ABSTRACT
We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were identified through interviews with family advocacy, Title V, and Medicaid organizational representatives. Results showed that states use myriad strategies to pay for care and maximize supports, including benefits counseling, consumer- and family-directed care, flexible funding, mandated benefits, Medicaid buy-in programs, and Tax Equity and Fiscal Responsibility Act of 1982 funding. Although health reform may reduce variation among states, its impact on families of children with intellectual and developmental disabilities is not yet clear. As health reform is implemented, state strategies to ameliorate financial hardship among families of children with intellectual and developmental disabilities show promise for immediate use. However, further analysis and evaluation are required to understand their impact on family and child well-being.
Subject(s)
Developmental Disabilities/economics , Intellectual Disability/economics , Medical Assistance/economics , State Government , Child , Delivery of Health Care/economics , Delivery of Health Care/organization & administration , Health Care Reform/economics , Health Care Reform/organization & administration , Humans , Medicaid/economics , Medicaid/organization & administration , Medical Assistance/organization & administration , Public Policy , Tax Equity and Fiscal Responsibility Act/economics , Tax Equity and Fiscal Responsibility Act/organization & administration , United StatesABSTRACT
La aprobación de un nuevo modelo de financiación autonómica y la publicación de las liquidaciones en sus dos primeros años de vigencia (2002 y 2003) ha puesto de manifiesto la insuficiencia en la financiación sanitaria para muchas regiones, lo cual ha sido el motivo principal del reciente pacto para su mejora alcanzado en septiembre de 2005. En este artículo se analiza el sistema de financiación territorial de competencias sanitarias, así como el gasto en esta partida y la definición de su posible déficit para mostrar las diferencias existentes entre regiones. Finalmente, tras algunos comentarios y observaciones, se cierra el trabajo con un apartado de resultados y consideraciones finales
Approval of a new regional community financing model and publication of the results in its first two years (2002 and 2003) has shown the inadequacy of health care financing for many regions (this being the main reason for the recent agreement to improve it reached in September 2005). In this paper, health care financing, expenditure and the definition of budget deficit are analysed in order to show differences among regions. Finally, after some comments and observations, the paper is concluded with a section on results and final considerations
