RESUMEN
Childhood cancer has a profound and negative impact on siblings, yet there are limited studies exploring lived experiences from their perspective. This qualitative study examined the perceptions and experiences of siblings of children with cancer who attended a peer support camp. Semi-structured interviews were conducted three to six weeks after the weeklong peer support camp with a stratified random sample of 10 siblings (six non-bereaved and four bereaved) ages 8 to 16 years. The qualitative data were analyzed using conventional content analysis and an inductive data-driven approach. Four themes emerged: social connection (subthemes: support/feeling of belonging, mentorship, and expressing feelings), personal growth, identity, and freedom to have fun and relax. These findings add to the scant body of research by providing enhanced understanding of the siblings' experiences and new insights into their perceptions of meaning and outcomes associated with participation in a peer support camp. These findings have implications for peer support camp programs and the well-being of siblings of children with cancer.
Asunto(s)
Neoplasias , Hermanos , Adaptación Psicológica , Adolescente , Niño , Emociones , Humanos , Investigación Cualitativa , Estados UnidosRESUMEN
Background: Siblings of children with cancer often experience anxiety and posttraumatic stress symptoms (PTSS), which negatively impact their self-esteem due to emotionally upsetting circumstances. The purpose of this longitudinal quantitative study was to investigate changes in anxiety, PTSS, and self-esteem of youth who participated in a peer support camp for siblings of children with cancer. Methods: A longitudinal study examined changes over time. Data were collected from 32 sibling surveys pre-, post-, and three months after camp. Siblings completed assessments to measure anxiety, PTSS, and self-esteem. A repeated measures ANOVA or Friedman Test was conducted to identify changes across the three data points for each outcome measured. Post hoc comparisons using paired sample t-tests or Wilcoxon Signed-Rank tests were conducted. Results: Significant improvements in anxiety; T1 and T2 (p < .000); T1 and T3 (p < .000). Significant decrease in PTSS; T1 and T2 (p = .001); T1 and T3 (p = .011). Significant improvement in self-esteem scores for older participants (ages 10-16); T1 and T2 (p < .000). Significant improvement in self-esteem for younger participants (ages 7-9); T1 and T3 (p = .005). Discussion: The data generated in this study expand knowledge about the influence of peer support camps on reducing the emotional distress of siblings of children with cancer. The findings warrant further research on the long-term impact of such camps, the value of repeated participation, differences between bereaved and nonbereaved siblings, the phase of the cancer experience, and elements of the camp that have the most impact.
Asunto(s)
Acampada , Neoplasias , Distrés Psicológico , Adolescente , Acampada/psicología , Niño , Humanos , Estudios Longitudinales , Neoplasias/psicología , Hermanos/psicologíaRESUMEN
Health care in the United States is facing a crisis in providing access to quality care for those in underserved and rural regions. Advanced practice nurses are at the forefront of addressing such issues, through modalities such as health care technology. Many nursing education programs are seeking strategies for better educating students on technology utilization. Health care technology includes electronic health records, telemedicine, and clinical decision support systems. However, little focus has been placed on the role of social media in health care. This paper describes an educational workshop using standardized patients and hands-on experiences to introduce advanced practice nurses in a Doctor of Nursing Practice program to the role of social media in addressing issues inherent in the delivery of rural health care. The students explore innovative approaches for utilizing social media for patient and caregiver support as well as identify online resources that assist providers in a rural setting.
Asunto(s)
Enfermería de Práctica Avanzada/educación , Educación de Postgrado en Enfermería , Informática Aplicada a la Enfermería/educación , Salud Rural , Medios de Comunicación Sociales , Teleenfermería/educación , Accesibilidad a los Servicios de Salud , Humanos , Educación del Paciente como Asunto , Apoyo Social , Estados UnidosRESUMEN
This study examined the effect of provocateurs' emotion displays on first through fourth graders' social information processing (SIP). Rating and nomination sociometric techniques were used to identify rejected-aggressive, rejected-nonaggressive, average-nonaggressive, and popular-nonaggressive groups. Children viewed videotaped ambiguous provocation situations in which provocateurs' emotion displays were varied systematically. After each vignette, children's recall of story details, attribution of intent, and problem-solving responses were obtained. Half of the children were randomly assigned to a condition where they were asked directly about provocateurs' emotions, and the remaining children were not asked about provocateurs' feelings. Results revealed both developmental and social adjustment differences in SIP. In addition, provocateurs' emotion displays and asking versus not asking about those displays influenced multiple aspects of SIP.
Asunto(s)
Afecto , Cognición , Ajuste Social , Percepción Social , Percepción Visual , Agresión , Niño , Conducta Infantil/psicología , Señales (Psicología) , Femenino , Humanos , Masculino , Rechazo en Psicología , Encuestas y CuestionariosRESUMEN
PURPOSE: To describe an association between continuous simple partial seizures and independent right and left partial seizures in children with benign childhood epilepsy with centrotemporal spikes (BCECTS). METHODS: Three children with BCECTS and episodes of continuous simple partial seizures are described. RESULTS: All three children had a history of typical rolandic seizures occurring on the right and left sides of the body on different occasions. CONCLUSIONS: The occurrence of independent right and left rolandic seizures in children with BCECTS may be a predisposing factor for the development of partial status epilepticus.