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1.
J Bioeth Inq ; 20(2): 249-263, 2023 06.
Artigo em Inglês | MEDLINE | ID: mdl-37219760

RESUMO

Scholars have noted persistent high rates of agricultural health and safety incidents and the need to develop more effective interventions. Participatory research provides an avenue to broaden the prevailing research paradigms and approaches by allowing those most impacted to illuminate and work to solve those aspects of their lives. One such approach is photovoice, an emancipatory visual narrative approach. Yet, despite its broad appeal, photovoice can be hard to implement. In this article, we leverage our experience using photovoice for a farm children safety project to describe and reflect on the ethical and methodological aspects broadly relevant to agricultural health and safety topics. We first contextualize the tensions of navigating between photovoice, the research ethics committees (RECs) regulatory frameworks, and competing views on visual representations in agriculture. We then discuss the sources of risks to participants and researchers, how we addressed these risks, and how these risks unfolded during the research phase of the photovoice activity. We conclude with three lessons we (re)learned: the importance of collaborating with RECs, the need to increase preparation to limit psychological risks to participants and researchers, and avenues to augment the emancipatory power of photovoice in a virtual environment.


Assuntos
Pesquisa Participativa Baseada na Comunidade , Fotografação , Criança , Humanos , Pesquisa Participativa Baseada na Comunidade/métodos , Fazendas , Fotografação/métodos , Narração
2.
J Empir Res Hum Res Ethics ; 4(2): 37-48, 2009 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-19480590

RESUMO

A SURVEY OF 750 UNIVERSITY HUMAN Research Ethics Boards (HRECs) in the United States revealed that Internet research protocols involving online or Web surveys are the type most often reviewed (94% of respondents), indicating the growing prevalence of this methodology for academic research. Respondents indicated that the electronic and online nature of these survey data challenges traditional research ethics principles such as consent, risk, privacy, anonymity, confidentiality, and autonomy, and adds new methodological complexities surrounding data storage, security, sampling, and survey design. Interesting discrepancies surfaced among respondents regarding strengths and weaknesses within extant guidelines, which are highlighted throughout the paper. The paper concludes with considerations and suggestions towards consistent protocol review of online surveys to ensure appropriate human subjects protections in the face of emergent electronic tools and methodologies.


Assuntos
Coleta de Dados/ética , Comitês de Ética em Pesquisa , Internet/ética , Segurança Computacional/ética , Confidencialidade/ética , Educação Continuada/ética , Fidelidade a Diretrizes/ética , Humanos , Consentimento Livre e Esclarecido/ética , Projetos de Pesquisa , Estados Unidos
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