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1.
J Adolesc Young Adult Oncol ; 7(4): 509-513, 2018 08.
Artigo em Inglês | MEDLINE | ID: mdl-29733237

RESUMO

PURPOSE: Fertility preservation discussions with pediatric and adolescent cancer patients can be difficult for clinicians. This study describes the acceptability of a fertility clinician decision support system (CDSS). METHODS: A cross-sectional study of clinicians at The Royal Children's Hospital, Melbourne. Participants were trained on CDSS purpose, contents, and use. A survey captured the perceived benefits and weaknesses of the CDSS. RESULTS: Thirty-nine clinicians participated. Over 90% felt the CDSS aims and format were clear, and understood the components. Over 80% felt it would enable adherence to clinical pathways, policy, and standards of care. CONCLUSIONS: The CDSS provided significant perceived benefits to oncofertility care.


Assuntos
Preservação da Fertilidade/métodos , Adolescente , Criança , Estudos Transversais , Sistemas de Apoio a Decisões Clínicas , Feminino , Fertilidade , Humanos , Masculino , Apoio Social
2.
J Pediatr Hematol Oncol ; 40(3): e133-e139, 2018 04.
Artigo em Inglês | MEDLINE | ID: mdl-29481385

RESUMO

PURPOSE: Fertility preservation (FP) discussions in children with cancer presents unique challenges due to ethical considerations, lack of models-of-care, and the triadic nature of discussions. This study evaluated a fertility toolkit for clinicians involved in FP discussions with pediatric, adolescent, and young adult patients and parents. MATERIALS AND METHODS: A survey-based, longitudinal study of clinicians at The Royal Children's Hospital Melbourne involved in FP discussions undertaken at 3 time-points: 2014, alongside an education session for baseline assessment of oncofertility practices (survey 1); after each toolkit use to evaluate case-specific implementation (survey 2); 2016, to evaluate impact on clinical practice (survey 3). RESULTS: Fifty-nine clinicians completed survey 1. Over 66% reported baseline dissatisfaction with the existing FP system; 56.7% were not confident in providing up-to-date information. Only 34.5% "often" or "always" provided verbal information; 14.0% "often" or "always" provided written information. Survey 2 was completed after 11 consultations. All clinicians were satisfied with the discussions and outcomes using the toolkit. Thirty-nine clinicians completed survey 3. Over 70% felt confident providing up-to-date FP knowledge, 67.7% "often" or "always" provided verbal information, and 35.4% "often" or "always" provided written information. CONCLUSIONS: Clinicians desire improvement in FP practice. The toolkit provided significant perceived and actual benefits.


Assuntos
Sobreviventes de Câncer/educação , Tomada de Decisão Clínica/métodos , Preservação da Fertilidade , Oncologia/métodos , Educação de Pacientes como Assunto/métodos , Adolescente , Sobreviventes de Câncer/psicologia , Criança , Feminino , Preservação da Fertilidade/métodos , Preservação da Fertilidade/psicologia , Humanos , Estudos Longitudinais , Masculino , Inquéritos e Questionários , Adulto Jovem
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