Improving follow-up rates by optimizing patient educational materials in retinopathy of prematurity.

PURPOSE: To examine the impact of newly designed retinopathy of prematurity (ROP) patient educational materials adherent to health literacy guidelines on improving parent understanding of ROP, perceived importance of follow-up care, and subsequent outpatient follow-up attendance rates. METHODS: This was a repeated-measures study of parents of premature infants at risk for developing ROP. ROP educational materials were redesigned to adhere to current NIH and AMA reading level guidelines. Participants completed surveys that assessed understanding of ROP and perceived importance of clinic follow-up before and after receiving either materials currently available on the website of the American Association for Pediatric Ophthalmology and Strabismus (AAPOS), or the newly designed materials. Results were analyzed to evaluate for an improvement in parent knowledge of ROP and follow-up compliance. RESULTS: Parent ROP knowledge scores improved significantly after receiving educational materials for both the AAPOS materials (55.9% vs 83.7% [P < 0.001]) and the new materials (60.9% vs 91.8% [P < 0.001]). Average post-survey ROP knowledge scores were significantly higher among participants that received the new materials compared to the AAPOS materials (91.8% vs 83.7%, [P < 0.001]). Follow-up attendance rates improved in both groups, with a significantly improved rate from pre-study baseline among the new materials group (80.0% vs 68.2%, [P = 0.008). CONCLUSIONS: Implementation of educational materials significantly improved parent understanding of ROP; combined with knowledge assessment, it also improved follow-up compliance. Materials designed to adhere to health literacy guidelines are the most effective resources for improving knowledge of ROP and follow-up attendance.

Research: Parental Perceptions on Smartphone Use for Clinical Mobility.

Smartphones increasingly are used to facilitate the delivery of healthcare. Earlier studies assessing patient perceptions on smartphone use were performed before the emergence of broad clinical mobility platforms, and these studies did not distinguish potential differences related to smartphone device types. The current study evaluated the perceptions of neonatal intensive care unit parents on two different smartphone devices (personal phone and industrial phone) in the setting of an established clinical mobility platform. A total of 59 parents completed a multiple-choice survey exploring respondents' beliefs regarding whether smartphones could help care for their child, concerns regarding privacy/security, and perceived functionality of each smartphone. For both devices, most participants believed that smartphones were clearly used to help in the care of their child. However, respondents reported greater comfort with the industrial phone (P < 0.05). Respondents were more likely to express concern that the personal phone could compromise their child's personal/private information (P < 0.05). Respondents were more likely to believe that the industrial phone could receive emergency alerts/alarms compared with the personal phone (P < 0.05). Parental perceptions of smartphones generally were positive; however, perceived differences were found between devices, and smartphone functionality was underestimated. This suggested that education interventions addressing the value of smartphones for clinical mobility are warranted.