[What specific socialisation, social, educational and professional for teenagers and young adults with cancer?] / Quelles spécificités de sociabilisation, sociales, scolaires et professionnelles pour les adolescents et jeunes adultes atteints de cancer ?

Socialisation, education, first jobs and autonomy are key steps to teenagers and young adults (TYA) integration into the society. The occurrence of a cancer in this population increases the difficulties. Although, suffering of cancer do affect TYA life journey at social, scholar and professional levels, from diagnosis to the after-cancer live and sometime forever, few studies exist in France. A national study on TYA with cancer (TYAC) social, scholar and professional pathways is on-going (ESPOIR-AJA). A national survey of the existing TYAC insertion support in 2013 by the "Insertion group" of groupe onco-hématologie adolescents et jeunes adultes (GO-AJA) revealed structured and ancient support at scholar level based on national governmental or associative structures, but insufficient and non-specific scholar help in secondary school and professional help. Specific initiatives have emerged since 2012 with the "Plan cancer 2". All these helps remain unequal across the country. A referential on TYAC social, scholar and professional insertion has been prepared by GO-AJA in collaboration with the association francophone des soins oncologiques de support (AFSOS). The impact of the action 9 of the nation "plan cancer 3" is awaited.

[Educational and social outcome after childhood cancer]. / Scolarité et devenir social après un cancer dans l'enfance.

The survival rate improvement of childhood cancer survivors lead to question about their educational and social outcome. Authors suggest an international review in order to find risk factors of school or social failure after cancer experience. Principal cohort is studied in USA (the Children Cancer Survivor Study). Nevertheless, European studies are also published. The results vary, depending on subpopulation studied and on control choice (siblings or general population). Treatment improvement and supportive care make difficult to compare studies with current situations. Moreover, there are not international standard of education or social outcome. School and social behaviour are influenced by: types of tumor (cerebral tumor but also sometimes hemopathy and osteosarcoma), age at diagnosis (very young children and adolescent), treatments (neurotoxical treatments, hematopoietic stem cell transplant), and social or educational status of the parents.

[Evaluation of a program for teenagers going back to high-school]. / Évaluation d'interventions destinées à faciliter le retour en classe d'élèves du secondaire traités pour un cancer.

OBJECTIVE: Education of adolescent with cancer has become an imperative but is often difficult even after treatments. A special support program focusing on teacher teams and pupils was designed to limit these difficulties. After a 4-years experience, this support program was evaluated. METHODS: Questionnaires (one after the intervention, another few months after) were sent to the participating families who were also proposed to be interviewed with a semi-structured list of open-ended questions. A questionnaire was also sent to the teaching staff and to the pupils. RESULTS: On 23 interventions prepared, 15 interventions were performed: eight for pupils and seven in teacher teams. Eleven patients who benefited from these interventions responded to the first questionnaires, and seven to the second part of the study and 142 high schools pupils have responded to the questionnaires. In the comparative study, 21 patients were analysed. The interventions give useful information to teacher team, helping them understanding "invisible crippling". The program avoids bullying and questions for the patient-pupil.