Your browser doesn't support javascript.
loading
Mostrar: 20 | 50 | 100
Resultados 1 - 6 de 6
Filtrar
Mais filtros










Base de dados
Intervalo de ano de publicação
1.
J Bioeth Inq ; 19(3): 495-509, 2022 09.
Artigo em Inglês | MEDLINE | ID: mdl-35679004

RESUMO

A key question in disability studies, philosophy, and bioethics concerns the relationship between disability and well-being. The mere difference view, endorsed by Elizabeth Barnes, claims that physical and sensory disabilities by themselves do not make a person worse off overall-any negative impacts on welfare are due to social injustice. This article argues that Barnes's Value Neutral Model does not extend to intellectual disability. Intellectual disability is (1) intrinsically bad-by itself it makes a person worse off, apart from a non-accommodating environment; (2) universally bad-it lowers quality of life for every intellectually disabled person; and (3) globally bad-it reduces a person's overall well-being. While people with intellectual disabilities are functionally disadvantaged, this does not imply that they are morally inferior-lower quality of life does not mean lesser moral status. No clinical implications concerning disability-based selective abortion, denial of life-saving treatment, or rationing of scarce resources follow from the claim that intellectual disability is bad difference.


Assuntos
Bioética , Pessoas com Deficiência , Deficiência Intelectual , Aborto Eugênico , Feminino , Humanos , Gravidez , Qualidade de Vida
2.
J Bioeth Inq ; 17(3): 369-381, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32696114

RESUMO

In this paper I argue that selective abortion for disability often involves inadequate counselling on the part of reproductive medicine professionals who advise prospective parents. I claim that prenatal disability clinicians often fail in intellectual duty-they are culpably ignorant about intellectual disability (or do not disclose known facts to parents). First, I explain why a standard motivation for selective abortion is flawed. Second, I summarize recent research on parent experience with prenatal professionals. Third, I outline the notions of epistemic excellence and deficiency. Fourth, I defend culpable ignorance as the best explanation of inadequate disability counselling. Fifth, I rebut alternative explanations. My focus is pregnancies diagnosed with mild or moderate intellectual disability.


Assuntos
Aborto Eugênico , Deficiência Intelectual , Aconselhamento , Feminino , Humanos , Pais , Gravidez , Estudos Prospectivos
3.
J Bioeth Inq ; 16(3): 389-404, 2019 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-31372884

RESUMO

Research shows that a high majority of parents receiving prenatal diagnosis of intellectual disability terminate pregnancy. They have reasons for rejecting a child with intellectual disabilities-these reasons are, most commonly, beliefs about quality of life for it or them. Without a negative evaluation of intellectual disability, their choice makes no sense. Disability-based abortion has been critiqued through virtue ethics for being inconsistent with admirable moral character. Parental selectivity conflicts with the virtue of acceptingness (the commitment to welcome whatever child comes naturally) and exhibits the vice of wilfulness (the project of picking and choosing what children one will take). In this paper I claim that, beyond failures of moral virtue, disability abortion often involves failures of epistemic virtue on the part of parents. I argue two things: parents believe something false, or at least contested, about life with intellectual disability-and they do so because they are not epistemically conscientious. I first explain why a central motivation for disability abortion-that it prevents harm to the child-is mistaken. I next give a brief account of intellectual virtue and culpable ignorance. I then indicate why many parents fail to be intellectually virtuous when choosing to terminate pregnancy. I focus on elimination of intellectual disability and have little to say about physical and sensory impairments.


Assuntos
Aborto Eugênico/ética , Deficiência Intelectual/embriologia , Conhecimento , Pais , Diagnóstico Pré-Natal/ética , Virtudes , Comunicação , Teoria Ética , Feminino , Humanos , Masculino , Princípios Morais , Gravidez , Qualidade de Vida
5.
CJEM ; 17(6): 670-8, 2015 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-25994045

RESUMO

UNLABELLED: Introduction Offload delay is a prolonged interval between ambulance arrival in the emergency department (ED) and transfer of patient care, typically occurring when EDs are crowded. The offload zone (OZ), which manages ambulance patients waiting for an ED bed, has been implemented to mitigate the impact of ED crowding on ambulance availability. Little is known about the safety or efficiency. The study objectives were to process map the OZ and conduct a hazard analysis to identify steps that could compromise patient safety or process efficiency. METHODS: A Health Care Failure Mode and Effect Analysis was conducted. Failure modes (FM) were identified. For each FM, a probability to occur and severity of impact on patient safety and process efficiency was determined, and a hazard score (probability X severity) was calculated. For any hazard score considered high risk, root causes were identified, and mitigations were sought. RESULTS: The OZ consists of six major processes: 1) patient transported by ambulance, 2) arrival to the ED, 3) transfer of patient care, 4) patient assessment in OZ, 5) patient care in OZ, and 6) patient transfer out of OZ; 78 FM were identified, of which 28 (35.9%) were deemed high risk and classified as impact on patient safety (n=7/28, 25.0%), process efficiency (n=10/28, 35.7%), or both (n=11/28, 39.3%). Seventeen mitigations were suggested. CONCLUSION: This process map and hazard analysis is a first step in understanding the safety and efficiency of the OZ. The results from this study will inform current policy and practice, and future work to reduce offload delay.


Assuntos
Serviços Médicos de Emergência/organização & administração , Serviço Hospitalar de Emergência/estatística & dados numéricos , Avaliação das Necessidades/organização & administração , Transferência da Responsabilidade pelo Paciente , Ambulâncias , Aglomeração , Humanos , Fatores de Tempo , Tempo para o Tratamento , Transporte de Pacientes/métodos
6.
J Pastoral Care Counsel ; 60(3): 263-73, 2006.
Artigo em Inglês | MEDLINE | ID: mdl-17059116

RESUMO

This essay suggests ways in which spiritual resources--healing stories, psalms of lament and reassurance, rituals, and meditative practices--can be used to foster emotional and spiritual healing for people, such as the adult children of missionaries, who have experienced disrupted relationships with parents during childhood.


Assuntos
Relações Pais-Filho , Assistência Religiosa , Missões Religiosas , Humanos , Missionários , Estados Unidos
SELEÇÃO DE REFERÊNCIAS
DETALHE DA PESQUISA
...