RESUMO
AIM: To identify fathers' perceptions and experiences of caring for their children with congenital heart disease. DESIGN: A qualitative systematic review. DATA SOURCES: PubMed, Clinical Key, the Joanna Briggs Institute Evidence-based practice database, CINAHL Complete, Embase and PsycINFO were searched for all journal articles published before May 2020. REVIEW METHODS: After applying the selection criteria, five studies were identified reporting on fathers with children between 1 month and 12 years. The quality of the articles was evaluated. RESULTS: Six main themes regarding fathers' perceptions and experiences of caring for their children with congenital heart disease were identified: (1) lack of disease knowledge, (2) responsibility to the family and emotional suppression, (3) gratitude for the sustained life of their children, (4) acceptance of being different from others, (5) regrouping and planning for the future and (6) the struggles of father-child relationships. CONCLUSION: In caring for their children with congenital heart disease, fathers are akin to a suffering warrior, full of hardship. With a self-imposed sense of responsibility and suppressed emotions, fathers may feel lonely and hurt, but they must fight for their families and children.
Assuntos
Emoções , Cardiopatias Congênitas , Relações Pai-Filho , Humanos , Percepção , Pesquisa QualitativaRESUMO
Variable-temperature hyperpolarized (HP) 129Xe NMR spectroscopy has been employed to characterize surface properties of mesoporous MCM-41 modified by silylation treatment. The characteristic chemical shifts responsible for Xe-surface interactions exhibit strong correlations with both the surface coverage and chain length of the grafted alkylsilanes. Consequently, the deshielding medium contribution due to individual alkyl ligand can be deduced based on the group contribution analysis revealing the potential use of HP 129Xe NMR for probing the surface properties of organic-functionalized porous materials.
