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1.
J Med Internet Res ; 26: e51671, 2024 Feb 12.
Artigo em Inglês | MEDLINE | ID: mdl-38345849

RESUMO

As the field of public health rises to the demands of real-time surveillance and rapid data-sharing needs in a postpandemic world, it is time to examine our approaches to the dissemination and accessibility of such data. Distinct challenges exist when working to develop a shared public health language and narratives based on data. It requires that we assess our understanding of public health data literacy, revisit our approach to communication and engagement, and continuously evaluate our impact and relevance. Key stakeholders and cocreators are critical to this process and include people with lived experience, community organizations, governmental partners, and research institutions. In this viewpoint paper, we offer an instructive approach to the tools we used, assessed, and adapted across 3 unique overdose data dashboard projects in Rhode Island, United States. We are calling this model the "Rhode Island Approach to Public Health Data Literacy, Partnerships, and Action." This approach reflects the iterative lessons learned about the improvement of data dashboards through collaboration and strong partnerships across community members, state agencies, and an academic research team. We will highlight key tools and approaches that are accessible and engaging and allow developers and stakeholders to self-assess their goals for their data dashboards and evaluate engagement with these tools by their desired audiences and users.


Assuntos
Overdose de Drogas , Alfabetização , Humanos , Estados Unidos , Rhode Island/epidemiologia , Saúde Pública , Sistemas de Painéis , Overdose de Drogas/prevenção & controle
3.
J Urban Health ; 100(5): 1062-1073, 2023 10.
Artigo em Inglês | MEDLINE | ID: mdl-37563518

RESUMO

Long-acting injectable antiretroviral therapy (LAI-ART) is a novel method to deliver HIV treatment, and the first regimen was approved in the USA in 2021. LAI-ART may mitigate barriers to oral treatment adherence, but little is known about LAI-ART perceptions among people living with HIV (PLWH) who use drugs, despite these populations facing greater barriers to treatment retention and ART adherence. We assessed LAI-ART perceptions and implementation considerations among PLWH who use drugs and health and ancillary service providers in Rhode Island. Data was collected from November 2021 to September 2022, and include in-depth interviews with 15 PLWH who use drugs and two focus groups with HIV clinical providers (n = 8) and ancillary service providers (n = 5) working with PLWH who use drugs. Data were analyzed thematically, with attention paid to how levels of structural vulnerability and social-structural environments shaped participants' LAI-ART perceptions and the HIV care continuum. Willingness to consider LAI-ART was impacted by HIV outcomes (e.g., viral suppression) and previous experiences with oral regimens, with those on stable regimens reluctant to consider alternative therapies. However, LAI-ART was seen as potentially improving HIV outcomes for PLWH who use drugs and enhancing people's quality of life by reducing stress related to daily pill-taking. Recommendations for optimal implementation of LAI-ART varied across participants and included decentralized approaches to delivery. HIV care delivery must consider the needs of PLWH who use drugs. Developing patient-centered and community-based delivery approaches to LAI-ART may address adherence challenges specific to PLWH who use drugs.


Assuntos
Fármacos Anti-HIV , Infecções por HIV , Humanos , Rhode Island , Preparações Farmacêuticas , HIV , Qualidade de Vida , Infecções por HIV/tratamento farmacológico , Fármacos Anti-HIV/uso terapêutico
5.
R I Med J (2013) ; 103(5): 22-25, 2020 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-32481775

RESUMO

Hepatitis C Virus (HCV) continues to be a cause of significant morbidity and mortality around the world surpassing HIV, Tuberculosis and Malaria as the leading cause of death by an infectious disease. In the United States, advances in screening, testing and treatment have put the goal set by the World Health Organization (WHO) to HCV elimination within reach. Rhode Island has taken an innovative public health approach to eliminating HCV by improving disease surveillance activities, supporting disease reduction strategies and removing barriers across the continuum of care, particularly for populations that are disproportionately impacted by the disease. Through the coordination of the Rhode Island Hepatitis C Action Coalition, the Rhode Island Department of Health (RIDOH), the Executive Office of Health and Human Services (EOHHS), community organizations, and clinical leaders, important steps have been taken to reduce transmission of the disease and work toward HCV elimination.


Assuntos
Erradicação de Doenças , Hepatite C/prevenção & controle , Saúde Pública , Programas Governamentais , Redução do Dano , Hepatite C/epidemiologia , Humanos , Aceitação pelo Paciente de Cuidados de Saúde , Rhode Island/epidemiologia
6.
R I Med J (2013) ; 97(7): 31-4, 2014 Jul 01.
Artigo em Inglês | MEDLINE | ID: mdl-24983019

RESUMO

As Rhode Island's only needle exchange program, ENCORE (Education, Needle Exchange, Counseling, Outreach, and REferrals) serves a wide range of clients infected or at risk for infection with hepatitis C virus (HCV). Through its on-site and outreach platforms across Rhode Island, ENCORE is in a unique position to serve at-risk individuals who may not otherwise present for prevention, testing and care for HCV, as well as human immunodeficiency virus (HIV). In this article, we discuss the role of needle exchange programs in preventing HCV transmission, and provide an overview of the history and current operations of ENCORE.


Assuntos
Hepatite C Crônica/prevenção & controle , Programas de Troca de Agulhas , Aconselhamento , Feminino , Redução do Dano , Promoção da Saúde , Humanos , Masculino , Encaminhamento e Consulta , Rhode Island , Fatores de Risco , Abuso de Substâncias por Via Intravenosa/prevenção & controle
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