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1.
Clin Exp Dermatol ; 49(1): 9-17, 2023 Dec 19.
Artigo em Inglês | MEDLINE | ID: mdl-37706273

RESUMO

Atopic dermatitis (AD) is associated with high levels of psychosocial burden, often resulting in poor mental health outcomes. Despite this association, few studies have evaluated the efficacy of mental health interventions within this population. Utilization of multidisciplinary and peer-led support, in addition to equipping patients with psychological tools, may be beneficial in improving mental health outcomes. Future research is needed to determine which interventions and formats are desired by, effective in and accessible to patients and caregivers with AD.


Assuntos
Dermatite Atópica , Humanos , Dermatite Atópica/epidemiologia , Saúde Mental , Cuidadores/psicologia , Qualidade de Vida
2.
Dermatitis ; 31(3): 223-227, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32091463

RESUMO

BACKGROUND: The impact of pediatric atopic dermatitis (AD) on families is largely hidden from view, and AD is commonly misunderstood as a minor skin condition. Few studies have examined the full burden of AD from the family perspective. OBJECTIVE: The aim of the study was to assess the burden of AD on children and families using a caregiver-centered survey. METHODS: A 72-item anonymous online survey was posted on social media sites targeted to or composed of parents of children with AD. It explored the following 9 domains of impact: sleep, social isolation, time requirements, life decisions, family relationship dynamics, energy/fatigue, mental health impacts, and unmet treatment needs. Atopic dermatitis severity was reported by respondents using the Patient-Oriented Eczema Measure. Statistical analyses were conducted using R 3.6.0. RESULTS: Two hundred thirty-five individuals completed the survey during the 1-month period that it was promoted via social media. Caregivers reported frequent sleep disturbance, exhaustion, worry, and social isolation related to their child's AD. CONCLUSIONS: Results highlight the need for psychosocial support and respite care for caregivers of children with AD.


Assuntos
Ansiedade , Sobrecarga do Cuidador , Efeitos Psicossociais da Doença , Dermatite Atópica , Fadiga , Pais/psicologia , Sono , Isolamento Social , Criança , Pré-Escolar , Relações Familiares , Feminino , Humanos , Lactente , Masculino , Avaliação das Necessidades , Sistemas de Apoio Psicossocial , Índice de Gravidade de Doença , Fatores de Tempo
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