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1.
Res Dev Disabil ; 124: 104217, 2022 May.
Artigo em Inglês | MEDLINE | ID: mdl-35286907

RESUMO

This study aims to examine the impact of a Down syndrome diagnosis on mothers' experiences in Turkey and to understand how they construct their mothering in the context of personal growth despite the emotional and social difficulties they encounter. Grounded theory was used in this study. Data were taken from in-depth interviews with 15 mothers, and analysed using a systematic and hierarchical approach based on a constant comparative method. There also emerged three primary categories: reconstruction of mothering; factors affecting the process; and response to the changing life. The mothers explained that they experienced personal growth, such as feeling stronger, improving their ability to communicate, and becoming "closer to God". More cultural research is needed to explore the unique nature of the experiences and personal growth processes of mothers of children with Down syndrome.


Assuntos
Síndrome de Down , Mães , Criança , Síndrome de Down/psicologia , Emoções , Feminino , Teoria Fundamentada , Humanos , Mães/psicologia , Turquia
2.
Res Dev Disabil ; 112: 103907, 2021 May.
Artigo em Inglês | MEDLINE | ID: mdl-33640661

RESUMO

This study aimed to gain a deeper understanding of the experiences and opinions of mothers about sexual behaviours and sexual education of their children with DS who are AYAs in Turkey. The study utilised a classic grounded theory approach. In-depth interviews were conducted with 12 mothers. Data were analyzed by the constant comparative method. Mothers expressed that they could not address the sexual needs of their child because they did not feel they could provide sufficient care to their child. Mothers used pressure and control tactics and neglect of the sexuality to cope with their children's sexuality. Mothers described their meaning of the sexuality, fear of stigmatization and gender issues as determinant factors on the dealing with the sexuality. They stated their knowledge about sexuality is not enough to provide sexual education. Many cultural issues such as gender, meaning of the sexuality and burden of care was described as determinant factors and difficulties to providing sexual education. Therefore, educational and supportive programmes for parents should be conducted. Comprehensive, valid and individualized sexual education program also should be provided AYAs with DS.


Assuntos
Síndrome de Down , Mães , Adolescente , Criança , Feminino , Teoria Fundamentada , Humanos , Educação Sexual , Comportamento Sexual , Sexualidade , Turquia , Adulto Jovem
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