RESUMO
PURPOSE OF THE STUDY: Little research has examined the lasting impact of the arts. As part of a longitudinal research project, we set out to examine how personal images, understandings, and actions of family members (FMs) of persons with dementia and health care professionals (HCPs) change after the introduction of a research-based drama about the experiences of living with dementia called I'm Still Here. This article focuses on the shorter- (6 weeks) and longer-term (12 months) experiences of engaging with I'm Still Here and how those experiences triggered personal transformation. DESIGN AND METHODS: Informed by phenomenology, this article presents findings from follow-up telephone interviews conducted 6 weeks and 12 months after FMs of persons with dementia and HCPs attended a live performance of I'm Still Here. RESULTS: The phenomenological shifts reflected in the longitudinal data suggest a process of engagement with research-based drama that involves four themes: bearing witness to suffering evokes compassion; expanding with new awareness and understanding; finding comfort, confidence, and courage to change; and envisioning and enacting new possibilities. IMPLICATIONS: Findings demonstrate the possibilities of the arts for knowledge mobilization in changing the culture of dementia care through a process of illuminating new and enduring realizations and transforming actions and practices.
Assuntos
Atitude do Pessoal de Saúde , Atitude Frente a Saúde , Cuidadores , Demência/enfermagem , Drama , Pessoal de Saúde , Demência/terapia , Empatia , Feminino , Humanos , Estudos Longitudinais , MasculinoRESUMO
The purpose of this research was to uncover the structure of the lived experience of living with changing expectations from the perspectives of women with high-risk pregnancies. The researchers' nursing theoretical perspective is the humanbecoming theory and the Parse research method was used. For the participants, living with changing expectations is foreboding disquietude arising with arduous restrictions, while envisioning the yearned-for with mitigating nurturing engagements. Findings enhance the theory of humanbecoming as well as enhance understanding of the experience of living with changing expectations. Recommendations for future research and practice are discussed.
Assuntos
Adaptação Psicológica , Atitude Frente a Saúde , Pacientes Internados/psicologia , Pesquisa Metodológica em Enfermagem/métodos , Teoria de Enfermagem , Gravidez de Alto Risco/psicologia , Atividades Cotidianas/psicologia , Adulto , Ira , Medo/psicologia , Feminino , Frustração , Desenvolvimento Humano , Humanos , Controle Interno-Externo , Gravidez , Pesquisa Qualitativa , Projetos de Pesquisa , Autoimagem , SemânticaAssuntos
Desenvolvimento Humano , Papel do Profissional de Enfermagem , Cuidados de Enfermagem/organização & administração , Pesquisa em Enfermagem/organização & administração , Teoria de Enfermagem , Filosofia em Enfermagem , Atitude do Pessoal de Saúde , Docentes de Enfermagem/organização & administração , Humanos , Modelos de Enfermagem , Pesquisadores/psicologiaRESUMO
The purpose of this research was to discover the structure of the lived experience of being listened to from the perspective of 10 older women receiving in-patient rehabilitation. The Parse research method was used to guide this study where music was used in the dialogical engagement process. The women told their stories and created melodies of being listened to with the researcher using her flute. The findings include three core concepts--an acknowledging engagement, gratifying contentment, and an unburdening respite. Findings extend the theory of human becoming, enhance understanding of the experience of being listened to, and affirm its value.
