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1.
BJPsych Open ; 6(5): e83, 2020 Aug 03.
Artigo em Inglês | MEDLINE | ID: mdl-32744202

RESUMO

BACKGROUND: The incidence of dementia in Black, Asian and minority ethnic (BAME) groups is increasing in the UK, with concern about underdiagnosis and late presentation. AIMS: By reviewing referrals to memory clinics from Leicester City we examined whether the following differed by ethnicity: the proportion with a diagnosis of dementia, type of dementia and severity at presentation. METHOD: We examined referrals between 2010 and 2017: all those whose ethnicity was recorded as Black (n = 131) and a random sample of 260 Asian and 259 White British referrals. Severity of dementia was assessed by record review. Odds ratios (ORs) were adjusted for general practice, age, gender and year of referral. RESULTS: A diagnosis of dementia was recorded in 193 (74.5%) White British, 96 (73.3%) Black and 160 (61.5%) Asian referrals. Compared with Asians, White British had twice the adjusted odds of a dementia diagnosis (OR = 1.99 (1.23-3.22). Of those with dementia, Alzheimer's disease was more common in White British (57.0%) than in Asian (43.8%) and Black referrals (51.0%): adjusted OR White British versus Asian 1.76 (1.11-2.77). Of those with dementia, the proportion with moderate/severe disease was highest in White British (66.8%), compared with 61.9% in Asian and 45.8% in Black groups. The adjusted OR for the White versus Black groups was 2.03 (1.10-3.72), with no significant difference between Asian and White British groups. CONCLUSIONS: Differences in confirmed dementia suggest general practitioners have a lower threshold for referral for possible dementia in some BAME groups. Unlike other centres, we found no evidence of greater severity at presentation in Asian and Black groups.

2.
Midwifery ; 90: 102803, 2020 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-32717660

RESUMO

OBJECTIVE: Assess the role of online resources and apps for women's help seeking and staff's response to concerns in the perinatal period. DESIGN: Online survey. Descriptive analysis of women's use and experiences of digital resources for self-diagnosis and help seeking, drawing on numerical and free-text responses. SETTING: Two tertiary referral centres and one district general hospital in two UK geographic locations. PARTICIPANTS: 632 postnatal women, surveyed over a 4 month period. MEASUREMENTS: Women's access to digital devices; frequency and type of health concerns experienced after 22 weeks' gestation; variability in use and experiences of websites/apps; perceptions of staff's response to concerns after help-seeking. FINDINGS: 1254 women were approached over a 4-month period; 632 participated (response rate: 50%). Women reported a 'mix and match' blended use of digital resources to both learn about, and self-diagnose/self-triage for potential complications in pregnancy as an adjunct to care provided by maternity staff. Over half the participants experienced concerns about themselves or their baby after 22 weeks. The top concern was fetal movements, reported by 62%. Women used 91 different digital resources to help with understanding and decision-making, in addition to seeking support from family, friends and healthcare professionals. Enabling features of staff responses were identified from free-text responses (n = 292) by women who sought professional help regarding their health concerns, and influencing factors at clinical, organisational and digital level. KEY CONCLUSIONS AND IMPLICATIONS FOR PRACTICE: Online information retrieval and digital self-monitoring is increasingly integral to women's self-care during pregnancy and offers opportunities to support escalation of care and shared decision-making. Further work should assess optimal inclusion of this 'digital work' into clinical consultations.


Assuntos
Comportamento de Busca de Ajuda , Aplicativos Móveis/normas , Adulto , Feminino , Humanos , Internet , Pessoa de Meia-Idade , Aplicativos Móveis/estatística & dados numéricos , Aceitação pelo Paciente de Cuidados de Saúde/psicologia , Assistência Perinatal/métodos , Assistência Perinatal/normas , Assistência Perinatal/estatística & dados numéricos , Gravidez , Pesquisa Qualitativa , Inquéritos e Questionários , Reino Unido
3.
BMJ Open ; 8(3): e019965, 2018 03 22.
Artigo em Inglês | MEDLINE | ID: mdl-29567850

RESUMO

OBJECTIVES: In England, many hypertensives are not detected by primary medical care. Higher detection is associated with lower premature mortality. We aimed to summarise recent evidence on detection and interventions to improve detection in order to inform policies to improve care. DESIGN: Data sources: systematic review of articles published since 2000. Searches of Medline and Embase were undertaken. Eligibility criteria: published in English, any study design, the setting was general practice and studies included patients aged 18 or over. EXCLUSION CRITERIA: screening schemes, studies in primary care settings other than general practice, discussion or comment pieces. PARTICIPANTS: adult patients of primary medical care services. SYNTHESIS: study heterogeneity precluded a statistical synthesis, and papers were described in summary tables. RESULTS: Seventeen quantitative and one qualitative studies were included. Detection rates varied by gender and ethnic group, but longitudinal studies indicated an improvement in detection over time. Patient socioeconomic factors did not influence detection, but living alone was associated with lower detection. Few health system factors were associated with detection, but in two studies higher numbers of general practitioners per 1000 population were associated with higher detection. Three studies investigated interventions to improve detection, but none showed evidence of effectiveness. LIMITATIONS: The search was limited to studies published from 2000, in English. There were few studies of interventions to improve detection, and a meta-analysis was not possible. CONCLUSIONS AND IMPLICATIONS: Levels of detection of hypertension by general practices may be improving, but large numbers of people with hypertension remain undetected. Improvement in detection is therefore required, but guidance for primary medical care is not provided by the few studies of interventions included in this review. Primary care teams should continue to use low-cost, practical approaches to detecting hypertension until evidence from new studies of interventions to improve detection is available.


Assuntos
Hipertensão/diagnóstico , Atenção Primária à Saúde/normas , Humanos , Hipertensão/economia , Hipertensão/epidemiologia , Mortalidade Prematura/tendências , Ensaios Clínicos Controlados Aleatórios como Assunto
4.
Implement Sci ; 11(1): 77, 2016 05 27.
Artigo em Inglês | MEDLINE | ID: mdl-27233633

RESUMO

BACKGROUND: Tailoring is a frequent component of approaches for implementing clinical practice guidelines, although evidence on how to maximise the effectiveness of tailoring is limited. In England, overweight and obesity are common, and national guidelines have been produced by the National Institute for Health and Care Excellence. However, the guidelines are not routinely followed in primary care. METHODS: A tailored implementation intervention was developed following an analysis of the determinants of practice influencing the implementation of the guidelines on obesity and the selection of strategies to address the determinants. General practices in the East Midlands of England were invited to take part in a cluster randomised controlled trial of the intervention. The primary outcome measure was the proportion of overweight or obese patients offered a weight loss intervention. Secondary outcomes were the proportions of patients with (1) a BMI or waist circumference recorded, (2) record of lifestyle assessment, (3) referred to weight loss services, and (4) any change in weight during the study period. We also assessed the mean weight change over the study period. Follow-up was for 9 months after the intervention. A process evaluation was undertaken, involving interviews of samples of participating health professionals. RESULTS: There were 16 general practices in the control group, and 12 in the intervention group. At follow-up, 15.08 % in the control group and 13.19 % in the intervention group had been offered a weight loss intervention, odds ratio (OR) 1.16, 95 % confidence interval (CI) (0.72, 1.89). BMI/waist circumference measurement 42.71 % control, 39.56 % intervention, OR 1.15 (CI 0.89, 1.48), referral to weight loss services 5.10 % control, 3.67 % intervention, OR 1.45 (CI 0.81, 2.63), weight management in the practice 9.59 % control, 8.73 % intervention, OR 1.09 (CI 0.55, 2.15), lifestyle assessment 23.05 % control, 23.86 % intervention, OR 0.98 (CI 0.76, 1.26), weight loss of at least 1 kg 42.22 % control, 41.65 % intervention, OR 0.98 (CI 0.87, 1.09). Health professionals reported the interventions as increasing their confidence in managing obesity and providing them with practical resources. CONCLUSIONS: The tailored intervention did not improve the implementation of the guidelines on obesity, despite systematic approaches to the identification of the determinants of practice. The methods of tailoring require further development to ensure that interventions target those determinants that most influence implementation. TRIAL REGISTRATION: ISRCTN07457585.


Assuntos
Sobrepeso/terapia , Atitude Frente a Saúde , Índice de Massa Corporal , Análise por Conglomerados , Atenção à Saúde/normas , Inglaterra , Feminino , Medicina Geral/estatística & dados numéricos , Fidelidade a Diretrizes , Estilo de Vida Saudável , Humanos , Masculino , Pessoa de Meia-Idade , Motivação , Obesidade/terapia , Folhetos , Educação de Pacientes como Assunto , Guias de Prática Clínica como Assunto , Atenção Primária à Saúde/estatística & dados numéricos , Avaliação de Processos em Cuidados de Saúde , Melhoria de Qualidade , Resultado do Tratamento , Circunferência da Cintura , Programas de Redução de Peso
5.
Implement Sci ; 9: 102, 2014 Aug 12.
Artigo em Inglês | MEDLINE | ID: mdl-25112492

RESUMO

BACKGROUND: The tailoring of implementation interventions includes the identification of the determinants of, or barriers to, healthcare practice. Different methods for identifying determinants have been used in implementation projects, but which methods are most appropriate to use is unknown. METHODS: The study was undertaken in five European countries, recommendations for a different chronic condition being addressed in each country: Germany (polypharmacy in multimorbid patients); the Netherlands (cardiovascular risk management); Norway (depression in the elderly); Poland (chronic obstructive pulmonary disease--COPD); and the United Kingdom (UK) (obesity). Using samples of professionals and patients in each country, three methods were compared directly: brainstorming amongst health professionals, interviews of health professionals, and interviews of patients. The additional value of discussion structured through reference to a checklist of determinants in addition to brainstorming, and determinants identified by open questions in a questionnaire survey, were investigated separately. The questionnaire, which included closed questions derived from a checklist of determinants, was administered to samples of health professionals in each country. Determinants were classified according to whether it was likely that they would inform the design of an implementation intervention (defined as plausibly important determinants). RESULTS: A total of 601 determinants judged to be plausibly important were identified. An additional 609 determinants were judged to be unlikely to inform an implementation intervention, and were classified as not plausibly important. Brainstorming identified 194 of the plausibly important determinants, health professional interviews 152, patient interviews 63, and open questions 48. Structured group discussion identified 144 plausibly important determinants in addition to those already identified by brainstorming. CONCLUSIONS: Systematic methods can lead to the identification of large numbers of determinants. Tailoring will usually include a process to decide, from all the determinants that are identified, those to be addressed by implementation interventions. There is no best buy of methods to identify determinants, and a combination should be used, depending on the topic and setting. Brainstorming is a simple, low cost method that could be relevant to many tailored implementation projects.


Assuntos
Doença Crônica/terapia , Atenção à Saúde/métodos , Idoso , Doenças Cardiovasculares/prevenção & controle , Atenção à Saúde/normas , Depressão/terapia , Alemanha , Humanos , Países Baixos , Noruega , Polônia , Polimedicação , Guias de Prática Clínica como Assunto , Padrões de Prática Médica , Desenvolvimento de Programas , Doença Pulmonar Obstrutiva Crônica/terapia , Melhoria de Qualidade , Inquéritos e Questionários , Reino Unido
6.
Trials ; 15: 82, 2014 Mar 19.
Artigo em Inglês | MEDLINE | ID: mdl-24641767

RESUMO

BACKGROUND: In the UK around 22% of men and 24% of women are obese, and there are varying but worrying levels in other European countries. Obesity is a chronic condition that carries an important health risk. National guidelines, for use in England, on the management of people who are overweight or obese have been published by the National Institute for Health and Clinical Excellence (NICE, 2006). NICE recommendations for primary care teams are: determine the degree of overweight and obesity; assess lifestyle, comorbidities and willingness to change; offer multicomponent management of overweight and obesity; referral to external services when appropriate. This study investigates a tailored intervention to improve the implementation of these recommendations by primary care teams. METHODS/DESIGN: The study is a cluster randomised controlled trial. Primary care teams will be recruited from the East Midlands of England, and randomised into two study arms: 1) the study group, in which primary care teams are offered a set of tailored interventions to help implement the NICE guidelines for overweight and obesity; or 2) the control group in which primary care teams continue to practice usual care. The primary outcome is the proportion of overweight or obese patients for whom the primary care team adheres to the NICE guidelines. Secondary outcomes include the proportion of patients with a record of lifestyle assessment, referral to external weight loss services, the proportion of obese patients who lose weight during the intervention period, and the mean weight change over the same period. DISCUSSION: Although often recommended, the methods of tailoring implementation interventions to account for the determinants of practice are not well developed. This study is part of a programme of studies seeking to develop the methods of tailored implementation. TRIAL REGISTRATION: Current Controlled Trials ISRCTN07457585. Registered 09/08/2013. Randomisation commenced 30/08/2013.


Assuntos
Obesidade/terapia , Equipe de Assistência ao Paciente , Atenção Primária à Saúde , Encaminhamento e Consulta , Projetos de Pesquisa , Comportamento de Redução do Risco , Protocolos Clínicos , Terapia Combinada , Inglaterra , Fidelidade a Diretrizes , Comportamentos Relacionados com a Saúde , Conhecimentos, Atitudes e Prática em Saúde , Obesidade/diagnóstico , Obesidade/fisiopatologia , Equipe de Assistência ao Paciente/normas , Educação de Pacientes como Assunto , Guias de Prática Clínica como Assunto , Padrões de Prática Médica , Atenção Primária à Saúde/normas , Avaliação de Programas e Projetos de Saúde , Fatores de Tempo , Resultado do Tratamento , Redução de Peso
7.
Qual Prim Care ; 22(4): 189-99, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-25695530

RESUMO

BACKGROUND: NHS policy documents continue to make a wide-ranging commitment to patient involvement. The Patient Participation Direct Enhanced Service (PP-DES), launched in 2011, aimed to ensure patients are involved in decisions about the range and quality of services provided and commissioned by their practice through patient reference groups (PRGs). The aim of this exploratory study is to review the impact of the PP-DES (2011-13) on a sample of PRGs and assess how far it has facilitated their involvement in decisions about the services of their general practices. METHODS: A qualitative methods design, using semi- structured interviews and focus groups, was employed to explore the experiences and views of GP practice staff (n = 24), PRG members (n = 80) at 12 GP practices, and other stakeholders (n = 4). RESULTS: Wide variation in the role and remit of the participating PRGs was found, which broadly ranged from activities to improve practice resources to supporting health promotion activities. The majority of PRG members were unfamiliar with the PP-DES scheme and its aims and purpose. Stakeholders and practice staff felt strongly that the main success of the PP-DES was that it had led to an increase in the number of PRGs being established in the locality. CONCLUSION: The PP-DES scheme has been a catalyst to establish PRGs. However, the picture was mixed in terms of the PRGs involvement in decisions about the services provided at their general practice as there was wide variation in the PRGs role and remit. The financial incentive alone, provided via the DES scheme, did not secure greater depth of PRG activity and power, however, as social factors were identified as playing an important role in PRGs' level of participation in decision making. Many PRGs have to become more firmly established before they are involved as partners in commissioning decisions at their practice.


Assuntos
Participação do Paciente/métodos , Atenção Primária à Saúde/organização & administração , Qualidade da Assistência à Saúde/organização & administração , Medicina Estatal/organização & administração , Atitude do Pessoal de Saúde , Retroalimentação , Feminino , Pesquisa sobre Serviços de Saúde , Humanos , Masculino , Satisfação do Paciente , Atenção Primária à Saúde/normas , Pesquisa Qualitativa , Qualidade da Assistência à Saúde/normas , Medicina Estatal/normas , Reino Unido
8.
Fam Pract ; 27(4): 404-9, 2010 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-20453249

RESUMO

BACKGROUND: The National Institute for Health and Clinical Excellence (NICE) guidelines state that GPs should manage smokers motivated to quit by offering referral to Stop Smoking Services (SSS) and that nicotine addiction treatment (NAT) should be offered only to those who decline referral. OBJECTIVE: To explore how smokers motivated to quit are managed in the GP consultation, specifically how treatment and referral are negotiated from the perspectives of both parties. METHODS: Twenty patients, identified in a consultation with their GP as motivated to quit smoking, and 10 participating GPs were interviewed. Interviews were recorded, transcribed, coded and analysed using the framework approach. RESULTS: Three strategies (treatment and follow-up by the GP, referral to SSS without treatment and immediate treatment with referral for follow-up) were evidenced in patient and GP accounts. Most patients were satisfied with their management and how this was negotiated, but some expressed surprise or dissatisfaction with lack of immediate treatment and questioned the need for referral to SSS. GPs welcomed the availability of SSS but some felt it important that they themselves also continued to support a quit attempt. Several saw advantages in offering NAT at the time the patient was motivated to stop. CONCLUSIONS: Smokers appear less convinced than GPs about the value of referral to SSS, although these differences may be resolved through negotiation. An alternative strategy to that proposed by NICE, which may be more acceptable to some smokers, is immediate treatment with subsequent support from SSS.


Assuntos
Atitude do Pessoal de Saúde , Clínicos Gerais/psicologia , Satisfação do Paciente , Relações Médico-Paciente , Abandono do Hábito de Fumar , Fumar/terapia , Humanos , Entrevistas como Assunto , Motivação , Prática Profissional , Pesquisa Qualitativa , Encaminhamento e Consulta , Abandono do Hábito de Fumar/métodos , Abandono do Hábito de Fumar/psicologia , Reino Unido
9.
Fam Pract ; 27(1): 38-47, 2010 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19875747

RESUMO

BACKGROUND: Facilitation is the process of providing support to individuals or groups to achieve beneficial change. It is intrinsic to the Gold Standards Framework (GSF) for palliative care, a programme introduced widely in UK general practices. OBJECTIVES: To explore how GSF facilitators fulfil their role and the impact of the facilitators' backgrounds and approach on practices' uptake of the programme. SETTING: Primary care organizations and general practices in England and Northern Ireland. METHODS: Self-completed questionnaire and semi-structured interviews with facilitators. Practice audit questionnaire. Descriptive statistics. Thematic analysis. Linear and random effects models. RESULTS: A total of 102 (59.6%) facilitators completed a questionnaire; interviews were performed with nine facilitators. A large variability was found in the facilitators' professional backgrounds, role setup and activities. The impact of several facilitation characteristics on practice change was modelled for 63 (36.8%) facilitators and 266 practices (20.4%). No evidence was found of an association between practice change and facilitators' specialist knowledge of palliative care, mean facilitation time per practice, mean number of visits, facilitator budget and incentives offered to practices. Facilitators with a GP background were associated with higher levels of GSF change than those with a clinical nurse specialist background (P = 0.0078 with Bonferroni correction, significance threshold for corrected P = 0.008). The interviews indicated that the differential implementation of the framework might have been strongly affected by internal and external practice-related factors that were not readily amenable to facilitation. CONCLUSION: This study goes some way towards untangling aspects of facilitation associated with successful implementation of the GSF. Further prospective research and evaluation is needed to identify ways of improving its sustainability, effect on patient outcomes and cost-effectiveness.


Assuntos
Cuidados Paliativos/normas , Atenção Primária à Saúde , Apoio Social , Inglaterra , Medicina de Família e Comunidade/normas , Humanos , Entrevistas como Assunto , Irlanda do Norte , Padrões de Prática Médica , Garantia da Qualidade dos Cuidados de Saúde , Inquéritos e Questionários
10.
BMC Health Serv Res ; 9: 229, 2009 Dec 11.
Artigo em Inglês | MEDLINE | ID: mdl-20003338

RESUMO

BACKGROUND: Patient experience is commonly monitored in evaluating and improving health care, but the experience of carers (partners/relatives/friends) is rarely monitored even though the role of carers can often be substantial. For carers to fulfil their role it is necessary to address their needs. This paper describes an evaluation of the reliability, validity and acceptability of the PCQ-C, a newly developed instrument designed to measure the experiences of carers of men with prostate cancer. METHODS: The reliability, acceptability and validity of the PCQ-C were tested through a postal survey and interviews with carers. The PCQ-C was posted to 1087 prostate cancer patients and patients were asked to pass the questionnaire on to their carer. Non-responders received one reminder. To assess test-retest reliability, 210 carers who had responded to the questionnaire were resent it a second time three weeks later. A subsample of nine carers from patients attending one hospital took part in qualitative interviews to assess validity and acceptability of the PCQ-C. Acceptability to service providers was evaluated based on four hospitals' experiences of running a survey using the PCQ-C. RESULTS: Questionnaires were returned by 514 carers (47.3%), and the majority of questions showed less than 10% missing data. Across the sections of the questionnaire internal consistency was high (Cronbach's alpha ranging from 0.80 to 0.89), and test-retest stability showed moderate to high stability (intraclass correlation coefficients ranging from 0.52 to 0.83). Interviews of carers indicated that the PCQ-C was valid and acceptable. Feedback from hospitals indicated that they found the questionnaire useful, and highlighted important considerations for its future use as part of quality improvement initiatives. CONCLUSIONS: The PCQ-C has been found to be acceptable to carers and service providers having been used successfully in hospitals in England. It is ready for use to measure the aspects of care that need to be addressed to improve the quality of prostate cancer care, and for research.


Assuntos
Cuidadores , Neoplasias da Próstata/terapia , Inquéritos e Questionários , Idoso , Idoso de 80 Anos ou mais , Atitude do Pessoal de Saúde , Comportamento do Consumidor , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Psicometria , Reprodutibilidade dos Testes
11.
BMC Health Serv Res ; 9: 199, 2009 Nov 04.
Artigo em Inglês | MEDLINE | ID: mdl-19889223

RESUMO

BACKGROUND: In England, prostate cancer patients report worse experience of care than patients with other cancers. However, no standard measure of patient experience of prostate cancer care is currently available. This paper describes an evaluation of the reliability, validity and acceptability of the PCQ-P, a newly developed instrument designed to measure patient experience of prostate cancer care. METHODS: The reliability, acceptability and validity of the PCQ-P were tested through a postal survey and interviews with patients. The PCQ-P was posted to 1087 prostate cancer patients varying in age, occupation, and overall health status, sampled from five hospitals in England. Nonresponders received one reminder. To assess criterion validity, 935 patients were also sent sections of the National Centre for Social Research Shortened Questionnaire; and to assess test-retest reliability, 296 patients who responded to the questionnaire were resent it a second time three weeks later. A subsample of 20 prostate cancer patients from one hospital took part in qualitative interviews to assess validity and acceptability of the PCQ-P. Acceptability to service providers was evaluated based on four hospitals' experiences of running a survey using the PCQ-P. RESULTS: Questionnaires were returned by 865 patients (69.2%). Missing data was low across the sections, with the proportion of patients completing less than 50% of each section ranging from 4.5% to 6.9%. Across the sections of the questionnaire, internal consistency was moderate to high (Cronbach's alpha ranging from 0.63 to 0.80), and test-retest stability was acceptable (intraclass correlation coefficients ranging from 0.57 to 0.73). Findings on criterion validity were significant. Patient interviews indicated that the PCQ-P had high face validity and acceptability. Feedback from hospitals indicated that they found the questionnaire useful, and highlighted important considerations for its future use as part of quality improvement initiatives. CONCLUSION: The PCQ-P has been found to be acceptable to patients and service providers, and is ready for use for the measurement of patient experience in routine practice, service improvement programmes, and research.


Assuntos
Neoplasias da Próstata/terapia , Psicometria/instrumentação , Inquéritos e Questionários , Adulto , Inglaterra , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Aceitação pelo Paciente de Cuidados de Saúde/estatística & dados numéricos , Reprodutibilidade dos Testes , Inquéritos e Questionários/normas
12.
Health Expect ; 12(3): 301-12, 2009 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-19754693

RESUMO

OBJECTIVE: To review studies of patients' and carers' experience of prostate cancer care. DESIGN: Narrative literature review. METHODS: Search strategies were developed for the following databases: MEDLINE (1966-2006), EMBASE (1980-2006), CINAHL (1982-2006) and PsycINFO (1987-2006). A search of SIGLE (System for Information on Grey Literature in Europe) was also undertaken. Experience was defined as patients' and carers' reports of how care was organized and delivered to meet their needs. A narrative summary of the included papers was undertaken. RESULTS: A total of 90 relevant studies were identified. Most studies reported on experiences of screening, diagnosis, the treatment decision, treatment and post-initial treatment. Few studies reported on experiences of the stages of referral, testing, and further treatment and palliative care, and no studies reported on monitoring or terminal care. CONCLUSIONS: Although some phases of care have not been investigated in detail, there is evidence that: (i) many patients have a low level of knowledge of prostate cancer; (ii) patients with prostate cancer and their carers need information throughout the care pathway to enable them to understand the diagnosis, treatment options, self-care and support available; and (iii) increasing patient knowledge and understanding of prostate cancer (e.g. through interventions) are often associated with a more active role in decision making (e.g. screening, treatment decision).


Assuntos
Cuidadores/psicologia , Neoplasias da Próstata/enfermagem , Neoplasias da Próstata/psicologia , Tomada de Decisões , Humanos , Masculino , Autocuidado , Apoio Social
13.
Patient Educ Couns ; 73(1): 91-6, 2008 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-18565717

RESUMO

OBJECTIVE: To gain an in depth understanding of the experiences of care of men with prostate cancer and their partners. METHODS: The study design was a qualitative analysis of semi-structured interviews of men (35) who had been diagnosed and treated for prostate cancer and their partners (10). They were recruited from two hospitals in the East Midlands of England and two charities. RESULTS: The interviews showed that although there was no widespread dissatisfaction with care, patients reported problems throughout care. The two main problems were that throughout care patients' and partners' information needs were often not identified or met, and patients' preferred role in decision-making about testing and treatment was not explored. CONCLUSIONS: If patients' experiences of prostate cancer care are to be improved, clinicians need to identify, and respond to, the information and decision-making needs of individual patients and their partners. PRACTICE IMPLICATIONS: Clinicians should identify and meet the needs of patients individually, use appropriate language and formats for communicating information, fully prepare patients for tests, explore and meet the needs of patients for involvement in decision-making, and recognise the important role that their partner plays. Systems and pathways of care should be designed to enable patients and partners to obtain information and participate in decision-making throughout all stages of care.


Assuntos
Satisfação do Paciente , Assistência Centrada no Paciente , Relações Médico-Paciente , Neoplasias da Próstata/terapia , Adulto , Idoso , Inglaterra , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Educação de Pacientes como Assunto , Relações Profissional-Família , Qualidade de Vida , Cônjuges
14.
BMC Health Serv Res ; 8: 65, 2008 Mar 27.
Artigo em Inglês | MEDLINE | ID: mdl-18371192

RESUMO

BACKGROUND: Specialist nurses may play an important role in helping to improve the experiences of patients with prostate cancer, however there is concern that the specialist nurse role is under threat in the UK due to financial pressures in the NHS. This study explored the role and value of specialist nurses in prostate cancer care via a survey and patient interviews. METHODS: This paper reports findings from two studies. A survey of patients from three hospitals across the UK (289/481, 60%), investigated whether patients who saw a specialist nurse had different experiences of information provision and involvement in decision-making, to those who did not. Qualitative interviews were also carried out with 35 men recently tested or treated for prostate cancer, recruited from two hospitals in the UK. Interviews explored patients' views on the role and value of the specialist nurse. RESULTS: Survey findings indicated that patients who saw a specialist nurse had more positive experiences of receiving written information about tests and treatment, and about sources of advice and support, and were more likely to say they made the treatment decision themselves. In interviews, patients described specialist nurse input in their care in terms of providing information and support immediately post-diagnosis, as well as being involved in ongoing care. Two key aspects of the specialist nurse role were seen as unique: their availability to the patient, and their ability to liaise between the patient and the medical system. CONCLUSION: This study indicates the unique role that specialist nurses play in the experience of patients with prostate cancer, and highlights the importance of maintaining specialist nurse roles in prostate cancer care.


Assuntos
Enfermeiros Clínicos , Papel do Profissional de Enfermagem , Satisfação do Paciente , Neoplasias da Próstata/enfermagem , Idoso , Pesquisas sobre Atenção à Saúde , Humanos , Entrevistas como Assunto , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
15.
BMC Med Res Methodol ; 6: 35, 2006 Jul 26.
Artigo em Inglês | MEDLINE | ID: mdl-16872487

RESUMO

BACKGROUND: Conventional systematic review techniques have limitations when the aim of a review is to construct a critical analysis of a complex body of literature. This article offers a reflexive account of an attempt to conduct an interpretive review of the literature on access to healthcare by vulnerable groups in the UK METHODS: This project involved the development and use of the method of Critical Interpretive Synthesis (CIS). This approach is sensitised to the processes of conventional systematic review methodology and draws on recent advances in methods for interpretive synthesis. RESULTS: Many analyses of equity of access have rested on measures of utilisation of health services, but these are problematic both methodologically and conceptually. A more useful means of understanding access is offered by the synthetic construct of candidacy. Candidacy describes how people's eligibility for healthcare is determined between themselves and health services. It is a continually negotiated property of individuals, subject to multiple influences arising both from people and their social contexts and from macro-level influences on allocation of resources and configuration of services. Health services are continually constituting and seeking to define the appropriate objects of medical attention and intervention, while at the same time people are engaged in constituting and defining what they understand to be the appropriate objects of medical attention and intervention. Access represents a dynamic interplay between these simultaneous, iterative and mutually reinforcing processes. By attending to how vulnerabilities arise in relation to candidacy, the phenomenon of access can be better understood, and more appropriate recommendations made for policy, practice and future research. DISCUSSION: By innovating with existing methods for interpretive synthesis, it was possible to produce not only new methods for conducting what we have termed critical interpretive synthesis, but also a new theoretical conceptualisation of access to healthcare. This theoretical account of access is distinct from models already extant in the literature, and is the result of combining diverse constructs and evidence into a coherent whole. Both the method and the model should be evaluated in other contexts.


Assuntos
Acessibilidade aos Serviços de Saúde , Pesquisa sobre Serviços de Saúde/métodos , Metanálise como Assunto , Populações Vulneráveis , Humanos , Aceitação pelo Paciente de Cuidados de Saúde , Projetos de Pesquisa , Alocação de Recursos , Estudos de Amostragem , Fatores Socioeconômicos , Medicina Estatal , Reino Unido
16.
J Health Serv Res Policy ; 10(1): 45-53, 2005 Jan.
Artigo em Inglês | MEDLINE | ID: mdl-15667704

RESUMO

BACKGROUND: The limitations of traditional forms of systematic review in making optimal use of all forms of evidence are increasingly evident, especially for policy-makers and practitioners. There is an urgent need for robust ways of incorporating qualitative evidence into systematic reviews. OBJECTIVES: In this paper we provide a brief overview and critique of a selection of strategies for synthesising qualitative and quantitative evidence, ranging from techniques that are largely qualitative and interpretive through to techniques that are largely quantitative and integrative. RESULTS: A range of methods is available for synthesising diverse forms of evidence. These include narrative summary, thematic analysis, grounded theory, meta-ethnography, meta-study, realist synthesis, Miles and Huberman's data analysis techniques, content analysis, case survey, qualitative comparative analysis and Bayesian meta-analysis. Methods vary in their strengths and weaknesses, ability to deal with qualitative and quantitative forms of evidence, and type of question for which they are most suitable. CONCLUSIONS: We identify a number of procedural, conceptual and theoretical issues that need to be addressed in moving forward with this area, and emphasise the need for existing techniques to be evaluated and modified, rather than inventing new approaches.


Assuntos
Medicina Baseada em Evidências , Pesquisa sobre Serviços de Saúde/métodos , Teorema de Bayes , Metanálise como Assunto , Reino Unido
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