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1.
Camb Q Healthc Ethics ; 33(2): 198-216, 2024 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-37017202

RESUMO

The leading models of disability struggle to fully encompass all aspects of "disability." This difficulty arises, the author argues, because the models fundamentally misunderstand the nature of disability. Current theoretical approaches to disability can be understood as "nounal," in that they understand disability as a thing that is caused or embodied. In contrast, this paper presents an adverbial perspective on disability, which shows that disability is experienced as a personally irremediable impediment to daily-living tasks or goals-like-ours. The picture theory of disability technically constitutes a species of relational approach because its analysis references the interplay between an individual and their environment; it differs from other relational accounts, however, by interpreting disability as a certain kind of negative experience-rather than a function of that relationship. This purely descriptive theory makes no normative claims about disability and operates as both a mechanism for the evaluation of the experience of disability and a heuristic device for the proper interpretation of disability. When disability is reframed in this way, the theory offers a particularist perspective which shows if, when, where, and how disability is experienced.

2.
Theor Med Bioeth ; 45(1): 59-62, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38151587
4.
Theor Med Bioeth ; 44(2): 125-140, 2023 04.
Artigo em Inglês | MEDLINE | ID: mdl-36826740

RESUMO

The Human Condition is neither a well-defined nor well-described concept-nevertheless, it is generally agreed that human sexuality is a fundamental and constituent part of it. For most able-bodied persons, accessing and expressing one's sexuality is a (relatively) trouble-free process. However, many disabled persons experience difficulty in accessing their sexuality, while others experience such significant barriers that they are often precluded from sexual citizenship altogether. Recognising the barriers to the sexual citizenship of disabled persons, the concept of a Welfare-Funded Sex Doula Program has been advanced - a program specifically aimed at meeting the various (and often complex) sexual needs of disabled people. Below we show how that program can be justified within at least two different moral frameworks, the capabilities approach and liberal utilitarianism, and consider and repudiate arguments against it.


Assuntos
Pessoas com Deficiência , Doulas , Humanos , Comportamento Sexual , Sexualidade , Dissidências e Disputas
5.
J Med Ethics ; 45(6): 361-364, 2019 06.
Artigo em Inglês | MEDLINE | ID: mdl-31196937

RESUMO

The sexual citizenship of disabled persons is an ethically contentious issue with important and broad-reaching ramifications. Awareness of the issue has risen considerably due to the increasingly public responses from charitable organisations which have recently sought to respond to the needs of disabled persons-yet this important debate still struggles for traction in academia. In response, this paper continues the debate raised in this journal between Appel and Di Nucci, concurring with Appel's proposals that sexual pleasure is a fundamental human right and that access to sexual citizenship for the severely disabled should be publicly funded. To that endeavour, this paper refutes Di Nucci's criticism of Appel's sex rights for the disabled and shows how Di Nucci's alternative solution is iniquitous. To advance the debate, I argue that a welfare-funded 'sex doula' programme would be uniquely positioned to respond to the sexual citizenship issues of disabled persons.


Assuntos
Pessoas com Deficiência , Financiamento da Assistência à Saúde/ética , Comportamento Sexual/ética , Adulto , Pessoas com Deficiência/psicologia , Doulas/economia , Doulas/ética , Feminino , Direitos Humanos/economia , Direitos Humanos/ética , Humanos , Masculino , Disfunções Sexuais Fisiológicas/economia , Disfunções Sexuais Fisiológicas/terapia
6.
Camb Q Healthc Ethics ; 27(2): 284-294, 2018 04.
Artigo em Inglês | MEDLINE | ID: mdl-29509126

RESUMO

Given that a properly formed utilitarian response to healthcare distribution issues should evaluate cost effectiveness against the total utility increase, it follows that any utilitarian cost-effectiveness metric should be sensitive to increases in both individual and social utility afforded by a given intervention. Quality adjusted life year (QALY) based decisionmaking in healthcare cannot track increases in social utility, and as a result, the QALY cannot be considered a strict utilitarian response to issues of healthcare distribution. This article considers arguments against, and a possible defence of, the QALY as a utilitarian concept; in response, the article offers a similar - but properly formed - utilitarian metric called the (IALY). This article also advances a tool called the 'glee factor' (GF) on which the IALY may lean in a similar way to which the QALY leans on the Rosser Index.


Assuntos
Teoria Ética , Anos de Vida Ajustados por Qualidade de Vida , Temas Bioéticos , Humanos , Alocação de Recursos/economia , Alocação de Recursos/ética
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