ABSTRACT
AIMS: This study aimed to examine and map the scientific evidences regarding quality of life in neurogenic bladder patients and consequently their caregivers by means of a scoping review. DESIGN: This is a scoping review proposal of the Joanna Briggs Institute. METHODS: It was conducted to examine and map the scientific evidences about quality of life (QoL) in neurogenic bladder patients and their caregivers, to identify the meanings attributed to QoL and its relation with intermittent urinary catheterization. The following guiding question was: "What scientific evidence has been produced on the QoL of neurogenic bladder patients using intermittent urinary catheterization and their caregivers?" A total of 2945 research studies were identified using The Cochrane Library, CINAHL, LILACS, Academic Search Premier (via EBSCO platform), PubMed, SCOPUS, the platforms Web of Science, the b-on and Gray Literature. The keywords established were patient, intermittent urinary catheterization, neurogenic urinary bladder, quality of life and caregiver. RESULTS: From 2,945 studies, 13 studies were selected. Most of the selected studies that analyzed variables related to the patients' QoL were regarding the urinary catheterization technique, assessment of urinary incontinence, individual perceptions of the procedure and experiences with urinary catheter in childhood and adult life. The meanings attributed to QoL, when compared to adult and child individuals with normal bladder functioning, presented lower QoL scores. Concerning caregivers, the QoL of caregivers of children using intermittent urinary catheterization demonstrated low scores. LINKING EVIDENCE TO ACTION: The QoL of patient's who use intermittent urinary catheterization can be determined by improvement of urinary symptoms and self-confidence. Research related to QoL of patients who use urinary catheter indicates the importance of adequate professional support and appropriate health public policies.
Subject(s)
Caregivers/psychology , Patients/psychology , Quality of Life/psychology , Urinary Catheterization/adverse effects , Catheter-Related Infections/complications , Catheter-Related Infections/etiology , Humans , Self Care/methods , Self Care/psychology , Urinary Bladder, Neurogenic/complications , Urinary Bladder, Neurogenic/therapy , Urinary Catheterization/psychologyABSTRACT
INTRODUÇÃO: A lesão medular é um agravo que traz importantes impactos físico, psicológico e econômico, e que afeta não só o indivíduo, mas toda a família. Nas alterações físicas, pode haver perda do controle esfincteriano, acarretando na disfunção neuropática vesical, que além da incontinência urinária, pode provocar complicações urológicas e a não aceitação social. Houve uma melhora significativa no manejo da bexiga neuropática com a introdução da técnica do cateterismo vesical intermitente limpo. Ao assistir tais pacientes, percebe-se que eles demonstram preocupação em ter que continuar em seus domicílios, a realização da técnica aprendida durante o período de internação. Em relação ao suporte social, vários estudos mostram uma importante correlação entre saúde, bem-estar geral e suporte social. Sendo assim, procurou-se verificar se os problemas relacionados com a continuidade da reabilitação vesical estariam relacionados ao suporte social inadequado. OBJETIVO:Avaliar a continuidade da realização de cateterismo vesical intermitente limpo após a alta hospitalar e sua correlação com o suporte social. METODOLOGIA: estudo quantitativo e do tipo transversal, desenvolvido na unidade de Belo Horizonte MG, da Rede Sarah de Hospitais de Reabilitação. Anteriormente à coleta de dados, a pesquisa foi aprovada pelos Comitês de Ética em Pesquisa da Rede Sarah de Hospitais de Reabilitação e da UFMG. A amostra foi composta por 49 pacientes com lesão medular que retornaram para a revisão em equipe e que tinham recebido orientação para realizarem o cateterismo vesical intermitente no domicílio. Os dados foram coletados por meio de entrevistas individuais e analisados no programa SPSS, versão 13.0. RESULTADOS E DISCUSSÃO: A amostra do estudo foi predominantemente de homens (81,6%) jovens (M=33,9 anos de idade), e cuja causa principal da lesão foram os acidentes de trânsito, sejam automobilísticos (10,2%) ou motociclísticos (20,4%)...
Subject(s)
Humans , Male , Female , Adolescent , Adult , Middle Aged , Urinary Catheterization/psychology , Social Support , Spinal Cord Injuries , Accidents, Traffic/statistics & numerical data , Patient Education as Topic , Qualitative Research , Surveys and Questionnaires , Socioeconomic FactorsABSTRACT
Voiding cystourethrography (VCUG) has been usually considered as a painful and badly tolerated procedure in children. This opinion is not agreed with local experience of the authors. Objective: To evaluate the parent's perception about VCUG in children before and after the procedure. Methods: In 2009, parents of children who carne to Radiology Department for a VCUG completed an anonymous survey, including age and sex of their children, physician referent specialty, information received about the exam, expectation before and opinion after the procedure. Results: During 12 months 86 surveys were evaluated; patient's age was ranged between 1 month to 8 years with 52.3 percent> (45) girls and 47.7 percent> (41) males. Patients were referred from general pediatric in 59 percento or nephrology practice in 33 percent>; 20 percent> of the patients did not receive any information about the procedure before. About the expectation of VCUG, previous the exam, parents considered the examination as a pediatrician visit in 2.3 percent, uncomfortable in 26.7 percent>, a little painful in 16.3 percent, painful in 21 percent and aggressive or terrible in 33.7 percento. After the examination, parents' opinion was: 24.4 percent> as a pediatrician visit, 45.3 percent> uncomfortable, 22.1 percento a little painful, 4.7 percent> painful and 3.5 percent> aggressive or terrible. The global parents' perception about VCUG after the exam improved in 66 percent> cases, did not change in 29 percent> and went worse in 5 percent. Conclusion: Parent's perception about VCUG in children significantly improves after the procedure; in 91.8 percent> the examination was considered uncomfortable or only a little painful.
Con frecuencia se califica a la uretrocistografía miccional (UCG) como un examen doloroso y mal tolerado por los niños, lo que resulta discordante con la experiencia de los autores. Objetivo: Evaluar la percepción de los padres de las UCG efectuadas a sus hijos, antes y después del examen. Durante el año 2009, en el Servicio de Radiología de Clínica Las Condes, se solicitó a los padres contestar anónimamente una encuesta que incluía: edad y sexo del niño, especialidad médico solicitante, información recibida respecto del examen, explicitar expectativas antes del examen y opinión posterior. Se evaluaron 86 encuestas; edades: 1 mes a 8 años; 52,3 por ciento (45) niñas y 47,7 por ciento (41) varones; pediatra deriva 59 por ciento y nefrólogo 33 por ciento; 20 por ciento no recibió información del solicitante. Antes del examen: 2,3 por ciento como una visita al pediatra, 26,7 por ciento molesto, 16,3 por ciento un poco doloroso, 21 por ciento doloroso y 33,7 por ciento agresivo/terrible. Después de la UCG: 24,4 por ciento como una visita al pediatra, 45,3 por ciento molesto, 22,1 por ciento un poco doloroso, 4,7 por ciento doloroso y 3,5 por ciento agresivo/terrible. Post-examen: 66 por ciento mejora la percepción, 29 por ciento mantiene y 5 por ciento empeora. Conclusiones: La percepción de los padres mejora significativamente después de efectuado el examen; el 91,8 por ciento considera el examen como molesto o un poco doloroso.
Subject(s)
Humans , Male , Female , Infant , Child, Preschool , Child , Adult , Urologic Diseases , Perception , Parents/psychology , Urography/psychology , Urinary Catheterization/psychology , Data Collection , Pain/etiology , Pain/psychology , Urologic Diseases/psychology , Psychology, Child , Urination , Urethra , Urography/adverse effects , Urinary BladderABSTRACT
PURPOSE: The purpose of this study was to propose a systematic teaching and learning strategy for Brazilian caregivers of children with neurogenic bladder dysfunction(NBD), by using an illustrated booklet written in Portuguese. DESIGN: Descriptive study. SUBJECTS AND SETTING: Caregivers of children requiring clean intermittent catheterization (CIC) were approached when attending the pediatric urology outpatient clinic of Hospital de Base in Sao Jose do Rio Preto city, Brazil. METHODS: After educational sessions, a supervised procedure was done, with the child's caregiver observing the technique. RESULTS: Twenty-three caregivers of children with NBD provided feedback on a CIC teaching booklet. The children were all cared for at the pediatric urology outpatient clinic of a teaching hospital in Sao Jose do Rio Preto city, Brazil. The booklet was evaluated as "excellent" concerning organization and the quality of the illustrations by the majority of the caregivers. All caregivers stated that they had developed the ability to perform CIC successfully; 61% evaluated their learning process as "excellent," whereas 39% evaluated it as "good." CONCLUSION: The booklet successfully reached the goals and now is implemented in orientations about CIC.