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1.
Jpn J Nurs Sci ; : e12608, 2024 Jun 02.
Artículo en Inglés | MEDLINE | ID: mdl-38825782

RESUMEN

AIM: We investigated the levels of anxiety and the factors influencing it among Japanese nursing researchers before and after engaging in dispatch support activities during the COVID-19 pandemic. This study also tested the relationships between pre- and post-relief anxiety and their enhancing and buffering factors. METHODS: A web-based survey was conducted with 9832 members from the Japan Academy of Nursing Science, covering 15 items related to participant attributes such as age and disaster relief qualifications, factors affecting anxiety about support activities such as the content and duration of one activity, and the level of anxiety before and after activities. After performing multiple regression analyses on the effects of the attributes and the factors influencing anxiety before and after support activities, path analysis was conducted on the adopted independent variables to examine their influence on anxiety before and after support activities. RESULTS: Of the 886 participants, 82.3% were affiliated with educational institutions and 94.8% had no qualifications in disaster relief. Most of the support involved vaccination and activities at health centers. The relationship between pre- and post-relief activities and factors influencing anxiety constituted a high goodness-of-fit, with health center assistance being both a direct and indirect reinforcer of post-relief anxiety. CONCLUSIONS: Participants expressed anxiety enhanced by activities at the health center both before and after support activities in the wake of the COVID-19 pandemic. Intervention research should examine anxiety-buffering and -enhancing factors, and a support system to respond to rapidly increasing medical needs is necessary.

2.
Indian J Palliat Care ; 29(2): 175-180, 2023.
Artículo en Inglés | MEDLINE | ID: mdl-37325269

RESUMEN

Objectives: Palliative care is essential for patients requiring respiratory assistance through non-invasive positive pressure ventilation (NPPV). This study aimed to describe nurses' perception of individuals with NPPV and non-cancer terminal diseases in various clinical settings. Material and Methods: This qualitative and descriptive study was conducted using semi-structured interviews with audio recordings with advanced practice nurses from different clinical settings and obtained their perceptions of end-of-life care for patients with NPPV. Results: Five categories of nurses' perceptions were extracted: Difficulty with an uncertain prognosis, differences in symptom management by type of disease, benefits and weaknesses of NPPV on palliative care, influence of physicians' attitude toward palliative care and the nature of the medical institutions and influence of patient's age in palliative care. Conclusion: The nurses' perceptions showed differences and similarities across disease types. There is a need for skills improvement regardless of disease type to minimise the side effects of NPPV. Advanced care planning based on disease-specific characteristics and age-appropriate support and integration of palliative care into acute care is needed for terminal NPPV-dependent patients. Interdisciplinary efforts, as well as the pursuit of expertise in each field, are needed to provide good palliative and end-of-life care for NPPV users with non-cancer diseases.

3.
Front Psychol ; 12: 752461, 2021.
Artículo en Inglés | MEDLINE | ID: mdl-34603172

RESUMEN

Amyotrophic lateral sclerosis (ALS) is a devastating neurodegenerative disease for which there is currently no cure. This study aimed to explore the situations with which nurses struggled, their implemented practical measures, and the challenges they experienced when caring for patients with ALS comorbid with cognitive impairment (hereinafter, targeted patients). In this qualitative study, we conducted a survey with nurses (n = 121) experienced in caring for ALS patients; the survey contained a free-writing section in which participants described their struggles regarding care delivery for these patients. To collect data on practical measures that nurses had already implemented or wanted to propose regarding care delivery for the targeted patients, we conducted four focus group interviews (n = 22). We used a qualitative inductive approach to extract the categories. Fifty-eight nurses (49.6%) completed the free-writing survey section. The situations in which nurses struggled in care for the targeted patients were organized into three categories: "Patients' strong persistency on specific requirements for nursing assistance in their daily lives," "Patients' problematic behaviors toward nurses," and "Struggles in communicating with and understanding patients' wishes." Nurses reported these situations as stressful, and they affected care quality. The practical measures implemented when caring for the targeted patients were organized into five categories: "Cognitive impairment assessment," "Care delivery to deal with patients' strong persistency on specific requirements for assistance in their daily lives," "Communication," "Supporting the decision-making process," and "Collaboration between the hospital and the community." Multidisciplinary collaboration in the hospital, and collaboration between the hospital and the community from an early stage is necessary to share the results of the assessment and diagnosis of cognitive impairment. Our evidence underlines that guideline and care manual establishment may lead to improved care delivery and to the unification of care deliveries to respond to patients' strong persistency.

4.
J Neurosci Nurs ; 50(3): 182-186, 2018 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-29652733

RESUMEN

The purpose of this study was to elucidate the circumstances and symptoms of patients with amyotrophic lateral sclerosis (ALS) using noninvasive positive pressure ventilation (NPPV) in whom death was approaching, to understand how to provide palliative care to dying patients with ALS receiving NPPV management. The participants were 6 home visiting nurses who were head or subhead nurses of a home visiting nursing agency. Data were collected conducting individual semistructured interviews and then group interviews. The results were based on qualitative analysis of the circumstances of death and prognostication and showed 5 categories: difficulties with knowing about approaching death, several signs and symptoms of knowing about approaching death, importance of feeling prepared and provision of palliative care to die at home, death caused by accident, and fate determined by the caregiver's ability. Further research is needed to collect rich data about predicting approaching death to improve end-of-life care for NPPV-dependent ALS patients who do not receive sufficient benefits from NPPV.


Asunto(s)
Esclerosis Amiotrófica Lateral , Servicios de Atención de Salud a Domicilio , Ventilación no Invasiva/métodos , Cuidado Terminal , Adulto , Anciano , Esclerosis Amiotrófica Lateral/mortalidad , Esclerosis Amiotrófica Lateral/enfermería , Cuidadores/psicología , Femenino , Humanos , Entrevistas como Asunto , Masculino , Persona de Mediana Edad , Ventilación no Invasiva/instrumentación
5.
Am J Hosp Palliat Care ; 32(4): 417-26, 2015 Jun.
Artículo en Inglés | MEDLINE | ID: mdl-24622867

RESUMEN

INTRODUCTION: Healthcare providers need to better understand the end-of-life situations of in-home amyotrophic lateral sclerosis (ALS) patients to support their desires about where to die and to allow peaceful death. PURPOSE: To clarify the situations of individuals with ALS in the last stages of illness according to the place of death as reported by home care nurses. METHODS: Minimum structured interviews were conducted with 14 home care nurses, and data regarding 14 ALS patients who died were collected. RESULTS: Six patients died at home, and eight died at the hospital. Many sudden deaths were observed among the patients who died at home, whereas pneumonia was often the cause of death in the hospital. CONCLUSION: Providing family education and ensuring the availability of local family physicians are vital to meeting a patient's desire to die at home. Home care nursing should be introduced in the early stage after diagnosis to provide support to patients for timely decision-making.


Asunto(s)
Esclerosis Amiotrófica Lateral/psicología , Muerte , Servicios de Atención de Salud a Domicilio , Hospitales , Cuidado Terminal/psicología , Anciano , Causas de Muerte , Femenino , Educación en Salud , Humanos , Entrevistas como Asunto , Japón , Masculino , Persona de Mediana Edad , Enfermeras y Enfermeros/psicología , Neumonía/psicología , Respiración Artificial/métodos
6.
BMC Med Educ ; 12: 84, 2012 Aug 28.
Artículo en Inglés | MEDLINE | ID: mdl-22928985

RESUMEN

BACKGROUND: In Japan, few community-based approaches have been adopted in health-care professional education, and the appropriate content for such approaches has not been clarified. In establishing community-based education for health-care professionals, clarification of its learning effects is required. A community-based educational program was started in 2009 in the health sciences course at Gunma University, and one of the main elements in this program is conducting classes outside school. The purpose of this study was to investigate using text-analysis methods how the off-campus program affects students. METHODS: In all, 116 self-assessment worksheets submitted by students after participating in the off-campus classes were decomposed into words. The extracted words were carefully selected from the perspective of contained meaning or content. With the selected terms, the relations to each word were analyzed by means of cluster analysis. RESULTS: Cluster analysis was used to select and divide 32 extracted words into four clusters: cluster 1-"actually/direct," "learn/watch/hear," "how," "experience/participation," "local residents," "atmosphere in community-based clinical care settings," "favorable," "communication/conversation," and "study"; cluster 2-"work of staff member" and "role"; cluster 3-"interaction/communication," "understanding," "feel," "significant/important/necessity," and "think"; and cluster 4-"community," "confusing," "enjoyable," "proactive," "knowledge," "academic knowledge," and "class." CONCLUSIONS: The students who participated in the program achieved different types of learning through the off-campus classes. They also had a positive impression of the community-based experience and interaction with the local residents, which is considered a favorable outcome. Off-campus programs could be a useful educational approach for students in health sciences.


Asunto(s)
Actitud del Personal de Salud , Medicina Comunitaria/educación , Relaciones Comunidad-Institución , Personal de Salud/educación , Adulto , Anciano , Curriculum , Minería de Datos , Personas con Discapacidad , Educación en Salud , Promoción de la Salud , Humanos , Japón , Persona de Mediana Edad , Modelos Educacionales , Relaciones Profesional-Paciente , Evaluación de Programas y Proyectos de Salud , Autoevaluación (Psicología) , Medio Social
7.
Int J Palliat Nurs ; 18(11): 554-60, 2012 Nov.
Artículo en Inglés | MEDLINE | ID: mdl-23413504

RESUMEN

PURPOSE: This study aimed to clarify the circumstances surrounding death for people with amyotrophic lateral sclerosis (ALS) in Japan and difficulties in providing home-care end-of-life nursing for these individuals. METHOD: A questionnaire was mailed to the directors of 709 home-care nursing agencies located in central Japan. RESULTS: Of 232 questionnaires returned (response rate 32.8%), 49 reported treating someone with ALS. Overall, 31% of these patients died at home, whereas 63% were admitted to hospital from a few days to months preceding death. Respiratory insufficiency was identified as the cause of death in 73% of cases, 45% of the deaths were sudden, and 27% of the deaths involved CO2 narcosis. Analysis of the reported nursing difficulties resulted in five categories: lack of adaptation to the disease or disease progression by the patient and/or their family, involvement with family, how to select/deliver care, decision-making and communication, and poor collaboration with other practitioners. CONCLUSION: Family care and family education are important to supporting the end-of-life process for people with ALS. Use of advance directives and collaboration with other related practitioners are recommended to enhance communication linked to psychological care and informed consent.


Asunto(s)
Esclerosis Amiotrófica Lateral/enfermería , Muerte , Cuidado Terminal , Adulto , Anciano , Esclerosis Amiotrófica Lateral/fisiopatología , Femenino , Humanos , Japón , Masculino , Persona de Mediana Edad
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