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1.
Scand J Psychol ; 65(2): 231-239, 2024 Apr.
Artículo en Inglés | MEDLINE | ID: mdl-37750248

RESUMEN

The present experience sampling study investigated the effect of age on emotion regulation patterns (i.e., emotion regulation strategy effectiveness, variability, and differentiation) in daily life. The study further explored the implications of potential age differences in emotion regulation patterns for well-being. A sample of 406 adults (age range: 18-81, 62.8% female) were prompted five times a day for seven days to rate momentary emotions, emotion regulation strategy use, and emotion regulation strategy effectiveness. Based on these ratings, indicators of emotion regulation variability and differentiation were calculated. Well-being outcomes included daily positive and negative emotions, and symptoms of depression and anxiety assessed at baseline. The findings revealed reduced emotion regulation variability with age and a negative association between emotion regulation variability and well-being. There were no associations between age and emotion regulation effectiveness or differentiation. Emotion regulation effectiveness was associated with more positive and less negative daily emotions, and these associations were stronger for younger adults compared to older adults. Drawing on prominent lifespan theories, the findings may indicate that as people age, they select and apply a few strategies that they know will be effective given the context and their resources which leads to reduced emotion regulation variability but ultimately more well-being. Concerning emotion regulation effectiveness, the findings suggest that effectiveness is less important for emotional well-being in daily life in older adulthood possibly because well-being is determined by other factors (e.g., less frequent and more predictable stressors) with age.


Asunto(s)
Regulación Emocional , Humanos , Femenino , Anciano , Adolescente , Masculino , Regulación Emocional/fisiología , Evaluación Ecológica Momentánea , Emociones/fisiología , Trastornos de Ansiedad
2.
Artículo en Inglés | MEDLINE | ID: mdl-37393377

RESUMEN

Preparing novice physicians for an unknown clinical future in healthcare is challenging. This is especially true for emergency departments (EDs) where the framework of adaptive expertise has gained traction. When medical graduates start residency in the ED, they must be supported in becoming adaptive experts. However, little is known about how residents can be supported in developing this adaptive expertise. This was a cognitive ethnographic study conducted at two Danish EDs. The data comprised 80 h of observations of 27 residents treating 32 geriatric patients. The purpose of this cognitive ethnographic study was to describe contextual factors that mediate how residents engage in adaptive practices when treating geriatric patients in the ED. Results showed that all residents fluidly engaged in both adaptive and routine practices, but they were challenged when engaging in adaptive practices in the face of uncertainty. Uncertainty was often observed when residents' workflows were disrupted. Furthermore, results highlighted how residents construed professional identity and how this affected their ability to shift between routine and adaptive practices. Residents reported that they thought that they were expected to perform on par with their more experienced physician colleagues. This negatively impacted their ability to tolerate uncertainty and hindered the performance of adaptive practices. Thus, aligning clinical uncertainty with the premises of clinical work, is imperative for residents to develop adaptive expertise.

3.
BMC Med Educ ; 23(1): 22, 2023 Jan 12.
Artículo en Inglés | MEDLINE | ID: mdl-36635669

RESUMEN

Clinical decision-making (CDM) is the ability to make clinical choices based on the knowledge and information available to the physician. It often refers to individual cognitive processes that becomes more dependent with the acquisition of experience and knowledge. Previous research has used dual-process theory to explain the cognitive processes involved in how physicians acquire experiences that help them develop CDM. However, less is known about how CDM is shaped by the physicians' situated cognition in the clinical environment. This is especially challenging for novice physicians, as they need to be adaptive to compensate for the lack of experience. The adaptive expert framework has been used to explain how novice physicians learn, but it has not yet been explored, how adaptive expertise is linked to clinical decision-making amongst novice physicians.This study aimed to analyse how residents utilize and develop adaptive expert cognition in a natural setting. By describing cognitive processes through verbalization of thought processes, we sought to explore their CDM strategies considering the adaptive expert framework.We used concurrent and retrospective think-aloud interviews in a natural setting of an emergency department (ED) at a university hospital, to query residents about their reasoning during a patient encounter. We analysed data using protocol analysis to map cognitive strategies from these verbalizations. Subsequently in a narrative analysis, we compared these strategies with the literature on adaptive expertise.Fourteen interviews were audio recorded over the course for 17 h of observation. We coded 78 informational concepts and 46 cognitive processes. The narrative analysis demonstrated how epistemic distance was prevalent in the initial CDM process and self-regulating processes occurred during hypothesis testing. However, residents who too quickly moved on to hypothesis testing tended to have to redirect their hypothesis more often, and thus be more laborious in their CDM. Uncertainty affected physicians' CDM when they did not reconcile their professional role with being allowed to be uncertain. This allowance is an important feature of orientation to new knowledge as it facilitates the evaluation of what the physician does not know.For the resident to learn to act as an adaptive decision-maker, she relied on contextual support. The professional role was crucial in decisional competency. This supports current literature, which argues that role clarification helps decisional competency. This study adds that promoting professional development by tolerating uncertainty may improve adaptive decisional competency.


Asunto(s)
Toma de Decisiones Clínicas , Internado y Residencia , Femenino , Humanos , Toma de Decisiones Clínicas/métodos , Cognición , Estudios Retrospectivos
4.
Nurs Inq ; 30(1): e12508, 2023 Jan.
Artículo en Inglés | MEDLINE | ID: mdl-35709227

RESUMEN

2020 saw the rapid onset of a global pandemic caused by the SARS-CoV-2 virus. For healthcare systems worldwide, the pandemic called upon quick organization ensuring treatment and containment measures for the new virus disease. Nurses were seen as constituting a vital instrumental professional component in this study. Due to the pandemic's unpredictable and potentially dangerous nature, nurses have faced unprecedented risks and challenges. Based on interviews and free text comment from a survey, this study explores how ethical challenges related to "being a nurse" during the COVID-19 pandemic was experienced and understood by Danish hospital-based nurses. Departing from anthropologist Jarett Zigon's notion of moral breakdown, the study demonstrates how the rapid onset of the pandemic constitutes a moral breakdown raising ethical demands for nurses. Analytically we identify three different ethical demands experienced by the nurses. These ethical demands are Nursing and societal ethical demands, Nursing and personal ethical demands, and Nursing and conflicting ethical demands. These demands represent not only very different understandings of ethical demands but also different understandings of ethical acts that are seen as necessary to respond to these demands.


Asunto(s)
COVID-19 , Ética en Enfermería , Enfermeras y Enfermeros , Humanos , Pandemias/prevención & control , SARS-CoV-2 , Investigación Cualitativa , Principios Morales , Hospitales
5.
J Nurs Manag ; 30(7): 2557-2567, 2022 Oct.
Artículo en Inglés | MEDLINE | ID: mdl-36042540

RESUMEN

AIM: To describe changes in distress among Danish hospital-based nurses during the early month of the COVID-19 pandemic and to examine predictors of distress and turnover intentions. BACKGROUND: Outbreak of infectious diseases such as the COVID-19 pandemic can increase the likelihood that health professionals suffer from poor mental health even after the outbreak. METHODS: A prospective study among 426 Danish hospital-based nurses during the early month of the pandemic. Participants completed self-administered questionnaires regarding mental health and COVID-19 worries, as well as turnover intentions. RESULTS: Nurses with brief work experience reported higher increase in distress. Feeling unsafe at work, having low trust in management and being anxious for relatives were associated with increased distress. Finally, feeling unsafe at work, being anxious for relatives and having low trust in management were predictors of intention to change job. CONCLUSION: This study suggests that the subjective experiences of uncertainty in work during the COVID-19 pandemic have more impact on nurses' distress than COVID-19 related conditions at hospitals. Finally, the study provides empirical support for the association between COVID-19-related worries and turnover intentions. IMPLICATION FOR NURSING MANAGEMENT: Knowledge of risk factors for psychological distress as well as predictors of turnover intention is necessary and may provide nurses and health-care systems with the ability to respond better against future pandemics and to retain nurses in the organization and in the profession.


Asunto(s)
COVID-19 , Enfermeras y Enfermeros , Personal de Enfermería en Hospital , Humanos , Intención , Estudios Prospectivos , Pandemias , COVID-19/epidemiología , Satisfacción en el Trabajo , Personal de Enfermería en Hospital/psicología , Actitud del Personal de Salud , Reorganización del Personal , Encuestas y Cuestionarios , Hospitales , Dinamarca/epidemiología
6.
Front Psychol ; 13: 825701, 2022.
Artículo en Inglés | MEDLINE | ID: mdl-35923725

RESUMEN

The recommended treatment for dual diagnosis - the co-occurrence of substance use and another mental disorder - requires seamless integration of the involved disciplines and services. However, no integrative framework exists for communicating about dual diagnosis cases across disciplinary or sectoral boundaries. We examine if Enactive Psychiatry may bridge this theoretical gap. We evaluate the enactive approach through a two-step pragmatic lens: Firstly, by taking a historical perspective to describe more accurately how the theoretical gap within the field of dual diagnosis initially developed. Secondly, by applying the Enactive Psychiatry approach to data from a longitudinal study on the trajectory of cannabis use in psychosis disorders. By applying the theory rather than simply presenting it, we position ourselves better to evaluate whether it may assist the purpose of achieving a more expedient pragmatic "grip" on the field of dual diagnosis. In our discussion, we suggest that this may very well be the case. Finally, we consider the enactive approach as one of a small handful of new theories of mental disorders that draw on systems thinking and ecological psychology, and discuss whether they have the potential for a wider progressive problemshift within psychiatry. The case in favor of such potential, we argue, is less strong unless the role of complexity, similar to that seen within the dual diagnosis field, may be demonstrated for other fields of clinical practice.

7.
Healthcare (Basel) ; 9(7)2021 Jul 18.
Artículo en Inglés | MEDLINE | ID: mdl-34356288

RESUMEN

Here, we developed and examined a new way of disseminating mindfulness in nature to people without meditation experience, based on the finding that mindfulness conducted in natural settings may have added benefits. We evaluated a 5-day residential programme aiming to reduce stress and improve mental health outcomes. We compared an indoor and an outdoor version of the programme to a control group in a pilot randomised controlled trial (RCT). Sixty Danish university students experiencing moderate to high levels of stress were randomised into a residential mindfulness programme indoors (n = 20), in nature (n = 22), or a control group (n = 18). Participants completed the Perceived Stress Scale and the Self-Compassion Scale (primary outcomes) along with additional secondary outcome measures at the start and end of the program and 3 months after. Stress was decreased with small to medium effect sizes post-intervention, although not statistically significant. Self-compassion increased post-intervention, but effect sizes were small and not significant. At follow-up, changes in stress were not significant, however self-compassion increased for both interventions with medium-sized effects. For the intervention groups, medium- to large-sized positive effects on trait mindfulness after a behavioural task were found post-intervention, and small- to medium-sized effects in self-reported mindfulness were seen at follow-up. Connectedness to Nature was the only outcome measure with an incremental effect in nature, exceeding the control with a medium-sized effect at follow-up. All participants in the nature arm completed the intervention, and so did 97% of the participants in all three arms. Overall, the results encourage the conduct of a larger-scale RCT, but only after adjusting some elements of the programme to better fit and take advantage of the potential benefits of the natural environment.

8.
Internet Interv ; 23: 100365, 2021 Mar.
Artículo en Inglés | MEDLINE | ID: mdl-33552930

RESUMEN

BACKGROUND: The present study investigates possible predictors of treatment response in an Internet-delivered Mindfulness-Based Cognitive Therapy (iMBCT) intervention with therapist support. This iMBCT program, a fully online delivered intervention with asynchronous therapist support, has previously been shown to be efficacious in reducing symptoms of anxiety and depression in women treated for breast cancer and men treated for prostate cancer. METHODS: Eighty-two breast- and prostate cancer survivors experiencing psychological distress received 8 weeks of therapist-guided iMBCT. Primary outcomes were improvement in anxiety and depression scores from baseline to post-treatment and from baseline to six-months follow-up. Clinical predictors included levels of depression and anxiety at the time of screening and at baseline, as well as time since diagnosis. Demographic predictors included age and educational level. Therapy-related predictors included working alliance, self-compassion, and five facets of mindfulness. Mixed Linear Models were employed to test the prediction effects over time. RESULTS: Higher levels of baseline depression were associated with increased treatment response in anxiety at post-treatment, and lower levels of self-compassion were associated with increased treatment response in depression at post-treatment. None of the proposed predictors significantly predicted treatment response at six-months follow-up. CONCLUSION: The findings suggest that iMBCT can be provided for cancer survivors regardless of their age, educational level, and time since diagnosis (up to five years) and that therapeutic alliance is not crucial for treatment response. We did not identify characteristics predicting treatment response, although many factors were tested. Still, other characteristics may be predictors, and given the relatively small sample size and a large number of statistical tests, the results should be interpreted with caution.

9.
BMC Emerg Med ; 20(1): 73, 2020 09 14.
Artículo en Inglés | MEDLINE | ID: mdl-32928158

RESUMEN

BACKGROUND: Clinical decision-making (CDM) is an important competency for young doctors especially under complex and uncertain conditions in geriatric emergency medicine (GEM). However, research in this field is characterized by vague conceptualizations of CDM. To evolve and evaluate evidence-based knowledge of CDM, it is important to identify different definitions and their operationalizations in studies on GEM. OBJECTIVE: A scoping review of empirical articles was conducted to provide an overview of the documented evidence of findings and conceptualizations of CDM in GEM. METHODS: A detailed search for empirical studies focusing on CDM in a GEM setting was conducted in PubMed, ProQuest, Scopus, EMBASE and Web of Science. In total, 52 publications were included in the analysis, utilizing a data extraction sheet, following the PRISMA guidelines. Reported outcomes were summarized. RESULTS: Four themes of operationalization of CDM emerged: CDM as dispositional decisions, CDM as cognition, CDM as a model, and CDM as clinical judgement. Study results and conclusions naturally differed according to how CDM was conceptualized. Thus, frailty-heuristics lead to biases in treatment of geriatric patients and the complexity of this patient group was seen as a challenge for young physicians engaging in CDM. CONCLUSIONS: This scoping review summarizes how different studies in GEM use the term CDM. It provides an analysis of findings in GEM and call for more stringent definitions of CDM in future research, so that it might lead to better clinical practice.


Asunto(s)
Toma de Decisiones Clínicas , Medicina de Emergencia , Geriatría , Humanos
10.
J Clin Nurs ; 29(13-14): 2397-2409, 2020 Jul.
Artículo en Inglés | MEDLINE | ID: mdl-32220089

RESUMEN

AIM: To develop a grounded theory of the patients' experiences with patient-controlled admission. BACKGROUND: Research indicates a potential for involving patients in mental health care, but there is a need to develop and investigate new approaches in health services. Patient-controlled admission is an option for patients with severe mental disorders to refer themselves for a brief hospital admission when needed and thus avoid the usual admission procedure. DESIGN: Classic grounded theory with generation of a theory based on the constant comparative method for data collection and analysis. METHODS: Field observations and interviews with 26 mental health patients. The COREQ checklist was followed. RESULTS: We found that patient-controlled admission induced safety by providing faster access to help and thus preventing further deterioration of symptoms. Being self-determined, achieving calmness and receiving care with support and guidance from professionals during admission contributed to the sense of safety. The familiarity with the mental health professionals in their related units supported the patients in managing their situation. On the other hand, feelings of being overlooked by the professionals and experiencing uncertainty could undermine patients' feeling of safety. CONCLUSIONS: We demonstrate that safety is a focal point for patients when receiving help and support in mental health care. Patient-controlled admission can induce a feeling of safety both at the hospital and at home. Patients' self-determination is strengthened, and brief admissions give them an opportunity to handle what they are currently struggling with. Professionals can support patients in this, but their actions can also reduce patients' feeling of safety. RELEVANCE TO CLINICAL PRACTICE: Patient involvement can be introduced in psychiatry, and even severely ill patients seem to be able to assess their own condition. Feasibility may, however, be associated with the attitude and behaviour of the professionals in clinical practice.


Asunto(s)
Trastornos Mentales/psicología , Admisión del Paciente , Participación del Paciente/psicología , Adulto , Femenino , Teoría Fundamentada , Humanos , Masculino , Trastornos Mentales/terapia , Persona de Mediana Edad
11.
Scand J Psychol ; 61(4): 513-517, 2020 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-31951669

RESUMEN

Life span theories suggest that emotional experiences become more complex (i.e., nuanced and differentiated) with age. Theoretically, the cause of this increased complexity has been proposed to be age-related changes in life contexts such as goals and daily stressors. Consequently, age may not affect emotional complexity in settings where the influence of age-specific life contexts is reduced. However, this hypothesis has yet to be explored. In the present study, we investigated one aspect of emotional complexity, namely emotion differentiation. Extending previous research, we assessed age-group differences in negative emotion differentiation between young and older adults in a controlled experimental setting. A sample of 114 young and 132 older adults rated their emotional response to 34 negative pictures according to intensity of four negative emotions. Based on these ratings, two indicators of emotion differentiation were calculated. The results revealed no significant age-group differences in negative emotion differentiation. The findings indicate stability in negative emotion differentiation with increasing age when the influence of life context is reduced. The findings are consistent with life span theories suggesting that developmental changes in emotional complexity occur largely as a result of age-related changes in life contexts rather than more stable age-related changes in individual characteristics.


Asunto(s)
Envejecimiento/psicología , Emociones/fisiología , Adolescente , Adulto , Anciano , Anciano de 80 o más Años , Femenino , Humanos , Masculino , Persona de Mediana Edad , Adulto Joven
12.
Psychooncology ; 29(1): 68-75, 2020 01.
Artículo en Inglés | MEDLINE | ID: mdl-31600414

RESUMEN

OBJECTIVE: Internet-delivered interventions may alleviate distress in cancer survivors with limited access to psychological face-to-face treatment. In collaboration with a group of cancer survivors, we developed and tested the efficacy of a therapist-assisted internet-delivered mindfulness-based cognitive therapy (iMBCT) program for anxiety and depression in cancer survivors. METHODS: A total of 1282 cancer survivors were screened for anxiety and depression during their routine oncology follow-up; eligible breast (n = 137) and prostate cancer (n = 13) survivors were randomized to iMBCT or care-as-usual (CAU) wait-list. Primary outcomes of anxiety and depression were assessed at baseline, 5 weeks, 10 weeks (post intervention), and 6 months. RESULTS: Significant effects were found for both anxiety (Cohen's d = 0.45; P = .017) and depressive symptoms (d = 0.42; P = .024) post intervention. The effects were maintained at follow-up for anxiety (d = 0.40; P = .029), but not for depressive symptoms (d = 0.28; P = .131). CONCLUSIONS: Our preliminary findings suggest iMBCT to be a helpful intervention for cancer survivors suffering from symptoms of anxiety. Further studies on the efficacy for symptoms of depression are needed.


Asunto(s)
Ansiedad/terapia , Supervivientes de Cáncer/psicología , Terapia Cognitivo-Conductual , Depresión/terapia , Intervención basada en la Internet , Adulto , Femenino , Humanos , Masculino , Persona de Mediana Edad , Atención Plena
13.
Eur J Pain ; 24(2): 297-311, 2020 02.
Artículo en Inglés | MEDLINE | ID: mdl-31556212

RESUMEN

BACKGROUND: Chronic primary pain (CPP) is one of seven diagnostic groups within the proposed classification of chronic pain in ICD-11. Our aims were to apply the proposed ICD-11 criteria in a large cohort of chronic pain patients participating in the Chronic Pain Self-Management Program (CPSMP) and further investigate whether participants with CPP differed from participants with chronic secondary pain (CSP) regarding health, health expenditure and the effect of participating in the CPSMP. METHODS: A secondary analysis of a randomized, controlled trial on the effect of the CPSMP. Four examiners categorized participants' pain according to ICD-11 using register-based medical diagnoses and patients' self-reported symptoms. Afterwards, differences between CPP and CSP were examined. RESULTS: Out of 394 participants, 312 were successfully classified into CPP (n = 164) or CSP (n = 148) whereas 76 had a mixed pain condition. Participants with CPP were younger, more likely to be women, and had longer pain duration compared to participants with CSP. Participants with CPP reported worse health-related quality of life on the SF-36 Mental Component Summary and subscales of vitality, social functioning and bodily pain. Participants with CSP had more physical comorbidities and higher total health expenditure. None of the groups benefitted from the CPSMP. CONCLUSIONS: We successfully applied the new classification of chronic pain in ICD-11 on the basis of ICD-10 medical diagnoses and symptom self-report. Participants with CPP differed significantly from participants with CSP on baseline characteristics, self-reported health measures and total health expenditure. The CPSMP was not effective in any of the groups. SIGNIFICANCE: The current study applies the proposed new classification of chronic pain in ICD-11 and shares the experiences of the diagnostic rating procedure of individuals with chronic pain. Furthermore, it evaluates the effect of the Stanford Self-Management Program.


Asunto(s)
Dolor Crónico , Automanejo , Dolor Crónico/diagnóstico , Dolor Crónico/terapia , Femenino , Humanos , Clasificación Internacional de Enfermedades , Calidad de Vida , Autoinforme
14.
Psychon Bull Rev ; 26(4): 1440-1448, 2019 Aug.
Artículo en Inglés | MEDLINE | ID: mdl-31025199

RESUMEN

Interoceptive sensitivity (IS) refers to the ability to accurately perceive visceral afferent information, and several prominent theories of emotions suggest that IS is associated with heightened emotional reactivity. Recent evidence has pointed to a decline in IS with age, but there is no consistent evidence of age-related decline in emotional reactivity. This may be because the relationship between IS and emotional reactivity changes with age. To address this hypothesis, we examined the moderating role of age in the association between IS and emotional responses to affect-inducing images. A sample of 65 young adults (mean age = 23.91 years, SD = 4.62) and 32 older adults (mean age = 61.78 years, SD = 8.76) was exposed to affect-inducing images from the Nencki Affective Picture System database and completed a heartbeat perception task. Participants' subjective emotional responses to the images were assessed with questionnaires, and their physiological reactivity was indicated by electrodermal activity, heart rate, and heart rate variability during image viewing. The results revealed that age moderated the association between IS and emotional reactivity, while no significant age differences were found in IS, change in affect, or physiological reactivity. The findings demonstrated that IS was associated with emotional reactivity for young adults but not for older adults, suggesting that young and older adults may differ in their use of internal bodily signals to obtain information about their emotional experience. Consistent with contemporary developments within the affective sciences, the results emphasize the importance of individual differences in emotional experiences.


Asunto(s)
Envejecimiento/psicología , Emociones/fisiología , Interocepción/fisiología , Adulto , Factores de Edad , Anciano , Envejecimiento/fisiología , Regulación Emocional/fisiología , Femenino , Respuesta Galvánica de la Piel/fisiología , Frecuencia Cardíaca/fisiología , Humanos , Individualidad , Masculino , Persona de Mediana Edad , Adulto Joven
15.
Int J Aging Hum Dev ; 88(1): 60-81, 2019 01.
Artículo en Inglés | MEDLINE | ID: mdl-29278918

RESUMEN

Social and temporal comparisons may help the individual anchor his or her self-image in a social and temporal context. In the Life-Span Theory of Control, comparisons are included in the repertoire of secondary control strategies individuals may apply when primary control strategies are obstructed, for example, by age-related losses or physical decline. The aim of this study was to explore differences in prevalence and effects of social and temporal comparisons in younger and older adults and healthy and diseased individuals ( n = 34). Semistructured interviews were conducted and analyzed using a mixed-methods approach combining qualitative and quantitative data analysis. The results revealed that older adults engaged in more comparisons than younger adults and that the outcomes of comparisons were more positive for older adults, particularly older cancer patients. The results indicate that comparisons may be applied more often by older and diseased individuals in the service of maintaining well-being.


Asunto(s)
Envejecimiento/psicología , Estado de Salud , Neoplasias/psicología , Autoimagen , Adulto , Anciano , Anciano de 80 o más Años , Cognición , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Adulto Joven
16.
Res Involv Engagem ; 4: 24, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-30123530

RESUMEN

PLAIN ENGLISH SUMMARY: The aim of this paper is to present our experiences from a shared working group (SWG) with patient representatives and researchers. The SWG collaborated on developing a psychosocial cancer rehabilitation intervention for women treated for breast cancer and men treated for prostate cancer and on the planning of an effect study of this intervention.The SWG included five patient representatives (three women treated for breast cancer and two men treated for prostate cancer), four researchers and a research assistant. The SWG met four times during the year where the intervention was developed. Data material for the present evaluation study comprises meeting documents, transcriptions of interviews with two patient representatives and three researchers from the SWG, and the primary investigator's field notes.The collaboration between patient representatives and researchers informed both the intervention and the research planning and was rewarding for the involved participants. The well-structured organization of the collaboration had a positive impact on the outcome. In addition, clear goals and clarification of expectations were important. Challenges were encountered in keeping continuity between meetings and carrying out homework as intended. It was crucial for the collaboration that patient representatives had specific knowledge, interest and motivation for the project.Involving patient representatives in the research process heightened the relevancy of the research and the quality of its contents. The SWG gave patient representatives and researchers a better mutual understanding. Overall, the conclusion is that the benefits obtained by involving patient representatives exceeds the additional costs this involves. ABSTRACT: Background The aim of the paper is to present experiences of researchers collaborating with patients in a shared working group comprising patient representatives and researchers. Experiences are deduced from the evaluation of the work in the working group, which collaborated on developing a psychosocial cancer rehabilitation intervention for women treated for breast cancer and men treated for prostate cancer and the planning of a randomized controlled trial that investigates the effect of this intervention. Methods Five patient representatives (three women treated for breast cancer and two men treated for prostate cancer), four researchers and a research assistant participated in the shared working group. The shared working group met four times during the year the intervention was developed. Data material for the present evaluation study was collected from meeting documents, transcriptions of interviews with two patient representatives and three researchers from the shared working group, and the primary investigator's field notes. The data analysis was guided by Sandelowski's qualitative description strategy. Results The collaboration between patient representatives and researchers informed the intervention and the research planning and was rewarding for the involved participants. The well-structured organization of the collaboration had a positive impact on the outcome. Also, clear goals and clarification of expectations were important. Challenges were encountered in ensuring continuity between meetings and carrying out homework as intended. It was considered crucial for the collaboration to recruit patient representatives with specific knowledge, interest and motivation for the project. The direct costs related to the shared working group, including meals, transportation and salary for the research assistant, were small. However, the indirect costs in terms of time spent on planning patient-involving elements of, organizing meetings and evaluation were substantial and demanded a significant amount of extra work for the primary investigator. Conclusion Involving patients in the research process heightened the relevancy of the research and the quality of the research contents. The shared working group influenced both patient representatives and researchers and gave them a better mutual understanding. Overall, the conclusion is that the benefits obtained by involving patients exceed the additional costs related to patient involvement.

17.
Clin J Pain ; 34(11): 991-999, 2018 11.
Artículo en Inglés | MEDLINE | ID: mdl-29750664

RESUMEN

OBJECTIVES: The aims of our study were (1) to identify possible subgroups of individuals with chronic pain based on their illness perceptions (IPs); (2) to examine whether these subgroups differed in health status and health expenditure; and (3) to examine whether the subgroups differed in their response to participation in a lay-led Chronic Pain Self-Management Program (CPSMP). MATERIALS AND METHODS: Four hundred twenty-four participants in a randomized controlled trial on the CPSMP completed a questionnaire on their perceptions of their chronic pain condition at baseline. In addition, they completed a range of health status measures at baseline and 3 months after end of participation in the CPSMP. Health care expenditure was obtained from Danish health registers. We performed cluster analyses to identify possible subgroups based on the participants' perceptions of their chronic pain condition. RESULTS: Cluster analysis of IPs resulted in 3 meaningful clusters, classified as "distressed, certain cause," "distressed, uncertain cause," and "nondistressed, certain cause," respectively. The 2 distressed groups had significantly higher scores on pain catastrophizing, illness worry, and emotional distress than did the nondistressed. Moderator analyses showed, that the "distressed, certain cause" had significant positive effect of participating in the CPSMP on pain catastrophizing and emotional distress, whereas the "distressed, uncertain cause" had a decrease and the "nondistressed, certain cause" an increase in primary health expenditure. DISCUSSION: Clusters based on IPs meaningfully distinguished individuals with chronic pain on health measures and outcome of participating in the CPSMP, and may prove useful in future studies to understand responses to treatment.


Asunto(s)
Dolor Crónico/psicología , Dolor Crónico/terapia , Conocimientos, Actitudes y Práctica en Salud , Automanejo , Dolor Crónico/diagnóstico , Dolor Crónico/economía , Análisis por Conglomerados , Femenino , Costos de la Atención en Salud , Estado de Salud , Humanos , Masculino , Persona de Mediana Edad , Dimensión del Dolor , Autoimagen , Resultado del Tratamiento
18.
Exp Aging Res ; 44(4): 297-310, 2018.
Artículo en Inglés | MEDLINE | ID: mdl-29847218

RESUMEN

BACKGROUND: Research on the effect of age on affective reactivity continues to provide inconsistent findings. The present study addresses two potential explanations that may account for these inconsistencies. First, gender may moderate age differences in affective reactivity and second, age differences in affective reactivity may vary according to emotion category. The aim of the present study was therefore to examine age differences in reactions to emotion-inducing images when singling out the effect of gender and emotion category. METHODS: A sample of 396 young (mean age = 23.31, SD = 3.70; 66% female) and old (mean age = 66.09, SD = 4.31; 37.5% female) Danish adults rated 105 images from the Nencki Affective Picture System (NAPS) database according to valence and arousal. Images were divided into the three emotion categories of disgust, sadness, and happiness. RESULTS: The findings indicate that age-group influenced affective reactivity, but there was no indication of an an interaction between age-group and gender. Going beyond previous studies, the findings demonstrate that the effect of age-group on affective reactivity varies according to emotion category. CONCLUSION: The results highlight the importance of considering emotion category in studies of age differences in affective reactivity.


Asunto(s)
Afecto/fisiología , Envejecimiento/psicología , Emociones/fisiología , Adolescente , Anciano , Anciano de 80 o más Años , Nivel de Alerta/fisiología , Femenino , Felicidad , Humanos , Masculino , Persona de Mediana Edad , Estimulación Luminosa , Caracteres Sexuales , Adulto Joven
19.
Qual Health Res ; 28(6): 888-899, 2018 05.
Artículo en Inglés | MEDLINE | ID: mdl-29424277

RESUMEN

Patient-controlled admissions (PCAs) enable mental health patients by means of a contract to initiate an admission at a mental health hospital unit without using traditional admission procedures. This study was part of a 3-year Danish multicenter project, and we explored how mental health professionals experienced and managed the implementation of a PCA program. The methodology was grounded theory and the sample included 26 participants. We performed a constant comparative analysis to explore the concerns, attitudes, and strategies of mental health professionals. We developed a model of how the mental health professionals strived to integrate PCA into clinical practice. The process was motivated by the idea of establishing a partnership with patients and involved two interrelated strategies to manage (a) the patient-related duties and (b) the admission contracts. The professionals moved from a phase of professional discomfort to a phase of professional awareness, and ended up with professional comprehension.


Asunto(s)
Actitud del Personal de Salud , Hospitales Psiquiátricos/organización & administración , Enfermos Mentales , Admisión del Paciente , Adulto , Dinamarca , Femenino , Teoría Fundamentada , Hospitales Públicos , Humanos , Masculino , Persona de Mediana Edad
20.
Pain ; 158(8): 1437-1445, 2017 08.
Artículo en Inglés | MEDLINE | ID: mdl-28644822

RESUMEN

The Stanford Chronic Pain Self-Management Programme (CPSMP) consists of 6 2½-hour weekly workshops focusing on how to manage pain in daily life. The workshops are facilitated by 2 workshop leaders of whom at least 1 must suffer from a long-term pain condition. The program is highly structured and manualized. Only few controlled trials testing the effect of CPSMP exist. Enrolled in the study were 424 adults from 19 Danish municipalities, (72% women; age: 25-93 years) with pain of any etiology and great variation in pain history (0-50 yrs). Of these, 216 were randomized to a lay-led version of the CPSMP. The primary outcome was pain-related disability. Secondary outcomes were pain, pain catastrophizing, self-efficacy, emotional distress, physical symptoms, and illness worry. Outcomes were measured before randomization, immediately after the CPSMP (response rate: 94%), and at 3-month follow-up (response rate: 92%). National register data on health expenditure were obtained to examine effects on health care use. ClinicalTrials.gov Identifier: NCT01306747. The CPSMP had no effect on the primary outcome pain-related disability or on health expenditure during intervention and follow-up period. Small positive effects on emotional distress and illness worry 3 months after CPSMP were observed. Lay-led CPSMP is not recommended as treatment for chronic pain-related disability. This heterogeneous group of patients with pain did not benefit from the CPSMP except for a small, but clinically insignificant improvement in psychological well-being.


Asunto(s)
Dolor Crónico , Autocuidado , Automanejo , Adulto , Anciano , Anciano de 80 o más Años , Catastrofización/fisiopatología , Dolor Crónico/psicología , Dolor Crónico/terapia , Femenino , Humanos , Masculino , Persona de Mediana Edad , Educación del Paciente como Asunto , Calidad de Vida , Encuestas y Cuestionarios
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