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1.
Med Humanit ; 2024 Jun 13.
Artigo em Inglês | MEDLINE | ID: mdl-38527799

RESUMO

Medical dramas offer unique insights into the way popular media makes sense of genetic technology and the ethics of its applications. In this paper we evaluate the contrasting depictions in television medical dramas of reproductive genetic screening and eugenics-two medical themes that some commentators see as closely related. By conducting a content analysis of 32 episodes of doctor shows featuring eugenic and/or genetic screening themes, we put the medical drama landscape in conversation with bioethics scholarship and mark a significant divergence between the two. While the academic literature has been parsing the possible relationship between genetic screening and eugenics for over 50 years, doctor shows tend to champion genetic screening as a powerful tool for promoting individual reproductive choice and criticise eugenics as a socially unjust infringement of reproductive freedom. In doing so, medical dramas mark a subtle but important moral distinction between the population-level implications of eugenics and the highly personal, emotional impact of genetic screening.

2.
Public Underst Sci ; 33(2): 174-188, 2024 02.
Artigo em Inglês | MEDLINE | ID: mdl-37586019

RESUMO

Viewers' responses to Orphan Black (2013-2017), a popular, genetics-themed sci-fi television series, reveal much about public understanding of the ethical challenges associated with genetic science. In this article, we assess how fans of Orphan Black process the bioethical themes that are prominent in the show through an analysis of 182 viewer-created blog posts. Using a mixed methods approach, our findings reveal that Orphan Black's fans distill the essence of the show down to its characters' fight for autonomy. Furthermore, fan blogs reveal two notable pathways through which this bioethical principle is explored: gender and reproduction. Viewers draw striking connections between the moral problems they observe on screen in Orphan Black and those they see in the real world-both today and in a possible future-particularly as those problems affect women. While existing scholarship acknowledges these themes in the show itself, our approach demonstrates science fiction fans' active participation in meaning-making and bioethical reasoning and offers a novel approach to studying fan-generated content for public understanding of science research.


Assuntos
Bioética , Humanos , Feminino , Princípios Morais
3.
Behav Genet ; 52(4-5): 246-267, 2022 09.
Artigo em Inglês | MEDLINE | ID: mdl-35614288

RESUMO

We conducted in-depth, semi-structured interviews with LGBTQ+-identified individuals (n = 31) to explore the range of LGBTQ+ perspectives on genomic research using either sexual orientation or gender identity (SOGI) data. Most interviewees presumed that research would confirm genetic contributions to sexual orientation and gender identity. Primary hopes for such confirmation included validating LGBTQ+ identities, improved access to and quality of healthcare and other resources, and increased acceptance in familial, socio-cultural, and political environments. Areas of concern included threats of pathologizing and medicalizing LGBTQ+ identities and experiences, undermining reproductive rights, gatekeeping of health or social systems, and malicious testing or misuse of genetic results, particularly for LGBTQ+ youth. Overall, interviewees were divided on the acceptability of genomic research investigating genetic contributions to sexual orientation and gender identity. Participants emphasized researchers' ethical obligations to LGBTQ+ individuals and endorsed engagement with LGBTQ+ communities throughout all aspects of genomic research using SOGI data.


Assuntos
Identidade de Gênero , Minorias Sexuais e de Gênero , Adolescente , Feminino , Genômica , Humanos , Masculino , Comportamento Sexual
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