RESUMO
The evolution of Patient-Generated Health Data (PGHD) represents a major shift in healthcare, fueled by technological progress. The advent of PGHD, with technologies such as wearable devices and home monitoring systems, extends data collection beyond clinical environments, enabling continuous monitoring and patient engagement in their health management. Despite the growing prevalence of PGHD, there is a lack of clear understanding among stakeholders about its meaning, along with concerns about data security, privacy, and accuracy. This article aims to thoroughly review and clarify PGHD by examining its origins, types, technological foundations, and the challenges it faces, especially in terms of privacy and security regulations. The review emphasizes the role of PGHD in transforming healthcare through patient-centric approaches, their understanding, and personalized care, while also exploring emerging technologies and addressing data privacy and security issues, offering a comprehensive perspective on the current state and future directions of PGHD. The methodology employed for this review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines and Rayyan, AI-Powered Tool for Systematic Literature Reviews. This approach ensures a systematic and comprehensive coverage of the available literature on PGHD, focusing on the various aspects outlined in the objective. The review encompassed 36 peer-reviewed articles from various esteemed publishers and databases, reflecting a diverse range of methodologies, including interviews, regular articles, review articles, and empirical studies to address three RQs exploratory, impact assessment, and solution-oriented questions related to PGHD. Additionally, to address the future-oriented fourth RQ for PGHD not covered in the above review, we have incorporated existing domain knowledge articles. This inclusion aims to provide answers encompassing both basic and advanced security measures for PGHD, thereby enhancing the depth and scope of our analysis.
RESUMO
The Internet of Medical Things (IoMT) emerges with new trendsetter device applications, where it defines the incorporation of medical devices with the Internet of Things (IoT). The healthcare sector continues to encounter challenging obstacles that have an impact on the quality of treatment provided to patients. To get rid of this problem, IoMT is being deployed to achieve the high reliability and efficiency of the health system. The IoMT devices are superimposed with clinical information as they contain the details of patient health data, address, and other patient identifiers. By containing such amount of sensitive information, it becomes cumbersome to preserve data privacy and security. Due to inadequate security and privacy precautions, patient health data is susceptible to leakage, which has a direct impact on the patient's life. In addition, the majority of medical devices are susceptible to cyberattacks, putting patient information at risk. Inadequate control of life-support equipment can have a devastating effect on patient outcomes. Thus, this survey intends to review the various security models of IoMT devices using standard techniques to support health care systems. It provides a wide range of literature reviews regarding IoMT systems and compares them with traditional methodologies. This review work exhibits the motivation for current technologies to maintain the security and privacy of patients' data with IoMT devices. The systematic review entails background on security in IoMT devices, techniques for security, usage of diverse validation measures, and also discusses the problems and motivation for future research work.
