Dementia Friendly Communities: Micro-processes and practices observed locally in Queensland Australia.

Having the choice to stay living in one's home and community for as long as possible is a desire of people living with dementia. Yet, for many, this is not a reality due to a lack of appropriate support, unsuitable housing and built environments, social exclusion, and stigma. The global movement called Dementia Friendly Communities aims to address such barriers and bring about positive change. At the local place-based level, Dementia Friendly Community initiatives are typically planned and implemented by committees, yet little is known about how they operate to enact Dementia Friendly Community principles. Using micro-ethnography and a case study approach, two Australian - Queensland Dementia Friendly Community committees and their activities were studied to better understand implementation at the local level. This involved 16 semi-structured interviews, participant observation and field notes identifying goals, approaches, and tensions. While both committees showed the capacity to raise awareness of issues impacting people living with dementia, there were substantial differences in the implementation of the key Dementia Friendly Community principle of inclusion of people living with dementia and carers. Key differences were the way people living with dementia were positioned and the part they were expected to play in committees, whether they were empowered and valued or tokenistically included yet not listened to. Three aspects of practice are central to more meaningful inclusion: engagement, power-sharing, and leadership. Local action groups directed and led by people living with dementia and their carers, with the support of key local people and organizations, help to progress Dementia Friendly Communities locally.

Why having a voice is important to children who are involved in family support services.

BACKGROUND: Having a voice in family matters is considered a protective factor from harm, and key to promoting children's wellbeing. However, since the adoption of the United Nations Convention on the Rights of the Child (1989) and specifically Article 12 pertaining to children's participation, research reveals that children's voices often remain invisible in child protection and family welfare services. OBJECTIVE: While there is renewed interest in hearing children's voices about their experiences in out-of-home care, there remains little awareness and knowledge of children's voices in family support services. This article addresses this gap by presenting children's own meanings and experiences of having a voice, derived from a research collaboration between UnitingCare and Queensland University of Technology . PARTICIPANTS AND SETTING: 17 children aged 6-16 years (8 sibling groups) whose families received family support services (voluntary or ordered) from UnitingCare in Queensland, Australia. METHODS: An interpretative phenomenological approach with activity-based interviews involving art, play and Reflexions cards were used to support children to share their lived experiences. FINDINGS: Children's sense-making related to having a voice revealed four connected meanings that poignantly illustrated that not only should children have a say about the supports they receive because they are part of a family, but because they are knowledgeable agents with insights that can improve their and their family's experiences. CONCLUSION: Family support services need a sustained paradigm shift towards protection with participation to incorporate the voices of children as an everyday practice to ensure their wellbeing and safety.

Exploring children's perspectives of engagement with their carers using factor analysis.

Positive engagement between a child and carer in out-of-home care is understood to have long-term benefits for children who have experienced abuse or neglect. This study analysed data from the 'Views of Children and Young People in Foster Care 2009' survey of 937 children in out-of-home care in Queensland, Australia, to identify factors that supported or hindered engagement between a child and carer. Exploratory and confirmatory factor analysis and structural regression were used. Findings suggest that children's engagement with their carer is influenced by a range of internal and external factors including child characteristics, the care experience, contact with biological parents, and placement trajectory. Child engagement is important because it is central to positive outcomes such as placement stability in out-of-home care. Implications for policy and practice include the need for a structural response that supports building and maintaining positive child-carer relationships.