RESUMO
This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition. A range of strategies for privileging the voice of the person with dementia is recommended which include: using different methods be spoke to each person with dementia; greater flexibility and time; preliminary meetings with the person with dementia; discussions with formal and informal carers; and research training. The researchers also conclude that the use of observation and interview are 'meaning-making occasions' which are qualitatively different but equally valuable for understanding quality of life in care settings.
Assuntos
Comunicação , Demência/psicologia , Idoso Fragilizado/psicologia , Pacientes Internados/psicologia , Seleção de Pacientes , Qualidade de Vida , Atividades Cotidianas , Idoso , Antropologia Cultural , Tomada de Decisões , Demência/diagnóstico , Emoções , Instituição de Longa Permanência para Idosos/normas , Humanos , Entrevista Psicológica , Transtornos da Memória , Casas de Saúde/normas , EscóciaRESUMO
This review presents evidence of the undertreatment of pain for people with cognitive impairment and explores reasons for this, emphasizing inadequate detection due to lack of suitable pain assessment protocols. Implications for practice and suggestions for further research are made.
Assuntos
Transtornos Cognitivos/complicações , Demência/complicações , Medição da Dor/instrumentação , Dor/diagnóstico , Idoso/psicologia , Feminino , Humanos , Masculino , Dor/etiologiaRESUMO
Social care research has moved gradually in recent years to include the subjective perspective. Dementia care, which in many ways is still in its infancy, has lagged behind in this development, and much research has been informed by the carer rather than the person with dementia. As a young subject area, it is right that dementia care should look around for lessons that can be learned from other disciplines. This paper will consider how research with people with learning difficulties has developed a culture for hearing the views of service users. It will outline various methodologies, with considerations of their strengths and weaknesses. The paper will then review research in dementia care which features the subjective experience, and will finally draw out lessons and identify possible ways forward.
