Clinical characteristics of attention-deficit/hyperactivity disorder in children and adolescents: association with quality of life and behavioral aspects / Características clínicas de transtorno do déficit de atenção em crianças e adolescentes: associação com qualidade de vida e aspectos comportamentais

Abstract Objective: To identify associations between clinical characteristics of children with attention-deficit/hyperactivity disorder (ADHD) and their sociodemographic aspects, quality of life, and results from the strengths and difficulties questionnaire. Methods: This is an observational analytical cross-sectional study with a non-probabilistic sample consisting of 72 children diagnosed with ADHD, aged 6 to 13 years, treated at 2 neuropediatric outpatient clinics. The instruments used were the Multimodal Treatment Study of Children with Attention-Deficit/Hyperactivity Disorder - Swanson, Nolan, and Pelham, version IV (MTA-SNAP-IV), the Strengths and Difficulties Questionnaire (SDQ), the Brazilian Economic Classification Criteria (CCEB), and the Quality of Life Assessment Scale for Children and Adolescents (AUQEI). We performed descriptive, bivariate, and multivariate analyses, considering a 5% significance level. Results: SDQ results were associated with abnormal MTA-SNAP-IV results (inattentive/hyperactive/combined). A 1-point increment in the SDQ score increased by 36.5% the likelihood of the child having an abnormal MTA-SNAP-IV classification. Regarding AUQEI, 30.6% of participants perceived their quality of life as poor and 69.4% as good. Conclusions: A higher SDQ score increased the child's chance of having an abnormal MTA-SNAP-IV result.

Resumo Objetivo: Verificar a associação entre características clínicas de crianças com transtorno do déficit de atenção e hiperatividade (TDAH) e aspectos sociodemográficos, qualidade de vida e questionário de capacidades e dificuldades. Métodos: Estudo observacional, analítico e transversal, com amostra não probabilística composta de 72 crianças diagnosticadas com TDAH, com idade entre 6 e 13 anos, atendidas em dois ambulatórios de neuropediatria. Os instrumentos utilizados foram o Multimodal Treatment Study Swanson, Nolan e Pelham (MTA-SNAP-IV), de triagem para sinais e sintomas de pessoas com TDAH, o Questionário de Capacidades e Dificuldades (SDQ), o Critério de Classificação Econômica Brasil (CCEB) e a Escala de Avaliação de Qualidade de Vida em Crianças e Adolescentes (AUQUEI). Foram realizadas análises descritiva, bivariada e multivariada, considerando-se o nível de significância de 5%. Resultados: Os resultados do SDQ tiveram associação com o resultado alterado do MTA-SNAP-IV (desatento/hiperativo/misto). O aumento de 1 ponto no escore do SDQ elevou em 36,5% a chance de a criança ser classificada como alterada no MTA-SNAP-IV. Em relação ao AUQUEI, 30,6% dos participantes avaliaram a qualidade de vida como ruim e 69,4% como boa. Conclusões: O aumento no escore do SDQ elevou a chance de a criança ter o MTA-SNAP-IV alterado.

Clinical characteristics of attention-deficit/hyperactivity disorder in children and adolescents: association with quality of life and behavioral aspects.

OBJECTIVE: To identify associations between clinical characteristics of children with attention-deficit/hyperactivity disorder (ADHD) and their sociodemographic aspects, quality of life, and results from the strengths and difficulties questionnaire. METHODS: This is an observational analytical cross-sectional study with a non-probabilistic sample consisting of 72 children diagnosed with ADHD, aged 6 to 13 years, treated at 2 neuropediatric outpatient clinics. The instruments used were the Multimodal Treatment Study of Children with Attention-Deficit/Hyperactivity Disorder - Swanson, Nolan, and Pelham, version IV (MTA-SNAP-IV), the Strengths and Difficulties Questionnaire (SDQ), the Brazilian Economic Classification Criteria (CCEB), and the Quality of Life Assessment Scale for Children and Adolescents (AUQEI). We performed descriptive, bivariate, and multivariate analyses, considering a 5% significance level. RESULTS: SDQ results were associated with abnormal MTA-SNAP-IV results (inattentive/hyperactive/combined). A 1-point increment in the SDQ score increased by 36.5% the likelihood of the child having an abnormal MTA-SNAP-IV classification. Regarding AUQEI, 30.6% of participants perceived their quality of life as poor and 69.4% as good. CONCLUSIONS: A higher SDQ score increased the child's chance of having an abnormal MTA-SNAP-IV result.

O impacto do cuidado domiciliar na evolução da síndrome de Werdnig-Hoffmann: relato de caso / Impact of home care in the evolution of Werdnig-Hoffmann syndrome: case report

A atrofia muscular espinhal (AME) tipo I ou síndrome de Werdnig-Hoffmann é doença neuromuscular grave que se manifesta precocemente e apresenta elevada morbimortalidade. O objetivo deste trabalho é destacar a importância do serviço de assistência domiciliar na abordagem das doenças graves em que o cuidado é o principal fator promovedor da qualidade de vida.

Type 1 spinal muscular atrophy (SMA) or Werdnig-Hoffmann syndrome is a severe neuromuscular disease that has an early manifestation and presents high morbimortality. The aim of this paper was to highlight the importance of home care service when approaching severe diseases, in which care is the main factor that promotes quality of life.