RESUMO
AIM: The congenital Zika Syndrome (CZS) often leads to severe motor impairment in affected children, making independent walking unlikely. Early introduction of motorized mobility through ride-on cars has been recommended for young children with severe motor impairment, enabling independent movement in various environments. This study aims to explore mothers' perceptions of their children's experiences while using ride-on cars at home and in the community, focusing on children with CZS. METHODS: This is a qualitative and descriptive study design using the Photovoice method. Four mothers of children with CZS, participating in the 'Go Zika Go' intervention project, were included. The research involved the following six steps: 1) Presentation of guide questions and Photovoice training; 2) Participants capturing photos; 3) Individual interviews to contextualize the photos; 4) Transcription and data analysis using thematic analysis principles; 5) Validation of analyses by mothers; and 6) Exhibition of photos to the community. RESULTS: The mothers and researchers selected the 21 most relevant photographs, which revealed five main themes related to the use of motorized ride-on cars: 1) Experiences of participation; 2) Independence in mobility; 3) Characteristics of mobility devices; 4) Family support; and 5) Accessibility of the environment. CONCLUSION: The narratives provided by participants, along with photographs depicting the daily lives of children with CZS, shed light on aspects of functionality, autonomy, and participation. The use of these devices contributes to overall equity, breaking down social and cultural barriers and enabling children with disabilities to be seen as equals by their peers.
To understand the barriers and facilitators experienced by children with Congenital Zika Syndrome (CZS) when using motorized ride-on cars at home and in the community can contribute to the planning of interventions aimed at implementing motorized mobility as an intervention modality for children with severe motor and cognitive impairments in low- and middle-income countries.The Photovoice method can be useful to capture the experiences of children with severe disabilities such as Congenital Zika Syndrome while using adapted motorized ride-on cars.Involving mothers of children with severe disabilities as co-researchers can contribute to the advancement of more relevant research for the public/patient, considering that they are specialists by knowledge.The use of motorized mobility for children with CZS can minimize social disadvantages, favor equity in its entirety, providing for the breakdown of cultural and attitudinal barriers.
RESUMO
Objetivo: Investigar os hábitos de fotoexposição e fotoproteção de trabalhadores de praia em Natal-RN, Brasil. Métodos: Trata-se de um estudo epidemiológico observacional descritivo do tipo transversal, com amostra aleatória de 102 trabalhadores da praia de Ponta Negra, avaliados a partir da aplicação de um questionário do Ministério da Saúde (DAS UV). Resultados: Observou-se que 56% (n= 57) dos trabalhadores permanecem uma média de mais de 6 horas por dia, submetidos à exposição solar. Verificou-se que cerca de 24% (n=24) dos entrevistados não usam proteção solar. Observou-se uma baixa escolaridade dos trabalhadores, pois aproximadamente 55% (n=56) dos pacientes cursaram até o ensino fundamental de maneira completa ou incompleta. Além disso, apresentam baixa remuneração, pois 69,96 % (n=71) dos voluntários possuem uma renda de até dois salários mínimos. Conclusão: Foi possível observar que a população de trabalhadores da praia de Ponta Negra, Natal-RN, apresenta uma elevada exposição à radiação ultravioleta, durante a realização das atividades laborativas, sem o cuidado devido na proteção da pele.
Objective: To investigate the habits of photoexposition and photoprotection among beach workers in Natal-RN, Brazil. Methods: It is a descriptive observational epidemiological study of transverse type, with random sample consisting in 102 workers of Ponta Negra Beach, evaluated through a questionnaire of the Ministry of Health (DAS UV). Results: It was noted that 56% (n=57) of workers remain submitted to sun exposure for an average of 6 hours or more per day. It was found that approximately 24% (n=24) of respondents do not use sun protection. Workers showed a low educational level, since 55% (n=56) had only attended elementary school, whether graduated or not, and average monthly income was below two minimum wages for 69.96% of volunteers. Conclusion: This assessment revealed that workers of Ponta Negra Beach, Natal-RN, are highly exposed to ultraviolet radiationduring their professional activities, without proper photoprotection of skin.
