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2.
Rev Esc Enferm USP ; 50(4): 635-641, 2016.
Article in English, Portuguese | MEDLINE | ID: mdl-27680050

ABSTRACT

OBJECTIVES: To assess the impact of promoting self-care in nursing workload and associate it to the variables: age, gender, socioeconomic status, education, marital status and number of children of caregivers. METHODS: Prospective study with 31 children and their caregivers. Participants were assessed at two moments, 1st and 2nd hospitalization, the nursing workload was measured by the Nursing Activities Score (NAS). RESULTS: The mean NAS in the 1st hospitalization was 60.9% and in the 2nd hospitalization was 41.6%, that is, 14.6 and 9.9 hours of nursing, respectively. The nursing workload on the first day of hospitalization was higher compared to the last day, both for the 1st (p<0.001) and for the 2nd hospitalization (p<0.001), and higher in the first (p<0.001) and in the last day (p=0.025) in the 1st hospitalization. Comparing the 1st hospitalization to the 2nd hospitalization, the first was higher (p<0.001), and NAS items related to the training of self-care was influenced (p<0.001). CONCLUSION: The nursing workload associated to self-care promotion corresponded to 14.6 hours and was higher than determined by the existing legislation. OBJETIVOS: Verificar o impacto da promoção do autocuidado na carga de trabalho de enfermagem e associá-la às variáveis: idade, gênero, classificação socioeconômica, escolaridade, estado civil e número de filhos dos cuidadores. MÉTODO: Estudo prospectivo, onde participaram 31 crianças e seus respectivos cuidadores. Os participantes foram avaliados em dois momentos, 1ª e 2ª internação, quanto à carga de trabalho de enfermagem mensurada por meio do Nursing Activities Score (NAS). RESULTADOS: A média NAS na 1ª internação foi de 60,9%, e na 2ª internação foi de 41,6%, ou seja, 14,6 e 9,9 horas de enfermagem, respectivamente. A carga de trabalho de enfermagem no primeiro dia de internação foi maior quando comparada ao último dia, tanto na 1ª (p<0,001) como na 2ª internação (p<0,001), e maior no primeiro (p<0,001) e último dia (p=0,025) na 1ª internação. Ainda, na 1ª internação, foi maior quando comparada à 2ª internação (p<0,001), e os itens NAS referentes à capacitação do autocuidado a influenciaram (p<0,001). CONCLUSÃO: A carga de trabalho de enfermagem referente à promoção do autocuidado correspondeu a 14,6 horas e foi superior ao determinado pela legislação existente.


Subject(s)
Caregivers , Nursing , Pierre Robin Syndrome/nursing , Self Care/statistics & numerical data , Workload , Female , Humans , Infant , Infant, Newborn , Male , Prospective Studies , Young Adult
3.
Rev. Esc. Enferm. USP ; 50(4): 635-641, July-Aug. 2016. tab
Article in English | LILACS, BDENF - Nursing | ID: lil-794940

ABSTRACT

Abstract OBJECTIVES To assess the impact of promoting self-care in nursing workload and associate it to the variables: age, gender, socioeconomic status, education, marital status and number of children of caregivers. METHODS Prospective study with 31 children and their caregivers. Participants were assessed at two moments, 1st and 2nd hospitalization, the nursing workload was measured by the Nursing Activities Score (NAS). RESULTS The mean NAS in the 1st hospitalization was 60.9% and in the 2nd hospitalization was 41.6%, that is, 14.6 and 9.9 hours of nursing, respectively. The nursing workload on the first day of hospitalization was higher compared to the last day, both for the 1st (p<0.001) and for the 2nd hospitalization (p<0.001), and higher in the first (p<0.001) and in the last day (p=0.025) in the 1st hospitalization. Comparing the 1st hospitalization to the 2nd hospitalization, the first was higher (p<0.001), and NAS items related to the training of self-care was influenced (p<0.001). CONCLUSION The nursing workload associated to self-care promotion corresponded to 14.6 hours and was higher than determined by the existing legislation.


Resumen OBJETIVOS Verificar el impacto de la promoción del autocuidado en la carga laboral de enfermería y asociarla con las variables: edad, género, clasificación socioeconómica, escolaridad, estado civil y número de hijos de los cuidadores. MÉTODO Estudio prospectivo, en el que participaron 31 niños y sus respectivos cuidadores. Los participantes fueron evaluados en dos momentos, 1ª y 2ª hospitalización, en cuanto a la carga laboral de enfermería medida por medio del Nursing Activities Score (NAS). RESULTADOS El promedio NAS en la 1ª hospitalización fue del 60,9% y, en la 2ª, fue del 41,6%, es decir, 14,6 y 9,9 horas de enfermería, respectivamente. La carga de trabajo de enfermería el primer día de hospitalización fue mayor cuando comparada con el último día, tanto en la 1ª (p<;0,001) como en la 2ª hospitalización (p<;0,001), y mayor el primero (p<;0,001) y último día (p=0,025) en la 1ª hospitalización. En la 1ª hospitalización fue aún mayor cuando comparada con la 2ª hospitalización (p<;0,001), y los ítems NAS referentes a la capacitación del autocuidado la influenciaron (p<;0,001). CONCLUSIÓN La carga laboral de enfermería referente a la promoción del autocuidado correspondió a 14,6 horas y fue superior a lo determinado por la legislación existente.


Resumo OBJETIVOS Verificar o impacto da promoção do autocuidado na carga de trabalho de enfermagem e associá-la às variáveis: idade, gênero, classificação socioeconômica, escolaridade, estado civil e número de filhos dos cuidadores. MÉTODO Estudo prospectivo, onde participaram 31 crianças e seus respectivos cuidadores. Os participantes foram avaliados em dois momentos, 1ª e 2ª internação, quanto à carga de trabalho de enfermagem mensurada por meio do Nursing Activities Score (NAS). RESULTADOS A média NAS na 1ª internação foi de 60,9%, e na 2ª internação foi de 41,6%, ou seja, 14,6 e 9,9 horas de enfermagem, respectivamente. A carga de trabalho de enfermagem no primeiro dia de internação foi maior quando comparada ao último dia, tanto na 1ª (p<0,001) como na 2ª internação (p<0,001), e maior no primeiro (p<0,001) e último dia (p=0,025) na 1ª internação. Ainda, na 1ª internação, foi maior quando comparada à 2ª internação (p<0,001), e os itens NAS referentes à capacitação do autocuidado a influenciaram (p<0,001). CONCLUSÃO A carga de trabalho de enfermagem referente à promoção do autocuidado correspondeu a 14,6 horas e foi superior ao determinado pela legislação existente.


Subject(s)
Humans , Male , Female , Infant, Newborn , Infant , Young Adult , Pierre Robin Syndrome/nursing , Self Care , Nursing , Workload , Caregivers , Prospective Studies
4.
Soins Pediatr Pueric ; (254): 40-2, 2010.
Article in French | MEDLINE | ID: mdl-20518244

ABSTRACT

Taking care of a newborn suffering from dysmorphism tests nurses' professional ethics. Lack of awareness of the pathology and professional fragility can fuel the healthcare worker's moral conflict. A study carried out in neonatology shows that the phantasmagoric imaginations of the healthcare worker heighten the unease while training and service culture contributes to self understanding and the easing of tensions.


Subject(s)
Attitude of Health Personnel , Nursing Staff, Hospital/psychology , Pierre Robin Syndrome/nursing , Adaptation, Psychological , Conflict, Psychological , Humans , Infant, Newborn , Morals , Neonatal Nursing/ethics , Neonatal Nursing/methods , Nursing Methodology Research , Nursing Staff, Hospital/ethics , Qualitative Research , Surveys and Questionnaires
5.
Cleft Palate Craniofac J ; 44(3): 269-73, 2007 May.
Article in English | MEDLINE | ID: mdl-17477753

ABSTRACT

OBJECTIVE: This unit has reported management of infants with Pierre Robin Sequence (PRS) and upper airway obstruction using nasopharyngeal airways and nutritional support until enough growth takes place for the infant to thrive. There was a mean hospital stay of 60 days. This long in-patient stay prompted review of our management protocols and consideration of treatment at home. This paper reports our experience of managing infants with PRS at home using a nasopharyngeal airway and nasogastric feeding tube and reviews whether such management reduces in-patient stay while remaining safe and effective. DESIGN: Retrospective review of cases referred over a 3.5-year period. Comparison is made with the unit's previously published results. PATIENTS: Thirteen PRS infants were referred to the West Midlands Regional Cleft service and required transfer to Birmingham Children's Hospital for specialist assessment and airway control. INTERVENTIONS: The parents of 12 infants underwent training to manage the airway and feeding tube. Treatment then continued at home. OUTCOME MEASURES: In-patient episode, rate of weight gain, and complication rate were used. RESULTS: The median hospital stay was 19.5 days compared to 54 days previously. The median rate of weight gain was 34 g/d. There were no complications or readmissions. CONCLUSION: This series demonstrates the revised management protocol followed has reduced in-patient stays and remained effective, with infants continuing to thrive after discharge home, and has a low complication rate.


Subject(s)
Airway Obstruction/therapy , Enteral Nutrition/methods , Home Nursing/methods , Intubation, Intratracheal/methods , Pierre Robin Syndrome/therapy , Airway Obstruction/nursing , Cleft Palate/etiology , Cleft Palate/nursing , Cleft Palate/therapy , Enteral Nutrition/instrumentation , Humans , Infant , Infant, Newborn , Intubation, Gastrointestinal , Intubation, Intratracheal/instrumentation , Length of Stay , Pierre Robin Syndrome/complications , Pierre Robin Syndrome/nursing , Retrospective Studies , Treatment Outcome
6.
J Pediatr Nurs ; 16(1): 23-34, 2001 Feb.
Article in English | MEDLINE | ID: mdl-11247521

ABSTRACT

Pierre Robin sequence (PRS) is associated with long-term respiratory, nutritional, and developmental difficulties. Hypoxic complications, including cerebral impairment, cor pulmonale, and failure to thrive may be prevented or minimized with early detection and comprehensive care. This article reviews the embryological development of PRS and outlines the medical and nursing implications for treatment. Partnership with parents and a coordinated community care team are essential for successful management of infants and children with PRS.


Subject(s)
Nursing Assessment , Patient Care Planning , Pierre Robin Syndrome/nursing , Airway Obstruction/prevention & control , Humans , Infant , Infant Nutritional Physiological Phenomena , Infant, Newborn , Parenting , Patient Care Team , Pierre Robin Syndrome/diagnosis , Pierre Robin Syndrome/embryology , Pierre Robin Syndrome/physiopathology , Social Support
7.
Neonatal Netw ; 18(5): 13-9, 1999 Aug.
Article in English | MEDLINE | ID: mdl-10693474

ABSTRACT

The label Pierre Robin sequence is given to infants presenting with a triad of specific congenital anomalies: micrognathia, glossoptosis, and cleft palate. However, this label should be considered the first, not the final, step in the diagnostic process. In approximately 80 percent of newborns with Pierre Robin sequence, the triad of anomalies is part of an underlying genetic condition. This article reviews the variable etiologies of and general clinical considerations for Pierre Robin sequence. To illustrate how clinical management might vary based on the identification of an underlying condition, three case examples of neonates with Pierre Robin sequence and different underlying genetic conditions are presented.


Subject(s)
Neonatal Nursing/methods , Pierre Robin Syndrome/genetics , Pierre Robin Syndrome/nursing , Female , Humans , Infant, Newborn , Information Services , Internet , Male , Pedigree , Pierre Robin Syndrome/diagnosis , Self-Help Groups
8.
Plast Surg Nurs ; 17(1): 8-10, 15, 1997.
Article in English | MEDLINE | ID: mdl-9171696

ABSTRACT

Robin sequence is the combination of micrognathia (small jaw), retrognathia (posterior displacement of the chin) and glossoptosis (falling backward of the tongue) in newborns, and is often found in combination with clefting of the palate. Mandibular elongation by bone distraction, described in this article, is one treatment for mandibular hypoplasia with Robin sequence.


Subject(s)
Mandible/surgery , Mandibular Advancement/methods , Pierre Robin Syndrome/surgery , Child, Preschool , Female , Humans , Intraoperative Care , Mandibular Advancement/nursing , Pierre Robin Syndrome/nursing , Postoperative Care , Preoperative Care
10.
J Perinatol ; 15(5): 395-7, 1995.
Article in English | MEDLINE | ID: mdl-8576754

ABSTRACT

Airway obstruction and feeding difficulty associated with Robin sequence may be difficult management problems that require invasive therapeutic measures. We present two cases of infants with airway obstruction who were treated successfully as outpatients by placement of a nasogastric tube for airway maintenance and supplementation of oral feeding. In patients with Robin sequence who have upper airway obstruction and feeding difficulties not resolved by prone positioning, placement of an indwelling nasogastric tube should be considered before an invasive surgical procedure is undertaken.


Subject(s)
Airway Obstruction/therapy , Eating , Intubation, Gastrointestinal , Pierre Robin Syndrome/therapy , Humans , Infant, Newborn , Male , Pierre Robin Syndrome/nursing
16.
Clin Pediatr (Phila) ; 19(8): 519-21, 525-8, 1980 Aug.
Article in English | MEDLINE | ID: mdl-6771083

ABSTRACT

Congenital micrognathia and secondary glossoptosis, with or without cleft palate, constitute the Robin anomaly. Neonates with this condition are usually at great risk for life-threatening respiratory and feeding problems. The approach to the management of infants with this condition has included, in order of increasing complexity, positioning of the patient, surgical tongue-lip adhesion and tracheostomy. Because of dissatisfaction with the effectiveness of surgical tongue-lip adhesion, and a desire to avoid performing a tracheostomy, a trial of intense non-surgical management was instituted. Ten consecutive patients admitted to the Boston Floating Hospital with Robin anomaly were treated successfully by positioning, without requiring tongue-lip adhesion or tracheostomy. Medical management procedures are outlined and discussed.


Subject(s)
Pierre Robin Syndrome/therapy , Boston , Bottle Feeding , Enteral Nutrition , Growth , Humans , Infant, Newborn , Intubation, Intratracheal , Length of Stay , Lip/surgery , Pierre Robin Syndrome/nursing , Posture , Tongue/surgery , Tracheotomy
19.
Nurs Mirror Midwives J ; 143(13): 49-52, 1976 Sep 23.
Article in English | MEDLINE | ID: mdl-1049094
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