[Home Enteral Nutrition: National Registry 2001]. / Nutrición Enteral Domiciliaria (NED): registro nacional 2001.

GOAL: The NADYA-SENPE Working Group analyzed the registered data of patients on Home Enteral Nutrition (HEN) in our country, during year 2001. MATERIAL AND METHODS: The data were collected through a closed questionnaire included on our web site (www.nadya-senpe.com). Apart from epidemiological information, the form includes the indication to prescribe this treatment, the specific nutritional treatment used and its duration, access path, complications and readmission rate in hospital, follow-up of the treatment, patient's quality of life and progress. All data were processed and analyzed by the coordinating team. RESULTS: Twenty two hospitals participated and 3,458 patients, aged 5.6 +/- 4.0 y for those younger than 14 y, and 67.1 +/- 19.5 y for those older than 14 y, were enrolled. Of these patients, 43.4% were diagnosed with neurological diseases and 33.5% with cancer. The mean time on HEN was 6.5 +/- 4.5 months. Oral nutrition was the preferential route (54.5%), followed by nasoenteral tube (32.3%), and in 13.3% ostomy tubes were placed. Polymeric was the formula composition mainly used (85.9%). Patients were followed (71.1%) by the hospital reference Nutritional Support Unit. The complications related to nutrition included mainly the gastrointestinal (0.16 complications/patient), and the mechanical one (0.15 complications/patient). At the end for the year, 48.3% of the patients were in the HEN program, and in 33.3% HEN was finish due to different reasons. In 22.9% of the patients no, o light, discapacity degree was found. CONCLUSIONS: Neurological diseases and cancer were the more frequent diagnoses in HEN patients. Oral access was the higher feeding route due, probably, to the high prevalence of cancer patients. In spite of the elevated prevalence of neurological diseases, a few number of patients, as previous years, were feed with ostomy tube. Due to the few complications observed, HEN is a safe treatment in our country.

Nutrición enteral domiciliaria (NED): registro nacional 2001 / Home enteral nutrition (HEN) in our country, during the year 2001

Introducción y objetivos: Análisis del registro de los pacientes en programa de Nutrición Enteral Domiciliaria (NED) en nuestro país durante el año 2001. Material y métodos: Estudio analítico realizado mediante una base de datos incluida en la web del Grupo NADYA (www.nadya-senpe.com) con los pacientes en NED el año 2001. Han participado 22 hospitales. Se aportan datos epidemiológicos, diagnósticos, vía de acceso, pautas de administración, fórmulas, duración, complicaciones, evolución y grado de incapacidad. Resultados: Incidencia: Se han comunicado 3.458 pacientes, 1.818 varones (53,7 por ciento) y 1.567 hembras (46,3 por ciento). Edad media 5,6 ñ 4,0 años en los menores de 14 años, y 67,1 ñ 19,5 en los mayores de 14 años. Patologías: Predominio de la patología neurológica (43,4 por ciento), seguida de la neoplásica (33,5 por ciento) sobre las demás. Duración: Tiempo medio en NED de 6,5 ñ 4,5 meses. Vías de administración: La vía oral es la más frecuente (54,5 por ciento), seguida de la sonda naso gástrica (SNG) (32,2 por ciento) y de las ostomías (13,3 por ciento). Formas de administración: Predominio de la forma discontinua (66,1 por ciento), mediante goteo (43,4 por ciento) o bolus (22,7 por ciento). Fórmula: La fórmula polimérica fue la más utilizada (85,9 por ciento). Seguimiento: Los pacientes fueron mayoritariamente controlados por la unidad de nutrición de su hospital de referencia (69,3 por ciento). Hospitalizaciones: Se han registrado 7,3 por ciento hospitalizaciones asociadas a la nutrición [0,02 hospitalizaciones / paciente (c / p)]. Complicaciones: Las más frecuentes relacionadas con la nutrición fueron las gastrointestinales (25,9 por ciento; 0,16 c / p) y las mecánicas (24,2 por ciento, 0,15 c / p). Las diarreas han sido las complicaciones gastrointestinales más frecuentes (11,5 por ciento, 0,07 c / p). Evolución: Al finalizar el año el 48,3 por ciento de los pacientes continuaban en activo, mientras que en un 33,3 por ciento se suspendió la NE y en 18,4 por ciento no hubo continuidad de seguimiento. La causa más común de suspensión fue el paso a nutrición oral convencional (47,3 por ciento), seguido de la muerte relacionada con la enfermedad de base (43,5 por ciento). Un 29,7 por ciento de los pacientes estaban confinados en cama o silla, mientras que un 22,9 por ciento no presentaba prácticamente ningún grado de incapacidad. Conclusiones: Persiste la vía de administración oral como la más prevalente frente a la sonda y ostomía. Predominio de la patología neurológica. El bajo número de complicaciones e ingresos comportan que la NED sea un tratamiento seguro en nuestro medio (AU)

Goal: The NADYA-SENPE Working Group analyzed the registered data of patients on Home Enteral Nutrition (HEN) in our country, during year 2001. Material and methods: The data were collected through a closed questionnaire included on our web site (www.nadya-senpe.com). Apart from epidemiological information, the form includes the indication to prescribe this treatment, the specific nutritional treatment used and its duration, access path, complications and read-mission rate in hospital, follow-up of the treatment, patient's quality of life and progress. All data were precessed and analyzed by the coordinating team. Results: Twenty two hospitals participated and 3,458 patients, aged 5.6 ± 4.0 y for those younger than 14 y, and 67.1 ± 19.5 y for those older than 14 y, were enrolled. Of these patients, 43.4% were diagnosed with neurological diseases and 33.5% with cancer. The mean time on HEN was 6.5 ± 4.5 months. Oral nutrition was the preferential route (54.5%), followed by nasoenteral tube (32.3%), and in 13.3% ostomy tubes were placed. Polymeric was the formula composition mainly used(85.9%). Patients were followed (71.1%) by the hospital reference Nutritional Support Unit. The complications related to nutrition included mainly the gastrointestinal (0.16 complications/patient), and the mechanical one (0.15 complications/patient). At the end for the year, 48.3% of the patients were in the HEN program, and in 33.3% HEN was finish due to different reasons. In 22.9% of the patients no, o light, discapacity degree was found. Conclusions: Neurological diseases and cancer were the more frequent diagnoses in HEN patients. Oral access was the higher feeding route due, probably, to the high prevalence of cancer patients. In spite of the elevated prevalence of neurological diseases, a few number of patients, as previous years, were feed with ostomy tube. Due to the few complications observed, HEN is a safe treatment in our country (AU)

[Enteral nutrition at home: National register for the year 2000]. / Nutrición enteral domiciliaria (NED): Registro Nacional del año 2000.

GOAL: Once again, the NADYA-SENPE Working Group analysed the registered data of Home Enteral Nutrition (HEN) in our country, during the year 2000. MATERIAL AND METHODS: The data were collected through a closed questionnaire included on our web site (www.nadya-senpe.com). Apart from epidemiological information, the form includes the indication to prescribe this treatment, the specific nutritional treatment used and its duration, access path, complications and readmission rate in hospital, follow-up of the treatment, patient's quality of life and progress. All data were processed and analysed by the co-ordinating team. RESULTS: Twenty two hospital participated and 2,986 patients, aged 65.1 +/- 19.7 years, were enrolled. Of these patients, 41.2% were diagnosed with neurological diseases and 33.3% with cancer. The mean time on HEN was 6.3 +/- 4.4 months. Oral nutrition was the preferential route (50.8%), followed by nasoenteral tube (30.5%), and in 17.4% ostomy tubes were placed. Polymeric was the formula composition mainly used (83.2%). Patients were followed (70.1%) by the hospital reference Nutritional Support Unit. The complications related to nutrition included the gastrointestinal (0.25 complications/patient), the mechanical one (0.19 complications/patient), and the metabolic (0.007 complications/patient). Feeding tube need to be replaced 0.3 times/patient/year. The readmission rate, for nutritional problems, was observed in 0.03 patients. At the end of the year, 54.9% of the patients were in the HEN program, and in 30.3% HEN was finish due to different reasons. In 21.9% of the patients no, o light, discapacity degree was found. CONCLUSIONS: Related to previous years, there is an increment in the number of enrolled patients. Neurological diseases and cancer were the more frequent diagnoses in HEN patients. Oral access was the higher feeding route due, probably, to the high prevalence of cancer patients. In spite of the elevated prevalence of neurological diseases, a few number of patients were feed with ostomy tube. Finally, due to the few readmission rate and complications, HEN is a safe treatment in our country.

Nutrición enteral domiciliaria (NED): Registro Nacional del año 2000 / Enteral nutrition at home. National Register for 2000

Objetivo: Un año más, el Grupo de Trabajo NADYASENPE, presenta el análisis del registro de los pacientes con Nutrición Enteral Domiciliaria (NED) de nuestro país correspondiente al año 2000.Material y métodos: La información se ha recogido en un cuestionario cerrado incluido en nuestra página web (www.nadya-senpe.com). Este formulario incluye datos epidemiológicos, indicación del motivo de este tratamiento, pauta de tratamiento y vía de acceso, complicaciones y hospitalizaciones, seguimiento de los pacientes, calidad de vida y evolución. Los datos son procesados y analizados por el equipo coordinador. Resultados: Se han registrado datos de 22 hospitales que representan un total de 2.986 pacientes analizados, con una edad media de 65,1 ñ 19,7 años. Predominio de pacientes con alteraciones neurológicas (41,2 per cent), seguidos de los neoplásicos (33,3 per cent). El tiempo medio de NED fue 6,3 ñ 4,4 meses. Se observó una elevada prevalencia de la vía oral (50,8 per cent), seguido de la administración a través de sonda nasogástrica (SNG) (30,5 per cent), siendo el porcentaje de ostomías de un 17,4 per cent. La fórmula polimérica fue la más utilizada en un 83,2 per cent. Los pacientes fueron controlados, mayoritariamente, por la unidad de nutrición de su hospital de referencia (70,1 per cent). Las complicaciones, relacionadas con la nutrición, más frecuentemente observadas fueron las gastrointestinales (0,25 complicaciones/paciente), seguidas de las mecánicas (0,19 complicaciones/paciente), y de las metabólicas (0,007 complicaciones/pacientes). Se realizaron 0,3 cambios de sonda/paciente/año. Se registraron 0,03 hospitalizaciones/paciente, asociadas a la nutrición. Al finalizar el año, el 54,9 per cent de los pacientes continuaban en activo, mientras que en un 30,3 per cent se suspendió la NED por diversos motivos. El 21,9 per cent no presentaba incapacidad o el grado de la misma era ligero. Conclusiones: Existe un incremento, en relación a años previos en el número de pacientes con NED registrados. Persiste el gran peso de las patologías neurológicas y oncológicas en este tratamiento a domicilio. Probablemente, por existir un elevado número de pacientes oncológicos, la administración de la NED por boca es elevada. A destacar que hay pocos pacientes con ostomías. Finalmente, la NED en nuestro país es un tratamiento seguro con bajo número de complicaciones (AU)

Goal: Once again, the NADYA-SENPE Working Group analysed the registered data of Home Enteral Nutrition (HEN) in our country, during the year 2000. Material and methods: The data were collected through a closed questionnaire included on our web site (www.nadya-senpe.com). Apart from epidemiological information, the form includes the indication to prescribe this treatment, the specific nutritional treatment used and its duration, access path, complications and readmission rate in hospital, follow-up of the treatment, patient’s quality of life and progress. All data were processed and analysed by the co-ordinating team. Results: Twenty two hospital participated and 2,986 patients, aged 65.1 ± 19.7 years, were enrolled. Of these patients, 41.2% were diagnosed with neurological diseases and 33.3% with cancer. The mean time on HEN was 6.3 ± 4.4 months. Oral nutrition was the preferential route (50.8%), followed by nasoenteral tube (30.5%), and in 17.4% ostomy tubes were placed. Polymeric was the formula composition mainly used (83.2%). Patients were followed (70.1 %) by the hospital reference Nutritional Support Unit. The complications related to nutrition included the gastrointestinal (0.25 complications/ patient), the mechanical one (0.19 complications/patient), and the metabolic (0.007 complications/ patient). Feeding tube need to be replaced 0.3 times/ patient/year. The readmission rate, for nutritional problems, was observed in 0.03 patients. At the end of the year, 54.9% of the patients were in the HEN program, and in 30.3% HEN was finish due to different reasons. In 21,9% of the patients no, o light, discapacity degree was found. Conclusions: Related to previous years, there is an increment in the number of enrolled patients. Neurological diseases and cancer were the more frequent diagnoses in HEN patients. Oral access was the higher feeding route due, probably, to the high prevalence of cancer patients. In spite of the elevated prevalence of neurological diseases, a few number of patients were feed with ostomy tube. Finally, due to the few readmission rate and complications, HEN is a safe treatment in our country (AU)