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1.
Inform Health Soc Care ; 48(1): 95-107, 2023 Jan 02.
Artigo em Inglês | MEDLINE | ID: mdl-35485918

RESUMO

This study examined the feasibility of Salud Latina, a weekly synchronous online chat intervention, aimed at engaging Latinos in diabetes prevention conversations. Participants were Latino English- and Spanish-speaking individuals. Salud Latina comprised of six synchronous weekly online chats moderated by bilingual Latina moderators trained in diabetes and online engagement. Online chats used open-ended questions. We assessed feasibility, acceptability, and satisfaction of the intervention and qualitatively analyzed the chats to identify barriers and facilitators to healthy behaviors and identify types of support exchanged. Participants (N = 20) were mostly female and English/Spanish bilingual and 80% completed at least four chats. Salud Latina was acceptable, feasible and highly satisfactory. Four themes were identified: (1) barriers to engaging in healthy behaviors, (2) facilitators of healthy behaviors, (3) Salud Latina provides a community of support, and (4) the need to build a Latino culture of health. Participants recognized the importance of engaging in healthy behaviors to prevent or delay T2D. Findings provide insight in how a synchronous online chat intervention could be used to build a social media community within a Latino population to support healthy behaviors. Future research could explore combining synchronous online chats with in-person community or family-level interventions.


Assuntos
Diabetes Mellitus Tipo 2 , Redes Sociais Online , Feminino , Humanos , Masculino , Comunicação , Diabetes Mellitus Tipo 2/prevenção & controle , Estudos de Viabilidade , Comportamentos Relacionados com a Saúde , Hispânico ou Latino
2.
J Diabetes Sci Technol ; 14(6): 990-999, 2020 11.
Artigo em Inglês | MEDLINE | ID: mdl-32627587

RESUMO

BACKGROUND: Patients with diabetes have developed innovative do-it-yourself (DIY) methods for adapting existing medical devices to better fit individual needs. METHOD: A multiple method study used Symplur Analytics to analyze aggregated Twitter data of #WeAreNotWaiting and #OpenAPS tweets between 2014 and 2017 to examine DIY patient-led innovation. Conversation sentiment was examined between diabetes stakeholders to determine changes over time. Two hundred of the most shared photos were analyzed to understand visual representations of DIY patient-led innovations. Finally, discourse analysis was used to identify the personas who engage in DIY patient-led diabetes technologies activities and conversations on Twitter. RESULTS: A total of 7886 participants who generated 46 578 tweets were included. Sentiment analysis showed that 82%-85% of interactions around DIY patient-led innovation was positive among patient/caregiver and physician groups. Through photo analysis, five content themes emerged: (1) disseminating media and conference coverage, (2) showcasing devices, (3) celebrating connections, (4) providing instructions, and (5) celebrating accomplishments. Six personas emerged across the overlapping userbase: (1) fearless leaders, (2) loopers living it up, (3) parents on a mission, (4) the tech titans, (5) movement supporters, and (6) healthcare provider advocates. Personas had varying goals and behaviors within the community. CONCLUSIONS: #WeAreNotWaiting and #OpenAPS on Twitter reveal a fast-moving patient-led movement focused on DIY patient innovation that is further mobilized by an expanding and diverse userbase. Further research is indicated to bring technology savvy persons with diabetes into conversation with healthcare providers and researchers alike.


Assuntos
Automonitorização da Glicemia , Glicemia/efeitos dos fármacos , Diabetes Mellitus Tipo 1/terapia , Sistemas de Infusão de Insulina , Monitorização Ambulatorial , Pâncreas Artificial , Participação do Paciente , Mídias Sociais , Biomarcadores/sangue , Glicemia/metabolismo , Automonitorização da Glicemia/instrumentação , Comportamento Cooperativo , Diabetes Mellitus Tipo 1/sangue , Diabetes Mellitus Tipo 1/diagnóstico , Difusão de Inovações , Desenho de Equipamento , Pessoal de Saúde , Humanos , Comunicação Interdisciplinar , Liderança , Monitorização Ambulatorial/instrumentação , Pais , Defesa do Paciente , Pesquisa Qualitativa , Qualidade de Vida , Participação dos Interessados , Transdutores
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