disease reported receiving more information. Men and women reported equal satisfaction concerning the information received. CONCLUSIONS: Patients lack sufficient information and age affects the perception of it. It is of utmost importance to tailor the information to suit the individual needs of a given patient, as satisfaction with the information received correlates with the patient's well-being.


Subject(s)
Melanoma/psychology , Patient Acceptance of Health Care/psychology , Patient Education as Topic/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Age Factors , Aged , Anxiety , Cross-Sectional Studies , Female , Humans , Male , Middle Aged , Perception , Practice Patterns, Physicians' , Quality of Life , Surveys and Questionnaires , Sweden
4.
J Assist Reprod Genet ; 39(1): 183-193, 2022 Jan.
Article in English | MEDLINE | ID: mdl-34806131

ABSTRACT

PURPOSE: People with sickle cell disease (SCD) or trait have many reproductive options, some of which decrease the chance of passing SCD to children, including in vitro fertilization with preimplantation genetic testing (IVF + PGT). Few are aware of these options, and educational materials are needed. This study aimed to develop an accessible, non-directive patient education material about reproductive options for those with SCD or trait via a process that incorporated stakeholders from the SCD community. METHODS: Multidisciplinary stakeholders guided development and revision of a novel pamphlet. Researchers applied health literacy scales to measure pamphlet understandability. We interviewed nine patients with SCD and six multidisciplinary clinicians to evaluate the pamphlet. Interviews were recorded, transcribed, and coded by a five-member team who developed a codebook and proposed themes that were revised by all research team members. Feedback was incorporated into a revised pamphlet. RESULTS: A two-page pamphlet describing reproductive options for people with SCD including IVF + PGT was acceptable to key stakeholders, including people with SCD. Material about this complex topic met health literacy standards, including being written at a 5th grade level. Patients reported feeling hopeful after reviewing the pamphlet, and participants considered the pamphlet useful, clear, and appropriate for distribution in clinics and online. CONCLUSIONS: Though awareness of reproductive options for those with SCD or trait is low, patients and providers find a novel pamphlet about this topic acceptable and useful. Educational materials about complex topics including IVF + PGT can be written at a level understandable to the average American.


Subject(s)
Anemia, Sickle Cell/therapy , Patient Education as Topic/standards , Adult , Anemia, Sickle Cell/psychology , Female , Health Knowledge, Attitudes, Practice , Humans , Interviews as Topic/methods , Male , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Surveys and Questionnaires
5.
Esc. Anna Nery Rev. Enferm ; 26: e20210313, 2022. tab, graf
Article in Portuguese | LILACS, BDENF - Nursing | ID: biblio-1375408

ABSTRACT

RESUMO Objetivo Analisar os efeitos de intervenção educativa no letramento em saúde e no conhecimento sobre diabetes em adultos atendidos na atenção primária à saúde. Método Trata-se de estudo quase-experimental com intervenção educativa durante a consulta de enfermagem, atividade em grupo e acompanhamento telefônico com 33 adultos diagnosticados com diabetes mellitus tipo 2, cadastrados em uma Unidade Estratégia Saúde da Família no Sul do Brasil. Aplicaram-se instrumentos sociodemográfico e clínico (Spoken Knowledge in Low Literacy Patients with Diabetes e Eight-Item Health Literacy Assessment Tool) antes e após a intervenção. Os dados foram analisados pelos testes de Wilcoxom, coeficiente de correlação de Spearman e McNemar. Resultados A maioria dos participantes eram mulheres (69,7%), com idade média de 57,0 anos, tempo de escolaridade inferior a nove anos (69,7%) e tempo de diagnóstico ≤10 anos (51,5%). Após a intervenção, obteve-se aumento do conhecimento sobre a diabetes (p = 0,001), correlacionado ao letramento em saúde (r = 0,494; p = 0,001) e ao tempo do diagnóstico (r = 0,455; p = 0,001). Conclusão e implicação para a prática A utilização de instrumentos para mensurar o letramento em saúde e o conhecimento sobre diabetes possibilitou a construção de estratégias educativas voltadas para as lacunas existentes, promovendo aumento do conhecimento, o qual favorece o desenvolvimento das habilidades para a autogestão.


RESUMEN Objetivo Analizar los efectos de la intervención educativa sobre la alfabetización en salud y el conocimiento sobre diabetes en adultos tratados en la Atención Primaria de Salud. Método Se trata de un estudio cuasiexperimental, con intervención educativa, durante la consulta de enfermería en 33 adultos diagnosticados de Diabetes Mellitus tipo 2 registrados en una Unidad de Estrategia de Salud Familiar en el sur de Brasil, con actividades grupales y seguimiento telefónico. Antes y después de la intervención, se aplicaron instrumentos sociodemográficos y clínicos: Spoken Knowledge in Low Literacy Patients with Diabetes and the Eight-Item Health Literacy Assessment Tool. Los datos se analizaron mediante las pruebas de coeficiente de correlación de Wilcoxom, Spearman y McNemar. Resultados La mayoría fueron mujeres (69,7%), con una edad media de 57,0 años, menos de nueve años de escolaridad (69,7%) y tiempo de diagnóstico ≤ 10 años (51,5%). Después de la intervención, hubo un aumento en el conocimiento sobre diabetes (p = 0,001), correlacionado con la alfabetización en salud (r = 0,494 p = 0,001) y el tiempo desde el diagnóstico (r = 0,455 p = 0,001). Conclusión e implicaciones para la práctica El uso de instrumentos para medir la alfabetización en salud y el conocimiento sobre la diabetes permitieron la construcción de estrategias educativas orientadas a las brechas existentes, aumentando su conocimiento, lo que favorece el desarrollo de habilidades para el autocuidado.


ABSTRACT Objective To analyze the effects of educational intervention on health literacy and knowledge about diabetes in adults assisted in primary health care. Method This is a quasi-experimental study with educational intervention during the nursing consultation with 33 adults diagnosed with type 2 diabetes mellitus registered in a Family Health Strategy Unit in southern Brazil and involving group activity and telephone follow-up. Sociodemographic and clinical instruments were applied before and after the intervention; these instruments included the Spoken Knowledge in Low Literacy Patients with Diabetes and the Eight-Item Health Literacy Assessment Tool. Data were analyzed using the Wilcoxon, Spearman, and McNemar correlation coefficient tests. Results Most participants were women (69.7%), with a mean age of 57.0 years, less than nine years of schooling (69.7%), and ≤10 years of diagnosis (51.5%). After the intervention, there was an increase in knowledge about diabetes (p = 0.001), correlated with health literacy (r = 0.494; p = 0.001) and the time of diagnosis (r = 0.455; p = 0.001). Conclusion and implications for practice The instruments to measure health literacy and knowledge about diabetes enabled the construction of educational strategies aimed at existing gaps, increasing the knowledge, thereby favoring the development of skills for self-management.


Subject(s)
Humans , Male , Female , Middle Aged , Patient Education as Topic/statistics & numerical data , Diabetes Mellitus, Type 2 , Health Literacy/statistics & numerical data , Socioeconomic Factors , Health Profile
6.
Plast Reconstr Surg ; 148(6): 1214-1220, 2021 Dec 01.
Article in English | MEDLINE | ID: mdl-34847110

ABSTRACT

BACKGROUND: Social media use by plastic surgeons may contribute to the overall increase in breast reconstruction in the United States. However, recent data show a concerning decrease in breast reconstruction in African American women. The purpose of this study was to analyze the inclusion of African American women in social media posts for breast reconstruction, with the premise that this may be a possible contributing factor to decreasing rates of breast reconstruction in this population. METHODS: Data from several social media platforms were obtained manually on December 1, 2019. Each image was analyzed using the Fitzpatrick scale as a guide. RESULTS: A total of 2580 photographs were included that met the authors' criteria. Only 172 photographs (6.7 percent) were nonwhite. This study surveyed 543 surgeons, 5 percent of whom were nonwhite. The analysis of the results from the random sample of the top plastic surgery social media influencers showed that only 22 (5 percent) of the photographs uploaded were nonwhite patients. Furthermore, 30 percent of surgeons did not have any photographs of nonwhite patients uploaded. CONCLUSIONS: Numerous factors can contribute to the disparity between the growing trend of white patients seeking reconstructive surgery compared to the decreasing trend of African American patients, one of which may be the disparity in their representation in social media, particularly among common platforms and social media influencers. This study highlights the evolving factors that may impair African American breast cancer patients' access to safe, effective breast reconstruction, which must be identified and resolved.


Subject(s)
Black or African American/statistics & numerical data , Mammaplasty/statistics & numerical data , Marketing of Health Services/statistics & numerical data , Patient Education as Topic/statistics & numerical data , Social Media/statistics & numerical data , Breast Neoplasms/surgery , Female , Geography , Health Services Accessibility/statistics & numerical data , Healthcare Disparities/statistics & numerical data , Humans , Mammaplasty/economics , Mammaplasty/education , Marketing of Health Services/methods , Mastectomy/adverse effects , Patient Education as Topic/methods , Photography/statistics & numerical data , Skin Pigmentation , United States
7.
MMWR Morb Mortal Wkly Rep ; 70(42): 1466-1471, 2021 Oct 22.
Article in English | MEDLINE | ID: mdl-34673750

ABSTRACT

Arthritis is a highly prevalent and disabling condition among U.S. adults (1); arthritis-attributable functional limitations and severe joint pain affect many aspects of health and quality of life (2). Self-management education (self-management) and physical activity can reduce pain and improve the health status and quality of life of adults with arthritis; however, in 2014, only 11.4% and 61.0% of arthritis patients reported engaging in each, respectively. To assess self-reported self-management class attendance and health care provider physical activity counseling among adults with doctor-diagnosed arthritis, CDC analyzed 2019 Behavioral Risk Factor Surveillance System (BRFSS) data. In 2019, an age-standardized state median of one in six (16.2%) adults with arthritis reported ever attending a self-management class, and 69.3% reported ever receiving health care provider counselling to be physically active. Prevalences of both differed by state and sociodemographic characteristics; decreased with lower educational attainment, joint pain severity, and urbanicity; and were lower in men than in women. Health care providers can play an important role in promoting self-management class attendance and physical activity by counseling arthritis patients about their benefits and referring patients to evidence-based programs (3).


Subject(s)
Arthritis/therapy , Counseling/statistics & numerical data , Exercise , Health Personnel/psychology , Patient Education as Topic/statistics & numerical data , Physician-Patient Relations , Self-Management/education , Adolescent , Adult , Aged , Arthritis/epidemiology , Female , Humans , Male , Middle Aged , United States/epidemiology , Young Adult
9.
Am J Trop Med Hyg ; 106(1): 229-232, 2021 10 25.
Article in English | MEDLINE | ID: mdl-34695790

ABSTRACT

In rural India, since 2014, the Swachh Bharat Abhiyan (Clean India Mission) has ensured construction of more than 100 million toilets and is now focusing on reinforcement of sanitation behaviors. We report a cholera outbreak in a remote village in western India where open defecation was implicated in causation. A water pipeline was damaged in the vicinity of a stream flowing from a site of open defecation. Despite the availability of a toilet facility in the majority of households (75%), open defecation was widely practiced (62.8%). Many reported not washing hands with soap and water before eating (78.5%) and after defecation (61.1%). The study emphasizes the need for focused health behavior studies and evidence-based interventions to reduce the occurrence of cholera outbreaks. This could be the last lap in the path toward achieving the United Nations Sustainable Development Goal 6, which aims to "ensure availability and sustainable management of water and sanitation for all."


Subject(s)
Cholera/prevention & control , Disease Outbreaks/prevention & control , Evidence-Based Practice/education , Patient Education as Topic , Cholera/epidemiology , Health Behavior/classification , Health Risk Behaviors , Humans , India/epidemiology , Patient Education as Topic/statistics & numerical data , Risk Factors , Rural Population
10.
J Bone Joint Surg Am ; 103(22): 2145-2152, 2021 11 17.
Article in English | MEDLINE | ID: mdl-34546983

ABSTRACT

➤: Physicians who advise patients to quit smoking substantially improve cessation rates, but cessation counseling is currently underperformed. ➤: Counseling, pharmacotherapy, and additional interventions can improve the chance of successful smoking cessation. Most patients require multiple attempts at quitting to be successful. ➤: A list of referral contacts and resources should be developed and routinely offered to these patients. The national Quitline (1-800-QUIT-NOW) provides free access to trained counselors and "quit coaches" for each state program in the United States. ➤: Government and private insurance plans in the United States are required (in most cases) to cover the cost of 2 quitting attempts per year including counseling referrals and medications. ➤: Several biopsychosocial factors that affect orthopaedic outcomes (weight, anxiety, depression, etc.) are also relevant to smoking cessation; management of these factors is thus potentially aggregately advantageous.


Subject(s)
Musculoskeletal Diseases/therapy , Orthopedics/statistics & numerical data , Smoking Cessation , Smoking/adverse effects , Counseling/statistics & numerical data , Humans , Insurance Coverage , Motivation , Musculoskeletal Diseases/etiology , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Practice Patterns, Physicians'/statistics & numerical data , Referral and Consultation/statistics & numerical data , Smoking Cessation/economics , Smoking Cessation/psychology , United States
12.
Cancer Prev Res (Phila) ; 14(9): 905-916, 2021 09.
Article in English | MEDLINE | ID: mdl-34244154

ABSTRACT

Screening for colorectal and breast cancer is considered cost effective, but limited evidence exists on cost-effectiveness of screening promotion interventions that simultaneously target both cancers. Increasing Colorectal and Breast Cancer Screening (Project COBRA), a randomized controlled trial conducted in the community, examined the cost-effectiveness of an innovative tailored web-based intervention compared with tailored telephone counseling and usual care. Screening status at 6 months was obtained by participant surveys plus medical record reviews. Cost was prospectively measured from the patient and provider perspectives using time logs and project invoices. Relative efficiency of the interventions was quantified by the incremental cost-effectiveness ratios. Nonparametric bootstrapping and net benefit regression analysis were used to assess statistical uncertainty of the results. The average cost per participant to implement the Phone counseling, Web-based, and Web + Phone counseling interventions were $277, $314, and $337, respectively. Comparing Phone counseling with usual care resulted in an additional cost of $300 (95% confidence interval [CI]: $283-$320) per cancer screening test and $421 (95% CI: $400-$441) per additional person screened in the target population. Phone counseling alone was more cost-effective than the Web + Phone intervention. Web-based intervention alone was more costly but less effective than the Phone counseling. When simultaneously promoting screening for both colorectal and breast cancer the Web-based intervention was less cost-effective compared with Phone and Web + Phone strategies. The results suggest that targeting multiple cancer screening may improve the cost-effectiveness of cancer screening interventions. PREVENTION RELEVANCE: This study informs researchers, decision makers, healthcare providers, and payers about the improved cost-effectiveness of targeting multiple cancer screenings for cancer early detection programs.


Subject(s)
Breast Neoplasms/diagnosis , Colorectal Neoplasms/diagnosis , Early Detection of Cancer/methods , Internet-Based Intervention , Telephone , Aged , Breast Neoplasms/economics , Breast Neoplasms/epidemiology , Colorectal Neoplasms/economics , Colorectal Neoplasms/epidemiology , Cost-Benefit Analysis , Early Detection of Cancer/economics , Early Detection of Cancer/statistics & numerical data , Female , Humans , Internet-Based Intervention/economics , Internet-Based Intervention/statistics & numerical data , Middle Aged , Patient Compliance/statistics & numerical data , Patient Education as Topic/economics , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Patient Participation/economics , Patient Participation/statistics & numerical data , Patient Selection , Reminder Systems/economics , Surveys and Questionnaires , Telephone/economics , United States/epidemiology
13.
Adv Skin Wound Care ; 34(8): 403-410, 2021 Aug 01.
Article in English | MEDLINE | ID: mdl-34260418

ABSTRACT

GENERAL PURPOSE: To educate wound care practitioners about methods of communication that can help promote patient adherence to wound healing recommendations. TARGET AUDIENCE: This continuing education activity is intended for physicians, physician assistants, nurse practitioners, and nurses with an interest in skin and wound care. LEARNING OBJECTIVES/OUTCOMES: After participating in this educational activity, the participant will:1. Distinguish the use of theoretical frameworks to promote patient adherence to prescribed wound healing recommendations.2. Synthesize the principles of motivational interviewing to best encourage patients to adhere to prescribed wound healing recommendations.3. Select the appropriate self-care strategies for patients who have nonhealing wounds.


Patients with chronic wounds make daily decisions that affect healing and treatment outcomes. Patient-centered education for effective self-management decreases episodes of care and reduces health expenditures while promoting independence. Theoretical frameworks, including the Health Belief Model, Theory of Planned Behavior, Social Cognitive Theory, and Transtheoretical Model of Behavior Change, can assist healthcare providers in identifying strategies that enhance adherence. These strategies include the use of motivational interviewing, a communication technique designed to elicit patients' perspectives regarding treatment goals, outcome expectations, anticipated barriers, and intentions to follow provider recommendations.


Subject(s)
Patient Education as Topic/standards , Patient-Centered Care/standards , Wound Healing , Humans , Outcome Assessment, Health Care/methods , Outcome Assessment, Health Care/statistics & numerical data , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Patient-Centered Care/methods , Professional-Patient Relations , Treatment Adherence and Compliance/psychology
14.
Laryngoscope ; 131(10): 2384-2390, 2021 10.
Article in English | MEDLINE | ID: mdl-34152601

ABSTRACT

OBJECTIVES: Numerous therapies exist for adult obstructive sleep apnea (OSA), creating potential for patient decisional conflict (DC) that impacts treatment adherence and post-treatment regret. We evaluated the prevalence of elevated DC in OSA patients presenting for positive airway pressure (PAP) alternative therapies and identified gaps in available resources about OSA therapies. STUDY DESIGN: Cross-sectional study. METHODS: A cross-sectional study was performed based on questionnaires completed by adult OSA patients presenting to an academic sleep surgery clinic from March to October 2020. Surveys examined sleep symptoms, sleep apnea treatment history, goals of therapy, and the SURE checklist, a validated 4-item DC screening scale. Additional qualitative data about OSA decision tool needs were queried with structured interviews in a smaller subset of patients. RESULTS: Among 100 respondents, 60 were open to multiple treatment options, whereas 22 were not interested in surgical treatment. Eighty-one respondents (81%) had elevated DC (SURE score < 4). High DC was not associated with CPAP history, OSA severity, or daytime sleepiness (Epworth Sleepiness Scale score ≥ 10). Elevated DC was related to uncertainty regarding optimal treatment choice in 54% of respondents (n = 54), and lack of knowledge regarding risks and benefits of each treatment option in 71% (n = 71). Common themes identified in 9 interviewed patients suggested helpful resources should ideally compare treatment modalities and educate on surgery details, efficacy, and recovery. CONCLUSIONS: The majority of OSA patients presenting to sleep surgery clinics have elevated decisional conflict influenced by limited knowledge about options and the risks and benefits of each therapy. There is a need for decision tools that can reduce decisional conflict and promote equitable knowledge about PAP alternative OSA treatments. LEVEL OF EVIDENCE: 4 Laryngoscope, 131:2384-2390, 2021.


Subject(s)
Continuous Positive Airway Pressure/adverse effects , Decision Making , Health Knowledge, Attitudes, Practice , Patient Education as Topic/statistics & numerical data , Sleep Apnea, Obstructive/therapy , Adult , Aged , Continuous Positive Airway Pressure/economics , Continuous Positive Airway Pressure/statistics & numerical data , Cross-Sectional Studies , Emotions , Female , Humans , Male , Middle Aged , Quality of Life , Referral and Consultation/statistics & numerical data , Sleep Apnea, Obstructive/economics , Sleep Apnea, Obstructive/psychology , Surveys and Questionnaires/statistics & numerical data , Treatment Outcome
15.
Postgrad Med ; 133(8): 964-973, 2021 Nov.
Article in English | MEDLINE | ID: mdl-34180349

ABSTRACT

Objective: The study aimed to evaluate the improvement of patient knowledge of warfarin use, satisfaction with pharmacists, and the quality of international normalized ratio (INR) control after the implementation of an anticoagulant clinic (ACC) service.Methods: This was a prospective single-group pre- and post-comparison study. Patients who were at least 20 years of age and participated in a pharmacist-managed ACC service were enrolled from February 2012 to September 2015. Each participant completed a self-administered questionnaire before and after the ACC service to evaluate changes in warfarin knowledge. Another questionnaire was distributed after the ACC to evaluate participants' satisfaction with the pharmacist service in the ACC. The INR levels before and after the ACC intervention were obtained to calculate the proportion of time spent in the therapeutic INR range (time in therapeutic range, TTR). Paired t-tests were used to compare changes in participants' knowledge related to warfarin use. Multiple linear regressions were performed to explore the predictors associated with the participants' knowledge scores and TTR after the ACC intervention.Results: One hundred and forty-eight participants were enrolled in this study. A significant improvement (31.5%,p<0.001) in the knowledge of warfarin use was observed at the end of the ACC intervention. The interaction between warfarin and food was the most confusing factor for participants in warfarin use. More than 95% of the participants perceived a positive value of the pharmacist-managed ACC service. However, the consultation fee was the least satisfactory of the ACC service. The average TTR increased from 51.0±34.3% to 78.6±24.5% (p<0.001) after the ACC service was implemented. Participants' education levels and baseline knowledge scores were significant determinants associated with the knowledge improvement in the appropriate warfarin use (p<0.001).Conclusions: A pharmacist-managed ACC improved patient knowledge of warfarin use and INR control, and led to high satisfaction with the pharmacist service in the ACC in Taiwan. Pharmacists should focus on patients with lower education levels to facilitate their understanding of the appropriate warfarin use for better health outcomes.


Subject(s)
Ambulatory Care Facilities/organization & administration , Anticoagulants/therapeutic use , Patient Education as Topic/statistics & numerical data , Patient Satisfaction/statistics & numerical data , Pharmaceutical Services/organization & administration , Thrombosis/drug therapy , Warfarin/therapeutic use , Adult , Aged , Aged, 80 and over , Ambulatory Care Facilities/statistics & numerical data , Female , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Pharmaceutical Services/statistics & numerical data , Prospective Studies , Taiwan , Young Adult
16.
Adv Skin Wound Care ; 34(6): 314-320, 2021 Jun 01.
Article in English | MEDLINE | ID: mdl-33979820

ABSTRACT

OBJECTIVE: To analyze the content, reliability, and quality of the most viewed YouTube videos targeting patients with ostomies intending to learn about ostomy care (OC). METHODS: Using the keywords "stoma care," "colostomy care," and "ileostomy care," researchers assessed the publicly visible English-language ostomy patient education videos available on YouTube. A total of 84 videos were independently analyzed by two physicians experienced in OC. Data on video characteristics, source, content, reliability, and quality were collected and recorded for each video separately. RESULTS: Of the 84 videos analyzed, 49 were classified as useful (58.33%) and 35 as misleading (41.66%). There were statistically significant differences between the groups in terms of the time elapsed since upload (P < .017), reliability (P < .001), comprehensiveness (P < .001), Global Quality Scale scores (P < .001), source (P < .001), and lecturer types (P < .011). The reliability, comprehensiveness, and Global Quality Scale scores were statistically higher for videos uploaded by universities, professional healthcare communities, and nonprofit physicians (P < .001). However, the popularity of the OC videos posted on YouTube was not related to their reliability, comprehensiveness, or quality. CONCLUSIONS: The open-access nature of the YouTube platform may impair patient education video quality and accuracy. YouTube may be an additional educational tool for OC, but clinicians need to be familiar with specific and reliable resources to guide and educate new patients with ostomies to achieve the best outcomes.


Subject(s)
Ostomy/methods , Patient Education as Topic/standards , Social Media/standards , Videotape Recording/standards , Humans , Information Dissemination/methods , Ostomy/adverse effects , Ostomy/psychology , Patient Education as Topic/methods , Patient Education as Topic/statistics & numerical data , Qualitative Research , Reproducibility of Results , Social Media/statistics & numerical data , Statistics, Nonparametric , Videotape Recording/statistics & numerical data
17.
Ultrasound Obstet Gynecol ; 57(5): 687-697, 2021 05.
Article in English | MEDLINE | ID: mdl-33724545

ABSTRACT

Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is a zoonotic coronavirus that crossed species to infect humans, causing coronavirus disease 2019 (COVID-19). Despite a potentially higher risk of pregnant women acquiring SARS-CoV-2 infection compared with the non-pregnant population (particularly in some ethnic minorities), no additional specific recommendations to avoid exposure are needed in pregnancy. The most common clinical symptoms and laboratory signs of SARS-CoV-2 infection in pregnancy are fever, cough, lymphopenia and elevated C-reactive protein levels. Pregnancy is associated with a higher risk of severe SARS-CoV-2 infection compared with the non-pregnant population, including pneumonia, admission to the intensive care unit and death, even after adjusting for potential risk factors for severe outcomes. The risk of miscarriage does not appear to be increased in women with SARS-CoV-2 infection. Evidence with regards to preterm birth and perinatal mortality is conflicting, but these risks are generally higher only in symptomatic, hospitalized women. The risk of vertical transmission, defined as the transmission of SARS-CoV-2 from the mother to the fetus or the newborn, is generally low. Fetal invasive procedures are considered to be generally safe in pregnant women with SARS-CoV-2 infection, although the evidence is still limited. In pregnant women with COVID-19, use of steroids should not be avoided if clinically indicated; the preferred regimen is a 2-day course of dexamethasone followed by an 8-day course of methylprednisolone. Non-steroidal anti-inflammatory drugs may be used if there are no contraindications. Hospitalized pregnant women with severe COVID-19 should undergo thromboprophylaxis throughout the duration of hospitalization and at least until discharge, preferably with low molecular weight heparin. Hospitalized women who have recovered from a period of serious or critical illness with COVID-19 should be offered a fetal growth scan about 14 days after recovery from their illness. In asymptomatic or mildly symptomatic women who have tested positive for SARS-CoV-2 infection at full term (i.e. ≥ 39 weeks of gestation), induction of labor might be reasonable. To date, there is no clear consensus on the optimal timing of delivery for critically ill women. In women with no or few symptoms, management of labor should follow routine evidence-based guidelines. Regardless of COVID-19 status, mothers and their infants should remain together and breastfeeding, skin-to-skin contact, kangaroo mother care and rooming-in throughout the day and night should be practiced, while applying necessary infection prevention and control measures. Many pregnant women have already undergone vaccination, mostly in the USA where the first reports show no significant difference in pregnancy outcomes in pregnant women receiving SARS-CoV-2 vaccination during pregnancy compared with the background risk. Vaccine-generated antibodies were present in the umbilical cord blood and breast milk samples of pregnant and lactating women who received the mRNA COVID-19 vaccine. Based on the available limited data on the safety of the COVID-19 vaccine in pregnancy, it seems reasonable to offer the option of vaccination to pregnant women after accurate counseling on the potential risk of a severe course of the disease and the unknown risk of fetal exposure to the vaccine. © 2021 International Society of Ultrasound in Obstetrics and Gynecology.


Subject(s)
COVID-19 Vaccines/therapeutic use , COVID-19/prevention & control , Counseling/statistics & numerical data , Infectious Disease Transmission, Vertical/prevention & control , Patient Education as Topic/statistics & numerical data , Pregnancy Complications, Infectious/prevention & control , Adult , Female , Humans , Infant, Newborn , Pregnancy , Pregnancy Outcome/epidemiology
18.
Cancer Control ; 28: 1073274821989709, 2021.
Article in English | MEDLINE | ID: mdl-33563050

ABSTRACT

The 2019 novel coronavirus (COVID-19) pandemic has prompted the reorganization in the scheduling and method of care for many patients, including patients diagnosed with cancer. Cancer patients, who have an immunocompromised status, may be at a higher risk of severe symptoms from infection with COVID-19. While information is rapidly evolving regarding COVID-19, Canada, both nationally and provincially, has been conveying new information to patients online. We assessed the content and readability of COVID-19-related online Canadian patient education material (PEM) for cancer patients to determine if the content of the material was written at a grade reading level that the majority of Canadians can understand. PEMs were extracted from provincial cancer agencies and the national Canadian Cancer Society, evaluated using 10 readability scales, qualitatively analyzed to identify their themes and difficult word content. Thirty-eight PEMs from both national and provincial cancers associations were, on average, written above the recommended 7th grade level. Each of the associations' average grade levels were: BC Cancer (11.00 95% confidence interval [CI] 8.27-13.38), CancerControl Alberta (10.46 95% CI 8.29-12.62), Saskatchewan Cancer Agency (11.08 95% CI 9.37-12.80), Cancer Care Manitoba (9.55 95% CI 6.02-13.01), Cancer Care Ontario (9.35 95% CI 6.80-11.90), Cancer Care Nova Scotia (10.95 95% CI 9.86-12.04), Cancer Care Eastern Health Newfoundland and Labrador (10.14 95% CI 6.87-13.41), and the Canadian Cancer Society (10.06 95% CI 8.07-12.05). Thematic analysis identified 4 themes: public health strategy, information about COVID-19, patient instructions during COVID-19, and resources. Fifty-three percent of the complex words identified were medical jargon. This represents an opportunity to improve PEM readability, to allow for greater comprehension amongst a wider target audience.


Subject(s)
COVID-19/prevention & control , Health Services , Medical Oncology/methods , Neoplasms/therapy , Patient Education as Topic/methods , SARS-CoV-2/isolation & purification , COVID-19/epidemiology , COVID-19/virology , Canada , Comprehension , Health Literacy , Humans , Neoplasms/diagnosis , Pandemics , Patient Education as Topic/statistics & numerical data , Patient Education as Topic/trends , Reading , SARS-CoV-2/physiology
19.
J Pediatr ; 233: 212-219.e1, 2021 06.
Article in English | MEDLINE | ID: mdl-33524388

ABSTRACT

OBJECTIVES: To portray physician office visits by young Americans with chronic musculoskeletal pain; to describe clinical management in this group; and to explore factors associated with prescribed treatments. STUDY DESIGN: Using nationally representative data of ambulatory physician office visits (2007-2015 United States National Ambulatory Medical Care Survey), we identified and cross-sectionally analyzed visits by persons <25 years of age diagnosed with a chronic musculoskeletal pain condition. RESULTS: There were 28.6 million visits over the 9-year period for chronic musculoskeletal pain for persons <25 years of age, (average 3.2 million visits/year). There were more visits among older age groups, female persons, non-Hispanic White ethnicity/race, and those with more medical visits in the past year. Nonopioid medications were the most frequent treatments in all age groups (range 38.5%-48.8%). Opioids were rarely prescribed for children and adolescents but were prescribed in 23% of visits among young adults (18-24 years of age). Health education and counseling were consistently prescribed at 20% of visits and physical therapy (range 9.5%-23.7%) and other treatments were less frequently prescribed. Age, sex, payment source, and physician specialty were associated with various treatments. CONCLUSION: There were over 3 million annual visits for chronic musculoskeletal pain in young Americans; these increased with age. Pharmacologic treatment is used more than nonpharmacologic approaches, and opioid prescribing in the 18- to 24-year-old age group approaches estimates in adults with musculoskeletal pain.


Subject(s)
Chronic Pain/drug therapy , Musculoskeletal Pain/drug therapy , Practice Patterns, Physicians'/statistics & numerical data , Adolescent , Adult , Analgesics, Opioid/therapeutic use , Anti-Inflammatory Agents, Non-Steroidal/therapeutic use , Antidepressive Agents/therapeutic use , Chronic Pain/epidemiology , Counseling/statistics & numerical data , Female , Health Care Surveys , Humans , Male , Musculoskeletal Pain/epidemiology , Office Visits/statistics & numerical data , Patient Education as Topic/statistics & numerical data , United States/epidemiology , Young Adult
20.
J Asthma ; 58(2): 262-270, 2021 02.
Article in English | MEDLINE | ID: mdl-31621438

ABSTRACT

Background: To investigate HL (health literacy) and eHealth literacy (eHL) among two groups of asthma outpatients, those with prior asthma education and those without. In addition, we aimed to compare two shortened versions of a HL measure instrument.Methods: A cross-sectional survey was conducted with a sample of adult asthma patients (n = 129). Half of them had received asthma patient education prior to the study (n = 64). The study collected demographic data, questions on HL (HLS-EU-Q16) and eHL (eHEALS).Results: In the main analysis respondents' mean HL values were almost identical in both groups, 11.9 (SD = 3.1) among trained and 11.8 (SD = 3.5) among untrained patients, demonstrating a problematic level of HL, according to the instrument. In the subdivision of sum scores, the HL level of trained patients was categorized more often as problematic (43%) than among untrained patients (20%). Bland-Altman plots of the 6-item and 16-item versions of the HLS-EU suggest only limited agreement between the versions. In terms of eHL, trained patients showed a mean of 3.0 (SD = 1.1) and untrained patients a mean of 3.2 (SD = 1.0). Analysis of HL and eHL showed no difference between groups.Conclusions: No consistent differences between groups were found, suggesting that trained patients did not benefit from asthma education regarding HL and eHL. The 6-item and 16-item versions of the HLS-EU were not easily interchangeable, limiting its use in a busy outpatient practice.AbbreviationseHEALSElectronic Health Literacy ScaleeHLElectronic Health Literacy HLS-EUEuropean Health Literacy Survey.


Subject(s)
Asthma/epidemiology , Health Literacy/statistics & numerical data , Patient Education as Topic/statistics & numerical data , Surveys and Questionnaires/standards , Telemedicine/statistics & numerical data , Adult , Aged , Animals , Cross-Sectional Studies , Female , Health Knowledge, Attitudes, Practice , Humans , Male , Middle Aged , Psychometrics , Reproducibility of Results , Severity of Illness Index , Socioeconomic Factors
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