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1.
Brain Inj ; 35(11): 1371-1381, 2021 09 19.
Artigo em Inglês | MEDLINE | ID: mdl-34529550

RESUMO

OBJECTIVE: While prior studies have found parental socioeconomic status (SES) affects the outcomes of pediatric traumatic brain injury (TBI), the longitudinal trajectory of this effect is not well understood. METHODS: This prospective cohort study included children 8-18 years of age admitted to six sites with a complicated mild (n = 123) or moderate-severe TBI (n = 47). We used caregiver education and household poverty level as predictors, and multiple quality of life and health behavior domains as outcomes. Differences at 6, 12, and 24 months from baseline ratings of pre-injury functioning were compared by SES. We examined the association between measures of SES and domains of functioning over the 24 months post-injury in children with a complicated mild or moderate- severe TBI, and determined how this association varied over time. RESULTS: Parental education was associated with recovery among children with complicated mild TBI; outcomes at 6, 12, and 24 months were substantially poorer than at baseline for children with the least educated parents. After moderate-severe TBI, children in households with lower incomes had poorer outcomes compared to baseline across time. IMPLICATIONS: Parental education and household income were associated with recovery trajectories for children with TBI of varying severity.


Assuntos
Lesões Encefálicas Traumáticas , Qualidade de Vida , Lesões Encefálicas Traumáticas/epidemiologia , Criança , Humanos , Estudos Longitudinais , Pais , Pobreza , Estudos Prospectivos , Instituições Acadêmicas
2.
J Neurotrauma ; 38(4): 513-518, 2021 02 15.
Artigo em Inglês | MEDLINE | ID: mdl-33040670

RESUMO

This study created a framework incorporating provider perspectives of best practices for early psychosocial intervention to improve caregiver experiences and outcomes after severe pediatric traumatic brain injury (TBI). A purposive sample of 23 healthcare providers from the emergency, intensive care, and acute care departments, was selected based on known clinical care of children with severe TBI at a level 1 trauma center and affiliated children's hospital. Semistructured interviews and directed content analysis were used to assess team and caregiver communication processes and topics, prognostication, and recommended interventions. Providers recommended a dual approach of institutional and individual factors contributing to an effective framework for addressing psychosocial needs. Healthcare providers recommended interventions in three domains: (1) presenting coordinated, clear messages to caregivers, (2) reducing logistical and emotional burden of care transitions, and (3) assessing and addressing caregiver needs and concerns. Specific family-centered and trauma-informed interventions included: (1) creating and sharing interdisciplinary plans with caregivers, (2) coordinating prognostication meetings and communications, (3) tracking family education, (4) improving institutional coordination and workflow, (5) training caregivers to support family involvement, (6) performing biopsychosocial assessment, and (7) using systematic prompts for difficult conversations and to address family needs at regular intervals. Healthcare workers from a variety of disciplines want to incorporate certain trauma-informed and family-centered practices at each stage of treatment to improve experiences for caregivers and outcomes for pediatric patients with severe TBI. Future research should test the feasibility and effectiveness of incorporating routine psychosocial interventions for these patients.


Assuntos
Lesões Encefálicas Traumáticas/reabilitação , Cuidadores/psicologia , Intervenção Psicossocial , Lesões Encefálicas Traumáticas/psicologia , Criança , Família/psicologia , Conhecimentos, Atitudes e Prática em Saúde , Pessoal de Saúde , Necessidades e Demandas de Serviços de Saúde , Humanos , Modelos Teóricos
3.
J Speech Lang Hear Res ; 62(1): 84-92, 2019 01 30.
Artigo em Inglês | MEDLINE | ID: mdl-30950756

RESUMO

Purpose The purpose of this study was to evaluate the internal consistency and construct validity of the Traumatic Brain Injury Quality of Life Communication Item Bank (TBI-QOL COM) short form as a parent-proxy report measure. The TBI-QOL COM is a patient-reported outcome measure of functional communication originally developed as a self-report measure for adults with traumatic brain injury (TBI), but it may also be valid as a parent-proxy report measure for children who have sustained TBI. Method One hundred twenty-nine parent-proxy raters completed the TBI-QOL COM short form 6 months postinjury as a secondary aim of a multisite study of pediatric TBI outcomes. The respondents' children with TBI were between 8 and 18 years old ( M age = 13.2 years old) at the time of injury, and the proportion of TBI severity mirrored national trends (73% complicated-mild; 27% moderate or severe). Results The parent-proxy report version of the TBI-QOL COM displayed strong internal consistency (ordinal α = .93). It also displayed evidence of known-groups validity by virtue of more severe injuries associated with more abnormal scores. The instrument also showed evidence of convergent and discriminant validity by displaying a pattern of correlations with other constructs according to their conceptual relatedness to functional communication. Conclusions This preliminary psychometric investigation of the TBI-QOL COM supports the further development of a parent report version of the instrument. Future development of the TBI-QOL COM with this population may include expanding the content of the item bank and developing calibrations specifically for parent-proxy raters. Supplemental Material https://doi.org/10.23641/asha.7616534.


Assuntos
Lesões Encefálicas Traumáticas/complicações , Transtornos da Comunicação/diagnóstico , Pais , Procurador , Inquéritos e Questionários , Criança , Transtornos da Comunicação/etiologia , Humanos , Testes de Linguagem , Psicometria , Qualidade de Vida , Reprodutibilidade dos Testes
4.
J Am Acad Orthop Surg ; 27(7): 236-245, 2019 Apr 01.
Artigo em Inglês | MEDLINE | ID: mdl-30320728

RESUMO

Shoulder lesions range from tumor-like lesions such as simple bone cysts to aggressive high-grade sarcomas. The clinical presentation is often nonspecific with shoulder pain as the primary complaint, which may lead to a delayed or missed diagnosis. Delayed diagnosis or a poorly planned biopsy of a malignant shoulder lesion can have a detrimental effect on the patient's prognosis and treatment options. Because the initial patient assessment is crucial for successful treatment, knowledge of the key features of common shoulder tumors and tumor-like conditions can help determine the diagnosis and treatment plan. This article reviews the key features and treatment options of the more commonly encountered benign and malignant shoulder bone and soft-tissue tumors and tumor-like conditions.


Assuntos
Neoplasias Ósseas/diagnóstico , Neoplasias de Tecido Conjuntivo/diagnóstico , Ombro , Fosfatase Alcalina/sangue , Biomarcadores/sangue , Contagem de Células Sanguíneas , Sedimentação Sanguínea , Cistos Ósseos Aneurismáticos , Neoplasias Ósseas/classificação , Neoplasias Ósseas/diagnóstico por imagem , Neoplasias Ósseas/patologia , Proteína C-Reativa , Condroblastoma , Condroma , Granuloma Eosinófilo , Tumores de Células Gigantes , Humanos , L-Lactato Desidrogenase/sangue , Estadiamento de Neoplasias , Neoplasias de Tecido Conjuntivo/classificação , Neoplasias de Tecido Conjuntivo/diagnóstico por imagem , Neoplasias de Tecido Conjuntivo/patologia , Osteocondroma , Osteoma Osteoide
5.
Lancet Child Adolesc Health ; 3(1): 23-34, 2019 01.
Artigo em Inglês | MEDLINE | ID: mdl-30473440

RESUMO

BACKGROUND: As far as we know, there are no tested in-hospital care programmes for paediatric traumatic brain injury. We aimed to assess implementation and effectiveness of the Pediatric Guideline Adherence and Outcomes (PEGASUS) programme in children with severe traumatic brain injury. METHODS: We did a prospective hybrid implementation and effectiveness study at the Harborview Medical Center (Seattle, WA, USA). We included children (aged <18 years) with traumatic brain injury (trauma mechanism and image findings). We assessed service provision, adherence to three key performance indicators, and discharge outcomes associated with the PEGASUS programme. The three key performance indicators were early initiation of enteral (oral or tube feeds) or parenteral nutrition; avoidance of any unwanted hypocarbia (PaCO2 <30 mm Hg) without brain herniation; and maintenance of cerebral perfusion pressure (>40 mm Hg) for 72 h after the diagnosis of severe traumatic brain injury. Poisson regression with robust standard errors was used to estimate the association between adhering to key performance indicators and discharge outcomes. FINDINGS: Between May 1, 2011, and July 1, 2017, 199 children (median age 11·9 years [IQR 3·4-16·1]) participated in the PEGASUS programme, of whom 193 (97%) had severe traumatic brain injury and six (3%) had moderate traumatic brain injury. 105 patients contributed data for all three key performance indicators. Adherence to at least one key performance indicator was achieved by 101 (96%) of 105 participants, and 44 (42%) achieved adherence to all three key performance indicators. Programme participants achieved adherence to the key performance indicators of hypocarbia (76 of 105 [72%]), nutrition (162 of 199 [81%]), and cerebral perfusion pressure (128 of 199 [64%]). Adherence to the nutrition key performance indicator was associated with higher discharge survival (relative risk [RR] 2·70, 95% CI 1·54-4·73) and a more favourable discharge disposition (3·05, 1·52-6·11). Adherence to the cerebral perfusion pressure key performance indicator was also associated with higher discharge survival (RR 1·33, 95% CI 1·12-1·59) and favourable disposition (1·53, 1·19-1·96). Adherence to each additional key performance indicator was associated with higher survival (RR 1·27, 1·12-1·44) and a more favourable discharge disposition (1·46, 1·23-1·72), in a dose-response manner. INTERPRETATION: The multilevel, hospital-wide, high-fidelity PEGASUS programme might benefit children and adolescents admitted to the emergency department with severe traumatic brain injury. Cerebral perfusion pressure, nutrition, and hypocarbia targets are essential components of the PEGASUS programme and are associated with favourable discharge outcomes. FUNDING: National Institutes of Health.


Assuntos
Lesões Encefálicas Traumáticas/terapia , Fidelidade a Diretrizes , Adolescente , Lesões Encefálicas Traumáticas/complicações , Lesões Encefálicas Traumáticas/mortalidade , Criança , Pré-Escolar , Humanos , Guias de Prática Clínica como Assunto , Avaliação de Programas e Projetos de Saúde , Estudos Retrospectivos , Taxa de Sobrevida , Resultado do Tratamento
6.
Pediatrics ; 141(5)2018 05.
Artigo em Inglês | MEDLINE | ID: mdl-29674358

RESUMO

OBJECTIVES: In this study, we describe unmet service needs of children hospitalized for traumatic brain injury (TBI) during the first 2 years after injury and examine associations between child, family, and injury-related characteristics and unmet needs in 6 domains (physical therapy, occupational therapy, speech therapy, mental health services, educational services, and physiatry). METHODS: Prospective cohort study of children age 8 to 18 years old admitted to 6 hospitals with complicated mild or moderate to severe TBI. Service need was based on dysfunction identified via parent-report compared with retrospective baseline at 6, 12, and 24 months. Needs were considered unmet if the child had no therapy services in the previous 4 weeks, no physiatry services since the previous assessment, or no educational services since injury. Analyses were used to compare met and unmet needs for each domain and time point. Generalized multinomial logit models with robust SEs were used to assess factors associated with change in need from pre-injury baseline to each study time point. RESULTS: Unmet need varied by injury severity, time since injury, and service domain. Unmet need was highest for physiatry, educational services, and speech therapy. Among children with service needs, increased time after TBI and complicated mild TBI were associated with a higher likelihood of unmet rather than met service needs. CONCLUSIONS: Children hospitalized for TBI have persistent dysfunction with unmet needs across multiple domains. After initial hospitalization, children with TBI should be monitored for functional impairments to improve identification and fulfillment of service needs.


Assuntos
Lesões Encefálicas Traumáticas/reabilitação , Necessidades e Demandas de Serviços de Saúde , Hospitalização , Adolescente , Criança , Educação Inclusiva , Feminino , Humanos , Estudos Longitudinais , Masculino , Serviços de Saúde Mental , Terapia Ocupacional , Modalidades de Fisioterapia , Estudos Retrospectivos , Fonoterapia , Índices de Gravidade do Trauma
7.
Pediatrics ; 139(3)2017 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-28159872

RESUMO

BACKGROUND: Mild traumatic brain injury injuries (mTBIs), including concussions, represent >2 million US pediatric emergency department visits annually. Post-mTBI mental health symptoms are prominent and often attributed to the mTBI. This study examined whether individuals seeking post-mTBI mental health care had previous mental health diagnoses or a new onset of such disorders, and determined if mental health care utilization differed by race/ethnicity. METHODS: Retrospective cohort study, using the Medicaid Marketscan claims national dataset (2007-2012). Utilization of mental health services 1 year before and 1 year after mTBI was compared between children with and without mental health diagnoses before injury. Primary outcome was receipt of post-mTBI outpatient mental health care. RESULTS: A total of 31 272 children 20 years or younger were included, 8577 (27%) with mental health diagnoses before their mTBI and 22 695 without one. After injury, children without previous mental health disorders increased mental health services utilization; however, most (86%) postinjury mental health care was received by children with previous mental health disorders. Having a mental health diagnosis pre-mTBI was the most important risk factor for receiving post-mTBI mental health care (odds ratio 7.93, 95% confidence interval 7.40-8.50). Hispanic children were less likely to receive post-mTBI mental health care. CONCLUSIONS: mTBI was associated with increased utilization of mental health services but most of these services were received by children with previous mental health disorders. Our documentation of racial/ethnic disparities in mental health care utilization reemphasize the importance of providing individualized, culturally, and linguistically competent care to improve outcomes after mTBI for all children.


Assuntos
Concussão Encefálica/epidemiologia , Serviços de Saúde Mental/estatística & dados numéricos , Adolescente , Criança , Pré-Escolar , Estudos de Coortes , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Medicaid , Transtornos Mentais/epidemiologia , Grupos Raciais/estatística & dados numéricos , Estudos Retrospectivos , Fatores de Risco , Estados Unidos/epidemiologia , Adulto Jovem
8.
Ann Surg ; 266(2): 287-296, 2017 08.
Artigo em Inglês | MEDLINE | ID: mdl-27611609

RESUMO

OBJECTIVE: The aim of this study was to develop and evaluate the content validity of quality criteria for providing patient- and family-centered injury care. BACKGROUND: Quality criteria have been developed for clinical injury care, but not patient- and family-centered injury care. METHODS: Using a modified Research AND Development Corporation (RAND)/University of California, Los Angeles (UCLA) Appropriateness Methodology, a panel of 16 patients, family members, injury and quality of care experts serially rated and revised criteria for patient- and family-centered injury care identified from patient and family focus groups. The criteria were then sent to 384 verified trauma centers in the United States, Canada, Australia, and New Zealand for evaluation. RESULTS: A total of 46 criteria were rated and revised by the panel over 4 rounds of review producing 14 criteria related to clinical care (n = 4; transitions of care, pain management, patient safety, provider competence), communication (n = 3; information for patients/families; communication of discharge plans to patients/families, communication between hospital and community providers), holistic care (n = 4; patient hygiene, kindness and respect, family access to patient, social and spiritual support) and end-of-life care (n = 3; decision making, end-of-life care, family follow-up). Medical directors, managers, or coordinators representing 254 trauma centers (66% response rate) rated 12 criteria to be important (95% of responses) for patient- and family-centered injury care. Fewer centers rated family access to the patient (80%) and family follow-up after patient death (65%) to be important criteria. CONCLUSIONS: Fourteen-candidate quality criteria for patient- and family-centered injury care were developed and shown to have content validity. These may be used to guide quality improvement practices.


Assuntos
Família , Assistência Centrada no Paciente/normas , Indicadores de Qualidade em Assistência à Saúde , Centros de Traumatologia/normas , Ferimentos e Lesões/terapia , Austrália , Canadá , Competência Clínica , Comunicação , Humanos , Nova Zelândia , Manejo da Dor , Educação de Pacientes como Assunto , Segurança do Paciente , Relações Profissional-Família , Assistência Terminal , Cuidado Transicional , Estados Unidos
9.
Pediatrics ; 137(6)2016 06.
Artigo em Inglês | MEDLINE | ID: mdl-27244850

RESUMO

OBJECTIVES: To describe the prevalence of postdischarge outpatient rehabilitation among Medicaid-insured children hospitalized with a traumatic brain injury (TBI) and to identify factors associated with receipt of services. METHODS: Retrospective cohort of children <21 years, hospitalized for a TBI between 2007 and 2012, from a national Medicaid claims database. Outcome measures were receipt of outpatient rehabilitation (physical, occupational, or speech therapies or physician visits to a rehabilitation provider) 1 and 3 years after discharge. Multivariable regression analyses determined the association of demographic variables, injury severity, and receipt of inpatient services with receipt of outpatient rehabilitation at 1 and 3 years. The mean number of services was compared between racial/ethnic groups. RESULTS: Among 9361 children, only 29% received any type of outpatient rehabilitation therapy during the first year after injury, although 62% sustained a moderate to severe TBI. The proportion of children receiving outpatient therapies declined to 12% in the second and third years. The most important predictor of receipt of outpatient rehabilitation was receipt of inpatient therapies or consultation with a rehabilitation physician during acute care. Compared with children of other racial/ethnic groups, Hispanic children had lower rates of receipt of outpatient speech therapy. CONCLUSIONS: Hospitalized children who received inpatient assessment of rehabilitation needs were more likely to continue outpatient rehabilitation care. Hispanic children with TBI were less likely than non-Hispanics to receive speech therapy. Interventions to increase inpatient rehabilitation during acute care might increase outpatient rehabilitation and improve outcomes for all children.


Assuntos
Assistência Ambulatorial/estatística & dados numéricos , Lesões Encefálicas Traumáticas/reabilitação , Disparidades em Assistência à Saúde/etnologia , Adolescente , Lesões Encefálicas Traumáticas/etnologia , Criança , Pré-Escolar , Feminino , Hispânico ou Latino , Hospitalização , Humanos , Lactente , Masculino , Medicaid , Análise de Regressão , Estudos Retrospectivos , Estados Unidos , Adulto Jovem
10.
Am J Phys Med Rehabil ; 95(3): 204-13, 2016 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-26259055

RESUMO

OBJECTIVE: The objective of this study was to explore associations between English proficiency, insurance status, outpatient rehabilitation service availability, and travel time for children with traumatic brain injury. DESIGN: The authors used an ecologic cross-sectional design. Data were analyzed from a cohort of 82 children with moderate to severe traumatic brain injury and rehabilitation providers in Washington State. Main measures included availability and travel time to services. RESULTS: Less than 20% of providers accepted children with Medicaid and provided language interpretation. Mental health services were most limited. Adjusted for median household income, multilingual service availability was lowest in counties with greater language diversity; for every 10% increase in persons older than 5 yrs speaking a language other than English at home, there was a 34% decrease in availability of multilingual services (prevalence ratio, 0.66; 95% confidence interval, 0.48-0.90). Adjusted for education and Medicaid status, children from Spanish-speaking families had significantly longer travel times to services (mean, 16 additional minutes to mental health; 9 to other therapies). CONCLUSIONS: Children in households with limited English proficiency and Medicaid faced significant barriers in availability and proximity of outpatient rehabilitation services. Innovative service strategies are needed to equitably improve availability of rehabilitation for children with traumatic brain injury. Similar studies in other regions will inform one's understanding of the scope of these disparities.


Assuntos
Assistência Ambulatorial , Lesões Encefálicas/reabilitação , Acessibilidade aos Serviços de Saúde , Cobertura do Seguro , Seguro Saúde , Idioma , Criança , Estudos de Coortes , Estudos Transversais , Humanos , Terapia da Linguagem , Medicaid , Serviços de Saúde Mental , Modalidades de Fisioterapia , Fatores Socioeconômicos , Fonoterapia , Estados Unidos , Washington
11.
World J Orthop ; 6(7): 559-63, 2015 Aug 18.
Artigo em Inglês | MEDLINE | ID: mdl-26301184

RESUMO

A case of florid reactive periostitis ossificans (RPO) arising in a long bone is presented. This is a rare bone proliferation with a pronounced periosteal reaction. Less than 100 cases have been described in the literature with far fewer outside the bones of the hand, feet, fingers, and toes. Although the etiology is unknown, a relationship to preceding trauma is suggested. The imaging and histologic features show an overlap with other bone lesions including bizarre parosteal osteochondromatous proliferation, subungual exostosis, and malignant surface tumors of bone and cartilage which include, periosteal and parosteal osteosarcoma. It is important to recognize the clinical presentation and diagnostic features of RPO as a benign entity so that it is not mistaken for a more aggressive neoplasm. We present a case of a right distal humeral lesion that on histopathological review revealed florid RPO. This diagnosis was not suspected on imaging studies, but was made on open biopsy of the mass. The patient remains disease free, years postoperatively. In addition to presenting this unique case report, we review the pertinent literature, and offer a differential diagnosis and treatment strategy for its management.

13.
J Head Trauma Rehabil ; 29(3): 208-16, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-23835875

RESUMO

OBJECTIVE: To examine variations in processes of pediatric inpatient rehabilitation care related to family-centered care, management of neurobehavioral and psychosocial needs, and community reintegration after traumatic brain injury. SETTING: Nine acute rehabilitation facilities from geographically diverse areas of the United States. PARTICIPANTS: A total of 174 children with traumatic brain injury. DESIGN: Retrospective chart review. MAIN MEASURES: Adherence to care indicators (the number of times recommended care was delivered or attempted divided by the number of times care was indicated). RESULTS: Across facilities, adherence rates (adjusted for difficulty of delivery) ranged from 33.6% to 73.1% (95% confidence interval, 13.4-53.9, 58.7-87.4) for family-centered processes, 21.3% to 82.5% (95% confidence interval, 6.6-36.1, 67.6-97.4) for neurobehavioral and psychosocial processes, and 22.7% to 80.3% (95% confidence interval, 5.3-40.1, 68.1-92.5) for community integration processes. Within facilities, standard deviations for adherence rates were large (24.3-34.9, family-centered domain; 22.6-34.2, neurobehavioral and psychosocial domain; and 21.6-40.5, community reintegration domain). CONCLUSION: The current state of acute rehabilitation care for children with traumatic brain injury is variable across different quality-of-care indicators addressing neurobehavioral and psychosocial needs and facilitating community reintegration of the patient and the family. Individual rehabilitation facilities demonstrate inconsistent adherence to different indicators and inconsistent performance across different care domains.


Assuntos
Lesões Encefálicas/reabilitação , Fidelidade a Diretrizes/estatística & dados numéricos , Guias de Prática Clínica como Assunto , Indicadores de Qualidade em Assistência à Saúde/estatística & dados numéricos , Centros de Reabilitação/normas , Adolescente , Criança , Pré-Escolar , Integração Comunitária , Aconselhamento , Família , Feminino , Educação em Saúde , Humanos , Lactente , Recém-Nascido , Masculino , Indicadores de Qualidade em Assistência à Saúde/normas , Estudos Retrospectivos , Apoio Social , Estados Unidos
14.
J Neurotrauma ; 31(8): 722-7, 2014 Apr 15.
Artigo em Inglês | MEDLINE | ID: mdl-24294826

RESUMO

This study aimed to determine the prevalence and predictors of poor 3 and 12 month quality of life outcomes in a cohort of pediatric patients with isolated mild TBI. We conducted a prospective cohort study of children and adolescents <18 years of age treated for an isolated mild TBI, defined as "no radiographically apparent intracranial injury" or "an isolated skull fracture, and no other clinically significant non-brain injuries." The main outcome measure was the change in quality of life from baseline at 3 and 12 months following injury, as measured by the Pediatric Quality of Life index (PedsQL). Poor functioning was defined as a decrease in total PedsQL score of >15 points between baseline and follow-up scores (at 3 and 12 months). Of the 329 patients who met inclusion criteria, 11.3% (95% CI 8.3-15.3%) at 3 months and 12.9% (95% CI 9.6-17.2%) at 12 months following injury had relatively poor functioning. Significant predictors of poor functioning included less parental education, Hispanic ethnicity (at 3 months following injury, but not at 12 months); low household income (at 3 and 12 months), and Medicaid insurance (at 12 months only). Children and adolescents sustaining a mild TBI who are socioeconomically disadvantaged may require additional intervention to mitigate the effects of mild TBI on their functioning.


Assuntos
Lesões Encefálicas/complicações , Qualidade de Vida , Adolescente , Lesões Encefálicas/epidemiologia , Criança , Estudos de Coortes , Feminino , Humanos , Masculino , Prevalência , Fatores de Risco , Fatores Socioeconômicos
15.
Infant Ment Health J ; 35(2): 132-43, 2014.
Artigo em Inglês | MEDLINE | ID: mdl-25798519

RESUMO

This article provides a case study of a project to improve the health, safety, and development of children birth to 6 years old in a large orphanage in Nepal. Two interventions were conducted: improvement of physical infrastructure and training, mentoring, and support for caregiving staff. As a result of these interventions, positive outcomes in terms of children's health and development have been observed, including reduction of communicable diseases and increased social interactions with caregivers. As part of the new training initiative, the caregivers began to meet regularly to share their ideas and experiences, and came to realize their vital role in the holistic development of the children in their care. One important change was a greater sense of dignity for the caregivers. The caregivers were formerly called Maids (Aaya), but asked to be called Mothers (Aama). The project also faced challenges, including communication barriers related to organizational structure.


Assuntos
Orfanatos/organização & administração , Criança , Pré-Escolar , Humanos , Lactente , Recém-Nascido , Nepal , Orfanatos/métodos , Orfanatos/normas , Melhoria de Qualidade , Recursos Humanos
16.
J Pain ; 14(10): 1242-9, 2013 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-23911979

RESUMO

UNLABELLED: Traumatic brain injury (TBI) is a leading cause of pediatric disability. Although persistent pain has been recognized as a significant postinjury complication, there is a paucity of data concerning the postinjury pain experience of youth. This study aimed to examine the prevalence of persistent pain in adolescents after TBI, identify risk factors for pain, and evaluate the impact of pain on adolescent health-related quality of life. Participants included 144 adolescents with mild to severe TBI who were followed over 36 months after injury. At 3-, 12-, 24-, and 36-month assessments, measures of pain intensity, depression, posttraumatic stress disorder, and health-related quality of life were completed by adolescents. Findings demonstrated that 24.3% of adolescents reported persistent pain (defined as usual pain intensity ≥3/10) at all assessment points after TBI. Female sex (odds ratio = 2.73, 95% confidence interval = 1.12-6.63) and higher levels of depressive symptoms at 3 months after injury (odds ratio = 1.26, 95% confidence interval = 1.12-1.43) were predictors of persistent pain at 36 months. Furthermore, mixed linear models indicated that early pain experience at 3 months following TBI was associated with a significantly poorer long-term health-related quality of life. PERSPECTIVE: This is the first study to examine the prevalence of persistent pain over long-term follow-up in adolescents after TBI and its impact on health-related quality of life. These findings indicate that adolescents with TBI may benefit from timely evaluation and intervention to minimize the development and impact of pain.


Assuntos
Lesões Encefálicas/complicações , Dor Crônica/etiologia , Adolescente , Fatores Etários , Lesões Encefálicas/epidemiologia , Dor Crônica/epidemiologia , Estudos Transversais , Depressão/etiologia , Feminino , Escala de Coma de Glasgow , Humanos , Escala de Gravidade do Ferimento , Estudos Longitudinais , Masculino , Prevalência , Escalas de Graduação Psiquiátrica , Qualidade de Vida , Fatores de Risco , Fatores Sexuais , Fatores Socioeconômicos , Transtornos de Estresse Pós-Traumáticos/epidemiologia , Inquéritos e Questionários
17.
Pediatrics ; 131(6): e1850-6, 2013 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-23650302

RESUMO

OBJECTIVE: To compare the extent of disability in multiple areas of functioning after mild, moderate, and severe traumatic brain injury (TBI) between Hispanic and non-Hispanic white (NHW) children. METHODS: This was a prospective cohort study of children aged <18 years treated for a TBI between March 1, 2007, and September 30, 2008. Hispanic (n = 74) and NHW (n = 457) children were included in the study. Outcome measures were disability in health-related quality of life, adaptive skills, and participation in activities 3, 12, 24, and 36 months after injury compared with preinjury functioning. We compared change in outcome scores between Hispanic and NHW children at each follow-up time. All analyses were adjusted for age, gender, severity and intent of injury, insurance, family function at baseline, parental education, and income. RESULTS: The health-related quality of life for all children was lower at all follow-up times compared with baseline. Although NHW children showed some improvement during the first 3 years after injury, Hispanic children remained significantly impaired. Significant differences were also observed in the domains of communication and self-care abilities after TBI. Differences between groups in scores for participation in activities were also present but were only significant 3 months after injury. CONCLUSIONS: Hispanic children with TBI report larger and long-term reductions in their quality of life, participation in activities, communication, and self-care abilities compared with NHW children. The reasons for these differences need to be better understood and interventions implemented to improve the outcomes of these children.


Assuntos
Lesões Encefálicas/fisiopatologia , Avaliação da Deficiência , Disparidades nos Níveis de Saúde , Qualidade de Vida , Adolescente , Criança , Pré-Escolar , Estudos de Coortes , Etnicidade , Feminino , Seguimentos , Hispânico ou Latino , Humanos , Lactente , Recém-Nascido , Masculino , Estudos Prospectivos , Inquéritos e Questionários
18.
Brain Inj ; 27(2): 179-88, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23384215

RESUMO

OBJECTIVE: To examine variations in processes of paediatric inpatient rehabilitation care related to school re-entry and management of cognitive and communication impairments after traumatic brain injury. DESIGN: Retrospective cohort study. METHODS: Adherence to care processes recommended for children (aged 0-17) with moderate-to-severe traumatic brain injury and admitted for inpatient rehabilitation was assessed. Quality-of-care indicators for processes supporting school re-entry and cognitive and communication rehabilitation were applied to measure variations in care delivered to 174 children across nine facilities using medical record review. MAIN OUTCOMES AND RESULTS: Adherence rates (the number of times recommended care was delivered or attempted divided by the number of times care was indicated) were calculated, revealing substantial variations in care within and between facilities. Overall, children received 51.3% (95% CI = 31.9-70.7) and 72.3% (95% CI = 61.1-83.5), of the care recommended for school re-entry and cognitive and communication rehabilitation, respectively. CONCLUSION: Substantial variations exist in the delivery of paediatric inpatient rehabilitation care processes for managing school re-entry and cognitive and communication impairments after traumatic brain injury. Measures of association of these care processes with patient outcomes are necessary. Reduction in this variation is essential to improving quality of care.


Assuntos
Lesões Encefálicas/reabilitação , Pacientes Internados/estatística & dados numéricos , Planejamento de Assistência ao Paciente/organização & administração , Pediatria/organização & administração , Instituições Acadêmicas , Estudantes/psicologia , Absenteísmo , Adaptação Psicológica , Adolescente , Análise de Variância , Atitude do Pessoal de Saúde , Lesões Encefálicas/epidemiologia , Lesões Encefálicas/psicologia , Canadá/epidemiologia , Criança , Pré-Escolar , Estudos de Coortes , Comunicação , Feminino , Humanos , Lactente , Recém-Nascido , Pacientes Internados/psicologia , Acontecimentos que Mudam a Vida , Masculino , Pais , Indicadores de Qualidade em Assistência à Saúde , Centros de Reabilitação , Estudos Retrospectivos , Estados Unidos/epidemiologia
19.
Am J Public Health ; 102(11): 2074-9, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22994196

RESUMO

OBJECTIVES: We examined the burden of disability resulting from traumatic brain injuries (TBIs) among children younger than 18 years. METHODS: We derived our data from a cohort study of children residing in King County, Washington, who were treated in an emergency department for a TBI or for an arm injury during 2007-2008. Disabilities 12 months after injury were assessed according to need for specialized educational and community-based services and scores on standardized measures of adaptive functioning and social-community participation. RESULTS: The incidence of children receiving new services at 12 months was about 10-fold higher among those with a mild TBI than among those with a moderate or severe TBI. The population incidence of disability (defined according to scores below the norm means on the outcome measures included) was also consistently much larger (2.8-fold to 28-fold) for mild TBIs than for severe TBIs. CONCLUSIONS: The burden of disability caused by TBIs among children is primarily accounted for by mild injuries. Efforts to prevent these injuries as well as to decrease levels of disability following TBIs are warranted.


Assuntos
Lesões Encefálicas/complicações , Pessoas com Deficiência/estatística & dados numéricos , Adolescente , Traumatismos do Braço/epidemiologia , Lesões Encefálicas/epidemiologia , Criança , Pré-Escolar , Avaliação da Deficiência , Feminino , Escala de Coma de Glasgow/estatística & dados numéricos , Humanos , Incidência , Lactente , Masculino , Serviço Social/estatística & dados numéricos , Fatores de Tempo , Washington/epidemiologia
20.
J Neurotrauma ; 29(15): 2499-504, 2012 Oct 10.
Artigo em Inglês | MEDLINE | ID: mdl-22757748

RESUMO

This study examined the outcome of 0- to 17-year-old children 36 months after traumatic brain injury (TBI), and ascertained if there was any improvement in function between 24 and 36 months. Controls were children treated in the emergency department for an arm injury. Functional outcome 36 months after injury was measured by the Pediatric Quality of Life Inventory (PedsQL), the self-care and communication subscales of the Adaptive Behavior Assessment Scale-2nd edition (ABAS-II), and the Child and Adolescent Scale of Participation (CASP). At 36 months after TBI, those with moderate or severe TBI continued to have PedsQL scores that were 16.1 and 17.9 points, respectively, lower than at baseline, compared to the change seen among arm injury controls. Compared to the baseline assessment, children with moderate or severe TBI had significantly poorer functioning on the ABAS-II and poorer participation in activities (CASP). There was no significant improvement in any group on any outcomes between 24 and 36 months. Post-injury interventions that decrease the impact of these deficits on function and quality of life, as well as preventive interventions that reduce the likelihood of TBI, should be developed and tested.


Assuntos
Lesões Encefálicas/complicações , Qualidade de Vida , Recuperação de Função Fisiológica , Adolescente , Criança , Pré-Escolar , Estudos de Coortes , Avaliação da Deficiência , Feminino , Seguimentos , Humanos , Lactente , Recém-Nascido , Masculino , Inquéritos e Questionários
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