RESUMO
UNLABELLED: Perinatal death is a profound experience for childbearing families and mementoes are key to providing essential records of the baby's life and death. The aim of this observational study was to evaluate the caregiver's feelings on 1 year of using memory boxes in the neonatal and pediatric intensive care unit of a tertiary care center. METHOD: Anonymous survey containing 14 questions. RESULTS: During the study period, a memory box was made for 31 neonates (24 preterm and 7 term infants) and 4 infants. Thirty-nine (54%; 32/62 nurses; 7/12 physicians) answers were obtained. Caregivers considered that memory boxes: i) were appropriate for death in the neonatal period (80-92%) or for infants who had never returned home (80%), ii) helped parents in their grieving process (77%), and iii) helped caregivers to support parents respecting their spirituality and emotional needs (62%). Some restrictions were mentioned such as the symbolic impact of the box mimicking a coffin and the modeling clay used for footprints recalling children's toys (10%) and the possibility of hurting parents in their religious convictions (18%) or feelings (20%). For the majority of the caregivers, memory boxes were considered helpful for families (82%); a few thought they were helpful for the ICU team (26%). CONCLUSIONS: This is the first study describing caregivers' opinions about the memory box practices. Memory boxes are considered helpful for bereaved parents, especially in the neonatal period, but are of little help to the caregivers.
Assuntos
Atitude do Pessoal de Saúde , Luto , Morte , Corpo Clínico Hospitalar , Recursos Humanos de Enfermagem Hospitalar , Adaptação Psicológica , Humanos , Lactente , Recém-Nascido , Unidades de Terapia Intensiva Pediátrica , Pais/psicologia , Apoio Social , Inquéritos e QuestionáriosRESUMO
Children, term and preterm newborn care require electrophysiologic investigations for seizure detection and therapeutic management or prognosis purposes. Amplitude-integrated electroencephalography (aEEG) offers an accessible by non expert, bedside continuous cerebral monitoring. A 2 year utilization of aEEG in a neonatal and paediatric intensive care unit is described as advantages and as pitfalls. Technical description and aEEG classifications for interpretation only available for term newborn are described. To obtain a performing utilization (technical and interpretation) it was necessary to have about 1 year of training including medical and paramedical formations. Our experience shows that this easy-to-use technique requires a careful management, a trained and vigilant staff notably electrophysiologist to avoid inappropriate conclusions. Finally, aEEG is very efficient but in complement of standard EEG.