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4.
Soc Work ; 64(4): 321-328, 2019 Oct 31.
Article in English | MEDLINE | ID: mdl-31566240

ABSTRACT

Modern technology threatens to dramatically alter the U.S. labor economy, but the crumbling social safety net may be insufficient for affected workers. Some advocates propose to address these converging problems through universal basic income (UBI). Authors conducted a preliminary review of social work perspectives on the topic of UBI. They found very little relevant literature, especially among American scholars. Existent social work literature frames UBI as an alternative to the neoliberal welfare state and mass unemployment. Social workers also contribute a critical social justice orientation to UBI scholarship in other disciplines. Grounded in the NASW Code of Ethics, authors argue that it is imperative for American social workers to seriously consider UBI as an answer to growing inequality and the unique expertise that social workers offer as allies of marginalized populations.


Subject(s)
Income , Poverty/ethics , Public Policy , Social Justice/ethics , Social Workers/psychology , Humans , Morals , Poverty/economics , Poverty/prevention & control , Social Welfare/economics , Social Welfare/ethics , Social Work/ethics , United States , Universal Design
5.
AMA J Ethics ; 21(9): E801-805, 2019 09 01.
Article in English | MEDLINE | ID: mdl-31550229

ABSTRACT

In clinical settings, exploitation of patients who live in poverty can be exacerbated when health professions students' educational goals are overemphasized relative to patients' and communities' needs. Continuity of care relies on health system infrastructure and its capacity to keep patients engaged. Achieving just health care delivery in domestic and international settings requires balancing students', patients', and communities' interests. This article examines how students' interests in learning should be considered relative to patients' and communities' interests in receiving quality care.


Subject(s)
Education, Medical/ethics , Poverty/ethics , Education, Medical/standards , Humans , Patient Care Team/ethics , Patient Care Team/standards , Quality of Health Care/ethics , Quality of Health Care/standards , Students, Medical
6.
AMA J Ethics ; 21(8): E654-660, 2019 08 01.
Article in English | MEDLINE | ID: mdl-31397660

ABSTRACT

State Medicaid programs have proposed closed formularies to limit spending on drugs. Closed formularies can be justified when they enable spending on other socially valuable aims. However, it is still necessary to justify guidelines informing formulary design, which can be done through a process of decision making that includes the public. This article examines criticisms that Medicaid closed formularies limit deliberation about decisions that affect drug access and unfairly disadvantage poor patients. Although unfairness to poor patients is a risk, it is not a problem unique to Medicaid, since private insurance programs have also implemented closed formularies.


Subject(s)
Formularies as Topic , Medicaid/ethics , Prescription Drugs/economics , Social Responsibility , Social Values , Poverty/ethics , United States
7.
BMC Public Health ; 19(1): 1133, 2019 Aug 17.
Article in English | MEDLINE | ID: mdl-31420030

ABSTRACT

BACKGROUND: Approximately one billion children experience violence every year. Violence against children is an urgent global public health concern and violation of children's rights. It is also a risk factor for serious negative health and social outcomes and is therefore addressed within the Sustainable Development Goals (SDGs). Children with disabilities, who make up one in 20 children worldwide, are particularly vulnerable to violence although good quality data are lacking on causes and means of prevention of violence against children with disabilities. Key challenges exist in the measurement of disability and violence, which in part explains the dearth in evidence. IMPROVING RESEARCH ON VIOLENCE AGAINST CHILDREN WITH DISABILITIES: This paper provides guidance on how to conduct good quality, ethical, and inclusive research on violence against children with disabilities, particularly in low-income settings. The lack of an international agreed 'gold standard' frustrates efforts to measure violence across settings and time. Careful consideration must be given to the design of survey tools. Qualitative and participatory research methods also offer important opportunities to explore children's subjective understanding and experiences of violence. Challenges also exist around the measurement of disability. Disability may be measured by asking directly about disability, through self-reported functioning, or through the presence of impairments or health conditions. These approaches have strengths and limitations and should build on what children are able to do and include appropriate adaptations for specific impairments where necessary. Ethical research also requires adherence to ethical guidelines and approvals, obtaining informed consent, appropriate child protection responses, and careful consideration of interviewer-related issues including their selection, training, and welfare. Key methodological gaps remain - how to include children with severe communication challenges in research; how to respond in instances of weak child protection systems; designing sampling procedures that adequately represent children with disabilities in large-scale violence surveys; and determining how best to ask about violence safely in large-scale surveys and monitoring data. This paper further advocates for the dissemination of research results in inclusive and accessible formats. CONCLUSION: With careful planning, challenges in collecting data on disability and violence can be overcome to generate evidence in this neglected area.


Subject(s)
Disabled Children , Ethics, Research , Research Design , Research Subjects , Violence/ethics , Child , Humans , Poverty/ethics
9.
Soc Work ; 64(3): 259-269, 2019 Jul 02.
Article in English | MEDLINE | ID: mdl-31190070

ABSTRACT

As defined by the International Federation of Social Workers, social work is a human rights profession. This is explicitly stated in the professional codes of ethics in many nations. However, the most recent version of the Code of Ethics of the National Association of Social Workers continues to exclude any mention of human rights, fitting in with the history of U.S. exceptionalism on this subject. Social workers around the world have a long history of working for the achievement of human rights, including an explicit grounding of practice in human rights principles: human dignity, nondiscrimination, participation, transparency, and accountability. Utilizing these principles, U.S. social workers can move from the deficit model of the needs-based approach to competently contextualizing individual issues in their larger human rights framework. In this way, social work can address larger social problems and make way for the concurrent achievement of human rights. This article explains these principles and provides a case example of how to apply them in practice.


Subject(s)
Ethics, Professional , Human Rights/ethics , Poverty/psychology , Social Work/ethics , Adult , Capacity Building/ethics , Empowerment , Female , Humans , Poverty/ethics , Professional Practice , Racism/ethics , Rehabilitation, Vocational/ethics , United States
10.
Br J Sociol ; 70(5): 1661-1680, 2019 Dec.
Article in English | MEDLINE | ID: mdl-30945273

ABSTRACT

This article uses ethnographic data to engage a critical reflection on the tension between individual responsibility for the environment and inequality. While research has shown that the majority of sustainable consumers are middle and upper class, educated and white individuals, the study explores how the ethical injunction to ecological sustainability is being introduced to lower-income neighbourhoods in France. It draws on the observation of a national programme which aims at supporting inhabitants of public housing estates in the process of greening their lifestyle in order to fight climate change and fuel poverty. The paper analyses how environmental responsibilization is specific in that it calls upon a responsibility towards others, towards the common good. Using the Foucauldian concept of 'subjectivation', it describes and analyses the moral work implied by such behaviour change programmes. It demonstrates that a negative representation of poor households and a moral framing of the responsibility for the environment lead to a moralization of their lifestyle under the heading of 'eco-friendly behaviours'. A paradoxical result of such endeavours is that the social group with the least impactful lifestyle on the environment is the one which is moralized in the most intrusive and resolute manner. The article shows, however, that the tenants manage to resist the normalizing discourse on sustainable living, for reasons which are not anti-environmentalist. This piece thus provides interesting results for sustainability studies as well as for the sociology of the regulation of underprivileged neighbourhoods.


Subject(s)
Conservation of Natural Resources , Morals , Poverty/ethics , Climate Change , Conservation of Natural Resources/methods , France , Humans , Poverty/prevention & control , Public Housing/ethics , Social Responsibility , Sustainable Development
11.
AJOB Empir Bioeth ; 10(2): 125-135, 2019.
Article in English | MEDLINE | ID: mdl-31002289

ABSTRACT

In low-income settings resource constraints force clinicians to make harsh choices. We examine the criteria Ethiopian physicians use in their bedside rationing decisions through a national survey at 49 public hospitals in Ethiopia. Substantial variation in weight given to different criteria were reported by the 587 participating physicians (response rate 91.7%). Young age, primary prevention, or the patient being the family's economic provider increased likelihood of offering treatment to a patient, while small expected benefit or low chance of success diminished likelihood. More than 50% of responding physicians were indifferent to patient's position in society, unhealthy behavior, and residence, while they varied widely in weight they gave to patient's poverty, ability to work, and old age. While the majority of Ethiopian physicians reported allocation of resources that was compatible with national priorities, more contested criteria were also frequently reported. This might affect distributional justice and equity in health care access.


Subject(s)
Clinical Decision-Making/ethics , Health Care Rationing , Physicians/psychology , Poverty/ethics , Adult , Age Factors , Cross-Sectional Studies , Culture , Employment , Ethiopia , Female , Hospitals, Public/ethics , Humans , Male , Middle Aged
12.
AMA J Ethics ; 21(1): E26-31, 2019 01 01.
Article in English | MEDLINE | ID: mdl-30672415

ABSTRACT

A challenge in caring for patients in resource-poor settings is the ethical discomfort and discouragement clinicians might experience when they're unable to provide optimal care due to lack of resources. This case, in which a resident is faced with rationalizing substandard care for certain classes of patients, probably represents the top of a slippery slope. This article argues that physicians should identify and advocate for optimal care for each patient. Moreover, physicians should advocate to improve the health system that allows for substandard care. Physicians should disclose to patients all available evaluation and treatment options, even those that seem cost prohibitive or unrealistic for some other reason. Transparency and objectivity in the patient-clinician relationship require good communication skills and are central to avoiding harm.


Subject(s)
Physicians/ethics , Quality of Health Care/ethics , Undocumented Immigrants , Humans , Poverty/ethics , United States
13.
J Med Ethics ; 44(8): 524-530, 2018 08.
Article in English | MEDLINE | ID: mdl-29602896

ABSTRACT

INTRODUCTION: High healthcare costs make illness precarious for both patients and their families' economic situation. Despite the recent focus on the interconnection between health and financial risk at the systemic level, the ethical conflict between concerns for potential health benefits and financial risk protection at the household level in a low-income setting is less understood. METHODS: Using a seven-step ethical analysis, we examine a real-life dilemma faced by families and health workers at the micro level in Ethiopia and analyse the acceptability of limiting treatment for an ill newborn to protect against financial risk. We assess available evidence and ethical issues at stake and discuss the dilemma with respect to three priority setting criteria: health maximisation, priority to the worse-off and financial risk protection. RESULTS: Giving priority to health maximisation and extra priority to the worse-off suggests, in this particular case, that limiting treatment is not acceptable even if the total well-being gain from reduced financial risk is taken into account. Our conclusion depends on the facts of the case and the relative weight assigned to these criteria. However, there are problematic aspects with the premise of this dilemma. The most affected parties-the newborn, family members and health worker-cannot make free choices about whether to limit treatment or not, and we thereby accept deprivations of people's substantive freedoms. CONCLUSION: In settings where healthcare is financed largely out-of-pocket, families and health workers face tragic trade-offs. As countries move towards universal health coverage, financial risk protection for high-priority services is necessary to promote fairness, improve health and reduce poverty.


Subject(s)
Child Health Services/economics , Child Health Services/ethics , Health Care Costs/ethics , Poverty/economics , Poverty/ethics , Universal Health Insurance , Ethical Analysis , Ethiopia , Humans , Infant, Newborn
14.
Rev. bioét. derecho ; (41): 121-139, nov. 2017. ilus
Article in Spanish | IBECS | ID: ibc-167500

ABSTRACT

En 2015, la comunidad de Estados reunidos bajo el amparo de Naciones Unidas renovó su compromiso de avanzar hacia el desarrollo adoptando la Agenda 2030 para el Desarrollo Sostenible y fijando 17 objetivos a alcanzar en los siguientes 15 años. Esta agenda programática, continuadora de la Declaración del Milenio y sus Objetivos (2000), representa un cambio de paradigma en el modo de comprender el desarrollo, integrando a la mirada exclusivamente economicista, las dimensiones social y ambiental. Esta comprensión holística del desarrollo, reflejada en la idea «que nadie se quede atrás», conlleva un fuerte compromiso para atender a las causas multidimensionales y multifactoriales de la pobreza, el hambre, la discriminación, las exclusiones y las desigualdades, espacios donde la Bioética, desde su concepción laica, social y humana, tiene mucho que aportar


In 2015, the member states of the United Nations renewed their commitment towards development. In fact, the constituents adopted the 2030 Agenda for Sustainable Development, 17 Goals to be achieved over the next 15 years. This programmatic agenda, an extension of the 2000 Millennium Development Goals, exemplifies the shift in our understanding of progress. Originally exclusively focused on the economist point of view, it now encompasses social and environmental dimensions. This holistic understanding of development contained in the idea that «no one is left behind», reflects a strong commitment towards addressing the multidimensional and multifactorial causes of poverty, hunger, discrimination, exclusions and inequalities, all of these spaces where Bioethics, from its secular, social and human conception has much to contribute


Al 2015, la comunitat d’Estats reunits sota l’empara de Nacions Unides va renovar el seu compromís d’avançar cap al desenvolupament adoptant l’Agenda 2030 pel Desenvolupament Sostenible i fixant 17 objectius a assolir en els següents 15 anys. Aquesta agenda programàtica, continuadora de la Declaració del Mil·lenni i els seus Objectius (2000), representa un canvi de paradigma en la manera de comprendre el desenvolupament, integrant la mirada exclusivament economicista, les dimensions social i ambiental. Aquesta comprensió holística del desenvolupament, reflectida en la idea «que ningú es quedi enrere», comporta un fort compromís per atendre les causes multidimensionals i multifactorials de la pobresa, la fam, la discriminació, les exclusions i les desigualtats, espais en els que la Bioètica, des de la seva concepció laica, social i humana, pot fer-hi moltes aportacions


Subject(s)
Humans , Sustainable Development/ethics , Sustainable Development , Bioethics , Causality , Poverty/ethics , Hunger , Human Rights
15.
Rev. bioét. derecho ; (39): 153-177, mar. 2017.
Article in Spanish | IBECS | ID: ibc-160545

ABSTRACT

Este artículo analiza el voto particular de Luis Roberto Barroso, juez del Superior Tribunal de Justicia de Brasil, frente al Habeas Corpus 124.306 de la sala I del Superior Tribunal de Justicia de Brasil (29/11/2016). Barroso argumenta que penalizar la interrupción del embarazo, consentida por la mujer, practicada en los tres primeros meses de gestación, viola derechos fundamentales establecidos en la Constitución de Brasil y en las Convenciones Internacionales de Derechos Humanos. Este artículo sostiene que esta penalización no sólo perjudica al litigante, sino que profundiza el desprestigio del sistema de justicia (AU)


This article analyzes the dissenting opinion of Luis Roberto Barroso, judge of the Supreme Federal Court of Brazil, on the Habeas Corpus 124.306 of Courtroom I of the Supreme Federal Court of Brazil (29/11/2016). Barroso argues that penalizing the voluntary end of pregnancy, consented by the woman and practiced during the first three months of pregnancy, violates fundamental rights established by Brazilian Constitution and International Conventions of Human Rights. The paper maintained that this penalization not only harms the litigant, but also deepens the discredit of the justice system (AU)


Subject(s)
Humans , Female , Supreme Court Decisions , Jurisprudence , Constitution and Bylaws , Human Rights/legislation & jurisprudence , Abortion, Legal/ethics , Abortion, Legal/legislation & jurisprudence , Personal Autonomy , Poverty/ethics , Poverty/legislation & jurisprudence , Women's Rights/ethics , Women's Rights/legislation & jurisprudence , Justice Administration System , Gender and Health
16.
Br J Clin Pharmacol ; 81(5): 857-64, 2016 May.
Article in English | MEDLINE | ID: mdl-26743927

ABSTRACT

There are millions of individuals living in North America and the European Union who lack access to healthcare services. When these individuals participate in research, they are at increased risk of being exposed to the risks and burdens of clinical trials without realizing the benefits that result from them. The mechanisms that have been proposed to ensure that research participants in low- and middle-income countries are not exploited are unlikely to protect participants in high-income countries. The present manuscript argues that one way to address concerns about exploitation in high-income countries would be to require sponsors to provide targeted benefits such as medical treatment during the trial, or the study drug after the trial. The latter could be achieved through extension studies, expanded access programs, or named-patient programs. Sponsors also might provide non-medical benefits, such as education or social support. Ethical and regulatory guidance should be revised to ensure that research participants in high-income countries who lack access to healthcare services receive sufficient benefits.


Subject(s)
Biomedical Research/ethics , Clinical Trials as Topic/ethics , Health Services Accessibility/ethics , Informed Consent , Patient Selection/ethics , Poverty/ethics , Biomedical Research/economics , Biomedical Research/legislation & jurisprudence , Clinical Trials as Topic/economics , Clinical Trials as Topic/legislation & jurisprudence , Developed Countries , Developing Countries , Government Regulation , Health Services Accessibility/economics , Humans , Income
17.
Bioethics ; 29(9): 604-12, 2015 Nov.
Article in English | MEDLINE | ID: mdl-26481201

ABSTRACT

A growing number of countries in sub-Saharan Africa are considering legalizing the growth of genetically modified organisms (GMOs). Furthermore, several projects are underway to develop transgenic crops tailored to the region. Given the contentious nature of GMOs and prevalent anti-GMO sentiments in Africa, a robust ethical analysis examining the concerns arising from the development, adoption, and regulation of GMOs in sub-Saharan Africa is warranted. To date, ethical analyses of GMOs in the global context have drawn predominantly on Western philosophy, dealing with Africa primarily on a material level. Yet, a growing number of scholars are articulating and engaging with ethical theories that draw upon sub-Saharan African value systems. One such theory, Ubuntu, is a well-studied sub-Saharan African communitarian morality. I propose that a robust ethical analysis of Africa's agricultural future necessitates engaging with African moral theory. I articulate how Ubuntu may lead to a novel and constructive understanding of the ethical considerations for introducing GMOs into sub-Saharan Africa. However, rather than reaching a definitive prescription, which would require significant engagement with local communities, I consider some of Ubuntu's broader implications for conceptualizing risk and engaging with local communities when evaluating GMOs. I conclude by reflecting on the implications of using local moral theory in bioethics by considering how one might negotiate between universalism and particularism in the global context. Rather than advocating for a form of ethical relativism, I suggest that local moral theories shed light on salient ethical considerations that are otherwise overlooked.


Subject(s)
Bioethical Issues , Organisms, Genetically Modified , Africa South of the Sahara , Food, Genetically Modified , Humans , Hunger , Morals , Poverty/ethics , Risk , Social Values
18.
Int J Equity Health ; 14: 56, 2015 Jun 16.
Article in English | MEDLINE | ID: mdl-26076751

ABSTRACT

INTRODUCTION: The drive toward universal health coverage (UHC) is central to the post 2015 agenda, and is incorporated as a target in the new Sustainable Development Goals. However, it is recognised that an equity dimension needs to be included when progress to this goal is monitored. WHO have developed a monitoring framework which proposes a target of 80% coverage for all populations regardless of income and place of residence by 2030, and this paper examines the feasibility of this target in relation to antenatal care and skilled care at delivery. METHODOLOGY: We analyse the coverage gap between the poorest and richest groups within the population for antenatal care and presence of a skilled attendant at birth for countries grouped by overall coverage of each maternal health service. Average annual rates of improvement needed for each grouping (disaggregated by wealth quintile and urban/rural residence) to reach the goal are also calculated, alongside rates of progress over the past decades for comparative purposes. FINDINGS: Marked inequities are seen in all groups except in countries where overall coverage is high. As the monitoring framework has an absolute target countries with currently very low coverage are required to make rapid and sustained progress, in particular for the poorest and those living in rural areas. The rate of past progress will need to be accelerated markedly in most countries if the target is to be achieved, although several countries have demonstrated the rate of progress required is feasible both for the population as a whole and for the poorest. CONCLUSIONS: For countries with currently low coverage the target of 80% essential coverage for all populations will be challenging. Lessons should be drawn from countries who have achieved rapid and equitable progress in the past.


Subject(s)
Global Health/statistics & numerical data , Health Services Needs and Demand/statistics & numerical data , Healthcare Disparities , Maternal Health/statistics & numerical data , Poverty/statistics & numerical data , Universal Health Insurance/statistics & numerical data , Demography , Female , Global Health/economics , Health Services Needs and Demand/economics , Health Services Needs and Demand/ethics , Humans , Maternal Health/economics , Maternal Health/ethics , Poverty/ethics , Pregnancy , Surveys and Questionnaires , Universal Health Insurance/economics , Universal Health Insurance/ethics
19.
Narrat Inq Bioeth ; 5(3): 277-86, 2015.
Article in English | MEDLINE | ID: mdl-26752583

ABSTRACT

Decision-making regarding treatment for newborns with disabilities in resource-poor settings is a difficult process that can put parents and caregivers in conflict. Despite several guidelines that have helped to clarify some of the medical decision-making in Ghana, there is still no clear consensus on the specific moral criteria to be used. This article presents the case of a mother who expressed her wish that her child with Down syndrome should not have been resuscitated at birth. It explores the ethical issues at stake in both her misgivings about the resuscitation and her unwillingness to consider surgical repair of an atrioventricular (AV) canal defect. Knowing that children born with Down syndrome are able to pursue life's goals, should our treatment of complete AV canal defect in such children be considered morally obligatory, even in resource-poor settings like Ghana?


Subject(s)
Down Syndrome/complications , Ethics, Medical , Heart Septal Defects/complications , Resuscitation Orders/ethics , Developing Countries , Female , Ghana , Heart Septal Defects/surgery , Humans , Infant, Newborn , Mothers/psychology , Poverty/ethics
20.
Child Abuse Negl ; 50: 1-8, 2015 Dec.
Article in English | MEDLINE | ID: mdl-25087071

ABSTRACT

The goal of this commentary is to articulate some issues and dilemmas raised by various efforts to mobilize international action around child abuse and neglect (CAN). We will start by proposing a typology of international mobilization strategies, noting that initiatives to promote CAN programming in new settings have tended to emphasize one of three vectors: governments, professionals, or international NGOs. There are pros and cons to each emphasis, which we discuss. We also review the debates around some of the following dilemmas: Should low-income countries be a top priority for CAN mobilization? Are there cultural and institutional capacities that need to be present in a country in order for CAN programs to work or be ethical? Are some CAN programs more likely to be internationally transferable than others and why so? Has the field adequately considered whether non-CAN programming (e.g., family planning) might actually be more effective at preventing maltreatment than CAN programming? Does the field give adequate acknowledgment that policies and practices emanating from high-resourced and Western countries may not always be the best to disseminate? Are we relying too much on a model of program transplantation over a model of local cultivation? Should we aim for modest rather than ambitious accomplishments in international mobilization? How much emphasis should be placed on the priority dissemination of evidence-based programming? We conclude with some suggestions in the service of clarifying these dilemmas and making some of these decisions more evidence based.


Subject(s)
Child Abuse/prevention & control , International Cooperation , Child , Child Abuse/ethics , Child Health Services/organization & administration , Child Protective Services/ethics , Developing Countries , Exposure to Violence , Humans , Interprofessional Relations/ethics , Pediatrics/ethics , Pediatrics/organization & administration , Poverty/ethics
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